1. I'd be very interested in the film -- and as someone recently diagnosed with prostate cancer, have been thinking about writing about my own experiences. These include meeting with several of the very best doctors in the field (including Dr. Ballentine at Johns Hopkins, top open surgery doctor, Dr. Ling Su at Hopkins, who does robotics there, Dr. Mani Menon at the Vattikuti Institute in Detroit, who introduced Da Vinci surgery to the US, and am meeting this week with Dr. John Sylvester at the Seattle Prostate Institute, who, along with Dr. Peter Grimm, also at Seattle, and Dr. Michael Zelefsky at Sloane Kettering Cancer Center, seem to be the leaders in brachytherapy. I would be pleased to share my experiences and conclusions if anyone is interested.

Posted at 10:52AM on Mar 22nd 2007 by Adam Wenner

2. Adam,

You have certainly consulted some of the well-known, highly respected doctors and have racked up some frequent flyer miles doing it! I admire what you are doing to become an empowered patient.

Here are some ideas on other experts and on sharing what you are learning. I am a seven year survivor, and I too have a strong drive to share what I have learned.

In addition to Dr. Carter, there are a number of other surgeons with sterling reputations. To name a few, starting with colleagues of Dr. Carter at Johns Hopkins, Drs. Patrick Walsh and Allen Partin, Dr. Peter Scardino of Memorial Sloan Kettering, and Dr. William Catalona, now from Northwestern. In robotic surgeon, Dr. Tewari of New York Presbyterian Hospital and Dr. Krongrad in Florida would be on my short list. For brachytherapy, Dr. Michael Dattoli of Sarasota could certainly contend for top honors, and Dr. Critz of the Radiation Clinics of Georgia would certainly also throw his hat in. Like the Seattle brachytherapy team, Dr. Dattoli has described his approach in a book for patients. (He collaborated with them on a text for doctors.)

Dr. Carter is also well-known for leading one of several clinical trials that are proving that deferred therapy is often a reasonable option for low-risk men, especially men in their seventies. If your case is low risk and you would not mind sharing your experience, I would like to know if he discussed that option with you and what he said. (He spoke about that trial at our National Convention on Prostate Cancer 2005 in Washington, DC.)

It is most helpful to have new and energetic patients like you share what they are learning. One place is at AOL's set of PC boards, now available free to all at: Health> Health Community Message Boards > Illness/Condition Boards > Prostate Cancer. Another is under the set of free email exchanges at www.prostatepointers.org, which also features archives of years worth of searchable messages once you have registered. Prostatepointers also will send you a great set of links to other resources, including places to share what you are learning. Some include the PPML (Prostate Problems Mailing List) and YANA (You Are Not Alone). One of the free website services is at www.mycancerplace.com; it also has other worthwhile features. In short, there is an abundance of places to exchange knowledge, and that's a good thing for a disease that affects about 200,000 new patients a year.

You might also consider joining a state prostate cancer coalition. There are now active coalitions in thirty two states as well as the District of Columbia. You can get information from the National Alliance of State Prostate Cancer Coalitions at at http://www.naspcc.org/. That's probably more than you want to take on at the moment, but please remember it after you have had therapy. We could use your energy! I'm putting some of my own case details by my signature so you can see some other options and opportunities.

Jim (Initially high risk, challenging case; now at age 63 in SECOND OFF THERAPY PERIOD, starting 12/13/2006, FOLLOWING SECOND ROUND OF INTERMITTENT TRIPLE HORMONAL BLOCKADE. NO SURGERY OR RADIATION. ORIGINAL DIAGNOSIS December 1999, age 56 and otherwise fit and healthy, with PSA 113.6, GS 4+3=7 confirmed by expert; all cores +, most 100% and perineural; BS and CT negative; later ProstaScint essentially negative. PREVIOUS (FIRST) ROUND OF INTERMITTENT TRIPLE BLOCKADE FULL THERAPY PERIOD: (fine response): 30 months on Lupron, adding Casodex, adding Proscar for triple therapy for 22 months of the 30, PSA less than .05 for a year with low point of less than 0.01, then off Lupron and Casodex from July 17, 2002 for 34 months, soon feeling fine and free of side effects, with Proscar, Fosamax, Celebrex and brief Avodart in support, plus low dose thalidomide for last 6 months, with PSA finally rising and reaching 10.4 on 5/4/2005. SECOND ROUND OF TRIPLE BLOCKADE - fine response during full therapy phase; started May 18, 2005 -- Lupron, Casodex 50 mg, Proscar 5 mg X 2, plus Fosamax and Celebrex in support (dropped Celebrex 1/31/5 due to change in insurance coverage of the drug); PSA 1.6 6/29/5, .9 7/29/5; 7/29 vitamin D3 75 (ref 15-60), explainable and ok; 8/24 PSA .53; 9/7 PSA .46 (just before next 4 month Lupron) ultrasensitive, on 10/26/5 PSA .21 and 76 vitamin D3; 12/28/5 PSA .12, Testosterone 22, vitamin D 57 (winter effect – increasing vitamin D3 supplement); PSA 0.07 2/24/6, 45 for vitamin D3; 4/21/06 0.04; 8/23/6 0.02 (clarified by a second analysis after “less than 0.05" using a new testing lab – Tosoh analyzer) and testosterone 20 and vitamin D 54; continued to fall to

Posted at 1:05PM on Mar 25th 2007 by Jim Waldenfels

3. Adam,You have certainly consulted some of the well-known, highly
respected doctors and have racked up some frequent flyer miles doing
it! I admire what you are doing to become an empowered patient.Here
are some ideas on other experts and on sharing what you are learning.
I am a seven year survivor, and I too have a strong drive to share
what I have learned.

In addition to Dr. Carter, there are a number of
other surgeons with sterling reputations. To name a few, starting
with colleagues of Dr. Carter at Johns Hopkins, Drs. Patrick Walsh
and Allen Partin, Dr. Peter Scardino of Memorial Sloan Kettering, and
Dr. William Catalona, now from Northwestern. In robotic surgery, Dr.
Tewari of New York Presbyterian Hospital and Dr. Krongrad in Florida
would be on my short list. For brachytherapy, Dr. Michael Dattoli of
Sarasota could certainly contend for top honors, and Dr. Critz of the
Radiation Clinics of Georgia would certainly also throw his hat in.
Like the Seattle brachytherapy team, Dr. Dattoli has described his
approach in a book for patients. (He collaborated with them on a
text for doctors.)Dr. Carter is also well-known for leading one of
several clinical trials that are proving that deferred therapy is
often a reasonable option for low-risk men, especially men in their
seventies. If your case is low risk and you would not mind sharing
your experience, I would like to know if he discussed that option
with you and what he said. (He spoke about that trial at our
National Convention on Prostate Cancer 2005 in Washington, DC.)It is
most helpful to have new and energetic patients like you share what
they are learning. One place is at AOL's set of PC boards, now
available free to all at: Health> Health Community Message Boards >
Illness/Condition Boards > Prostate Cancer. Another is under the set
of free email exchanges at www.prostatepointers.org, which also
features archives of years worth of searchable messages once you have
registered. Prostatepointers also will send you a great set of links
to other resources, including places to share what you are learning.
Some include the PPML (Prostate Problems Mailing List) and YANA (You
Are Not Alone). One of the free website services is at
www.mycancerplace.com; it also has other worthwhile features. In
short, there is an abundance of places to exchange knowledge, and
that's a good thing for a disease that affects about 200,000 new
patients a year.You might also consider joining a state prostate
cancer coalition. There are now active coalitions in thirty two
states as well as the District of Columbia. You can get information
from the National Alliance of State Prostate Cancer Coalitions at
http://www.naspcc.org/. That's probably more than you want to take
on at the moment, but please remember it after you have had therapy.
We could use your energy!

I'm putting a link to some of my own case details by
my signature so you can see some other options and opportunities.

Jim (http://www.mycancerplace.com/profile.php?id=147)

Posted at 2:55PM on Mar 25th 2007 by Jim Waldenfels

4. Hello. I am a physician and I wrote a very interesting piece about prostate cancer at:

http://cancerdocchitown.blogspot.com

I don't think anyone can afford not to read it.

Sincerely,

Cancer Specialist

Posted at 9:04PM on May 4th 2007 by rortiz24

5. Hi, I had this problem with my prostate and I think the best remedy that you can get is the natural medicine treatment. If you are looking for information about natural medicine, prostate cancer, prostate health and free remedies, I found this website on the internet. Check it and read it. http://www.prostate-breastcancer.com .

Posted at 8:45AM on May 8th 2007 by ilie paul

6. I love this at the site you want us to link to, ilie paul:

PROVEN REMEDY #4- Shock cancer cells to death with a nine volt battery! More than 65,000 patients demonstrate that a mild electric current literally dissolves cancer tissue.

So I can be cured if I just take my battery out of my smoke detector as SHOCK myself with it?

Love those German natural remedy for cancer sites. All I need to do is open up my wallet.....

Posted at 4:50PM on May 8th 2007 by hchcec

7. Hello. I wanted to bring attention to a new medication that will soon be FDA approved to treat prostate cancer.

It is called Satraplatin and I compiled some important information about the drug at:

http://cancerdocchitown.blogspot.com


Sincerely,
Cancer Specialist

Posted at 5:19PM on May 15th 2007 by rortiz24