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Posts with tag June

Inspiring interview with June Callwood

June passed away in April, she was 82. She was one of Canada's most celebrated authors and social advocates. She helped the homeless, dealt with issues of racism and injustice. She did much volunteer work.

In 2004, June was diagnosed with inoperable cancer and refused to undergo treatments.

I came across a last interview with her that I thought was very moving. She talks about her life, her marriage, and the fact that her cancer is terminal.

What an amazing woman.

Drescher's Cancer Schmancer non-profit launches in June

Cancer Schmancer is what actress and cancer survivor Fran Drescher titled her 2003 novel. Now, thanks to this spunky gal, there's a whole Cancer Schmancer movement taking place, a movement that will culminate this June with the launch of a non-profit organization with the name of -- you guessed it -- Cancer Schmancer.

Drescher says Cancer Schmancer is all about the politics of cancer education and funding, screening tests, early detection, the removal of carcinogens from women's products, and the often-dismissed truth that young women do get cancer.

Drescher, who for two years fought with doctors who persisted she was too young for uterine cancer -- she wasn't -- says her organization will raise awareness and change health policy to better promote diagnosis, treatment, and prevention of womens' cancers.

Merck stops cervical cancer vaccine campaign

Merck, maker of the cervical cancer vaccine Gardasil, is backing off its lobbying campaign following pressure from medical groups and parents who believe the vaccine should not be mandated as a school attendance requirement for adolescent girls.

The public outcry that caused Merck to announce its stop order on Tuesday stems from the fact that the vaccine protects against the sexually transmitted human papilloma virus (HPV), which causes cervical cancer. School-mandated vaccines are typically for diseases spread through casual contact, such as measles and mumps.

Merck's medical director for vaccines, Dr. Richard M. Haupt says, "We're concerned that our role in supporting school requirements is a distraction from that goal, and as such have suspended our lobbying efforts," adding that the company will continue providing information about the vaccine upon request.

Gardasil, launched in June and the first vaccine to prevent cervical cancer, has inspired controversy since day one. There's the cost -- $360 for three required shots -- and all sorts of insurance concerns and conservative groups who worry the vaccine encourages premarital sex and interferes with parental rights. Even those in support of the vaccine -- like the American Academy of Pediatrics and the American Academy of Family Practitioners -- question Merck's quick push to market this drug, especially in light of the company's withdrawn painkiller Vioxx.

"I believe that their timing was a little bit premature so soon after (Gardasil's) release, before we have a picture of whether there are going to be any untoward side effects," says Dr. Anne Francis, who chairs an American Academy of Pediatrics committee.

Legislatures in 20 states have taken steps to mandate the vaccine for young girls. And with the exception of Texas governor Rick Perry's February 2 executive order requiring Texas girls entering the sixth grade in 2008 get vaccinated, nothing has been made official so far.

Appetite for physical fitness diminished by fatigue

I am in a slump. I feel tired and slow and unmotivated. And ever since October 14 -- when I ran in the 5K Making Strides Against Breast Cancer event -- I can't seem to find the inspiration to exercise. I am making myself do it -- here and there -- but my usual drive and push and spunk are missing. Typically, I crave exercise and feel lethargic if I don't accomplish some sort of daily physical challenge. But for the past week or so, I have no craving, no desire to walk or run or lift weights, no appetite for my usual fitness routine. I am just plain tired.

Fatigue is a common side effect of cancer treatment -- even years after treatment ends, according to some experts. So perhaps my drop in energy and enthusiasm is due to the cumulative effect of my own treatment for breast cancer that just ended in June. My treatment spanned almost two years. Maybe it's no surprise my body is lagging behind my expectations for physical health.

Experts also say exercise helps combat fatigue. I believe this -- it's why I usually like exercise. It boosts my adrenaline, perks me up, makes me feel alive. If only I could get back into the swing of things, these feelings might come flooding back. But right now, I am not even thinking about how to find my old groove. I am just too tired.

Live each day as if it's your last, one day it will be

Apple CEO Steve Jobs delivered a commencement speech at Stanford University on June 12, 2005. It was about following curiosity and intuition, about looking back and connecting the dots in life, about beginnings and endings, about death. Jobs, a survivor of pancreatic cancer, knows a thing or two about facing death. And the words he chose to relate his life-threatening experience to a crowd full of hopeful graduates are powerful and inspiring. I could paraphrase his message -- but surely something would be lost in my translation. So here is a bit of what he said -- word for word.

