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Posts with tag access

Thought for the Day: Thinking about lung cancer

Have you been thinking about lung cancer and longing for the most reliable facts and figures on this number one cancer killer? If so, you're in luck because the National Lung Cancer Partnership has just released a new and free resource called Living With a Diagnosis of Lung Cancer. The booklet features basic questions about what a lung cancer diagnosis means.

"When people hear the words, 'You have lung cancer,' their mind starts racing, and they hear or remember very little of what comes next," said Dr. Joan Schiller, M.D., president of the National Lung Cancer Partnership. "Even in this age of the Internet with information at your fingertips, patients and their families often don't know what to ask or are intimidated about doing so. This booklet was designed to be an easy-to-read resource for many of the initial questions people might have, from what kinds of doctors will be treating you to whether or not a clinical trial is right for you."

Patients can access this resource online, where other links to additional resources are available.

Thought for the Day: Headed for melanoma

Oh no. I think I 'm headed for melanoma. At the very least, I seem to have a very high risk for developing the disease, thanks to my once-stubborn pursuit of a silly tan.

Think about this:

A review of seven different studies concludes that using a tanning bed under the age of 35 -- I'm so guilty -- can increase the risk of melanoma by 75 percent. Even those who have ever used indoor tanning were 15 percent more likely to develop the disease.

We're talking the deadliest form of skin cancer here. So deadly some experts are recommending strong measures to restrict the use of tanning beds by young people. Adults should be discouraged from tanning, some say, but access should be limited for those under the age of 18.

New Jersey already has regulations in place -- those under 14 are banned from tanning salons and anyone between 14 and 18 must have parental consent.


If I could turn back time, I would listen to my grandma. She told me the sun -- and tanning beds too -- were no good. But I was young. And I didn't care.

Now I'm older. And I care. But it may be too late. It seems this could be one lesson I learn the hard way.

Thought for the Day: Consider this a wake-up call

Fewer women are getting mammograms. Facilities offering mammograms are closing. Mammogram machine usage is declining. And we don't really know why.

"We're heading in the wrong direction," says Carol Lee, professor of radiology at Yale University School of Medicine and chair of the American College of Radiology's commission on breast imaging.

"If this decline holds up, it will be very worrisome," she says.

"We're looking at a possible increase in deaths if we see this continue," according to Diana Balma, vice president of public policy at Susan G. Komen for the Cure.

Studies don't show which women -- rich or poor, young or old, educated or uneducated -- are skipping these critical screenings, but there are a few possible reasons for this dangerous drop.

Think about this:

Perhaps there are fewer facilities, staffed by fewer radiologists and technologists due to high lawsuit rates and modest reimbursement. This is scary -- because the number of women old enough to get screened is increasing.

Women may be missing out on all sorts of necessary medical care because of inadequate health insurance or other access problems.

Women may be choosing, for whatever reasons, not to get mammograms, despite strong public urging that women age 40 and older get screened one time every year.


And now think about this:

Recent news about declining breast cancer rates may not be all that good. It may not be that fewer women are developing breast cancer. It may simply be that fewer women are getting early diagnoses because of irregular or nonexistent screening.

Cervical cancer vaccine discount pursued for poor nations

United States drug company Merck hopes to offer the cervical cancer vaccine Gardasil to developing countries at much lower prices -- within months, if possible.

Currently, the three-dose vaccine is not affordable in the developing world -- where 80 percent of cervical cancer deaths occur and 95 percent of females have never had a Pap test . And while the exact discounted price has not yet been determined, Merck professionals report they are committed to slashing the price of Gardasil for these women.

Merck also aims to help developing countries receive drugs sooner. Right now, there is a time lag of 15 to 20 years between the approval of drugs in the West and the time they reach these countries.

International health experts are pushing for rapid worldwide access to Gardasil, the vaccine that protects women against the sexually transmitted human papillomavirus (HPV) which causes most cases of the disease.

At this time, the vaccine is available in the United States and in 13 European Union countries.

Sunday Seven: Seven thoughts on coordinating cancer care

Nearly half of all cancer patients and others in their households have trouble coordinating cancer care, according to a recent public health poll.

Many who participated in a recent telephone poll revealed they were confused about prescriptions, were sent for duplicate tests, and received conflicting information about their treatment plans.

