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Posts with tag assistance

Shirley Mae Run & Gilda's Club Walk 2007

This past mothers day weekend I attended the Shirley Mae Run & Gilda's Club Walk held in Atlantic City, New Jersey. It was a beautiful Saturday to take a stroll on the boardwalk. My dad flew in from Arizona for the event and my mom drove from Philadelphia. I'm very lucky that my parents are so supportive.

The Shirley Mae Breast Cancer Assistance Fund was started by Roy Goldberg to honor his mother, Shirley Mae, who survived breast cancer. The fund assists breast cancer patients in the south-eastern area of New Jersey with the cost of medicine, wigs, prostheses, and anything else needed to relieve financial stress so they can focus on healing and becoming survivors too.

Continue reading Shirley Mae Run & Gilda's Club Walk 2007

The cost of fighting cancer: there is help available

The cost of drugs to treat cancer can be very expensive. If you do not have good medical insurance it could prove disastrous for you and your family.

I read an article in Cure Magazine last night called Help for Patients. In this article it provided information on assistance programs. It also mentioned that many patient assistance programs will require proof of income, social security income, interest and retirement to prove financial burden and to meet income requirements of the programs.

Patients interested in enrolling in an assistance program can start by doing some research on the organizations listed below:

Hitting Home: help and tips for cancer patients losing homes

"This is shocking. Having cancer should not cost you your home," states Macmillan Cancer Support's General Manager for Wales, Cath Lindley. For six percent of cancer patients, loss of home follows a diagnosis of cancer. In number, six percent represents approximately 15,000 people. For those who are self-employed, 11 percent lose their home. Another 18 percent face devastating financial hardship and desperately struggle to make the rent or mortgage payment.

What's going on? Cancer treatment can be debilitating and require the patient to take time off from work. Some cancer patients lose their job. Factor in increased medical costs including prescription drugs, special diets and transportation costs and it becomes a recipe for financial disaster, and ultimately, homelessness.

UK's Macmillan Cancer Support has launched Hitting Home, and in partnership with Shelter, a national housing charity program, to offer help to cancer patients who are in a financial bind as a result of a cancer diagnosis and treatment.

The Hitting Home program offers these tips for cancer patients facing financial difficulties:
  • Talk to your mortgage lender and explain -- you may be able to switch to an interest only mortgage, defer payments or take a mortgage break. Or talk to your landlord and explain your situation.
  • Check your insurance policies. You may find your rent or mortgage is covered.
  • You might be entitled to claim benefits such as disability living allowance, income support, or housing tax benefit.
The tips are useful for anyone, regardless of the country in which they live. However, if you live in the UK, visit Macmillan Cancer Support for contact numbers and direct assistance.

Survivor Spotlight: Jennifer Matherly inspires with grace

Jennifer Matherly is a 27-year-old wife, mother, daughter, sister, insurance broker, student, and friend. She is also a breast cancer survivor. Jennifer, who lives in Columbus, Ohio, enjoys golfing, watching football, and spending time with friends and family. She doesn't have much free time lately -- but when she finds moments all to herself, she tends to her hobbies which include cross-stitching and working on her blog.

Jennifer's blog began as a story about her journey to motherhood. It turned into a story about her journey with breast cancer. It's an inspiring read, full of trials and triumphs. It's a testament to her strength and courage and sheer determination. It's a story of survivorship -- a little something like what follows.

Continue reading Survivor Spotlight: Jennifer Matherly inspires with grace

Some chemotherapy side effects warrant immediate attention

I was in the emergency room the other night with my three-year-old who was experiencing a mysterious leg pain that resulted from a bad case of strep throat. It wasn't serious enough to warrant swift movement from the waiting room to an actual room and we sat in a holding pattern with a crowd of other patients, some of whom were still waiting after Danny had been treated and released. I was told patients are served in the order in which they arrive but also according to the seriousness of their complaints -- which takes me back to the night I was in the ER with a fever, headache, sore throat, and sore gums. The night I was given a mask and was immediately escorted from the waiting room to a private room where doctors and nurses treated me for neutropenia -- a condition caused by chemotherapy and marked by a drop in neutrophil levels, a condition that puts chemotherapy patients at great risk for infection. This was the second time I went to the hospital for neutropenia. Both times I was admitted and treated for five days.

And so sitting in the ER reminded me about how serious chemotherapy side effects can be. And it makes me want to caution all chemotherapy patients to never dismiss the signs that the body is suffering -- to never tough it out with the hope that a good night's sleep or a few days rest will straighten everything out. Because it may not -- and the end result may be tragic.

All chemotherapy patients should be briefed by their medical teams about when to call for medical assistance. For me, a temperature of 100.4 was the magic call-for-help signal. And twice, I called for help -- once in the middle of the night. But any symptoms , and definitely a combination of symptoms, are cause enough for a simple phone call. So don't delay. Don't excuse warning signs that your body is struggling. Don't second-guess your decision to notify a medical professional about your symptoms. Just call. It could save your life.

Asking for help delivers quick, overwhelming response

After my breast cancer diagnosis, I received endless offers from friends and family who offered to help me. I was offered meals, babysitting, errands, escorts to appointments, and two faraway friends even told me they would hop on a plane in an instant to come stay with me. I accepted a tiny bit of help -- like a meal here and there and a morning of babysitting -- but I really did not want much assistance. Mostly because I am do-it-myself type of person and however unhealthy this can be -- especially in the midst of a health crisis -- I wanted my life to remain as normal as possible. And if that meant taking care of my kids, despite nausea and fatigue, I wanted to do it. I wanted to be the one in the driver's seat on my way to treatments and procedures. And I wanted to run my own errands. Part of me believed that accepting help meant I was really sick. And I couldn't admit that. Yet it was true. I was sick. I needed help.

And I need help now too -- while I am healthy and strong and able to do everything for myself. And maybe that's why I am able to ask for it -- because it doesn't require my confession that something in my life is not alright. And actually, asking for this type of help helps me express that I am really okay, that I am able to use my health to help others.

Continue reading Asking for help delivers quick, overwhelming response

Reach to Recovery program helps those grasping for support

It's kind of a blur how exactly I came to receive a phone call from a volunteer at the American Cancer Society just after my breast cancer diagnosis. I must have checked a box on one of many medical forms shuffled my way during this confusing time. Or I requested assistance from someone, somewhere, at some point in time. I'm not really sure. But I am sure of this -- one very nice woman, a young breast cancer survivor herself, called me one afternoon from the Reach to Recovery program. She asked me about my situation, told me of hers, and led me to resources -- other survivors, support groups, and the fitness group Team Survivor -- and she met me one afternoon with a goodie bag full of information and comforting gifts. She was my first link to the world of breast cancer survivors.

I've come to know this woman in different circles since she first called me. She was a physical therapist at the same center where I received therapy for post-surgery and radiation concerns. She has been present at every walk and fitness event and cancer function I have attended. And she leads the local Team Survivor group -- so I receive e-mails from her about all sorts of events and gatherings and opportunities for joining a spirited group of strong women. And just today, I received an e-mail invitation from her -- intended for all young survivors she knows who might be interested in becoming Reach for Recovery volunteers. I replied instantly. Yes, I want to do it. She happily replied. So in a short time, I will receive training for this very important job.

It's not a hard job -- it just requires some phone calls and a few personal visits. And the ability to share advice. And words of wisdom. And love and care and compassion for those who may not know how to manage during a personal brush with breast cancer. Whether facing a possible breast cancer diagnosis, a new diagnosis, or a troubling time with lymphedema or reconstruction, Reach to Recovery volunteers offer a hand to anyone grasping for assistance.

I must have been grasping during my own difficult time. I just don't remember much about that time. All I know is that someone helped me at a critical time. And now it's my turn to be that someone.

Sunday Seven: Seven hidden treasures found through cancer

If I could go back in time, I would not repeat my journey with breast cancer. I would choose a different path -- one free of disease and treatment and the fear that comes with it all. I would choose the route where my children would never hear me say, "mommy has cancer." The route where there would be less worry about dying, less worry about how my kids would do without me, less worry about how all my loose ends would be tied up without me here to tie them. I would choose another direction in a heartbeat. But there are some things I do treasure about my trip down breast cancer lane -- some things I do not wish to give back, even if given the chance to choose a different path. They are the hidden treasures I discovered along the way, in the midst of a harrowing, sometimes horrendous battle. There are many treasures that have come my way -- and I'm sure there are more to come. Here are seven of my valuable finds.

Continue reading Sunday Seven: Seven hidden treasures found through cancer

NeedyMeds: guide to prescription assistance programs

NeedyMeds is a pharmaceutical prescription assistance programs resource guide for people who need help with the cost of medicine and other healthcare expenses. Founded in 1997 by a physician and home health social worker, NeedyMeds is an established and comprehensive online patient assistance programs database featuring over 350 different companies and programs offering more than 2600 different drugs and describes 200 state programs for low-income patients who might not be able to afford medications.

According to NeedyMeds, the website, which now averages 6,500 visitors each day and will soon reach a hallmark of seven million visitors in total, continues to add new programs such as Assistance for Specific Diseases and Conditions, Application Assistance, State Sponsored Programs and Medicaid Sites.

I cannot personally vouch for NeedyMeds, as I have not used them as a resource, but I am always on the look out for resources that might be of benefit to our readers. If you are in need of assistance in affording your medications, visit the NeedyMeds online guide and database. If you do use them, come back and let us know your experiences with NeedyMeds.

Finding support for the newly-diagnosed cancer patient

When someone first learns about the diagnosis of cancer, they may have mixed feelings about discussing it, even with family members and people close to them. You can go through a lot of emotions from upset -- to anger -- to helplessness -- to fear. That is normal. Everyone deals with the news in their own time in many different ways. It is okay to wait until you are ready. When you are ready to talk about it, chose family members and friends that you are close to and be sure to emphasize that you need their support. No one should or has to go through fighting this disease alone and you will almost always get a caring and giving response.

If the first people you talk to about your cancer have trouble providing support, seek out others who can. Support groups can bring together people who are going through cancer experiences similar to yours. Find health care professionals such as licensed therapists, social workers, psychologists, and psychiatrists.  Most insurances will cover these sessions and there are local agencies designed to help with people in need of assistance that can not afford it.

You can also ask about support services at your local American Cancer Society office. If you can't find a local telephone number, call 1-800-ACS-2345. Other organizations that can provide cancer support and information include the National Cancer Institute (NCI) at 1-(800)-4-CANCER and the National Coalition for Cancer Survivorship (NCCS) at 1-(888) 650-9127.

By all means don't give up on the people you first approached for support who seemed less than receptive. It's a shock for anyone to hear that someone they care about has a cancer diagnosis, and some people just need more time than others to absorb it. They may also be afraid they will say the wrong thing and upset you so they will stay quiet at first but more than likely will open up later.

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