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Posts with tag child

Losing a child to cancer: Its like a scab

We have written here at the cancer blog about Courtney Nicole a few times. You can find posts here and here. Courtney passed way about eight months ago. Her mom still keeps a journal of what is going on in her life and how she is coping with the loss of her nineteen year old daughter.

I find myself going to her site often to see how she is doing. It is heartbreaking to read her words at times and encouraging at other times. She is trying to go on -- but how, without her daughter?

Recently, Court's mom posted Its Like a Scab! on her website. Here's what she said:

Continue reading Losing a child to cancer: Its like a scab

Life after cancer

Cancer stopped me from having a third child -- not physically, but mentally. Still, it hasn't taken away my ability to witness first-hand the miracle of childbirth, to hold a brand new baby in my arms, to lose myself in the wonder of an innocent and unburdened life.

Yesterday, my sister had her second baby girl. I was there -- from morning until evening, while she labored for 12 hours and then delivered a perfect, pink, precious bundle of hope. The whole journey made me cry. I cried for the sheer pleasure of being in the room for such a special occasion, for holding my sister's numb and heavy leg in the correct position, for watching a baby plunge into the world, for cutting the umbilical cord. I cried for the pain my sister endured, for the joy of new beginnings, for all that comes next.

For a moment while I held my new niece, I longed for my own baby. Then thoughts of cancer flooded my mind -- combined with thoughts of sleepless nights and endless shrieks and temper tantrums -- and I realized I am happy just as I am, with my own two little boys and a sweet baby girl I plan to borrow as much as possible.

Welcome to the world, Tori!

Saved by a mother's love

My six-year-old Joey told his grandmother -- my mom -- the other day, "Nana, you are generous." It was thoughtful and touching and it brought a smile to her face. