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Posts with tag Blogs

Cancer research blog carnival

The Bayblab weblog is proud to host the first ever blog carnival on cancer research. A blog carnival is an event where a community of bloggers come together to explore a common subject of interest.

Not only does it create a tool to exchange ideas, but it is a good way to exchange links and increase readership. The rules are simple, write a post about any aspect of cancer research, for example where you see your field contributing to cancer treatment in the future, and submit a link to your story.

Alicia's cancer blog

Alicia's blog on SFGate (the San Francisco Chronicle online edition) is the type of blog that you read and re-read, and then have to walk away from and come back to, because it is so raw and honest. She was working for the San Francisco Chronicle during a two-year fellowship when she found out she had cancer. This blog is her account of her illness, starting from the day she found out she had cancer.

I do not have cancer and I will never be able to truly comprehend what someone with cancer goes through. Through blogs like Alicia's, though, I can have some understanding. Her conversational tone when she writes about her diagnosis and even her thoughts on her funeral, makes it real and has an impact that something more "sensationalized" would not have. She has an amazing style and I felt immediately drawn by her account.

Alicia chronicles her cancer in chapters, which makes it a story, in a sense. Which is also what she calls her blog; "Alicia's story." A story about a brave young woman. A story about cancer. A story that helps me understand and get a glimpse of what it is like to go through this. This is also a story that so many people are living right now and to them, it is not a story. To them it is harsh reality, as it is for Alicia.

Sunday Seven: Status check on seven breast cancer survivors

These seven breast cancer survivors have been featured on The Cancer Blog before, all because of their own personal blogs and their own personal battles with cancer. Today, I offer you an update on these remarkable individuals whose stories have undoubtedly touched many lives.

Adriene

On April 26, 2006, Adriene wrote a final entry on her Survivor Blog. "This will be my last entry on the Survivor Blog," she writes. "I am finished. And I am complete, at least I feel I am. Now it's time to be in health and in love and in gratitude. To be at another level. It's time to move. Move. The wind beneath."

Breast cancer -- and writing about it -- is behind her. But Adriene is still inspiring readers on her blog. Check out her site's photo.a.day feature. It's nothing but moving.
Jen

Jen, a young wife and mom who blogs My Journey through Motherhood, once wrote about breast cancer every few days. Now she can't seem to find time to keep up with her entries. What good news for this survivor who is busy with life and not cancer.

Sandee

Sandee, author of I Will Survive, is quite a breast cancer warrior. She has been fighting the disease and it's cruel spread for many years and finds herself living with constant treatment. Her most recent blog entry, posted on April 14, reads:
Feeling down, I just can't shake this tired feeling, cancer treatments may keep you alive but they totally change everything about you. I know I should be grateful but I miss the way I used to be. I miss my hair ... I miss my eyebrows ... I miss my eyelashes ... I miss my toenails ... I miss my slender body ... I miss my energy ... I miss shopping for hours ... I miss not being afraid ... I miss not taking medication ... I miss volunteering ... I miss working out ... I miss being pain-free ... I miss feeling pretty ... I miss wearing high heels ... I miss driving 5-speed ... I miss not being able to plan ahead ... I miss going to family functions ... I miss feeling immortal ... I miss my health ... I miss my old breasts ... I miss having flawless skin ... I miss a lot!

Despite her uphill battle, Sandee ends each blog entry with a random thought and something for which she is thankful. Her random thought on April 14: Regardless, I'm still happy to be alive! And then: Today I am thankful for my kids.

Valerie


Valerie blogs The Beck Family and fills her space with happy photos and positive words. Busy recuperating from a hysterectomy, growing out her post-chemotherapy hair, and training to participate in the Avon Walk for Breast Cancer, Valerie is doing well -- and keeping busy going to baseball games and Las Vegas with girlfriends. She has a new puppy and a great outlook on life after cancer.

"Our life is back to normal and normal things are happening," she writes. "Our transmission went out on our Yukon last week, and it was under warranty, so it is in the shop. Our washing machine stopped working due to me overloading it too many times, so we went out and got a new front loading one. Its pretty cool!!! and that's it. Everyone else is doing great. We still love our new puppy.

