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Posts with tag Services

Cancer Lifeline in Seattle

Cancer Lifeline believes cancer survivors - from diagnoses - their families, friends and coworkers, and caregivers are all people living with cancer. They believe that emotional, spiritual, and mental components of health are as important as the physical. Cancer Lifeline values listening to the needs of their clients and creating excellent services to meet those needs.

One of the things I loved about reading and seeing on their website is the beautiful healing gardens. If you live in the Seattle area this is a beautiful place to visit.

  • The Earth/Sky Garden - is partly open to the sky and lovely views, and partly sheltered by an arbor.
  • The Celebration Garden - is completely open to the sun and sky and populated with a wide variety of colorful plants.
  • The Reflection Garden - is a place for contemplation and meditation. Quiet shadows mix with rich greens of shade-loving plants, while a small fountain bubbles across rocks and moss.

These gardens are just a small taste of what you can experience at Cancer Lifeline. Click here to find out all of what Cancer Lifeline has to offer.

All Cancer Lifeline services are free of charge.

Read This: What You Don't Know Can Kill You

WOW, what a book -- a perfect guide for those just embarking on a medical journey and a valuable resource for people like me -- already surviving a major illness -- who wish to better manage their health care for all of time.

Author Laura Nathanson, MD, wrote What You Don't Know Can Kill You: A Physician's Radical Guide to Conquering the Obstacles to Excellent Medical Care in honor of the husband she lost after a series of misdiagnoses and for everyone wishing to prevent such tragedy in their own lives.

Nathanson offers readers techniques for identifying signs of misdiagnosis and misleading analysis of symptoms. She shares tips for preventing medical miscommunication, keeping safe in the hospital, and choosing health care plans without falling into the uncovered services trap.

The allure of this book is the easy, non-medical approach Nathanson uses as she urges everyone facing the medical world to take charge of an often inpenetrable system. For the patient who is no stranger to this world, Nathanson's words will ring abundantly true.

"When I look back on that long period of delayed diagnosis and how we were then and later bounced around from one medical specialist to another, the image that pops into my head is that of a slightly mad, grotesque volleyball game -- with the patient as the ball," she writes.

For the patient new to medical confusion, Nathanson's words will impart volumes of truth.

"Here's what I've learned, and what you must learn if you wish yourself and your loved ones to survive a bout with serious illness," she reports. "No matter who you are, physician or not, lucky or not; no matter how rich, famous, successful, good-looking, innocent, kindly or powerful; no matter how close and trusting the relationship you have with those providing your medical care -- you cannot rely on today's medical system to keep you healthy, safe and alive."

Amen.

Women leading the fund raising

While it is true that women are far outnumbered in high level management positions in top 500 fortune companies, it is the backbone of the women in this country that lead the fund raising efforts in non profits. Women last year accounted for one out of 13 clout positions as an executive vice president or higher in the 500 largest U.S. companies. This figure was up from one in 40 as recently as 1995. Back then only one of those companies had a female chief executive officer and today seven do.

Women account for a higher percentage of executive positions in larger, self staffed non profit organizations. In 2005, the Non-Profit Times' "Power & Influence Top 50" list named the 50 top senior level executives in the non-profit sector and 26 were women. The role of women in non profit organizations was alive and well long before the concept came to exist. In the United States, the non profit sector encompasses an enormous range of organizations engaged in education, health care, research, the arts, religion, the environment, civil rights, and human services. The historical role of women in these sectors has always been significant and has evolved as the resources of the nonprofit sector have expanded and become formalized.

Women affirm their belief in humanity by providing services to millions of people every year, day in and day out. Many of the executive directors, board members, staff, and volunteers of these human services organizations are women, and they provide the backbone support for our community services.

As the major season for fund raising kicks off to bring in funds for cancer research and awareness, my many applauds to the multitudes of women, and also the men, who take their efforts seriously and have a strong commitment to community and a better quality of life to us all.

Aspirin a no go for prevention of colon cancer

Aspirin and painkillers such as ibuprofen have been deemed too risky for use in the prevention of colon cancer, according to a federal task force.

The risk of intestinal bleeding, stroke, kidney failure, and other health problems led the US Preventative Services Task Force to conclude that taking more than 300 milligrams per day of drugs like Motrin, Advil, and Aleve is just too risky to outweigh the potential benefits of preventing cancer. And while taking less than 100 milligrams of such drugs can reduce the risk of heart disease, it does nothing to lower the rate of colon cancer.

Details about this task force study are published in Monday's issue of the Annals of Internal Medicine.

Exotic dancer donations rejected by cancer organization

I guess I've just assumed that breast cancer organizations happily accept every donation they receive and joyfully funnel all charitable gifts into their noble endeavors. I mean, without money and research and programs and services and education, where would we be? We'd be uninformed and lagging behind the force of this disease instead of gaining momentum on its trail. That's where we'd be.

Now, I've never assumed these organizations accept money obtained through illegal measures. But I've also never assumed they'd turn away money just because it came from a group of women whose profession and means of fundraising might be considered unacceptable. I suppose I shouldn't make assumptions. Because I seem to be wrong on all accounts.

The Breast Cancer Society of Canada has officially rejected a donation from a group of Vancouver strippers because of the controversial nature of their fundraisers. Exotic Dancers For Cancer these women call themselves, and for four years they have been raising money in honor of another dancer who lost her battle with terminal cancer.

Trina Ricketts, founder of the exotic dancer website nakedtruth.ca and recipient of the letter rejecting the donation, is shocked that people consider this contribution dirty money. And she is so bothered by this unfair judgment that she has been contacting the media and outting the Breast Cancer Society of Canada's discrimination practices. Her protests are working.

In a supportive turn of events, Ricketts has been met with an overwhelmingly positive response -- and she now has several organizations willing to accept all donations she wishes to offer.

This story is not nearly as simple as presented here. It's so much more detailed and touching and moving when told by Ricketts herself -- who happens to share her inspiring journey right here.

CORRECTION: Trina Ricketts reports that she did not seek out the media to out the Breast Cancer Society of Canada.

"The decision to go public was not in the interests of outing the Breast Cancer Society of Canada, but rather to seek out charities that would be willing to accept our donations," she said.

Passive workplace smoking fuels lung cancer

Secondhand smoke rears its ugly head once again -- this time in the form of study results revealing high levels of secondhand smoke in the workplace can double the risk of lung cancer for non-smokers.

Researchers at the University of Illinois at Chicago looked at results from 22 studies conducted in the United States, Canada, Europe, India, Japan, and China. What they found -- and published in the American Journal of Public Health -- is a lung cancer risk 50 percent higher than normal for non-smokers exposed to smoke on the job for more than 30 years. They also found risk increases with level of exposure.

"We believe that our study provides the strongest evidence to date that smoking in the workplace does present a substantial risk to workers -- and particularly to workers who are working in highly exposed areas such as bar workers or restaurant workers," lead researcher Leslie Stayner said.

Previous evidence for increased lung cancer risk caused by secondhand smoke comes from studies of non-smokers married to smokers.

Secondhand smoke -- also known as passive smoke and environmental tobacco smoke -- is smoke from a cigarette, pipe, or cigar as well as smoke exhaled from the lungs of smokers and inhaled by non-smokers. It can cause cancer, respiratory problems, and asthma in non-smokers and is leading to increased efforts by communities to ban or limit smoking in the workplace.

This week in France, bans begin in offices, stores, schools, and hospitals. Come January 2008, cafes and restaurants must also comply with bans. For now, smoking in these areas is permitted in hermetically sealed rooms without any services.

Doctor Evidence: making informed medical decisions avoiding mistakes

As a resource of medical information, take into account that there are over 25,000 medical journals published worldwide. For most of us, it is an overwhelming volume of information.

Doctor Evidence is an independent user-friendly fee-based medical search service connecting patients and doctors to the latest in relevant information which can then lead to the formulation of informed decisions about medical treatments -- and avoid potentially deadly mistakes in misdiagnosis, treatment or surgery.

In 2000, Dr. Todd Feinman founded Doctor Evidence after undergoing unnecessary surgery for intestinal cancer. After surgery he was told that the test that led to surgery had been a false-positive. He did not have cancer.

According to Dr. Feinman, "Every year, hundreds of new therapies and diagnostic tests are introduced to treat the thousands of diseases that are afflicting millions of adults and children. Finding evidence about the most accurate diagnostic tests and effective treatments requires the proper resources. This includes specialized information technologies, subscriptions to medical databases, medical librarians, and much more that is not readily available to most doctors and patients."

Yesterday, Extra aired a feature about Dr. Feinman and the Doctor Evidence service. During the report, a patient who had been told he might have pancreatic cancer turned to the Doctor Evidence website only to find out that one of the high-niacin level medications he was taking was mimicking symptoms of pancreatitis or pancreatic cancer. You can view the video of the segment online here.

Doctor Evidence staff is comprised of doctors with expertise in evidence-based medicine, medical librarians with masters in library science, other professionals with expertise in healthcare, and information technology experts. To learn more, visit the Doctor Evidence website.

Ho! Ho! Ho! It's Santa in a Speedo

Ho, ho, ho! Santa Claus arrives early and he is seriously underdressed for the season.

It's not the image of jolly St. Nick remembered from childhood, but it does reflect the spirit of generosity and giving. On December 16th, the sixth annual Santa Speedo Run, which started when a couple of guys thought it might be fun to spread a little holiday cheer and raise money for breast cancer charity, was held in Boston, Massachusetts.

Runners in little speedos, mostly red in keeping with Santa's signature color, donning Santa hats and white Santa Claus beards, benefited Ellie's Fund Care for the Caregiver program. The Ellie's Fund offers free support services, like daycare and meals, for local women undergoing breast cancer treatment. The Santa Speedo Run participants solicit sponsorships from coworkers, friends and family with 100 percent of the donations going to The Ellie Fund. For more holiday cheer, visit the Santa Speedo Run website here.

I'm Too Young For This! teens and young adults with cancer

I'm Too Young For This! (i2y) is a recently launched portal for adolescent and young adult (AYA) cancer survivors. Featured i2y resources and support services include survivor spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, and financial scholarships.

"The i2y website is primed to become a premiere online resource for AYAs with cancer by eliminating the stress and hassle of navigating through thousands of search engine results," said Matthew Zachary, founder and executive director of Steps For Living and an 11-year young adult survivor of pediatric brain cancer. "Our goal to make I'm Too Young For This! the first place adolescents and young adults with cancer think of to go when in search of credible, targeted support programs, tools and services."

"This website is just what the doctor ordered. Now, with the click of a mouse, they can instantly connect with a universe of others just like them." Doug Ulman, Chief Mission Officer for the Lance Armstrong Foundation and a 10-year young adult survivor says, "We are pleased that Steps For Living is dedicated to making a difference in cancer advocacy for this community."

To raise awareness for the i2y organization, the AYA Steps For Living musician/cancer survivors have released a 21-track benefit CD featuring their original songs and music. You can listen to the playlist here. Included in the album is an i2y online resource guide.

The tagline of i2y reads: Got Cancer? Under 40? Sucks, huh? Get Busy Living. Indeed, if you are between the ages of 15-39, i2y is a destination meant just for you. If you are a caregiver or friend of a teen or young adult who is facing the challenges of cancer survivorship, let them know about i2y. This is a phenomenal group of artists, musicians, writers and photographers who, as young adult cancer survivors, got busy living. Visit I'm Too Young For This! to learn more.

Cancer help delivered to mailbox, for free

Living Beyond Breast Cancer (LBBC) -- a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life -- recently began offering a new resource for breast cancer survivors, for both the newly diagnosed and those with metastatic disease.

