Don't miss Joystiq's up-to-the-minute live coverage of E3!

Note: The contents of this blog are for informational purposes only and should not be construed as medical advice or substitute for professional care. For medical emergencies, dial 911!

Posts with tag advocate

Inspiring interview with June Callwood

June passed away in April, she was 82. She was one of Canada's most celebrated authors and social advocates. She helped the homeless, dealt with issues of racism and injustice. She did much volunteer work.

In 2004, June was diagnosed with inoperable cancer and refused to undergo treatments.

I came across a last interview with her that I thought was very moving. She talks about her life, her marriage, and the fact that her cancer is terminal.

What an amazing woman.

Ignite the Promise: Global Advocate Summit

My friend and fellow young breast cancer survivor has received a great honor to serve as one of the 55 delegates representing breast cancer advocates worldwide at Ignite the Promise: Global Advocate Summit in Hungary.

I'm so proud of you Deb!

This press release says it all:

Deb Kirkland, of Baltimore, MD, has been selected to serve as one of 55 delegates representing breast cancer advocates worldwide at "Ignite the Promise: Global Advocate Summit" in Budapest, Hungary, Sept. 29-30, 2007.

Organized by Susan G. Komen for the Cure, the world's largest grassroots network of breast cancer survivors and activists, the summit will pair the 25 U.S. breast cancer advocates with their counterparts from 30 countries. The overarching goals for holding this international summit are to elevate the dialogue on breast cancer's global impact and to share strategies used to combat breast cancer in the delegates' local communities

"Each year, more than 1 million women worldwide receive a breast cancer diagnosis," said Nancy G. Brinker, founder of Susan G. Komen for the Cure. "The need to provide these women-regardless of race, nationality, or socioeconomic status-an equal opportunity to beat a breast cancer diagnosis has never been greater. This summit will enable advocates to share outreach tactics that have been implemented in the U.S. and elsewhere to meet our collective goal of saving lives and ending breast cancer forever."

Continue reading Ignite the Promise: Global Advocate Summit

Thought for the Day: I'm too young for this

There's this guy. His name is Matthew Zachary. He's a cancer survivor, a motivational speaker, a concert pianist, and the founder of a resource portal for young adults surviving cancer.

Steps for Living, Inc. -- also known as I'm too young for this -- was created by Zachary because he wants us all to know there are awesome cancer support services out there for adolescents and young adults. He means really awesome opportunities -- like spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, financial scholarships, and more.

You may be too young for cancer, but you are not alone, says Zachary whose mantra is Get Busy Living. And this is exactly what he is doing, despite challenges and setbacks in his own cancer recovery.

Think about this, an e-mail written by Zachary for those near and dear to his heart:

I am writing to share that I have suddenly gone deaf in my left ear. The condition is called Sudden Sensory Neural Hearing Loss.

After consulting with the country's best hearing experts as well as my oncologist, it has been determined that this is unequivocally a latent, long-term side effect of my post-operative cancer treatments from eleven years ago. Evidently, the excessive radiation dosages to the left hemisphere of my brain have caused irreparable neurological damage to my cochlea, which has ceased functioning.

There may be options (cochlear implants) but I will not know more for several weeks. As you can imagine, this is a devastating blow to my personal life and music career, especially since I remember fighting so hard to regain dexterity and muscle control in my left hand when it ceased functioning prior to my initial diagnosis in 1995.

That said, it has only reinvigorated me to stay the course and continue to advocate on behalf of the more than 500,000 young adults living with, through and beyond cancer each and every year. Now more than ever, I stress the importance of recognizing that remission is not a cure and that public awareness and adequate funding for adolescent and young adult cancer survivorship programming is tantamount to that of cancer research.

This is what it means to be a cancer survivor.

To read more about Zachary's powerful journey, click here for an unbelievably moving essay -- titled The Cost Of Living: No Cure For Cancer -- written by this unbelievably grounded guy.

Patients suffer as illiteracy stacks up

In 2003, 29 percent of the American population had only basic prose literacy skills and 14 percent had below-basic skills.

Prose literacy measures the skills needed to understand texts such as new stories, brochures, and instruction manuals. People with basic skills can perform simple, everyday literacy activities. Those with below-basic skills are proficient in only the most simple and concrete literacy.

How is it that these individuals, when they are diagnosed with a disease such as cancer, are able to understand the medical jargon thrown their way, the literature that piles up in front them, the complicated process we call the medical system?

