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Posts with tag boys

Today, I am Grateful

The following post is one of a series of posts appearing Monday through Friday on The Cancer Blog. This feature -- Today, I am grateful -- allows me to share with readers my appreciation for all the treasures in my life, both big and small. In my post-cancer world, I find It healing for my soul to be mindful of the good in my life. It is my pleasure to share my gratitude with you.

When I think about how much my mom rescued me during my breast cancer treatment, I always land at the fact that she watched my little boys for 35 days in a row while I transported myself to and from radiation therapy. That wasn't all she did -- she also accompanied me to surgery, sat with me during chemotherapy treatments, parked herself by my bedside when I was hospitalized, dried my tears, fed me, hugged me, encouraged me, and loved me.

My mom helped me survive cancer. She is my hero.

Today, I am grateful for my mom.

Thought for the Day: Cancer goes on. So does life.

Cancer goes on. So does life. Just ask Mary Ann O'Rourke, author of a beautiful essay about her two sons, a baseball game, a redecorating project, and a little thing called breast cancer.

The essay, titled My cancer, and me, go on, will warm your heart.

Think about this:

About boys:

On a misty June morning I tell the boys.

"Guys, I have some bad news," I say, as we walk down Valley Road.

They stop, wait for me to catch up.

"I have breast cancer," I say.

Jack flashes me a steely look. He's the mathematician, the calculating one who likes order. Things aren't adding up.

"It's OK, though." I say. "I have good doctors taking care of me. I'll have to get sick to get better, but I'll be fine after that."

With lowered heads, the boys hold a polite and deferential silence. We continue our walk.

"Jack, you wanna build a fort?" Joe asks.

"No, Joe," Jack replies. "We're playing baseball, remember?"

About baseball:

Sunny and 70 degrees, a gentle breeze is blowing in from Lake Michigan as we settle into our bleacher seats. My husband, Leo, passes down two Cokes, a beer and a Wrigley Field visor to protect me from the sun.

The Cubs lead in the ninth inning when Milwaukee's left fielder cranks one over our heads onto Sheffield Avenue to bring in the winning run for the Brewers. Jack and Joe lean over the railing and watch Sammy Sosa shake his head in disgust.

The beer tastes bitter. I had started chemotherapy a week earlier.

About redecorating:

I'm drawn to a loose seam of wallpaper in the corner of the room. I peel off a long, satisfying swath. I move from panel to panel, stripping all that comes easy. I feel the wall, scrape with my fingernails, yank hard and viscously, over and over.

I'm learning the sad truth about wallpaper. The battle is not so much with the paper, as it is with the glue underneath. Even with DIF, the paste comes off slowly, in tiny wads of goo. I scrape feverishly, angrily at one stubborn patch. As I gouge the wall, the razor pops out of my hand, flips upside down and slices my right wrist.

About breast cancer:

It's been 31⁄2 years since my diagnosis.

On a frigid February morning, with a cup of coffee in one hand, I climb the ladder to Joe's bunk bed.

"C'mon honey," I nudge. "We gotta work on those spelling words."

I place a soft pillow behind my moppy morning hair.

Joe slowly comes to life.

"PROCEED," he mumbles. "P-R-O-C-E-E-D."

As he rattles off words, I sip my coffee and bask in the warmth of his room.

Frost outside the window sparkles in the morning sun. A pirate ship poster wilts from the vapors of Joe's fish tank. My carefully planned navy-amber-white color scheme clashes with his Civil War map and his Kansas City Chiefs pennant.

The gouge in the wall warms my heart, and I reach under the blanket to squeeze Joe's toes.

Instant messaging for a cause

Here's an easy way to make a charitable difference -- send an instant message.

Students at 35 colleges and universities are doing it, and it's turned into a great way to create awareness and raise funds for nine nonprofit organizations.

The organizations -- American Red Cross, Boys and Girls Clubs of America, National AIDS Fund, National Multiple Sclerosis Society, ninemillion.org, Sierra Club, Stopglobalwarming.org, Susan G. Komen for the Cure, and U.S. Fund for UNICEF -- receive a portion of advertising revenue every time a student has a conversation using instant messaging (or i'm).

It's all part of a Microsoft-sponsored campus program, and students get to choose their recipient organization each time they send an instant message.

There is no cap on the amount each group can receive, and Microsoft will make a guaranteed donation of at least $100,000 to each organization during the first year of the program.

Visit www.imforacause.com for more information.

Real men -- and boys -- wear pink

Yesterday afternoon, a Canadian hockey team with a roster of seven and eight-year-old boys sported pink socks, pink jerseys, and pink hockey sticks in an effort to raise money for Breast Cancer Action of Ottawa -- a group dedicated to raising awareness and providing support for those affected by breast cancer.

The color pink was a non-issue for the little boys asked to do their best to help others.

"I'm excited about playing in pink," said one eight-year-old decked out in the breast cancer color to support his aunt, who is currently battling the disease.

One hockey mom says it was surprisingly easy to convince the boys to wear pink uniforms.

"They told me that real men wear pink," she said.

And so pink is what they wore on this special day -- it was Hockey Day in Canada, when Canada's national game is celebrated throughout the country -- and raise funds is what they did. In fact, the team was overwhelmed by the amount of donations received and the special items given for use in a silent auction. A jersey signed by Dany Heatley of the Ottawa Senators, a jersey signed by Wayne Gretzky, and two tickets to a Senators hockey game top the list of generous offerings.

These little boys reached their goal -- they raised awareness, and they raised money. Yes, indeed, real men do wear pink.

Survivor Spotlight: Two little boys sound off on 2006

Those of us diagnosed with cancer are not the only survivors of our diseases. Our families and friends and caregivers and even employers and co-workers survive right along with us. Sure, the facets of our survivorship vary tremendously -- but we all survive the wrath of cancer in our own unique ways.

My two little boys have spent the past two years surviving breast cancer -- my breast cancer. And while they still don't fully comprehend the magnitude of such a disease, they do understand cancer is a sickness. They understand it took my hair, made me feel sick, left me with scars, and they religiously comment on every pink ribbon they see. They call the ribbons cancer.

I am often asked how my children handled my diagnosis, my treatment, my emotions. They handled it all well, I think, and as time passes, they do better and better. In fact, cancer seems to have vanished into thin air for Joey, who will turn six on Wednesday, and Danny, who is three and a half years old. I know this because of their answers to a few questions I asked them last night, on the eve of 2007.

What was the best thing you did this year?

Joey: Swimming in the pool.
Danny: Being at school.

What was the worst thing that happened this year?


Joey: Getting that boo-boo on my foot, when it scraped on the driveway.
Danny: The cheetah that was chasing me.

What could you have done better this year?


Joey: Learning to ride my bike without training wheels.
Danny: Watching Ice Age.

What would you like to work on during this new year?


Joey: Building a better stick house.
Danny: Drinking milk.

What was the scariest thing that happened this year?

Joey: When I thought there were monsters in my room.
Danny: When there was a cheetah in my room.

What was the funniest thing that happened to you this year?

Joey: When Jack (uncle) and Bud (grandpa) tickled me.
Danny: When the cheetah was chasing me.

When I say the word Daddy, what do you think about?

Joey: Someone who makes me laugh.
Danny: no reply -- he was distracted by the movie Ice Age.

When I say the word Mommy, what do you think about?

Joey: I don't know.
Danny: no reply -- still distracted by the movie Ice Age.

What do you wish for 2007?

Joey: I wish I could fly.
Danny: I wish I could slide on a sleigh.

And that's a wrap. Not one mention of cancer. Not one response concerning endless medical appointments, my drastically different hair, or the port -- they called it a stone -- that was removed from my body in September.

There truly are more important things in life than cancer for two little boys whose memories of a horrible disease will hopefully fade with each passing year -- until not even a pink ribbon catches their attention.

Happy 2007, Joey and Danny. May all your wishes come true!

Expressing all that is within me

I spend 10.5 hours every weekday on my own with some combination of my two little boys. My day starts each morning and extends through meals and playtime and laughs and tears and fights and struggles and snuggles -- but never a nap -- and even a part-time preschool job where one or two boys always tag along. Sometimes I try to write during the day while my boys are happy and occupied. Typically, I don't accomplish much. Interruptions are endless -- as they should be for a mostly stay-at-home mom who chooses to devote her daytime hours to raising children.

And so I go it alone until dinner time when my husband returns from work and selflessly takes over and sets me free. He cooks, serves, and cleans up dinner. He plays and entertains and wrestles and heads up bath and book time. And then he transports each boy on his back to their respective beds.

During my moments of freedom each evening, I lose myself in my thoughts -- and I begin to write. I love my mommy job -- and wouldn't trade it for any other full-time job -- but I also love being alone. And I love writing.

Helen Keller said, "I must have something besides husband and children, something I can devote myself to! I want to go on living even after my death! And therefore, I am grateful to God for giving me this gift, this possibility of developing myself, and of writing, of expressing all that is within me."

Writing -- mostly about cancer -- helps me develop my surviving self. It helps me express all that is within me. And maybe it's fitting that I don't get too much time to dwell on the disease that consumed me for two years. If I had to choose between two busy boys and a life busy with cancer, I'd take two boys in an instant. At the end of the day, a little bit of writing about a little of cancer suits me just fine.

Sunday Seven: Seven completely candid cancer confessions

I have a new friend who is a new breast cancer survivor. She is surviving a new diagnosis, a recent lumpectomy, and the moments leading up to another surgery to further investigate the margins surrounding the tumor removed from her breast. She is surviving the first phase of her breast cancer journey. A phase full of uncertainty and fear and panic. A phase so new and so fresh and so raw, her mind is whirling. A phase that has her grasping for any bit of direction she can find as she navigates a terrifying, unfamiliar road.

My friend is a young wife and mother whose worries are consuming her. She e-mailed me today and asked if I ever have moments when I look at my young children and worry that cancer will take me from them while they are young. She asked if I have always been so sure I will be okay. And so I replied with this candid cancer confession.

Continue reading Sunday Seven: Seven completely candid cancer confessions

If only bugs could cure cancer

I took my boys yesterday for a tour of the University of Florida's Department of Entomology and Nematology. Translation for these little boys -- ages five and three -- involves one simple word. Bugs. They love bugs, hunt for bugs, capture bugs, and reluctantly set them free because I coax them into allowing these itty bitty creatures to continue living with their "mommies and daddies." I have a soft spot for all living beings -- bugs included.

We learned some crazy facts about bugs yesterday -- insects is the proper term really. We learned there is one cockroach that can live for seven days without its head. We learned there are two types of Madagascar cockroaches living in a lab in the very same building we visited that if set free, would reproduce so quickly they would become a major pest problem in the state of Florida. And we learned that of all animals on this planet, most are insects. But not only did we learn some crazy facts, we -- well, Joey -- shared a crazy fact too.

Joey is five years old. He is the boy who remembers much of my breast cancer journey. He is the one who helped shave my head, the one who thought a banana would make my sick tummy feel better. He's the one who would blurt out to people we never knew very well, "My mommy is bald," the one who asked me just last night if the metal thing -- my port -- was still in my chest. When I told him it's gone, he jumped up and announced, "Yeah, it's gone!" Cancer is one of many vocabulary words housed in Joey's brain. And sometimes the word comes up unexpectedly, in strange contexts, in surprising ways. Like today.

Our bug tour guide told us that in Africa, mosquitoes transmit diseases that kill millions of people. But those with sickle cell anemia are immune to the deadly diseases due to their compromised red blood cells that somehow fend off disease. This fact prompted Joey to share with the guide, "Did you know when people have cancer, there are bugs that can kill the cancer?" Our guide listened to this crazy fact and said in a kid-friendly way, "No, I did not know that. Who told you that?" Joey told her, "I don't remember but someone told me."

I am not sure what prompted Joey to make this announcement. Perhaps he was trying to one-up the tour guide, to sound like an expert on one of his favorite subjects. Perhaps his imagination was in overdrive and he blurted out the best story he could offer. Perhaps he jumbled up a story he had heard on the topic of cancer. And perhaps he is just simply hopeful that one day, bugs will help cure cancer. And wouldn't that be nice -- a simple mosquito comes along, pierces the skin, and poof, cancer is gone.

My cancer journey would not be nearly as interesting, as enlightening, as tender if Joey was not along with me for the ride. He keeps me busy and keeps my spirits up. He keeps me grounded and keeps life simple. Best of all -- he keeps me laughing.

Radio broadcast features message about breast cancer

Beginning today, these words will be broadcast on various local Gainesville radio stations. These words are about breast cancer, about raising money for this serious disease, about Making Strides Against Breast Cancer, about the American Cancer Society. These words are about me. These are my words.

I'm Jacki. I'm someone you know. I'm a mother of two young sons, a wife, a sister, an aunt, a daughter, a friend. I am a freelance writer and a preschool teacher. I like to exercise and scrapbook and watch my little boys enjoy life's simple pleasures. I like pedicures, massages and candles. I'm 36 years old. I'm someone you know -- but I'm not alone.

I was diagnosed with breast cancer almost two years ago. And the American Cancer Society was instrumental in my recovery. I was comforted by their cancer programs and events, soothed by volunteers who called me at home to lend an ear, and educated by American Cancer Society literature and resources.

Join me for our Making Strides Against Breast Cancer walk on Saturday, October 14th, at the North East Park in Gainesville at 7:30 a.m. to help fund breast cancer research. Visit www.cancer.org or call 1-800-ACS-2345 to learn how you can become involved. Because someone you know has breast cancer. I'm someone you know -- I'm a breast cancer survivor -- and with the American Cancer Society, I'm not alone.

Little boys in hats are reminder of breast cancer journey

I wrote this journal entry one year ago today. It's one of many entries I look back on to remember my journey with breast cancer, to capture the emotions that preceded the ones I have now, to chart just how far I have come since the day of my diagnosis. This is one of my happier journal entries -- written at a time when I was coming back to life after surgery, chemotherapy, and radiation, when I was happy to be alive and in the company of two little boys whose simplicity inspired me.

My hats were once so important to me. Now they are scattered all over the floor of my bedroom closet. Once my daily camouflage for what cancer had done to me, my hats are now toys. Joey and Danny play with them and toss them around and wear them -- sometimes one at a time and sometimes they pile as many as they can on top of their little blond heads. The hats hold no real significance to them -- they are just playthings and while Joey can recall that I wore them at one time, the emotion wrapped up in the pale blue sleep cap and the black Nike ball cap and the yellow bucket hat is lost on him. I consider this a blessing -- that one day, he and Danny will likely have very little memory of this cancer adventure and that they may only remember what fun it was to wear so many hats.

Simple moments are reminders of what cancer can't take

Right now -- at this very moment -- my two boys have turned our living room into a mess of blankets and pillows and stuffed animals. They put on their jammies and closed all the blinds and are pretending it's bedtime. But it's actually lunch time, so they have spread out paper plates and plastic silverware and bags of chips and boxes of crackers all over the floor -- on top of all their bedding. I delivered them their lunch platters and lemonade and there they sit, in the room next to me -- chattering away, stuffing their little mouths, full of life. And I am in awe -- of the simple joy that comes from a living room camp-out and picnic, of the beauty these children bring into my life. I am mostly in awe of the fact that no matter what cancer takes from me -- my hair, moments of health, my innocence -- it cannot ever take this very moment from me. And that makes today a happy day.

Cervical cancer vaccine for boys and men

Almost all conversation and approval efforts regarding Gardasil, the new vaccine that prevents cervical cancer, has been about girls and women. Medical experts and researchers are recommending that boys and men receive the cervical cancer vaccine too. They suggest this is a necessary step if there is to be an effective elimination of cervical cancer originating from infection of human papillomavirus (HPV).

At this time, the recent approval for the vaccine only speaks to the use for girls aged 9 to 26. But both women and men become infected with HPV, and it does not make sense that only one half of the population at risk for infection are being vaccinated.

According to the Centers for Disease Control and Prevention (CDC) almost 80 percent of U.S. women by age 50 will be exposed to one of the 100 strains of HPV, known to cause genital warts and cervical, vulva and vaginal cancer in women.

"Vaccine prevention strategies work when they are applied in a gender-neutral fashion," stated Bradley Monk, author of the commentary addressing this issue published in the journal Obstetrics and Gynecology. "For example, polio, measles, tetanus, pertussis, diphtheria, rubella, mumps, and Haemophilus influenza B have been nearly eliminated in the United States as a result of this strategy."

Memories of long-lost hair remain fresh, familiar

The topic of my hair is often the subject of conversation -- and is a constant reminder that this brown curly hair I have covering my head is nothing like the straight blond hair I was born with, grew up with, was known for. Because my little boys have white blond hair, I am consistently asked by strangers, "Where did your boys get that blond hair?" "From me," is what I want to say because it's the truth -- but that would make no sense to anyone who does not know me, anyone who does not know that my hair -- that once looked much like my boys' hair -- was lost to chemotherapy and returned shockingly different. So sometimes I just chuckle in wonder with these strangers who may not expect an answer anyway. Or I tell them the story -- if they seem to really want in on the details of the mystery. Most people are surprised that my hair grew back like it did. I am not surprised -- I was warned that it might happen -- although it is still a startling discovery each time I look in the mirror, each time I look back at photos, each time I see gray hairs emerging through my dark hair -- gray that only slightly showed up in the midst of my blond locks.

The memory of my blond hair keeps popping up. My husband told me the other day that he had a dream about me -- I was in a restaurant, at a table, by myself. He was walking toward me. And I had blond hair. The rest of the dream is insignificant. The blond hair is significant. And the other day, I pulled my brush out of my purse. It hasn't been used in more than a year -- because I don't brush my curls at all -- and at the base of the brush, wound around the bristles, were long blond strands of hair. My blond hair. My old hair. The same hair I showed my friend who visited from Ohio last week -- the hair that was once on my head, was cut off in preparation of the great fallout, and is now kept in a ziplock bag.

I like my brown hair. I like my curls. But I miss my blond hair. I am sad that I no longer match my children, that I don't look like the bride in my wedding photo, that I will attend my 20-year high school reunion in two years and will wear a photo name tag that looks nothing like me. I like the familiar -- which is why I never wanted to show my bald head, why I covered my head with blond wigs and hats to keep my appearance as close to normal as possible. And then in a strange turn of events, my hair grew back in an unfamiliar fashion -- and somehow the question, "I see where your boys get that blond hair" flip-flopped into "Where did your boys get that blond hair?" It is all still new to me. I know one day it will become familiar and normal and not such a big deal. Some day. I hope.

Cancer survivor strives to survive fear of recurrence

I received a comment today on my Sunday Seven post about how inspiring sentiments help me survive. The comment was from a women who is surviving lung cancer and she asked a question to all readers really -- when will the fear of recurrence ever go away? How do you out there deal with it? So I replied to her private e-mail address and shared my thoughts about fear and recurrence and how I deal with these issues as a cancer survivor. She replied and wrote, your e-mail was so uplifting. I think I just found you on a really bad day and I am thankful that I did. And so I realized that maybe I should not limit my thoughts to just one person when others are surely in her same boat -- my same boat. So here is what I wrote to this one reader who -- like so many others on my journey -- has helped me by allowing me the chance to help her.

Just want to say that I think you are already dealing with the fear-of-recurrence thing because you have been surviving for as long as you have been traveling this bumpy road. So while you survive, you just need to live each day like it's your last and fight for your life at the same time. Someone once told me to think of cancer as a chronic condition -- something we will live with for the rest of your lives. And we just keep treating it, wherever it pops up. And the longer we survive, the more resources there are to help us survive even longer. As for getting through each day, I recommend counseling (I go once per month but at one time I went each week). I also take an anti-depressant (Zoloft) which I do not push on anyone, but for me, it has helped. I went to my oncologist one day and asked him how to live peacefully without worrying constantly that cancer is coming back to haunt me -- he said many cancer patients take anti-depressants to take the edge off so I began the drug and began counseling too. Neither completely take away the fear -- but they help me manage and that's all I can ask for. I also have two little boys who keep me busy and distracted from feeling sorry for myself. And I try to keep busy in other ways too. Helping others with cancer -- or others who just need help -- is healthy too!

Helping others with cancer does help me. It reminds me that I am not alone and that others have fears like me and that collectively, we can all survive better if we lean on one another and borrow from one another and inspire one another.

Confessions and regrets from a former sun worshiper

I confess. I was once a sun worshiper. I grew up in Ohio where a really sunny day was rare -- so on the occasion when the sun was bright and hot, I was in my back yard or at a swimming pool or at a lake soaking up the warmth and comfort of the rays that mostly burned my skin but gave me a glow that eventually turned the slightest shade of tan and made me feel healthy. It's ironic really -- that I felt healthy when the act of sunbathing is so completely damaging. And I knew this at the time and for the many years that followed -- and I still basked in the sun and vacationed in Florida and sometimes actually drove in the direction of the sun on a overcast day, in search of a tan that was never fully achieved because my skin is pale and fair and was never meant for any amount of sun exposure.

Continue reading Confessions and regrets from a former sun worshiper

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