Experts say choreographing care is one of the most important challenges in the world of cancer. Navigating the maze of medical madness can be emotionally draining and can even hurt a patient's chance of recovery.

Now is the time to become advocates for our own health -- before we are left behind. So get ready to take charge -- and consider these seven thoughts on actively coordinating your own cancer care.
  • Today, cancer patients spend more time at home and not in hospitals like they did generations ago. This leaves them to manage much of their care on their own -- often a monumental and overwhelming task. Patients, or a designated friend of family member, should document every tidbit of medical information, including names, phone numbers, medical records, instructions, medications, dosages, appointments, questions, responses, and more. Jot down symptoms and worries and concerns. File away pamphlets and handouts and bills and receipts. Don't count on memory alone to provide all the details. Allow for back-ups. They will serve you well.
  • Most cancer patients need a whole team of doctors -- radiologists, pathologists, medical oncologists, radiation oncologists, surgeons -- but each doctor may handle only one aspect of care while no one runs the show. It's the perfect scenario for disrupted and piecemeal care, says one doctor. Consider searching for comprehensive cancer centers where a variety of professionals are housed under one roof and patients can often meet with all their doctors at one time. Currently, only about 10 percent of cancer patients are seen at this type of large center.
  • Many doctors are stuck in electronic gridlock because doctors in one building may be unable to access the records of doctors in other locations due to incompatible computer systems or paper charts. Patient advocates say all patients should have easily accessible electronic medical records. One cancer center hopes to start a program that would allow for storage of patient records on small, portable USB flash drives. Patients would keep the drives and could plug them in at home or at their doctor's office.
  • Cancer patients often suffer from lack of information. Long-term survivors, for example, often have trouble recalling exactly what was done to them. And over time, doctors may relocate or pass away, leaving survivors with little to reconstruct their journeys.
  • Shortly after diagnosis, patients should request from their doctors a care plan -- an outline of how doctors plan to treat their cancers.
  • Patients should also receive a treatment summary at the end of therapy. This should outline all surgeries, chemotherapy, radiation, medications, and dosages.
  • A plan for ongoing care should be offered to all cancer patients so they know how to monitor their health. This plan should include guidance on screening tests, follow-up visits, and potential long-term side effects.
"A lot of anxiety results from not knowing what comes next", says one patient advocate. "People armed with good information tend to make better decisions."

Direct access laws do not increase cancer screening in women

Laws were established in an attempt to improve women's health by allowing women direct access to obstetricians or gynecologists. Managed-care plans were forced to allow women to make these appointments without having a referral from their primary care physicians. This gave women easier access to get screened for breast and cervical cancer. It was thought that this approach would increase the likelihood of the women getting the preventative tests.

A study was conducted to compare health care utilization among privately insured women before and after passage of direct-access legislation in various states. The study, published in the current issue of Health Services Research, found that there is no evidence for a strong consistent relationship between direct-access legislation and screening rates for breast or cervical cancer.

So it's not working according to lead author Laurence Baker, Ph.D., of the Center for Health Policy at Stanford University. "Good health care requires much more than having these laws in place. Maybe direct access legislation isn't the right way to go about this at all. Consumer and provider education may be better ways of improving population health. Covering preventive care for uninsured individuals is also key." said Baker.

Ralph Lauren gallops toward cure with Pink Pony Fund

Pink Pony is the catch phrase for Ralph Lauren's initiative in the fight against breast cancer. Not only does Ralph Lauren support the fight by donating 10 percent of the proceeds from Pink Pony products to charity, but he has his own charity -- The Pink Pony Fund for Cancer Care and Prevention.

The Pink Pony Fund is a worldwide philanthropic effort. In the United States alone, Pink Pony recipients include Women's Cancer Research Institute at Cedars-Sinai in Los Angeles, Memorial Sloan-Kettering Cancer Center and Breast Cancer Research Foundation in New York City, Prevención, Inc., and Nina Hyde Center, both in Washington, D.C.

One of the premiere services provided by the Ralph Lauren Center for Cancer Care and Prevention is the patient navigator -- a concept created by Dr. Harold Freeman, medical director of the Center. Navigators assist patients and family members with access to health-care services and help them move with ease through the medical system. Navigators help patients with communication barriers, financial concerns, insurance difficulties, emotional issues, and more.