They aren't. And this leads to increased chances that people will be hurt, even killed, in the course of their medical treatment.

There are many barriers that lead to miscommunication -- cultural differences, language problems, and overall poor literacy skills -- and experts in this area are recommending some changes. They urge more education and training for health care professionals who may not ever imagine someone might not understand their words. They suggest health teams use medical interpreters. And they seek to embrace a culture of easy-to-understand communication in all aspects of medical care.

Toni Cordell, a nationally-known health literacy advocate, says humiliation and shame washed over her three decades ago when her gynecologist told her she needed a simple repair and she woke from surgery to learn she'd had a hysterectomy. Struggling at the time with dyslexia and a poor education, Cordell never asked any questions of her doctor. She just accepted the course of action, without knowing anything about it.

"Ignorance is not bliss," she says. "It's not a good place to be."

Casino worker gets cancer and gets fired

Vincent Rennich, veteran casino worker and non-smoker, is suing the Atlantic City Tropicana Casino and Resort because he claims a quarter-century of inhaling secondhand smoke gave him lung cancer. And if that's not enough to make this man upset, getting fired seals the deal.

"They threw me under the bus," Rennich said yesterday, the day after a supervisor told him he was terminated from his job. "How can you fire a guy with lung cancer who's suing you? Maybe they don't realize the ramifications. Or maybe they're heartless. Or maybe all of the above."

Tropicana officials say that Rennich was not singled out in any way, that he was just one of many let go due to a restructuring of the company. Since last January, more than 200 people have been laid off.

Rennich, 49 and a table games supervisor, has been a vocal advocate of a total smoking ban in Altantic City's 11 casinos. He has been speaking out on behalf of everyone working on the casino floors, and for himself personally.

Rennich had a third of his right lung removed in September 2005 and sees a doctor every three months to ensure his cancer does not reappear. Now that he's been fired, his health insurance will lapse in 30 days, leaving him with a monthly payment of $800 in medical bills.

Atlantic City was slated to ban all casino smoking this past January. But fierce opposition from the casino industry, predicting an estimated revenue loss of 20 percent and job losses of more than 3,400, led to a compromise. And now, effective April 15, smoking will be restricted to no more than 25 percent of the gambling floor.

Rennich is not happy about this -- or his cancer or his termination. And while he is not sure what his next step will be, he says he is definitely not backing down from his anti-smoking platform.

Dr. Susan Love blogs breaking news in breast cancer research

If you have ever been diagnosed with breast cancer, it is quite likely that one of the first books, if not the only book, recommended to you was Dr. Susan Love's Breast Book. The New York Times rightly refers to her book as "the bible for women with breast cancer." Her second book, Dr. Susan Love's Menopause and Hormone Book, was one of the first to question the widespread use of postmenopausal hormones. Dr. Love is a genuinely trusted presence and clear voice in the world of women's breast health.

An eminent pioneer in the field of breast cancer for 30 years, and considered one of the founding mothers of the breast cancer advocacy movement, her mission, and the mission of the Dr. Susan Love Research Foundation, is to eradicate breast cancer within our lifetime and better the lives of women by generating resources and innovation for education, research, and advocacy on women's health issues.

Part of the recently redesigned Dr. Susan Love Research Foundation website is the addition of a blog. Dr. Love is blogging the San Antonio for the San Antonio Breast Cancer Symposium where she joins more than 8000 physicians, scientists, and breast cancer advocates in what is considered one of the most important conferences held each year regarding cancer.

On the first day, Dr. Love blogs both clinical and big picture highlights, including her take on two newsworthy study findings we posted here earlier today. The first concerns the common house mouse virus link to breast cancer and the second one regarding the dramatic decrease in breast cancer cases and the corresponding decrease in women using hormone replacement therapy (HRT).

Dr. Love posted, "There was a sudden dramatic (7 percent) decrease in breast cancer in 2003 corresponding with the equally dramatic decrease in women who stopped taking HRT after the WHI study found it appeared to do more harm than good. The study found 14,000 less breast cancers in one year! In my mind this is the final proof we need that taking hormonal therapy after menopause for the prevention of the diseases of aging makes no sense."

For a trusted analysis of the conference, you can find Dr. Love blogging the San Antonio Breast Cancer Symposium here.

