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Posts with tag Five

Thought for the Day: The Five Gifts of Illness, a book

Jill Sklar was diagnosed with Crohn's disease, a debilitating gastrointestinal condition, when she was twenty. Jill set out to investigate how others who have survived the diagnosis and treatment of a chronic life altering illness perceived themselves -- and the effect of that illness on their life.

The Five Gifts of Illness: A Reconsideration is the result of Jill's investigation. She interviewed over one hundred individuals who had suffered a wide variety of illnesses. Sklar discovered that five gifts emerged as common denominators among the survivors. Those five gifts form the heart of this book.

You can purchase the book on amazon.com.

Five first steps of life with cancer

When: Tuesday, August 21, 2007, 7 p.m. Eastern (4 p.m. Pacific)

Where: On the Internet
How will chemotherapy change my body? What are the survival rates for my type of cancer? How often should I get tests done?
A new cancer diagnosis can mean countless new questions.

Bring your worried mind to a informative show on the five steps you can take to deal with a new cancer diagnosis. The Young Survival Coaltion will help you think through decisions about everything from protecting your fertility to getting a second opinion and paying for treatment. You'll learn day-to-day coping techniques, become more aware of the resources available to you and feel more confident as you become a more aware and more empowered patient.

The guest experts will answers questions from the audience.
You can register here.

Former Friar, Piston Jimmy Walker dies of cancer

Jimmy Walker, former Providence College basketball star and first pick in the 1967 NBA draft, died Monday of lung cancer. He was 63.

Walker played three seasons at Providence and held a school record with a total of 2,045 scored points. His record stood for 38 years. Ryan Gomes surpassed his total in 2005.

"He was an amazing phenomenon," says Jim Cox, who played with Walker in 1964. "That he ended up at Providence College was a remarkable development. He was so good, so blessed. He was ahead of his time."

Walker, father of NBA player Jalen Rose -- part of Michigan's Fab Five of the 1990s -- was drafted by the Detroit Pistons and averaged 16.7 points a game in nine NBA seasons. At one time, Walker and Rose held the NCAA Division I record for most career points by a father-son duo.

Thought for the Day: What kind of world do you want?

John Ondrasik, the man and musician behind the band Five for Fighting, has released a new album and a new website that just happens to benefit the Breast Cancer 3-Day, a 3-day, 60-mile walk sponsored by Susan G. Komen For the Cure.

Think about this:

Ondrasik's new album, "Two Lights," features a song called "World" which is in heavy rotation on pop radio stations across the country. This single is the inspiration for Ondrasik's new website, What Kind of World Do You Want -- the first video community that gives back by allowing visitors a chance to make a difference.

This is how it works: reveal what kind of world you want and help raise money for charity by watching videos or creating and uploading a video of yourself, your friends, or your family. In your video, answer the question What Kind of World Do You Want? and then choose which charity you wish to help fund.

In addition to the
Breast Cancer 3-Day, selected charities include the Fisher House, Save the Children, Autism Speaks, VH1 Save the Music Foundation, and NY Police and Fire Widows & Children. Video clips describing each charity, a message from Ondrasik, and a video of the song "World," are all featured on the site.

Breast cancer risk assessment tool

Do you want to know your risk for developing invasive breast cancer? If so, you can use an online interactive tool for measuring your five year risk and also your lifetime risk of developing the disease.

There are seven questions to answer to calculate your risk. It should not be used by women who already have had a breast cancer diagnosis. This tool has been used successfully in clinics for women with a strong family history of breast cancer.

Keep in mind that other factors also affect the risk of developing breast cancer that are not accounted for by the online tool. Women who do not get mammograms will have a lower chance of having their breast cancer detected.

Five minutes of exercise could help smokers quit

Research published in the international medical journal Addiction showed that moderate exercise, such as walking, significantly reduced the intensity of smokers' nicotine withdrawal symptoms. Just five minutes of exercise can get the smokers past that need for a nicotine fix.

Nearly anything that distracts people from smoking is thought to help, but scientists have long suspected that exercise might have a more potent effect. Exercise could produce a mood-enhancing hormone dopamine, which could, in turn, reduce the smokers' nicotine dependence.

When you're dying for a cigarette, try some exercises or a walk to get past the craving. Remember, if you are trying to quit, a craving will only last about three minutes!

Older breast cancer patients benefit from radiation therapy

Women sixty five and over with early stage breast cancer who do not have radiation after surgery may have an increased risk of a local recurrence or development of a new primary breast tumor.

Half of the women diagnosed with breast cancer are sixty five and over. Past studies have shown that older women are less likely to be offered chemotherapy, hormonal treatments or radiation. Young women are more likely to receive aggressive treatment for their breast cancer.

This study showed some important things:

  1. Women in the study who had a lumpectomy without radiation were found to have an greater risk of a local recurrence.
  2. Women in the study who received hormonal therapy and stayed on their treatment for the full five years had less of a recurrence rate than those who prematurely stopped the medication.

If you are over the age of sixty five and have been diagnosed with early-stage breast cancer, talk to your doctor about the risks and benefits of receiving radiation after surgery.

Treatment end looms around the corner

My good friend Deb, a young breast cancer survivor, emailed me this morning. She told me that she just filled her last prescription for Tamoxifen today. In the email she said it was a 'weird feeling'. I myself, will be going off Tamoxifen this October and will have fulfilled my five years on the drug as well.

I asked Deb to tell me more about how she felt and what it means in her life now that she will be discontinuing Tamoxifen for her breast cancer treatment.

"I have truly mixed feelings! It is bittersweet. It can be a scary, anxiety-provoking thought just thinking about ending it. It was my protection and security after chemotherapy for so long. I know that Tamoxifen still has effects in my body for years after stopping. I have three months left and I will stop Tamoxifen in June. Part of me is glad to stop it, to not have to remember to take a pill daily and my breast cancer treatment is now complete."

"Yet there is the other part of having to trust my body again. It failed me once. It means I'll have to modify some things in my life, substitute for taking a pill to fight off cancer. It means taking exercise more seriously, exercise can cut your risk for recurrence up to fifty percent. It means I'll stick to my diet a little better. I may also decide to take a Cox 2 inhibitor, like celebrex, as an anti-inflammatory. When Vioxx was pulled from the market, these similar Cox 2 inhibitors were pulled from clinical trials, now those trials are back open and are showing benefit. I have injuries in my knees, so will be taking it for that as well."

"In a sense I'll be flying on my own again. I remember them saying five years thinking how long that would be, it actually slipped right by. I will get tested to see if I'm in menopause, but seriously doubt that I am. It would be nice to go on an AI, but I really don't want to be in menopause quite yet. So, my prescription is diet and exercise and perhaps a Cox 2 inhibitor as preventative. I will still continue to see my oncologist every six months. I will continue to celebrate life and live it to its fullest and appreciate those things and people that truly make a difference in my life"

Deb Kirkland -- Young Breast Cancer Survivor

One step closer to uncertain survival

It's an unsettling journey -- the pursuit of the five-year cancer survival mark. Some say each year of cancer survival makes the future more of a sure thing. And so surviving five years -- the traditional landmark of real remission -- is a big accomplishment. But then there's the perspective of numbers that for me say I have a 93 percent chance of surviving breast cancer for five years. After that, though, there's no telling what will happen. So I am eagerly awaiting the moment when I cross the five-year finish line as I anxiously realize this very same moment may also signal a more dismal outlook.

The paradox hit me straight in the face yesterday as I was waiting for my radiation oncologist to give me another six-month all clear announcement. I was reading the January/February 2007 issue of Coping magazine while I waited. And as I flipped through the pages, I landed right at these words:

Studies show that half of all breast cancer recurrences occur after completion of five years of standard tamoxifen therapy. Additionally, a third of women with estrogen receptor-positive early breast cancer experience a recurrence, and more of half of these recurrences occur more than five years after surgery.

Now this doesn't apply directly to me. My breast cancer was estrogen receptor-negative which makes me a non-candidate for tamoxifen. And this is what scares me. My tumor was aggressive and while my treatment was also aggressive, I don't get the extra five-year protection from hormone therapy. If women taking this drug can have recurrences after completing the therapy, I wonder what's in store for me having not had it.

Maybe I'm making comparisons that don't amount to any real conclusions. Perhaps my type of disease allows for a more secure future. Or perhaps it places me on shaky ground. I don't know for sure. And I don't think I'll dive any deeper into research than I already have. Instead, I will live for today -- while enjoying the announcement my oncologist shared with me yesterday. All clear!

Leading drugmaker Pfizer lays off 10,000

The world's largest drug maker -- Pfizer Inc. -- announced Monday it will cut 10,000 jobs and close at least five facilities due to fierce competition from generic drug makers. The goal, says Pfizer spokespeople, is to whittle away annual costs by $2 billion by the end of the year -- to combat the prediction that the company will lose 41 percent of its sales to generic drugs between 2010 and 2012.

Pfizer's other obstacles include expiring drug patents -- costing Pfizer about $14 billion in revenues between 2005 and 2007 -- as well as demands for lower prices by insurers and large purchasers, and repeated requests for evidence of products' worth.

The 10,000 layoffs amount to 10 percent of the company's global workforce and will take jobs from 2,200 United States employees. The company will cut 20 percent of its European sales force, will close three research sites in Michigan and two manufacturing plants in New York and Nebraska, and is considering selling a manufacturing site in Germany and closing two research sites in Japan and France. In the midst of all of this, the company will focus its efforts on transforming the way they do business.

"I believe we must transform the way we've done business in the past in order to be more successful in the future," said Jeffrey Kindler, CEO and chairman of Pfizer. " Incremental evolution is not enough. Fundamental change is imperative -- and it must happen now."

Pfizer's Monday announcement is the second declaration of budget cuts. A previous announcement has the company -- the maker of cancer drugs Aromasin, Ellence, Camptosar, and Sutent -- slashing costs by $4 billion a year until 2008.

Pancreatic cancer survival better for patients over 65

A new study sheds new hopeful light on pancreatic cancer survival -- for patients 65 and older.

The study, conducted at Thomas Jefferson University and Thomas Jefferson University Hospital in Philadelphia, found patients in this age group who survive pancreatic cancer for at least five years have a better chance than patients not yet 65 at surviving another five years.

Researchers studied the records of 890 patients with pancreatic cancer who underwent the standard pancreaticoduodenectomy, or Whipple procedure. And lead researcher Charles Yeo reports that surgery can in fact extend and improve the quality of life for this population.

"Not too long ago, few lived for five years after diagnosis," he said. "Today, that not true. There's been a paradigm shift in the way we treat and think about this disease."

Additional details on this promising study can be found in the journal Surgery.

Coping with cancer during the holidays

I was diagnosed with cancer on my thirty-first birthday, December 18th, 2001, five years ago today. Those diagnosed with cancer might be receiving a diagnosis at this time, undergoing treatment or they even might be finished treatment and are on there way to starting their new normal life.

Whatever the case may be, dealing with cancer during the holidays can be rough. Emotionally speaking, it can be very hard to get in the mood and be joyous over the holiday season. Activities like shopping, social events, family gatherings and traveling can lead to high levels of physical effort and stress.

Sometimes it might seem so much easier to avoid social gatherings all together. Remember though, that family and friends are there to encourage and be supportive. It can be hard when you keep hearing how great you look, when you feel like it is not the truth. I believe that those that make that comment really do mean it. When your diagnosed with cancer I think people expect you to look a wreak! Usually that is not the case.

The holiday season could cause some thoughts to creep into your mind--Is this my last year to celebrate with my family? At this time of year it is common for those diagnosed with cancer to think about the future. Its OK to have those what if? questions. Its not negative thinking. Its normal. There is not one best way to deal with these thoughts or anxiety attacks you might be experiencing. Relaxation techniques can help and sometimes anti-anxiety medications can do the trick.

If you are feeling fatigued, let your family know this so they can help. Don't push yourself to do what you have always done in past years, be comfortable with yourself doing less. Set some clear priorities, things you think are most important that you want to accomplish. Always tell your oncologist or another physician how you are feeling. Tell the truth. Don't try and be brave. There are certain medications that can be administered if you are experiencing fatigue that developed from anemia, a common side effect from chemotherapy.

For me this holiday season is a special one. I'm so thrilled to be celebrating the five year milestone of survivorship along with my birthday. I'm so happy to be alive!

Happy Holidays!!

Ovarian cancer: Young women have better survival rates

According to new research published in the British Journal of Cancer, younger women diagnosed with ovarian cancer have a greater chance of surviving the disease for five years or more. Researchers at Stanford University in California looked at the records of more than 28,000 American women diagnosed with ovarian cancer between 1988 and 2001.

They researchers found that:

  • Women diagnosed under the age of 60 were more likely to survive at least five years than women over 60.
  • Women diagnosed under 30 generally had better survival rates, although the disease is rare in this group.
  • Women diagnosed under 30, 79 percent were still alive at five years.
  • Women diagnosed between 30 and 60 years the survival rate for five years was 59 percent.
  • Women diagnosed over the age of 60 had a 35 percent survival rate at five years.