"The first few weeks after diagnosis can be extremely difficult emotionally, and women with advanced disease often do not get the support and resources they need," said Jean Sachs, LBBC executive director. "We want to give them an understanding of their choices to help them make informed decisions regarding their physical and emotional health."

This understanding comes in the form of a 28-page brochure -- What to expect . . . today, tomorrow and beyond: Steps for coping with the medical, emotional and practical concerns of breast cancer -- available free on the Internet or by request. This guide, a road map, addresses topics such as coping with the news of a new diagnosis, telling family and friends, understanding pathology reports, choosing a medical team, asking for help, and finding support.

LBBC offers multiple addidtional resources -- including specialized navigation tools on its website that lead to a wealth of information. Visitors can Learn More about LBBC. They can Stay Informed through news, message boards, and other resources. They can Participate in events and programs. And they can Support LBBC through volunteer efforts and financial donations.

LBBC was founded in 1991 by a radiation oncologist who focused exclusively on meeting the needs of women post-treatment. She ran the organization out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer at the time, and so she tried to fill the void. In 1986, an executive director came on board, increased the LBBC budget from $100,000 to $1.8 million per year, expanded all programs and services, and worked to secure LBBC as a solid, dependable resource for all women, of all stages of breast cancer and in all phases of treatment and recovery. And now, in 2006, that is exactly what it is.

Y-ME Breast Cancer Organization: Support today for those who can't wait for tomorrow's cure

The Y-ME Breast Cancer Organization is based in Chicago. Their mission is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone.

Y-ME does not raise money for breast cancer research. The organization is here today for those who can't wait for tomorrow's cure. The Y-ME national breast cancer hotline is the only 24/7 call center operated by trained peer counselors who are breast cancer survivors. The hotline takes more than 40,000 calls per year. Y-ME counselors do not give medical advice but give emotional support and information about breast cancer, procedures and treatment options.

The organization was founded in 1978 by the late Ann Marcou and Mimi Kaplan. They were two breast cancer survivors who sought to provide support for fellow breast cancer patients and loved ones. Nearly 30 years later, Y-ME is a premier resource for breast cancer information and services, all provided completely free of charge.

Y-ME Hotline: 1-800-221-2141 or 1-800-986-9505 (Spanish).

To find out more about Y-ME's local affiliates, support programs and services click here.

Ralph Lauren gallops toward cure with Pink Pony Fund

Pink Pony is the catch phrase for Ralph Lauren's initiative in the fight against breast cancer. Not only does Ralph Lauren support the fight by donating 10 percent of the proceeds from Pink Pony products to charity, but he has his own charity -- The Pink Pony Fund for Cancer Care and Prevention.

The Pink Pony Fund is a worldwide philanthropic effort. In the United States alone, Pink Pony recipients include Women's Cancer Research Institute at Cedars-Sinai in Los Angeles, Memorial Sloan-Kettering Cancer Center and Breast Cancer Research Foundation in New York City, Prevención, Inc., and Nina Hyde Center, both in Washington, D.C.

One of the premiere services provided by the Ralph Lauren Center for Cancer Care and Prevention is the patient navigator -- a concept created by Dr. Harold Freeman, medical director of the Center. Navigators assist patients and family members with access to health-care services and help them move with ease through the medical system. Navigators help patients with communication barriers, financial concerns, insurance difficulties, emotional issues, and more.

There is more than meets the eye when it comes to the pink pony. It is not merely a fashion statement that happens to kick a few dollars toward breast cancer research. It is a statement of true compassion and concern and commitment. It is a symbol of one man's hard work over the past 15 years to make a difference in the lives of women everywhere.

Mother bravely battles border for son battling leukemia

Luis Carranza is just eight years old. And he is just a few years -- or perhaps a few months -- away from dying as a result of a weakened immune system due to aggressive treatment for leukemia. The same treatment that at one time brought remission for this boy also attacked his central nervous system, caused seizures, brought on terminal and irreversible brain damage, and eventually sent him into a vegetative state. Luis has traveled a rough road -- and so has his mother who illegally slipped him across the Mexican border into the United States in hopes of treatment to save her young son's life.