Lance Armstrong: promoting healthy lifestyles in cancer prevention

On October 23, seven-time Tour de France winner and testicular cancer survivor Lance Armstrong, with attend a day-long meeting in Lexington, Kentucky as a member of the President's Cancer Panel to discuss the promotion of healthy lifestyles in reducing cancer risks. The President's Cancer Panel was created by the National Cancer Act over thirty years ago to monitor and evaluate all aspects of the National Cancer Program. The Panel identifies and conducts inquiry into concerns and emerging issues in cancer-related science and cancer care. Members of the Panel include Armstrong; Dr. LaSalle Leffall; Margaret L. Kripke, Ph.D.; and Abby B. Sandler, Ph.D.

Dr. LaSalle Leffall is the Charles R. Drew Professor of Surgery, Howard University College of Medicine in Washington, DC, and Chairman of the Board of the Susan G. Komen Breast Cancer Foundation. Margaret L. Kripke, Ph.D., is Professor of Immunology and Executive Vice President and Chief Academic Officer of The University of Texas M.D. Anderson Cancer Center. Abby B. Sandler, Ph.D., Chief, Institute Review Office (IRO), National Cancer Institute (NCI), became Executive Secretary of the President's Cancer Panel in January of 2005.

The meeting in Kentucky will focus on recommendations related to tobacco and exposure to indoor smoke. Researchers and experts will attend the meeting to join the discussions.

To learn more, Assessing Progress, Advancing Change 2005-2006 Annual Report President's Cancer Panel is a 133-page report available as a PDF document.

Guru of Ganja: medical marijuana advocate faces new pot charges

Medical marijuana advocate Ed Rosenthal has been indicted again by a federal grand jury on a number of counts including conspiracy to manufacture and distribute marijuana; money laundering and filing false tax returns related to a marijuana operation.

This is not the first time Rosenthal has been brought up on charges involving medical marijuana activities. Three years ago, he was convicted for cultivating marijuana for a city of Oakland medical marijuana program. An appeals court overturned the conviction this past April, citing jury misconduct, but it upheld federal powers to charge marijuana growers.

The Ask Ed columnist for High Times magazine Rosenthal, 61, known as the Guru of Ganja and author of marijuana cultivation books, is quoted as saying, "What they're trying to show is that they can close down anybody, a legitimate club, a legitimate provider who's sanctioned by the city. They're trying to stop patients from getting their medicine."

Other medical marijuana-related posts include:
Medical use of marijuana on a doctor's recommendation is legal in a number of states but prohibited by federal law.

Survivor Spotlight: Wendy Chioji reports on breast cancer

Since 1988, Wendy Chioji has been a reporter and anchorwoman for WESH 2 News in Orlando, Florida. She has covered news ranging from the pope's visit to Cuba in 1998 to the Olympic Winter Games in Salt Lake City in 2002. She continuously covered last year's hurricanes, and she has an Emmy award under her belt for a special news report on heroin use.

Wendy is a top notch athlete. She has run five marathons and competed in several triathlons and half-ironman races. She has ridden in parts of several stages of the Tour de France, and traveled across the country with Lance Armstrong in 2003 -- covering 550 miles -- with the Tour of Hope event to raise awareness for cancer research. Wendy has also made a tour with stage II breast cancer. Since 2001, she has been surviving this disease.

Continue reading Survivor Spotlight: Wendy Chioji reports on breast cancer

No time for good manners when battling cancer

Battling cancer reframes life, written by Susan T. Lindau, speaks to my personal experience of cancer diagnosis and treatment. It may speak to your cancer experience as well. Although Lindau was diagnosed with stomach cancer, and I diagnosed with breast cancer, there are similarities that transcend the particulars of what cancer has been diagnosed.

Such as learning to wait. In an old diary entry I wrote during the time I was undergoing treatment, "if I am always on time for my appointments, why is the doctor never on time to see me." This came out of the regularity of sitting for at least two hours -- no I do not exaggerate the length of time -- beyond the time I was scheduled to see the doctor before I ever saw the doctor.

I, too, had an excellent team of physicians and nurses. I attribute their care with making it to cancer survivorship -- but there is at least one physician or nurse you are likely to meet along the way, who, in lacking good bedside manners or intelligent wisdom, really should be in a different profession. Physicians and nurses are human, and cancer scares a good many human beings. But if you are in the medical profession, allowing cancer to intimidate you is not good for the patient. As a cancer patient, you learn to reject such negativity in all its subtle forms. You learn to be an outspoken advocate for your cancer care.

Your medical team needs to believe in your cancer survivorship.