There is more than meets the eye when it comes to the pink pony. It is not merely a fashion statement that happens to kick a few dollars toward breast cancer research. It is a statement of true compassion and concern and commitment. It is a symbol of one man's hard work over the past 15 years to make a difference in the lives of women everywhere.

Millions in Florida have not received mammograms

There has been a great increase during the past 10 years in the number of women receiving mammograms in Florida. But shockingly, almost one million Florida women over the age of 40 have still not ever received mammograms. So the American Cancer Society has teamed with the Medical Quality Assurance Inc. -- and they have co-published a guide to help these women locate a mammography center that meets their needs. This guide is sorted by city and is available on the American Cancer Society website for quick and easy access.

I can only imagine how the numbers stack up in consideration of all states -- and not just Florida. I can only imagine why these one million women in my state alone have not reported for this critical test --perhaps reasons stem from lack of awareness, lack of access, lack of financial resources, lack of concern. I can only imagine that not everyone -- due to life circumstances -- can be a recipient of this potentially life-saving test. Like I was -- at the age of 34 with a small but aggressive cancerous tumor living in my left breast. My referral for a mammogram saved my life. And I can only imagine how many more women might be saved from the horror of breast cancer because a mammogram assisted in early detection. I can only imagine that the day will somehow arrive when all women -- of all ages -- are afforded the opportunity for this test. And that those who have the opportunity -- and the means -- decide to delay no further.

Port saves veins, eases discomfort of chemotherapy

This is my port. It looks to me like a bottle cap sewn under the skin on my chest. My son Joey -- he is five years old --  calls it my stone and his brother Danny -- he just turned three -- at one time thought everyone must have this same boo-boo. He would look for it, feel for it, hunt for it. But mine is the only port he could actually locate and now that he's getting older, he is not so concerned with it anymore.

My concern about the port is that everyone who needs chemotherapy should have one. It's the alternative to receiving IV sticks in the arms and hands and except for one quick stick that can sting -- I use a 5% lidocaine numbing cream prior to my infusion and with this miracle lotion, I don't feel a thing -- it is quick and painless. My port is a one-stop shop. Once accessed, blood can be drawn, drugs and fluids can be infused, shots can be injected, and at the end of treatment, an injection of blood thinner keeps the line clear and clean. The line attached to the port underneath my skin travels into large veins in a direct and efficient manner. While hospitalized for chemo-induced fever and low blood counts, I received antibiotics and a blood transfusion through this method. There was one stick when I was admitted and for my five-day stay, I never had to be poked again.

My port, called Infuse-a-Port®, was implanted during a minor outpatient surgery with use of a local anesthesia and it was ready for use immediately after the procedure.

My port has been used for 16 months now and will no longer be necessary at the end of July -- this is when the last drops of Herceptin will sail through my veins. Then I get to decide whether to keep my port or have it removed. It can stay for many years as long as it is flushed once each month. The superstitious part of me thinks I should keep it for future use -- if necessary -- and the rational part of me thinks I need to get rid of this bottle cap because I may never need it again. Regardless, I love my port. It has eased the discomfort of chemotherapy and for that, I am grateful.

Billy Bush celebrity reporter blogs children with cancer

Billy Bush, co-anchor of Access Hollywood, the daily entertainment newsmagazine that provides coverage of entertainment personalities on television, also keeps a blog. Yesterday, he blogged his recent visit to Padres Contra de Cancer, a children's hospital in Los Angeles. Eva Longoria had invited him to come with her as she is a long-time supporter and visits quite often.

Bush blogs, "I arrived early to walk through the hospital floor, meet the organizers and get acquainted with some of the families whose children were in the fight of their lives. I was a bit nervous and anxious, because above all else, I will never understand why some children have this disease.  It hurts to the core just trying to fathom this injustice."

During his visit, Bush met a little boy named Kevin, who is undergoing chemotherapy treatments and who has decided to set up a lemonade stand to raise money for video games he wants. Bush asked Kevin how much he was charging for a glass of lemonade and he said he was charging $100 dollars a glass. The next day, Bush received an email from Kevin's mother saying that Kevin had decided to slash the price of his lemonade by 90 percent to the incredible sale price of ten dollars a glass. So, if you are looking for a really good deal on a glass of lemonade, contact Padres Contra de Cancer -- they can hook you up.

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