Guadalupe Carranza did find salvation for her son in a Texas hospital and for more than one year, Luis received chemotherapy and radiation -- and loads of love from staff and volunteers who helped care for him. Guadalupe was not always there for her son, though, because after locating helpful health care and social services, she was deported to Mexico. She tried to return on many occasions and even received assistance from doctors, nurses, social workers, and attorneys who worked to find a legal way to unite Guadalupe and Luis. But not until Luis fell into a coma did efforts pay off.

After negotiation with border and consulate officials, Guadalupe was granted a humanitarian parole visa and legally crossed into the United States on May 8. The visa allowed her 60 days -- but officials agreed to let her stay until Luis passes away. And so she stays -- by her son's bedside where he rests peacefully in a place that gave him a chance at life. A chance his mother says he never would have had in Mexico.

Games for Health Project: video games smart cool thing to do

Few will argue the entertainment and interactive appeal of video games for a global legion of game players. Ben Sawyer of the Games for Health Project is simply planning to take video games in a new direction of greater purpose that retains all that's best in present day video games. He's not out to reinvent the wheel -- he is looking to design one of the hubs with a focus on health topics.

"This has absolutely nothing to do with the games industry needing to stand up and be apologetic about anything," insists Digital Mill president and game developer and co-director of the Games for Health Project Sawyer. "We are not doing this because game developers have a little PR problem that needs fixing. My goal is to get the industry to do this because it makes sense and it's a smart, cool thing to do, period."

What Sawyer has in mind runs along the line of HopeLab's Re-Mission, a challenging, 3D video game with 20 levels that takes the player on a journey through the bodies of young patients with different kinds of cancer. Players control a nanobot named Roxxi who destroys cancer cells, battles bacterial infections, and manages realistic, life- threatening side effects associated with the disease.

Sawyer blogs the Games for Health Project. As stated on the blog, the goal of the project is to "help foster and support a community of researchers, developers, and users of applications in game technologies and with game development talent to create new ways in playing a greater role in helping to organize and accelerate the adoption of computer games for a variety of challenges facing the world today."

In September, the Games for Health Project will hold its annual conference in Baltimore Maryland. For more details, visit the Games for Health Project blog. Fascinating stuff in innovative applications.

John "Jack "Murtha makes news about war, breast cancer

Less than one year ago, Rep. John P. "Jack" Murtha, D-Pa., came crashing onto the national scene with his opinion that the U.S. military could accomplish nothing more in Iraq and should be pulled out of the war zone. It was a harsh opinion -- and one his Democratic partners thought might hurt their party at a time when they were trying to gain control of Congress. The fact that the Democrats had been seen as weak on national security didn't help. And then a funny thing happened.

Murtha, 74 -- a decorated Marine and the first combat veteran of the Vietnam War elected to the House of Representatives -- became one of the most popular Democrats around, despite or maybe because of his passionate beliefs. Once a behind-the-scenes kind of man, he is now in the public eye. He's out raising money for Democrats in many states. He's attending fundraising events with Al Gore and others. And he's gathering allies at every turn. And while he still faces opposition, he believes that he must make public what he stands for. And so he does. And because of his recent uncharacteristic charismatic presence, details about this once-to-himself man are emerging. Details like these: A local airport is named for him. An institute for the study of neuroscience and pain is named for him. And a breast cancer center bears the name of his wife, Joyce.

The Joyce Murtha Breast Care Center at Windber Medical Center opened its doors in February 2002. Located in Windber, Pennsylvania, this center began as a collaboration between Walter Reed Army Medical Center and Windber Medical Center and ever since its beginning has offered full diagnostic services for breast health and disease in one convenient location.

Murtha is surely raising awareness with his opinion about the military and national security and war. And even breast cancer gets a little press out of the whole frenzy surrounding this man and his efforts. Which reminds me that somehow, breast cancer seems to touch the lives of just about everyone is some way.

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