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Posts with tag burden

Cancer burdens many lives in Australia

A new and official report shows cancer is the leading cause of death and disability in Australia.

The Australian Institute of Health and Welfare reveals that cancer is taking more lives -- about 19 percent -- than cardiovascular disease, currently at 18 percent. Cancer is the now to blame for Australia's burden of disease, according to the report, and the disease doesn't appear to be slowing anytime soon.

Burden of disease
refers to not only mortality but also takes into account impact of illness and disability. Essentially, this means cancer takes away from healthy life years.

Continue reading Cancer burdens many lives in Australia

The burden of cancer: Support groups

A study published in Cancer, a peer reviewed journal of the American Cancer Society, found that cancer survivors are more likely to seek out support groups than individuals with other chronic conditions. They stated that one in four survivors participate in a support group after diagnosis.

According to the study, treating physicians seemed to recognize that support groups are helpful but only one in ten cancer patients studied had received a recommendation to seek out a support group. Support groups are widely available but seem to be poorly handled by the physicians.

Dr. Jason Owen, co-investigator in the study, says "This study sheds light on which individuals with cancer use (support) services. It will help clinicians recognize the importance of support groups for cancer patients. Assistance in identifying and accessing support groups should be a standard of care for all patients receiving curative, follow-up, or palliative care for cancer".

Continue reading The burden of cancer: Support groups

Thought for the Day: The burden of cancer

There are many burdens that come with cancer. But there is one burden gaining in strength as we age. It's become a topic of recent study and appeared Tuesday in the online Journal of Oncology Practice.

Think about this:

The graying of America will grow the number of cancer patients and survivors 55 percent by the year 2020. And some believe doctors might not be able to cope with the increasing burden.

It's the increase in cancer diagnoses, the growth in the number of Americans over the age of 65, and higher cancer survival rates due to early detection and better treatments that together will cause a shortage of doctors and nurses to care for so many sick people.

In addition, more than half of medical oncologists are older than 65 and could retire soon. And while there are more than enough younger doctors to replace these retirees, they still won't be able to keep up with the demand.

By 2020, the country could be short 4,000 cancer specialists.

Letting go of exercise lightens the load

I like to exercise. I like the challenge, the sweat, the mental release, the physical results, the time to myself. I like everything about it -- practically.

What I don't like about exercise is the pressure to accomplish the feat over and over again for the rest of my life. For years, the pressure I put on myself was palpable. I thought about exercise all the time. I stressed about what to do and when to do it. I fought to convince my kids to climb into a double stroller long after they were too big to sit comfortably in the wobbly contraption and when I found time to exercise all by myself, I struggled with an overwhelming desire to spend quality time with my little boys. I felt rushed to complete my workouts -- because my kids were waiting, dinner was waiting, work was waiting.

I was faithful about exercising -- even through treatment for cancer -- because of my self-induced pressure and despite the stress and worry it caused me. And then something happened.

It was probably a combination of cancer and my relentless push for physical fitness that caused my body to crash. I became tired and exhausted and could barely lift my legs to walk up the neighborhood hills I typically conquered with ease. My oncologist told me to stop, to give my body a break, to let go of my high expectations. He advised me to exercise two to three times per week -- and that's it.

It took some time but I have finally embraced this approach. I have abandoned schedules and routines and plans and I now exercise when I can, when it fits into my day, when I really want to do it. My fitness trainer friend Fitz, a new blogger on That's Fit, wrote in one of her first posts that we should all stop trying to get fit -- and we should just do it. "Don't wake up tomorrow with the idea of trying to go for a jog," she says." "Get up and go for a jog! Put it in your planner and make it happen."

Fitz might not like my approach, but I have stopped putting exercise on my planner. For me, this works. It takes away the pressure, the stress, the worry. It gives me peace to confront each day free of exercise anxiety. It makes me happy to tackle exercise on my own terms, without some preconceived notion of what I should be doing.

I should share something else about myself. I am a perfectionist. I want everything to be just right. As child, I tore up drawings that may have had one stray mark. I wouldn't leave my house for school until my ponytails were flawless. My house is clean and neat, my toenails are pedicured and painted, my hair is styled just so. Perfectionism, sometimes just a step away from obsession, can be an unhealthy practice. And for me, exercise was becoming an emotionally unhealthy endeavor.

I am confident my perfectionist tendencies will keep me in the exercise loop for all of time. Just knowing I need exercise will propel me to conform. But I must say that I am so relieved to have let go of some of my exercise burden.

I like exercise. I really like it. And today, when I ran three miles -- because I had the time and felt up for the task -- it was refreshing, empowering, cleansing. I think it's the lack of pressure that allowed me to lose myself in the moment today. For me, letting go of exercise has lightened the load.

The cost of fighting cancer: there is help available

The cost of drugs to treat cancer can be very expensive. If you do not have good medical insurance it could prove disastrous for you and your family.

I read an article in Cure Magazine last night called Help for Patients. In this article it provided information on assistance programs. It also mentioned that many patient assistance programs will require proof of income, social security income, interest and retirement to prove financial burden and to meet income requirements of the programs.

Patients interested in enrolling in an assistance program can start by doing some research on the organizations listed below:

Sunday Seven: Seven memories of time lost to cancer

I once waited to see my oncologist -- in a room with nothing more than outdated magazines and my own wandering mind -- for four hours. I offered up 20 hours of my time for chemotherapy treatments and then spent five days -- two times, for a total of ten days -- waiting in the hospital for doctors to determine how to raise my blood counts and decrease my fever after the completion of a dose-dense chemotherapy attack. I traveled to and from radiation appointments for 35 days, spending an average of 90 minutes on each of these round-trip excursions. I reclined in an infusion chair every three weeks for 12 months so that a new breast cancer wonder drug could sail through my veins. I spent 52 hours in that chair. And I spent countless hours pouring out my emotions to a counselor, in an attempt to clear my mind of all that cancer took from me -- including my time.

These are just seven memories I have of time lost to cancer. There are others -- countless others -- but this should suffice as proof that among all the potential side effects that accompany cancer, loss of time is a guarantee.

According to the first study to put a price tag on the time patients spend battling cancer, it seems the disease steals at least $2.3 billion worth of time for patients in the first year of treatment alone.

Eleven of the most common cancers were included in the study. And it was determined that 368 hours are lost during the first year of treatment for ovarian cancer. For lung cancer, 272 hours are lost. For kidney cancer, 193 hours go down the drain. These hours don't take into account time spent in bed recovering from surgery or chemotherapy treatments. It accounts only for time engaged in actively receiving care -- it counts chemotherapy, radiation, blood tests, scans, surgery, check-ups, waiting to see doctors, and driving to and from appointments.

The study, published in the Journal of the National Cancer Institute, sheds new light on the burden of commitment -- the human cost of cancer.

"Cancer is more than the just the dollars and cents for the medicines and the treatments and the doctors. It's also the lost opportunities for the patients," said the American Cancer Society's Dr. Len Lichtenfeld, of this overlooked reality.

Lichtenfeld says this study demonstrates the need for early detection. The earlier cancer is caught, the less time patients spend in the system. It also shows the need for more targeted therapies that spare patients physical side effects and allow them opportunities for taking pills at home instead of receiving treatment in clinics.

I would love to have back the time I spent treating and recovering from cancer. But I'm not heartbroken over my lost time. Because it bought me something in the end -- more time.

Sunday Seven: Seven reasons 2006 turned out just fine

The build-up to 2006 was a bit uncertain for me. At the end of 2004, I was diagnosed with breast cancer and set my sights on short-term survival, moment by moment, day by day. I wasn't sure 2005 -- in its entirety -- was a guarantee so I tried not to look too far ahead. I focused on the completion of each of the year's cancer steps -- surgery, chemotherapy, radiation, the beginning of a year-long Herceptin therapy, and so much more -- and somehow, I survived the whole ordeal. And the whole year.

I made it through 2005, and I have almost made it through 2006 -- a year marked by a cancer slow-down, a more normal existence. Moment by moment, day by day, the burden of cancer loosened it's grip on me. And as I begin to reflect on the year that has all but passed before my eyes, I realize it turned out just fine. Here are seven reasons why.
  • On May 19, 2006, my very first post published on The Cancer Blog. What a thrill it was -- and still is -- to find myself engaged in a useful pursuit as a result of my own cancer experience.
  • On June 28, 2006, the last drops of Herceptin made their way through my body, marking the conclusion of 17 doses of this hopefully life-saving potion.
  • On September 15, 2006, my port came out, signaling my acceptance of a life without drug treatment, my faith that I will never again need a foreign object sewn under my skin.
  • On December 6, 2006, 18 months of counseling came to a close. Armed with skills to cope with all sorts of emotional issues, I am marching forward, free of the disabling anxiety and free-flowing tears that first landed me in the counseling chair.
  • For much of 2006, I have been a student of fitness training, pushing myself physically in search of better health. It's not always easy, I'm not always motivated, and I am known to whine a bit -- but still, I am happier just knowing I am working toward sustained health.
  • Throughout the entire year, I have walked away from every medical check-up and follow-up with a clean bill of health. I hear the longer someone survives cancer, the less likely the disease is to return. Happily, I have two years of survival under my belt.
  • Ever since my diagnosis, I have been reaching for others with journeys similar to mine. First, I reached for support and guidance and reassurance. Then, I reached to offer my own version of support and guidance and reassurance. The year 2006 has been full of rich connections, found only because of cancer. Reaching makes me feel good.
Yes, the year 2006 turned out just fine.

Symptoms of virus mirror symptoms of chemotherapy

Heavy head. Heavy body. Sore throat. Sore gums. Swollen lymph nodes. Fever blister. Hurts to chew. Hurts to swallow. Hurts to recall last time symptoms appeared. During chemotherapy.

Drugs attacking cells. Body weak. Blood counts plummeting. Body crashing. Headache. Fever. Sore throat. Sore gums. Trip to hospital. For five days. For antibiotics. For opinions. For constant monitoring. For daily shots to rebuild blood.

Phone call to dentist who knows my burden. Of worry. And fear. And anxiety. That never really goes away. Always reappears. A virus, he says. All of it. The throat. The gums. The lymph nodes. The fever blister. Nothing more. Should last five to seven days. Don't worry. Relax. Call if it gets worse.

Feeling better. Feeling emotional. Because people are so kind. Like my dentist. Who eased my mind. Soothed my soul.

Time to march forward. For myself. For today.

Toxic Bust: indie film about environmental links to cancer

In her award-winning documentary Toxic Bust, filmmaker Megan Siler takes on the issues and realities of toxic chemicals women are exposed to at home, in the community, and during work in relation to the potential links to breast cancer. Siler focuses on three breast cancer hot spots -- San Francisco and Silicon Valley in California and Cape Cod in Massachusetts.

Siler is not alone in her investigative work of environmental links to cancer risks. Even though the current percentage of federally-funded research dollars allocated to the links between cancer and exposure to environmental toxins is in the single-digits, there are those who have spent a good deal of time, energy and resources into studying the cause and effect of the environmental risks to cancer. In the last six years, the Environmental Working Group (EWG) has conducted extensive studies regarding toxic chemicals in the environment. Among the 72 people who participated in the EWG studies, a chemical body burden of 455 industrial pollutants, pesticides and other chemicals in blood, urine, and breast milk were found.

The Toxic-Free Legacy Coalition analyzed the hair, blood, and urine samples of ten study participants and found that every person tested had at least 26 and as many as 39 toxic chemicals in his or her body and the exposure to toxic chemicals came from everyday activities and products. Breast Cancer Action released State of the Evidence 2006: What Is the Connection Between the Environment and Breast Cancer? which provided compelling scientific evidence pointing to some of the 100,000 synthetic chemicals in use today as contributing to the development of breast cancer, either by altering hormone function or gene expression. The report also identifies radiation exposure, such as that from X-rays and CT scans, as the longest-established environmental cause of breast cancer. In the United States, a woman's lifetime risk of developing breast cancer has tripled in the last 40 years.

Wendy Mesley, co-host of CBC's Marketplace and breast cancer survivor, produced and hosted the investigative documentary Chasing the Cancer Answer, that provided revealing interviews with an outspoken American doctor, frustrated cancer victims in southern Ontario, pharmaceutical sales representatives in Paris, France, and activists working to increase awareness of prevention measures. Greenpeace issued a report that Chernobyl cancer deaths have been grossly underestimated. Award-winning and highly-respected journalist and public commentator Bill Moyers produced a PBS documentary Trade Secrets investigating the history of the chemical revolution and the body burden of synthetic chemicals that pose dangers to human health.

We have additional links related to the topic of environmental links to cancer risk at Earth Day: environmental cancer risks and Cancer Epidemic: are we poisoned from birth? Cancer defines about 100 diseases characterized by the uncontrolled, abnormal growth of cells. No one single factor is going to be the cause for all cancers. However, environmental exposure from toxic chemicals cannot be ignored as one, and perhaps multiple, contributing factors in raising the risks of developing cancer.

Happiness may be just a hop, skip, and jump away

It may be possible to learn happiness -- like we might learn to cook or learn to dance -- by merely taking a class. Some refute this idea and believe you can't actually pursue happiness. You either have it or you don't. But some psychologists are embracing a whole new approach to psychology -- they call it positive psychology -- and they say it focuses on training the mind to focus on the past as very positive. It's completely different from traditional psychology where time is spent trying to determine why someone is so horribly sad. This movement, invented by University of Pennsylvania psychologist Martin Seligman in 1998 when he was president of the American Psychological Association, provides a scientific validated set of exercises -- known as interventions -- that lead happiness seekers to their ultimate destination.

Continue reading Happiness may be just a hop, skip, and jump away

Alcohol: drinking a worldwide cancer burden

The International Agency for Research on Cancer researchers have concluded a study indicating that 3.6 percent of all cancer cases worldwide are related to alcohol drinking.

"A causal link has been established between alcohol drinking and cancers of the oral cavity, pharynx, esophagus, colon, rectum, liver, larynx, and breast," states lead researcher Dr. Paolo Boffetta. "For other cancers, a causal association is suspected." According to the researchers of Lyon, France, more than 60 percent of alcohol-related cancers in men were in the upper digestive tract, and approximately 60 percent of alcohol-associated cancers in women were breast cancer.

The researchers also point out that moderate alcohol drinking has been shown to be beneficial to heart health. The American Cancer Society advises that drinking be limited to one drink a day for women and two drinks a day for men to reduce the increased cancer risks associated with alcohol consumption.

Too many ignoring colorectal cancer screenings

Screenings for colorectal cancer offer more than a chance for early treatment -- they offer the chance to avoid cancer completely. The disease usually starts with growths called polyps that can take a decade to turn cancerous. If polyps are found and removed, cancer can be avoided altogether. Yet many are avoiding the screening. And polyps that go undetected can turn to a cancer that can lurk silently in anyone -- especially during middle age and beyond. And black Americans are especially at risk.

Almost 42 million Americans over the age of 50 are not getting checked for colorectal cancer -- the nation's No. 2 cancer killer. Perhaps it's the financial burden that comes with the life-saving procedure. Now in five states, a government-funded program is offering free testing for the poor. But still, many will fall through the cracks in many states. And while Medicare pays for screenings, this federal program is for people 65 and older -- a long wait for someone at age 50 who needs the test but does not have insurance.

Perhaps it's the part of the body under study that steers people away. Perhaps it's the manner in which the test is performed -- a long, flexible tube is used to visually inspect the colon -- that turns heads in the wrong direction. While the financial burden is a valid deterrent, other worries or fears should be put to rest. The test is not all that bad, says one doctor who had a colonoscopy himself. The worst part of the whole experience may be the liquid mixture that is consumed prior to the test that cleans out the system -- minor discomfort really in the scope of the alternative. Cancer.

Colonocopies are recommended just once every 10 years. And nearly 60 percent of deaths from colorectal cancer can be prevented if each person over the age of 50 finds some way to make this screening happen. And if not this screening, there are other options -- like a fecal test that is done annually but is more more affordable and can be quite effective too. So consider your options. And make a choice.

Cancer caregiver becomes hero for wife, spreads his word

Caregivers are affected by cancer in their own unique and special ways. And those of us who have never been cancer caregivers and those of us who are patients receiving the care will never really know how it feels to walk in caregiver shoes -- until we do it ourselves.

Dr. Mitchell Luftig has done it himself. And after traveling a dark and unwanted journey of caring for his wife with breast cancer, he realized that he had learned a thing or two -- and he learned that he could share a thing or two. So he wrote a book, Be a Hero To The Woman You Love When She Gets Sick, and he speaks openly about his role as caregiver -- and his role at the time as father of twin high school daughters and husband of 20 years and clinical psychologist too. The whole ordeal turned his world upside down and he hopes that his story helps others -- primarily men -- who find themselves in a lonely place with the daunting job of caring for the people they love. As a psychologist, Luftig has good insight. And he wishes to help minimize the psychological barriers that prevent men from effectively caring for loved ones during times of serious illness.

Luftig shares in his book his realization that while he cannot repair and fix all hard times, he does have some important tools. And his power tools are love, support, and understanding. He has learned to sew joy out of rough cloth. He understands that he cannot shelter his family members from bad times, but he can shoulder their burden. And he now appreciates that all things are not so bad when measured against the yardstick of a life-threatening disease like cancer. Luftig's whole collection of wisdom and lessons and advice fill his book -- and bits and pieces also appear in periodic articles in Coping magazine. It's worth the read -- and the journey starts here.

Volunteers coming up short for cancer clinical trials

Just before my treatment for breast cancer began and during a consultation about what chemotherapy drugs I was about to receive, my oncologist stepped away from my exam room to check on something. When she returned to the room, she told me that she was determining whether or not I qualified for a clinical trial. I had no idea what this meant at the time. All I knew was what she told me -- that my prognosis was too good at that moment to qualify for anything currently under study. I did not fit a profile for anything. I was not a candidate for a clinical trial.

I now know that clinical trials are a critical component of research -- they validate a drug's success or weakness and they provide hope for many who may be at the end of their treatment rope and need something new to consider. A clinical trial is a comparison of standard treatments to newer treatments in an effort to discover better methods for the diagnosis and treatment of cancer. Doctors, scientists, and other health professionals conduct these tests according to strict guidelines set by the Food and Drug Administration -- which establishes mandatory guidelines to ensure the maximum safety of the patient.

Clinical trials rely on volunteers -- and sadly, there is a current shortage of patients willing to participate in trials. Experts say that, for the past few decades, just five to 10 percent of all cancer patients in the United States have joined a clinical trial. There is an urgent need -- because the demand for willing, eligible participants far exceeds the supply. Some experts are even recommending that the small pool of candidates that does exist be rationed to only the most important cancer studies -- leaving other studies with no hope for completion. There is no good solution in sight. But the reasons for the shortage are becoming apparent. It's not that patients are unwilling to join. It's that they are unaware, uninformed, not even sure this opportunity is possible -- because doctors are not suggesting trials to their patients. Treatment on a protocol is more demanding for doctors than routine medical care. And it costs doctors to submit to a trial. And trials burden doctors with regulations and paperwork. And some doctors worry about litigation if something experimental goes wrong. So they often don't approach the topic -- and the result is that a wonder drug may sit in a dark freezer because there are not enough people to test it. This potential wonder drug may never show promise, may never save a life, may never see the light of day.

So I guess my oncologist was ahead of the game in this matter -- she compared my diagnosis and prognosis with the needs of all available clinical trials and found that there was not match. Had she not done this, I would have never thought to ask about the possibility -- which is exactly what patients should do instead of waiting for a doctor to make the suggestion. Because it may never happen.

For more information on clinical trials, please visit the Coalition of Cancer Cooperative Groups.

Pollution in people: toxins in our bloodstream

Last year, ten people took part in an investigative study to test for the presence of toxic chemicals in their body. The Toxic-Free Legacy Coalition took hair, blood, and urine samples and tested for plasticizing chemicals known as phthalates; the flame retardants PBDEs; lead, arsenic, and mercury; perfluorinated chemicals like those used to make Teflon; and pesticides -- including the now banned PCBs and DDT. Many of these are know to increase cancer risks. The purpose of the study was two-fold -- the researchers wanted to know which chemicals are getting into our bodies, at what levels, and to better understand the potential harm posed by poor regulation of chemicals. Second, the researchers hope that by understanding the dangers we face, better solutions can be developed to eliminate the exposures to toxins from the environment. The results shocked and surprised the participants in the study. It might disturb you too, as most of us carry a similar body burden of cancer-causing chemicals.

Continue reading Pollution in people: toxins in our bloodstream

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