Patty

Patty's husband blogs Patty's Journey. "Patty hasn't been feeling great the last few days," he writes on April 25. "She's had a light headed feeling and can't seem to get a deep breath. She's not sure if she's just become acutely aware of her breathing or what. I've read that the Herceptin can cause dizziness in 13% of patients so I'm not sure if this is what this could be or not. Hopefully, it is nothing. She's sees the doctor tomorrow so we'll see what he says. Pray that these issues resolve for her."

Patty, a mom to four young daughters, is finishing up radiation while receiving Herceptin treatment.

Marjorie

Marjorie and her husband Gordon take turns updating Beating Breast Cancer. But the last entry on this site was posted on November 28 and other than what Marjorie writes on this date, I am not sure how she is doing.

"On the day of the poisoning by taxotere I feel OK," writes Marjorie on this November day. "Next day my body feels strange and tired. The answer should be wee nap in the afternoon, but NO. My mind is so wired and agitated I found myself planning next year's Christmas dinner -- not this year's. This goes on for two or three days then WHAM, I'm the most depressing person to be around."

I hope Marjorie's absence from writing is an indication she is thriving and is too distracted by the joys of life to take a seat at the keyboard.

Kristina


Kristina blogs for The Cancer Blog -- and also for herself, her friends, and her family on her personal site.

Kristi, who calls herself a young Breast Cancer Survivor, Freethinker, New Marine Aquarist, Reach for Recovery Volunteer, reluctant accountant, freelance writer, voracious reader and cancer blogger, most recently is mourning this loss of her beloved cat Cleo, making a difference with the Young Survival Coalition, and laughing it up with friends traveling similar breast cancer paths.

Thought for the Day: I'm too young for this

There's this guy. His name is Matthew Zachary. He's a cancer survivor, a motivational speaker, a concert pianist, and the founder of a resource portal for young adults surviving cancer.

Steps for Living, Inc. -- also known as I'm too young for this -- was created by Zachary because he wants us all to know there are awesome cancer support services out there for adolescents and young adults. He means really awesome opportunities -- like spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, financial scholarships, and more.

You may be too young for cancer, but you are not alone, says Zachary whose mantra is Get Busy Living. And this is exactly what he is doing, despite challenges and setbacks in his own cancer recovery.

Think about this, an e-mail written by Zachary for those near and dear to his heart:

I am writing to share that I have suddenly gone deaf in my left ear. The condition is called Sudden Sensory Neural Hearing Loss.

After consulting with the country's best hearing experts as well as my oncologist, it has been determined that this is unequivocally a latent, long-term side effect of my post-operative cancer treatments from eleven years ago. Evidently, the excessive radiation dosages to the left hemisphere of my brain have caused irreparable neurological damage to my cochlea, which has ceased functioning.

There may be options (cochlear implants) but I will not know more for several weeks. As you can imagine, this is a devastating blow to my personal life and music career, especially since I remember fighting so hard to regain dexterity and muscle control in my left hand when it ceased functioning prior to my initial diagnosis in 1995.

That said, it has only reinvigorated me to stay the course and continue to advocate on behalf of the more than 500,000 young adults living with, through and beyond cancer each and every year. Now more than ever, I stress the importance of recognizing that remission is not a cure and that public awareness and adequate funding for adolescent and young adult cancer survivorship programming is tantamount to that of cancer research.

This is what it means to be a cancer survivor.

To read more about Zachary's powerful journey, click here for an unbelievably moving essay -- titled The Cost Of Living: No Cure For Cancer -- written by this unbelievably grounded guy.

Governor Schwarzenegger flexs universal health coverage muscle

To the consternation of small business and medical insurers alike, California Governor Arnold Schwarzenegger has announced sweeping reform in health care coverage with a proposal of universal health care for all Californians. Currently, 6.5 million residents who live in the state are without the security and safety of medical health care coverage.

Schwarzenegger, who is now being accused of sounding more Democrat than Republican, suggests his new $12 billion dollar health care plan be paid with fees levied on businesses, insurers, doctors and hospitals, and that 85 percent of every insurance premium dollar be spent on the insured in patient care. Insurers would be required to make all-things-equal in offering health insurance based on a community-rating model, as opposed to charging higher premiums for those who fall into a high-risk category. In addition, insurance companies would not be able to deny coverage. All persons who apply for health insurance would be guaranteed coverage.

Employers would be required to provide health insurance to all workers or pay 4 percent of their payrolls to the state; doctors would pay a new tax of 2 percent; and hospitals would pay a new tax of 4 percent.

The number of medically-uninsured in this country is growing yearly, and it is an issue that cannot be ignored. Those without medical insurance postpone seeing a physician, and when we are talking about cancer, delayed diagnosis and treatment can often mean the difference between life and death.

Recent surveys have indicated that even the insured are beginning to wonder if they will be able to afford quality health care in the future, as the cost of care continues to rise. It is not lost on politicians that health care is an important issue with the voters of this country, and those who wish to garner more votes will tackle these concerns.

In fairness, I am not suggesting politicians are solely motivated to act based on popular vote, but elections do have a way of clarifying the issues that are important to the citizens of this country and the resulting changes that can occur as a result of defined focus.

Schwarzenegger is not alone in his efforts to affect change. In December, Oregon Senator Ron Wyden introduced a new proposal to provide affordable, high quality, private health coverage for everyone regardless of where they work or live with the Healthy Americans Act.

The current system is simply not working for nearly 46.6 million people who are without health insurance coverage, according to statistics provided by U.S. Census Bureau's Housing and Household Economic Statistics Division. The solution will not be an easy one, but a solution is needed. Schwarzenegger has made a bold move, but one that will be made by other political leaders in this country as we lead up to the 2008 presidential elections. For the every day citizen, the time is overdue for the realignment of a health care system that is teetering out-of-balance and in a seriously off-kilter orbit.

Related posts:

Uninsured: the hard wind batters the brittle tree
Cancer survivors not getting medical attention or medications
Two paychecks away and cancer into the abyss
Healthy Americans Act: health insurance for every citizen

New way to track cancer spread

In a discovery that opens up the possibility of stopping the spread of cancer before it has a chance to take hold elsewhere in the body, researchers have developed a means of tracking cancer cells as they spread past the original tumor.

Robarts Research Centre in London, Ontario researchers have announced a new technology that allowed them, for the first time, to follow single breast cancer cells as they migrated from the body to the brain. According to statistics, 22 to 30 per cent of women with breast cancer will suffer from cancer that spreads to the brain.

Interestingly, the new technology also allows them to watch which cancer cells that have spread into the brain develop into a tumor, and which ones remain dormant, or die off. Not all cancer cells become a cancerous tumor.

Of the new technology, Dr. Paula Foster says, "It will give us the ability to test what genes are important, what drugs actually work, how the drugs work. Then you can take that information to patients and hopefully treat this disease a little better."

This is the biggest fear of cancer survivors -- that the cancer will come back, that it will have spread.

Protein linked to thyroid cancer discovered

Using a three-dimensional model, Queen's University researchers were able to watch how a mutated RET protein linked to thyroid cancer worked, which might result in the development of drugs to treat and prevent inherited and non-inherited thyroid cancer.

The researchers discovered that the protein was ten times more active than normal in cells associated with an inherited cancer syndrome, Multiple Endocrine Neoplasia 2B (MEN 2B).

"We now know why this gene causes these tumors and can start looking at how best to target the mutant proteins so that the cells expressing them can be killed or stopped from growing," says Lois Mulligan, professor of pathology and molecular medicine with the Division of Cancer Biology and Genetics of the Queen's Cancer Research Institute.

According to Medline Plus, thyroid cancer affects one in 1,000 people. Those who had radiation therapy to the neck -- therapy was commonly used in the 1950s to treat enlarged thymus glands, adenoids, tonsils and skin disorders -- are at an increased risk of thyroid cancer. Additional risk factors include chronic goiter and a family history of the disease.

Symptoms of thyroid cancer can be:
  • Enlargement of the thyroid gland
  • Neck swelling
  • A thyroid nodule
  • Hoarseness or changing voice
  • Cough or cough with bleeding
  • Difficulty swallowing
To read more about thyroid cancer, visit The Cancer Blog's thyroid cancer-related posts.