The researchers are not sure of the reasons for the differences in survival at this point. It could be that the younger women had their cancer detected sooner or it could be due to biological differences. The researchers think that understanding the differences in survival for different age groups may help to improve survival for all age groups in the future.

If only bugs could cure cancer

I took my boys yesterday for a tour of the University of Florida's Department of Entomology and Nematology. Translation for these little boys -- ages five and three -- involves one simple word. Bugs. They love bugs, hunt for bugs, capture bugs, and reluctantly set them free because I coax them into allowing these itty bitty creatures to continue living with their "mommies and daddies." I have a soft spot for all living beings -- bugs included.

We learned some crazy facts about bugs yesterday -- insects is the proper term really. We learned there is one cockroach that can live for seven days without its head. We learned there are two types of Madagascar cockroaches living in a lab in the very same building we visited that if set free, would reproduce so quickly they would become a major pest problem in the state of Florida. And we learned that of all animals on this planet, most are insects. But not only did we learn some crazy facts, we -- well, Joey -- shared a crazy fact too.

Joey is five years old. He is the boy who remembers much of my breast cancer journey. He is the one who helped shave my head, the one who thought a banana would make my sick tummy feel better. He's the one who would blurt out to people we never knew very well, "My mommy is bald," the one who asked me just last night if the metal thing -- my port -- was still in my chest. When I told him it's gone, he jumped up and announced, "Yeah, it's gone!" Cancer is one of many vocabulary words housed in Joey's brain. And sometimes the word comes up unexpectedly, in strange contexts, in surprising ways. Like today.

Our bug tour guide told us that in Africa, mosquitoes transmit diseases that kill millions of people. But those with sickle cell anemia are immune to the deadly diseases due to their compromised red blood cells that somehow fend off disease. This fact prompted Joey to share with the guide, "Did you know when people have cancer, there are bugs that can kill the cancer?" Our guide listened to this crazy fact and said in a kid-friendly way, "No, I did not know that. Who told you that?" Joey told her, "I don't remember but someone told me."

I am not sure what prompted Joey to make this announcement. Perhaps he was trying to one-up the tour guide, to sound like an expert on one of his favorite subjects. Perhaps his imagination was in overdrive and he blurted out the best story he could offer. Perhaps he jumbled up a story he had heard on the topic of cancer. And perhaps he is just simply hopeful that one day, bugs will help cure cancer. And wouldn't that be nice -- a simple mosquito comes along, pierces the skin, and poof, cancer is gone.

My cancer journey would not be nearly as interesting, as enlightening, as tender if Joey was not along with me for the ride. He keeps me busy and keeps my spirits up. He keeps me grounded and keeps life simple. Best of all -- he keeps me laughing.

5 ways to create hope during breast cancer struggle to survive

Almost five years later, the memory is still as vivid as if it were happening now as I tell you that while showering, I discovered a lump in my breast. My hand stopped, my breath caught, and my stomach clenched in terror. Instinctively, I knew I was in trouble. After mammogram, ultrasound, biopsy and the first of three surgeries, the diagnosis of breast cancer was not the most optimistic one. My lobular breast cancer had spread beyond the breast into lymph nodes -- and perhaps elsewhere not yet clearly detected.

I would spend the next four years peering over my shoulder, wondering if the shadow of death would visit me with another cancer diagnosis, and if so, where would it settle in this time. If I ate pizza topped with jalapenos for that extra kick of flavor and got a stomach ache, I wondered -- had cancer spread to my liver? If I spent a day met with seemingly endless frustrations and annoyances and got a headache -- had the cancer spread to my brain?

While there is nothing rational about these leaps to a cancer conclusion based on evidence suggesting I suffered from logically explainable modern life maladies that antacid or aspirin might easily cure, for the newly-diagnosed surviving breast cancer, it is not uncommon for the mind to immediately race to an impending cancer-based doom for every day aches and pains. I am here to tell you that for the first few years it will be quite normal to have totally unreasonable fears.

Not willing to subject myself to this screeching fingernails on the blackboard fear without finding something to muffle the sound, I began creating personal rituals that suggested hope and affirmed life. With each one I was stating the value of my life and staking my claim to my future. For each woman, the personal rituals will be different. Here are a few I created that might give you some ideas for your own:

Continue reading 5 ways to create hope during breast cancer struggle to survive

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