We have written here at the cancer blog about Courtney Nicole a few times. You can find posts here and here. Courtney passed way about eight months ago. Her mom still keeps a journal of what is going on in her life and how she is coping with the loss of her nineteen year old daughter.

I find myself going to her site often to see how she is doing. It is heartbreaking to read her words at times and encouraging at other times. She is trying to go on -- but how, without her daughter?

Recently, Court's mom posted Its Like a Scab! on her website. Here's what she said:

Young patients that are diagnosed with a form of leukemia called acute lymphoblastic leukemia (ALL) are at an increased risk of relapse if they have a high body mass index at the time of diagnosis.

Dr. Anna M. Butturini, lead investigator of a study that reported the findings, said "Obesity is associated with lower probability of cure in pre-adolescents and teenagers with ALL. A current analysis suggests that the same is true for adults with the same disease".

Dr. Butturini thinks that there is a need for better understanding of why obese patients have an increased risk of relapse. If this is found out, then better therapies for these young patients could be potentially designed.

Cigna Corp. is offering a free video game for teens called Re-Mission. The video game lets teens and young adults blast cancer while learning how to improve the odds of beating the disease.

The creator of the game is Hopelab, a non-profit organization seeking to improve the health of young people with a mix of good science and fun technology. Re-Mission is a teen-rated shooting game featuring a nanobot named Roxxi who roams inside the bodies of fictional cancer patients, destroying cancer cells, battling bacteria infections and managing side effects associated with cancer and cancer treatments.

Those who have been treated for Hodgkin's disease have a 3.6 fold increased risk of heart attack and a 4.9 fold increased risk of congestive heart failure than the general population.

A study was conducted to assess the long-term cardiovascular disease risk in a group of 1474 patients, who survived Hodgkin's lymphoma for at least five years.

Records showed that 28 percent received radiation only; 5 percent had chemotherapy only; 38 percent were treated with radiation and chemotherapy, which did not include anthracyclines, drugs known to damage the heart; and 29 percent received radiation plus chemotherapy with anthracyclines. Of these patients, a total of 84 percent were treated with radiation to the chest.

The study group detected 160 cases of valve disorders, 134 cases of angina, 102 heart attacks and 52 cases of congestive heart failure. Among subjects treated before the age of 20, the risk of angina and congestive heart failure were significantly higher than for those treated when they were older, suggesting that "immature cardiovascular tissue may be more vulnerable to radiation and chemotherapy."

The study team hopes that the outlook for survivors of Hodgkin's lymphoma will brighten over time, as fewer patients are receiving radiation therapy, and when they do, dosages are reduced and patients' hearts are at least partially shielded.

The recommendation for those treated for Hodgkin's is to consider some risk reducing strategies, such as treating high blood pressure and high cholesterol and advising patients to eliminate controllable risk factors.

This post isn't meant to scare anyone diagnosed with Hodgkin's that has been treated with radiation or chemotherapy. I was given an anthracycline as therapy for my breast cancer -- it does linger in the back of my mind that this drug is harmful to the heart and could cause problems later on in my life. I think that those treated for Hodgkin's, especially at a young age when treatments might have been less safe, should think about their lifestyle choices. Talk to your doctor about ways to decrease your risk of these heart problems.

Alese was diagnosed with Hodgkin's disease when she was seventeen years old. This was back in November of 2001 and Alese has been fighting this disease on and off since that time.

After her initial treatment of the standard chemotherapy regimen for Hodgkin's, Alese had her first recurrence after only four months. Alese then received a stem cell transplant in December of 2002 and she was cancer free for two years. On November 18, 2004 it was found that Alese had another recurrence of Hodgkin's.

I have been reading Alese's journal on her blog called Alese Coco Fight 2 Win. She is a courageous young women. You can read her story here, it is very inspirational.

It has been a scary weekend since Alese's family were told that they might have to start making 'end of life' decisions. Alese was having many complications from her disease that it was threatening to take her life. Thankfully, it seems things are looking better this morning. Check out her journal and if you like leave an encouraging message!

Josie Grove's family said that she died "with dignity" after her two and a half year battle with leukemia. Josie, a talented artist and swimmer, announced in December that she wanted to enjoy what remained of her young life after her treatments had failed to cure her disease.

Josie, sixteen, died yesterday at home surrounded by her parents and siblings.

"The Grove family would like to thank all of those who gave what can only be described as overwhelming support during her final months and which helped give her strength and courage to carry on during her illness"

Smoking is not an easy habit to break, and of the many methods tried, only a handful seem to work. Of the methods that do seem to work -- nicotine-replacement products; bupropion drugs; counseling; classes; calling a helpline or talking to a health professional -- younger smokers between the ages of 16 and 24 years who smoke and try to quit only use one of the recommended methods of help by talking to a professional. Because of this, younger smokers are less likely to be successful in quitting, according to the US Centers for Disease Control and Prevention (CDC).

During the 2003 National Youth Smoking Cessation Survey, the CDC found that younger smokers most often tried to quit smoking by cutting back on the number of cigarettes they smoked each day; not buying cigarettes; exercising; using the buddy system and trying to quit with a friend; telling others they were quitting and changing to a lighter brand of cigarette, switching to chewing tobacco, snuff, or other tobacco products. None of these methods are recommended by the US Public Health Service.

According to the National Youth Smoking Cessation Survey, 77 percent of younger smokers have tried to quit at least once without success. Over a third have tried to quit smoking numerous times without success. Researchers suggest that many younger smokers may need help with other high-risk behaviors such as binge drinking; depression or ADD/ADHD.

If you are a younger smoker who is trying to quit, the CDC encourages you to call 1-800-QUIT-NOW or talk to your physician about methods that might lead to more success. The 2-page summary of the National Youth Smoking Cessation Survey is available as a pdf document.

It is the truest spirit of giving in a story told the day after the most celebrated day of giving in a season of giving, where lives intersect in unexpected ways that remind us of the best in who we are as human beings.

A brother and sister, 15-year-old Stephanie and 18-year-old Kevin Hudon, are both facing cancer. Stephanie's bone cancer has spread to her lungs and her brother is currently undergoing chemotherapy for Hodgkin's lymphoma.

A teacher at the high school both Stephanie and Kevin attend, Christine Monahan, had been spearheading a fundraiser to financially help the family through this overwhelming time. Last month, Nathan Burditt, a student who attends the same high school, spent 34 hours in line to buy the coveted and hard-to-come-by PlayStation 3. Monahan said she was kidding when she suggested to Burditt that he donate the newly-acquired gaming system to a raffle to help the Hudon family.

But Burditt took her seriously and donated the popular PlayStation 3. The PlayStation 3, one of the it gaming systems this year, attracted $21,000 dollars in raffle ticket sales. Before the PlayStation 3, Monahan had expected to raise $500 dollars during the raffle. Ticket buyers to the raffle, knowing of Burditt's unselfish act of compassionate charity, wrote his name, not their own, on the raffle tickets they bought. Because of this, Burditt won back the PlayStation 3 he had donated.

The simple acts of kindness for a brother and sister struggling to survive cancer made national news. Enter comedic actor Adam Sandler. Upon hearing about Stephanie and Kevin, Sandler sent a PlayStation 3 loaded with games, signed DVDs, jerseys and an autographed Longest Yard poster to them to help make their Christmas a little more joyful.

Meanwhile, Burditt, who has won the PlayStation 3 in the raffle he donated it to, wanted to turn around and sell it to make even more money for the Hudon family. Everyone is telling the young man he has done so much more than anyone ever expected from any one person that he should keep it now. The raffle ticket buyers wanted him to own it after he so willingly gave it up to help someone he did not even know. It is reported that Monahan is keeping the gaming system boxed at her house until Burditt makes a decision on whether he will accept it for himself, or to what purpose he intends on using it to help again.

When someone is diagnosed with cancer, I believe each of us holds the secret wish that we could make the cancer go away. But we know we cannot, and yet we want to do everything we can do for them. Easing the journey, with a donation of time or money is one way, as is filling the life of a cancer patient with as much joy and laughter as possible, and if it distracts them from the current reality, all the better. Burditt, Monahan and Sandler did just that for Stephanie and Kevin Hudon of Manchester.

I'm Too Young For This! (i2y) is a recently launched portal for adolescent and young adult (AYA) cancer survivors. Featured i2y resources and support services include survivor spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, and financial scholarships.

"The i2y website is primed to become a premiere online resource for AYAs with cancer by eliminating the stress and hassle of navigating through thousands of search engine results," said Matthew Zachary, founder and executive director of Steps For Living and an 11-year young adult survivor of pediatric brain cancer. "Our goal to make I'm Too Young For This! the first place adolescents and young adults with cancer think of to go when in search of credible, targeted support programs, tools and services."

"This website is just what the doctor ordered. Now, with the click of a mouse, they can instantly connect with a universe of others just like them." Doug Ulman, Chief Mission Officer for the Lance Armstrong Foundation and a 10-year young adult survivor says, "We are pleased that Steps For Living is dedicated to making a difference in cancer advocacy for this community."

To raise awareness for the i2y organization, the AYA Steps For Living musician/cancer survivors have released a 21-track benefit CD featuring their original songs and music. You can listen to the playlist here. Included in the album is an i2y online resource guide.

The tagline of i2y reads: Got Cancer? Under 40? Sucks, huh? Get Busy Living. Indeed, if you are between the ages of 15-39, i2y is a destination meant just for you. If you are a caregiver or friend of a teen or young adult who is facing the challenges of cancer survivorship, let them know about i2y. This is a phenomenal group of artists, musicians, writers and photographers who, as young adult cancer survivors, got busy living. Visit I'm Too Young For This! to learn more.

In a tragic event of unfortunate misdiagnosis, The Daily Mail is reporting that teen Stacey Stephenson died of stomach cancer after repeatedly being diagnosed with acid indigestion. At the beginning of summer, Stephenson began having digestive problems related to eating. When she visited the doctor, she was told she suffered from acid indigestion and given a prescription to combat acid indigestion.

However, several weeks later, when the young woman of 19 noticed her symptoms had not improved, she returned to see the doctor again. Again, she was told she suffered from acid indigestion. Shortly after, she went with friends to Greece on holiday. During holiday in Greece, the stomach pain became severe and she sought medical attention. An X-ray revealed a stomach tumor and this is when her stomach cancer diagnosis was made. Her family came to Greece to bring her home to England.

Once home, Stephenson was admitted to hospital and scheduled to undergo chemotherapy, but she became so weak from chemotherapy-induced kidney failure that she passed away in the hospital. Obviously, the doctors who initially saw this young woman dropped the ball when it came to following up on the potential causes of her stomach ailments. She was responsible about her health and sought medical attention for her stomach problems.

But so many of us dismiss acid indigestion and digestive problems as an after-effect of our modern diet and the stressors of every day living. We do not always take these symptoms seriously -- and we should. For more information on indigestion, visit the Medline Plus indigestion webpage.

Our sympathies go out to the Stephenson family for the shocking and sudden loss of their daughter.

Starchild Abraham Cherrix, a 16-year-old cancer patient who is battling Hodgkin's disease ended his legal fight with a victory Wednesday when his family's attorneys and social services officials reached an agreement that would allow him to forgo chemotherapy.

Cherrix who has struggled with the disease once before and having it reoccur, decided he wanted to take an alternative healing method to treat the disease the second time around. Social service officials fought that decision.

Under the court ruling, Cherrix will be treated by an oncologist of his choice who is board-certified in radiation therapy and interested in alternative treatments. The family must provide the court updates on Abraham's treatment and condition every three months until he's cured or turns 18. Cherrix is still on the Hoxsey method, an herbal treatment that is illegal in the United States but can be obtained through clinics in Mexico, but the family hasn't ruled out other possible treatments, such as immunotherapy or radiation treatment in small doses.

After completing the Guns n' Roses European tour singer Axl Rose made a surprise visit to the Teenage Cancer Trust Ward at the University College Hospital in London. It is reported that he thrilled the teen cancer patients with his visit.

Teenage Cancer Trust Ward CEO Simon Davies is quoted as saying, "Axl spent time speaking with each of the patients individually asking about their diagnosis and treatment, and what they enjoyed doing when they were not in hospital. Speaking with patients after Axl's visit, I got a real sense of just how excited they were to have met him and how much it lifted their spirits."

The Teenage Cancer Trust provides services, education and support for the special age-related needs of teens diagnosed with cancer. The teen cancer charity hosts Teenage Cancer Trust Challenges such as the Roof of the World Trek - Tibet to Everest Base Camp and Trekking the Deserts and Dunes of Southern Morocco adventures as an escape and way to raise funds for the charity; The Teenage Cancer Trust Find Your Sense of Tumour weekend conferences; and the annual Teenage Cancer Trust week of rock shows at the Royal Albert Hall featuring great acts like The Who, Bloc Party and Razorlight.

Karin was diagnosed with alveolar rhabdomyosarcoma when she was 20 years old. She felt a lump in her breast in December of 2001. The biopsy showed a malignancy but it was negative for breast cancer. At first they thought this must be the result of metastasis since alveolar rhabdomyosarcoma rarely shows up in the breast as the primary tumor. After all the scans and painful bone marrow biopsy Karin was told that she had a localized tumor.

This was great news but Karin still had to endure surgery, chemotherapy and radiation. Karin created her blog to raise awareness about alveolar rhabdomyosarcoma. Karin struggles to find stories of hope for survivors of this disease. She feels hope is very important.

I check Karin's blog regularly and right now she is having what I hope is just a scare. Something showed up on her recent CT scan. It's really small and might be nothing at all. Right now they are doing the wait and see approach and she will have more tests in the coming weeks.

We have been following the story about a potential cancer cluster that has caused thyroid cancer in teens living within a few miles of each other. The parents have been seeking help and answers to determine if there is an environmental cause. The parent group stated they had approached the state and county and felt they were being ignored in the request to have the water in the area tested. Last week, the city stepped up and offered to investigate.

After the story came out about the Trenton teens, one of the parents said the parent group has been contacted by six other people in the area with thyroid cancer.

In a new development, Cincinnati News 5, who is following this story closely, and investigating information as it becomes available, recently aired an interview with Dr. Peter Rickards of Idaho, who has been investigating other thyroid cancer cases in the Pacific Northwest linked to radioactive fallout from nuclear tests.

According to Dr. Rickards, drinking milk from cows who grazed in dairy fields contaminated with radioactive iodine-131 has been linked to increased cases of thyroid cancer in the Pacific Northwest.

Dr. Rickards suggests the parents and investigators in Trenton look for a fresh source of radioactive iodine in the neighborhood.

Dr. Rickards went on to suggest that they need to take a look at how medical incinerators and cancer clinics have been disposing of iodine-131, perhaps incorrectly, and that might possibly be a source of contamination. He doesn't say this is the definitive cause for the unusual number of young people being diagnosed with thyroid cancer in Butler County -- only that it might be a good place to start looking for answers.

You can watch the Cincinnati News 5 news report video Expert: Contaminated Milk Possibly To Blame For Cancer Cases here.

Once in a while you come across a person that you feel has something extra special. Madeline T. Paguyo was one of those people. She was only a young teen when she was diagnosed with a brain tumor, diffuse pontine glioma. Maddie was diagnosed April 28th, 2003 and she passed away May 6, 2004

I came across her webpage one day and was so inspired by how mature and wise Maddie was for her young age. Maddie's mom still blogs about her amazing family and how they are coping with losing a precious daughter and loving sister.

Maddie's mom tells us in her blog "Frequently I find myself browsing (Maddie's) library researching how to successfully navigate through life. Maddie did it so well. She exuded true joy and generously shared it with everyone she could. When confronted, at such a young age, with the biggest challenge anyone can imagine, she stared it right in the eyes, told the tumor to take a hike, and chose happiness. Simple as that. She chose to live, and every one of us who were privileged by her presence in our lives lived right along with her, learning from her example."

Maddie wrote an essay for her eighth grade class that takes you through her experience.