On July 20 in Portland, Oregon, Pearl Jam held a benefit concert for the Northwest Chapter of the Crohn's and Colitis Foundation of America (CCFA) to raise awareness for a disease no one likes to discuss. Pearl Jam guitarist Mike McCready was diagnosed with Crohn's disease and ulcerative colitis twenty years ago and has gone public with what he personally felt for many years was an embarrassing disease. McCready, a spokesperson for the NW Chapter of CCFA, said, "Having struggled with Crohn's disease for more than 20 years and experienced first hand difficulties in getting a diagnosis and treatment, I want to help others learn about the disease, how it is affecting them and how to find ways to cope."
UCB, a leading global biopharmaceutical company that recently launched Crohns and Me, an information and resource website for people with Crohn's disease, joined with CCFA, in sponsoring the Pearl Jam Portland benefit concert.
I've been wearing a breast cancer bracelet that jingles with charms in the shapes of hearts, with inspiring little messages like Go with your heart. One of the heart charms is a watch. My friend sent me this shortly after my breast cancer diagnosis. I love this bracelet. So I was sad the other day when the glass piece covering the watch somehow cracked and shattered. I only realized this when I tried to check the time and learned that my watch was not actually telling time anymore. So I went for my back-up -- another watch, exactly the same and also given to me as a gift. I replaced my old watch with the new watch and then days later, my new watch was not working. I think water got inside the glass and damaged the battery or the mechanisms -- or something. I'm sure I could repair the watches -- and I considered this -- but then it entered my mind that maybe this is a message that I am okay now without all my breast cancer gear.
There is something about reading stories about other cancer survivors that helps me in moments of despair. Sometimes I look to the blogs that I read regularly -- blogs that capture the essence of realities that are not my own -- and I feel somehow comforted. I gain perspective and can remove myself a bit from my own turmoil. I gather strength and hope from others who struggle like me. I absorb the words written in these journals and see the photos of real people with real struggles and the big picture becomes clear to me -- breast cancer is widespread and far-reaching. And because of this, I have a lot of company of my path of uncertainty. This is what soothes me.