My One-Night Stand With Cancer: a Jewish lesbian's memoir

Two-time breast cancer survivor Tania Katan was first diagnosed with breast cancer at the age of 21, and then again ten years later. With gutsy humor in an outlandishly candid expose, she faced cancer twice, dealt with a "supportive but neurotic family," swore off toxic girlfriends, wrote about her experiences in a book and performed a one-woman play, both called My One-Night Stand With Cancer.

Katan, who underwent a mastectomy each time she was diagnosed with breast cancer, and who appears naked above the waist in her back-of-the-book photo, ran a race to raise breast cancer awareness in the best form she thought possible -- topless. "People were racing for something very specific, to cure breast cancer, but they didn't want to see what breast cancer looks like."

On the Amazon webpage for her book, the description of My One-Night Stand With Cancer reads, "A Jewish lesbian's memoir loaded with humor. She survived to prove, perhaps, that laughter is in fact the best medicine. With lymph nodes negative and outlook positive despite lightning striking twice, this 10K runner shows great spirit and strength."

Housework ranked better exercise than playing sports

Over the years, here is an on-going conversation I have with my family physician:

Doctor: What kind of exercise are you doing?

My reply: I have three kids and a house to keep clean. I think that is all the exercise I need.

Doctor then rolls his eyes.

End of conversation.

I am 5-foot, 7-inches, weigh 120 pounds and am on the go from 5:30 AM to about 10 PM each night. Aside from work as an artist and writer, which requires that I sit at a drafting table or in front of the computer (which is not prolonged sitting -- I am up and down, up and down -- because as every parent knows, somebody always needs something or something needs to be done) I am in movement.

I am physically able to climb down riverbanks and over river boulders when we go fishing, and I can hike up any hill with the best of them. I do not worry that I am out of shape. I know I am not physically inactive. You can bet I will be taking a copy of this latest research with me to my next visit to see the doctor. He asks the same exercise question each time, only this time, I have data to back up my claim that I am indeed getting a very good form of exercise.

According to researchers, when it comes to the best workout, cleaning the house outranks playing a sport as a better form of exercise and "far more cancer protective." They state "that moderate forms of physical activity, such as housework, may be more important than less frequent but more intense recreational physical activity in reducing breast cancer risk."

The women in the study spent an average of 16 to 17 hours a week cooking, cleaning and doing the laundry, and the researchers found housework cut breast cancer risk by 30 percent among the pre-menopausal women and 20 percent among the post-menopausal women. The study focused on women and breast cancer, but there is no reason to believe that these findings will not translate into cancer prevention for all cancers, and for men as well, as exercise is known to offer protection against the development of cancer. And in weighing in for the guys, men do housework too.
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Horticulture therapy: the power of plants and flowers to heal

From houseplants to raised beds, to plant a seed, tend the soil, and watch a plant grow is one of the most inspiringly hopeful of activities. In hopefulness is found a kind of healing. According to the American Horticultural Therapy Association, horticulture therapy is defined as "a process utilizing plants and horticultural activities to improve social, educational, psychological and physical adjustment of persons thus improving their body, mind, and spirit." The American Cancer Society offers a list of some of horticulture therapy benefits one can expect from gardening that include:
  • Feelings of hope.
  • Stress reduction.
  • Social interaction.
  • Pain relief.
  • Improved muscle tone, flexibility, and cardiopulmonary capability.
  • Creativity and self-expression.
  • Enhanced self-esteem and improved mood.
  • Motor skill development.
As the New Year arrives, so do the gardening catalogs in the mail. Interested in receiving gardening catalogs but not certain where to start? Cyndi's Catalog of Garden Catalogs lists over 2,000 mail-order gardening catalogs for the home gardener.

Two of my favorite gardening websites and online catalogs are found at Seeds of Change and Seed Savers Exchange.

At Seeds of Change, you can find garden seeds, seed collections, cover crops, seedlings, fruit trees, garden tools, kitchen items, and a bookstore. All organic. In addition, Seeds of Change publishes a newsletter.