Lindau talks about learning new social skills that were not really a result of any intention to good manners as they were an inner drive of anger and resolve to fight cancer -- and to do whatever needed to be done to make it through to the other side. Battling cancer reframes life is very well-written and could only have been written by someone who has experienced a cancer diagnosis and gone through treatment.

Sheryl Crow: women need to be demanding of doctors

Sheryl Crow, breast cancer survivor and active advocate for breast cancer issues, is advising women to demand immediate additional testing when breast calcifications are discovered -- rather than accepting the wait-and-see approach with instructions to come back in six months for another mammogram.

Crow is quoted as saying, "If, after a routine mammogram, the person who is examining you says, 'There's some calcification in your breasts, we'll keep our eye on it; come back in six months' -- don't. Schedule a needle biopsy now. If I had waited six months to do the biopsy, who knows where I'd be today."

Good advice for women who suspect anything is wrong. As our dear friend Kristina Collins, who blogs with us, recently shared in her personal experience of delayed breast cancer diagnosis, when she first discovered a lump in her breast and sought medical attention, she was told not to worry -- she was too young to have breast cancer. No tests were done and Kristina was sent home. She initially trusted her doctor's opinion. Nearly a year later, she demanded tests be done and was subsequently diagnosed with breast cancer.

Unfortunately Kristina lost almost a year when her breast cancer could have been treated at an earlier stage. Unlike Crow, who wonders where she might be now had she waited another six months before breast cancer diagnosis, Kristina wonders the opposite -- what it might have been like if she had been diagnosed and treated sooner. We must be our own best advocate when it comes to our health and insist on cancer screening at the first sign of trouble.

Tim Hadcock-Mackay: active cancer fundraiser found hanged

Eccentric hotelier and television personality Tim Hadcock-Mackay, who is reported to have been an active fundraiser for Sargent Cancer Care for Children, was found hanged. While the police investigating do not suspect foul play, nothing at this time has been ruled out.

According to news reports, Hadcock-Mackay was found in the woodlands behind his lavish 19th century manor Barnby Moor Hall. At the time of his death, Hadcock-Mackay and life partner Torquil Mackenzie-Buist were in talks for a new television show featuring their home to the public called Mayhem At The Manor.

Continue reading Tim Hadcock-Mackay: active cancer fundraiser found hanged

Betsey Johnson: whimsical flamboyant breast cancer survivor

Fashion designer Betsey Johnson is the definition of original. As colorful and spirited as her fashion designs and clothing stores, at 63, she embraces life with equal creative enthusiasm. A journalist is quoted as once saying, "If Betsey Johnson didn't exist, we would have to invent her. She's the original wild child set to paint the town pink!"

In 1999, Betsey was diagnosed with breast cancer. After surgery and 33 radiation treatments, she became a breast cancer advocate involved in fundraising events and creating one-of-a-kind items that have been auctioned off to raise money for breast cancer charity. She has been an Honorary Chairperson for the Fashion Targets Breast Cancer initiative and was honored with an award by the National Breast Cancer Coalition for her contributions and work as a breast cancer advocate.

Two years ago, she designed a special tee for the book written by Geralyn Lucas, Why I Wore Lipstick to my Mastectomy. Both the book and tee were part of the Courage Night campaign launched through the chain of Betsey Johnson stores.

To find out what's new and what Betsey is up to next, visit the Betsey Johnson website.

Montel Williams: poster child for pot

When Montel Williams testified before the Senate Health, Human Services and Senior Citizens Committee in favor of medical marijuana for chronically ill patients, he referred to himself as a poster child for pot. Williams, who hosts a television talk show, was diagnosed with multiple sclerosis almost a decade ago.

MS can cause debilitating pain. For those who might be unaware, let me share with you that Williams does not exaggerate. My sister-in-law suffered from MS all of her adult life, before losing her life to MS at the age of 40, and I will tell you first-hand, there is suffering. When I think of all the life that MS stole from her, and all that she endured, I feel frustration towards anyone who would have denied her the best quality of life available. I am fed up with the lack of compassion of those who would deny anyone suffering from chronic or life-threatening disease the best quality of life available to them. For Williams, it is medical marijuana that offers him the best quality of life possible.

Continue reading Montel Williams: poster child for pot

Prince Charles: old remedies for a modern world

In a universal health system, care is rationed by medical priority when determining where health dollars will be spent and what types of treatment will be covered. In the UK, a debate is taking place between British scientists who are recommending that unproven or disproved complementary therapies not be funded and therapists of complementary medicine who argue that many of the alternative therapies have been proven effective and should be funded for patients who can benefit from such therapies. This has opened up a whole new discussion in defining exactly what alternative or complementary therapies are and what place they have in modern medical practice.

Meanwhile, Prince Charles, a strong advocate of alternative therapies and organic foods, spoke to World Health Assembly members of the World Health Organization about the need to consider making better use of traditional therapies, particularly acupuncture and herbal medicines, to improve health care around the world.

"I believe that the proper mix of proven complementary, traditional and modern remedies, which emphasizes the active participation of the patient, can help to create a powerful healing force in the world,'' Charles said. "This is where orthodox practice can learn from complementary medicine, the West can learn from the East and new from old traditions."

Prince Charles is concerned that if we do not recognize the wisdom and value of the past, much of that knowledge will be lost. Putting aside politics, monarchy and scandal, I am gaining more respect for the Prince of Wales the more I learn about his perspectives concerning health and the environment.

Next Page >

Cancer Fundraisers
 (0)
Cancer events (141)
Pink products (63)
Celebrities
Celebrity cancer diagnosis (73)
Celebrity fundraisers (83)
Celebrity in memoriam (75)
Celebrity news (173)
Celebrity spokesperson (46)
Features
Form and Function (7)
Today, I Am Grateful (10)
Worthy Wisdom (21)
RetroReview (6)
Saturday Six (4)
Sunday Seven (64)
Survivor Spotlight (40)
Cancer by the Numbers (17)
Recipe Healthy Living (52)
Healing Attitude Almanac (6)
Thought for the Day (148)
Media
Blogs (144)
Books (109)
Magazines (51)
Movies (21)
Products (154)
Services (116)
Sports (20)
Television (101)
Video games (4)
Meet the Bloggers
Bloggers (13)
Jacki Donaldson (2)
Kristina Collins (1)
Diane Rixon (1)
Nine DeJanvier (1)
Chris Sparling (1)
Allie Beatty (1)
Dalene Entenmann (1)
News
Daily news (684)
Events (85)
Fundraisers (169)
Opinion (170)
Politics (145)
Research (799)
Prevention
Cancer prevention foods (170)
Diets (213)
Environment (115)
Exercise (94)
Non-toxic alternatives (35)
Nutrition (131)
Obesity (52)
Smoking (101)
Stress Reduction (91)
Vitamins and nutrients (90)
Treatment
Alternative Therapies (411)
Cancer Caregivers (71)
Cancer Pre-vivors (21)
Cancer Survivors (469)
Chemotherapy (495)
Clinical Trials (160)
Drug (497)
Hospice (18)
Prevention (1327)
Radiation (77)
Stem Cell (25)
Surgery (40)
Types of Cancer
 (0)
All Cancers (820)
Anal cancer (2)
Animal (18)
Bladder Cancer (39)
Blood Cancer (18)
Bone Cancer (15)
Brain Cancer (106)
Breast Cancer (1324)
Cervical Cancer (72)
Childhood Cancers (204)
Colon and Rectal Cancer (235)
Endometrial Cancer (25)
Esophageal Cancer (35)
Eye Cancer (6)
Gallbladder Cancer (2)
Gastric cancer (5)
Germ Cell Tumors (1)
Head and Neck cancer (13)
Hodgkin's Lymphoma (55)
Kidney Cancer (56)
Leukemia (145)
Liver Cancer (50)
Lung Cancer (273)
Melanoma (105)
Mouth Cancer (42)
Multiple Myeloma (13)
Neuroblastoma (1)
Non-Hodgkins Lymphoma (56)
Oral Cancer (16)
Ovarian Cancer (154)
Pancreatic Cancer (78)
Pet Cancers (11)
Pregnancy and cancer (6)
Prostate Cancer (233)
Rectal Cancer (3)
Sarcoma (8)
Skin Cancer (153)
Stomach Cancer (28)
Teen Cancers (26)
Testicular Cancer (17)
Throat Cancer (20)
Thymic Cancer (0)
Thyroid Cancer (49)
Tissue Cancers (1)
Tongue Cancer (3)
Unknown Primary (2)
Uterine Cancer (9)
Womb Cancer (1)
Young Adult Cancers (104)

RESOURCES

RSS NEWSFEEDS

Powered by Blogsmith

Other Weblogs Inc. Network blogs you might be interested in: