A mom of a daughter who has died of a cancer related illness has expressed on her blog how angry she is after seeing the broadcast on the news about cancer death rates declining....I think these are valid points that need to be addressed.
This week has been kind of emotional for me. I'm not going to spend a lot of time writing about me, because I am kind of angry right now. Yesterday, as I was watching the news while getting ready for work, there was a spot that they were talking about how excited they were that deaths from cancer showed a tremendous decrease last year. I agree, it is good news - however, the only cancers they talked about and showed the figures for were ADULT cancers (breast cancer, colon cancer, prostrate cancer, etc). Where are the numbers on childhood cancers? And - until the number is 0, I see no reason to get really excited.
According to the Lance Armstrong Foundation - With every second of 2006 two Americans were diagnosed with cancer and one died. Think about that! That is like re-living the horror of 9/11 every two days for the entire year. As a nation we have become too complacent about this disease (last year, for the first time in 35 years, governmental funding for cancer decreased) and that can no longer be tolerated.
After spending hours on the computer doing some research - I found this:
It is difficult to find current information and statistics on childhood cancers. And, I guess one of my questions is, where does Courtney fit in these statistics. Did she fit in the "cured" survival rate because she was considered cancer free for over 5 years? Is her death considered in the cancer death statistic for 2006 - the cause of death was not cancer, but necrotizing faciitis - however, she would not have contracted this deadly bacteria or been immune compromised if not for cancer.
I guess my point is - where are the priorities of our health care leaders and our nation. How can we pay someone $250 million dollars to come to the US and play soccer (Dave Beckham) , when there is such a tremendous need for not only medical research, but children without insurance that are being denied medical treatment (transplants) because they don't have the money. How many children have to die? What is it going to take?
I have been following about 12 online journals written by mothers of cancer patients. I began reading the journals while in the hospital with Courtney - it was what filled the long nights of no sleep. It breaks my heart to tell you that 5 of those children have now passed away and 2 more are home on hospice. I have written before about how mothers of children with cancer are members of a club that we never wanted to join. I now find myself in a new club - mothers who have lost a child to cancer. How big does this club have to get before something more is done? How many broken hearts? How many shattered families?
I have been trying to get through the paperwork to get Courtney's Angel Foundation off the ground - however, it is extremely difficult without the aid of a lawyer. I have not given up - it is just going to take some time and money to get things going. I appreciate all of you who have written to let me know that you want to be part of it and so I ask for you to continue to bear with me. I am still dreaming BIG - I am determined to do it for Court -I am determined to do it for all of the children who are spending their days in the hospital instead of living the life that they deserve.
1. Not only is there little information about childhood cancer, there is almost nothing on young adults. As a member of this invisible population, I'm irritated by statistics about the overall decrease in morbidity. "The five year survivorship rates for young adults (age 20 through 40) with cancer has remained unchanged for the past 30 years" (LAF website). It's no wonder progress isn't made when few clinical trials and research projects focus on this population.
Posted at 2:17PM on Jan 22nd 2007 by Laura Wilson