Seed Savers Exchange is a nonprofit organization that saves and shares heirloom seeds. According to Seed Savers Exchange, "Our organization is saving the world's diverse, but endangered, garden heritage for future generations by building a network of people committed to collecting, conserving and sharing heirloom seeds and plants, while educating people about the value of genetic and cultural diversity."

But, wherever you start, once you catch the gardening bug, you will understand why horticulture therapy is becoming an integrated part in healing programs adopted at some of the medical centers across the country.

Sharon Stone: dad survived cancer by playing golf

Sexy. Seductive. Super-intelligent. All aptly describe Sharon Stone. Another is sportswoman, as Stone is an avid golfer. During a recent interview with Golf for Women, she shared a story about her father, also an avid golfer, surviving esophageal cancer by playing golf.

Given three months to live, her father was able to play through his chemotherapy and radiation treatments because of specially-built clubs designed by the golf equipment company Callaway. A feeding tube inserted after surgery prevented him from being able to bend. Without the new clubs, he would not have been able to continue in a much-loved positive activity.

Around the same time, Rob Lowe's father was being treated for cancer with a new targeted drug therapy, Avastin, and they helped Stone obtain the same drug for her father. She attributes the game of golf and the help of her friend Lowe with saving her father's life.

Twenty-two operations later, when Stone's father had successfully beaten cancer, she called the Callaway company to let them know how much a part she believed the company had in her father's recovery. The woman who took the call began to cry because it was the one year anniversary of her own mother's death from cancer and Stone's call lifted her spirits that something the company had done might have helped someone survive cancer.

For many golfers, golf is more than a sport. "Golf teaches you about life, about humanity, about things that will make you a better person," explains Stone. At the end of the article, Stone offers this advice, "Your life is a book; every page you write, you carry with you. You don't get to tear the pages out and throw them away. So write wisely. It doesn't matter what others write, ever, ever, ever. They don't know you at all. But what you write is indelible." Spirited. Insightful. Centered. All Sharon Stone.

Sharon Shakes It Up, Hollywood's A-list femme fatale has strong opinions about everything--including golf, is the Golf for Women cover story in the January/February 2007 issue. The interview has been published online here.

Top ten fitness and diet myths debunked in time for the New Year

Ah, the festive holiday parties and dinners were fun, but now we notice a few extra unwanted pounds. No surprise that diet and exercise top the list of traditional New Year's resolutions, and with good reason. Not only do we feel better when our clothes fit easily, but staying active, exercising and keeping fit are known lifestyle choices each of us can make that will offer an added measure of cancer prevention.

But, before we finish making our list of resolutions to a slimmer waistline and better health, the inner naysayer voice pipes up to point out all the reasons why we should not even bother. The Entrepreneur Diet comes to the rescue as it busts the more common myths standing in our way to getting and staying fit, and offers a reality check to the misconceptions.

As we read the reality checks to the following top ten myths -- I'm not athletic, so even if I wanted to become more active, I can't do it; it's too late for me to exercise; exercise isn't enjoyable; a woman will get too bulky if she lifts weights; exercise is dangerous; it takes too much time to eat right and exercise; I won't be able to enjoy my favorite foods; no pain, no gain; it's inevitable that I'll gain weight as I age, so it's not worth fighting it; and I have to join a gym or buy expensive equipment to get in shape -- we realize that keeping the resolutions we are about to make are more than doable.

To read the reality checks to these top ten fitness and diet myths, visit the Entrepreneur's Work & Life column here.

Adam Sandler, student, and a PS3 help brother and sister with cancer

It is the truest spirit of giving in a story told the day after the most celebrated day of giving in a season of giving, where lives intersect in unexpected ways that remind us of the best in who we are as human beings.

A brother and sister, 15-year-old Stephanie and 18-year-old Kevin Hudon, are both facing cancer. Stephanie's bone cancer has spread to her lungs and her brother is currently undergoing chemotherapy for Hodgkin's lymphoma.

A teacher at the high school both Stephanie and Kevin attend, Christine Monahan, had been spearheading a fundraiser to financially help the family through this overwhelming time. Last month, Nathan Burditt, a student who attends the same high school, spent 34 hours in line to buy the coveted and hard-to-come-by PlayStation 3. Monahan said she was kidding when she suggested to Burditt that he donate the newly-acquired gaming system to a raffle to help the Hudon family.

But Burditt took her seriously and donated the popular PlayStation 3. The PlayStation 3, one of the it gaming systems this year, attracted $21,000 dollars in raffle ticket sales. Before the PlayStation 3, Monahan had expected to raise $500 dollars during the raffle. Ticket buyers to the raffle, knowing of Burditt's unselfish act of compassionate charity, wrote his name, not their own, on the raffle tickets they bought. Because of this, Burditt won back the PlayStation 3 he had donated.

The simple acts of kindness for a brother and sister struggling to survive cancer made national news. Enter comedic actor Adam Sandler. Upon hearing about Stephanie and Kevin, Sandler sent a PlayStation 3 loaded with games, signed DVDs, jerseys and an autographed Longest Yard poster to them to help make their Christmas a little more joyful.

Meanwhile, Burditt, who has won the PlayStation 3 in the raffle he donated it to, wanted to turn around and sell it to make even more money for the Hudon family. Everyone is telling the young man he has done so much more than anyone ever expected from any one person that he should keep it now. The raffle ticket buyers wanted him to own it after he so willingly gave it up to help someone he did not even know. It is reported that Monahan is keeping the gaming system boxed at her house until Burditt makes a decision on whether he will accept it for himself, or to what purpose he intends on using it to help again.

When someone is diagnosed with cancer, I believe each of us holds the secret wish that we could make the cancer go away. But we know we cannot, and yet we want to do everything we can do for them. Easing the journey, with a donation of time or money is one way, as is filling the life of a cancer patient with as much joy and laughter as possible, and if it distracts them from the current reality, all the better. Burditt, Monahan and Sandler did just that for Stephanie and Kevin Hudon of Manchester.

Kylie Minogue: voted most inspirational for young women

By popular vote, Australia's beloved pop diva and breast cancer survivor has been chosen as the most inspirational celebrity of 2006. Sugar magazine teen readers indicated that Minogue represents their first choice as an inspirational role model for young women.

From the beginning of her breast cancer diagnosis, Minogue has shared her very personal battle with breast cancer in a very public way, raising awareness for the disease among a younger generation of women whose attention to breast health might not have been as focused otherwise.

Earlier this month, Minogue was named the Gold Choice Celebrity of the Year in the Sydney Confidential People's Choice Awards by Australia's Daily Telegraph readers.


For a retrospective of Kylie Minogue's breast cancer journey:

Debate over value of animal research

In an analysis of animal research used to understand and treat human diseases, the London School of Hygiene and Tropical Medicine researchers found that using animals, such as mice, had limited value. Only half of the research done using animals translated into the same outcome for humans.

In a BBC News report over the controversy that rages regarding the wisdom of using animals in research, Professor Ian Roberts is quoted as saying, "The debate over this issue is really quite hysterical. At the moment, there is too much emotion and not much science. Anti-vivisectionists say animal testing is of no use at all, and those who do them say we would have no safe and effective treatments if we didn't." Lead researcher Roberts believes animal studies should be used, but not in all cases of research.

The value of animal research was catapulted to front page news headlines earlier this year when six men experienced tragic life-threatening side-effects as they participated in a human clinical trial of the drug TGN1412, which had previously been shown safe and effective during animal studies.

Last March, six healthy young men volunteered at Northwick Park Hospital in London as participants in a clinical trial for a drug called TGN1412, designed to treat leukemia, autoimmune and inflammatory diseases. According to the men, they were told by doctors there would be no serious short-term or long-term side effects. They were each paid £2,000. Within hours, the worst that could happen did, and the men were plunged into a nightmare beyond anything they could have imagined.

The headaches began, followed by convulsions, bloating, organ failure and comas. The men came to be known as the Elephant Men because of the swollen faces and chests they suffered. One of the men suffered gangrene -- all his toes and three of his fingers were amputated. He also suffered heart failure, kidney failure, pneumonia, septicaemia and liver failure. Recently, another participant was told he might be developing cancer as a result of the drug trial. All have been told to expect early death.

Do you feel that animal research used to test drugs and medical procedures meant to treat human ailments and diseases, are credible enough to continue, or do you believe that research using animals should be abandoned?

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