Continue reading Live each day as if it's your last, one day it will be

Bouncing for Boobs: boobs bouncing countdown

When I went through chemotherapy there were days when I did not have the strength to walk across the room. If you haven't been through chemotherapy you might think this is an exaggeration. If you have been through the grueling mean rigors of chemotherapy you know exactly what I am talking about. On some days, during the worst of it, I would have to stop half-way across the room to rest before continuing to the other side of the room -- I am not joking.

Chemotherapy brings a human body as close to the edge of death as is possible without actually dying. Because I know what chemotherapy can do to a person, when I found the Bouncing for Boobs blog, my heart was captivated by the efforts of Priscilla to help her sister Kathleen for the time when she would be going through chemotherapy. Kathleen is a single mom with children to provide for and bills to pay. There is no way she will be able to work full-time to keep the lights on and food in the pantry.

Priscilla came up with a fundraising plan to help by bouncing on a trampoline and asking for donations to match the number of times she bounced her boobs. Its tongue and cheek and it's very serious at the same time. The Bouncing for Boobs campaign officially ends June 3rd, and to date Priscilla has been able to raise $7,000 dollars. She has bounced her boobs over 900,000 times in six countries -- England, India, France, Germany, Italy, Switzerland -- at famous landmarks that include the Taj Mahal, Eiffel Tower, London Eye, Dom Cathedral, Leaning Tower of Pisa. Her bouncing boobs are gaining worldwide attention. From this single effort of one sister helping another sister, an organization has been created that will go on to help other single mothers going through chemotherapy keep the lights on and food in the pantry. Priscilla is an every day heroine, an example of what each of us has the capacity to do if we set our minds and hearts to it. If you can, get over to Bouncing for Boobs and help her reach her 10,000 boobs bouncing goal of raising $10,000 dollars before June 3rd.

Cancer survivorship is cause for celebration

I have been invited to a celebration. A celebration of cancer survivorship. I received my invitation the other day for a picnic of sorts sponsored by my local American Cancer Society office, and I have since learned that in communities all over the map, similar celebrations will happen. June 4 is National Cancer Survivors Day and that is surely cause for a party. 

National Cancer Survivors Day is recognized annually, on the first Sunday in June. This year marks the 19th year of this special occasion that will feature in more than 700 communities an array of carnivals, parades, art exhibits, races, dances, workshops and more. The idea for this day began 21 years ago when a lung cancer survivor and his wife sponsored a rally in Kansas City, Missouri and the idea caught on. Now the non-profit National Cancer Survivors Day Foundation supports hundreds of hospitals, support groups, and other organizations that host events on this day. 

It's nice to know that the hospital and clinics and organizations that are stops on my breast cancer journey may be recipients of the festivities that take place in my city on June 4. And it's nice to know that I have a celebration to attend in honor of all those, like me, who have been victorious in the war against cancer.

Cancer survivors teleconference on alternative therapies

Cancer Monthly will be hosting its first teleconference for cancer survivors to present information for patients and their family members on alternative therapies and integrative medicine. The free teleconference, which will take place on Thursday June 29, 2006 at 8:00 PM EST, will feature four cancer survivors as they share their experiences of using alternative and integrative therapies as part of cancer treatment and cancer survivorship. Three of the featured guest speakers will be:
  • Paul Kraus -- In 1997, Kraus was diagnosed with advanced peritoneal mesothelioma. He was sent home to die. He created his own alternative path to healing. Nine years later, he is enjoying a good quality of life.
  • Madeleen Herreshoff  -- In 1991, Herreshoff was diagnosed with aggressive poorly differentiated invasive breast cancer. Three years later, she had a local recurrence of her cancer. She blended mainstream and alternative therapies to create her own path to healing.
  • Ann Fonfa -- In 1993, Fonfa was diagnosed with invasive lobular breast cancer. She suffered recurrences from 1995 to 2001 with 25 tumors overall -- 14 of which appeared on the chest wall. She created her own path to healing, choosing a combination of chemical sensitivity/special needs and her own readings of research studies. Fonfa is also the webmistress of The Annie Appleseed Project.
If you are interested in participating in this free teleconference, the organizers of the event suggest you sign-up early as space is limited.

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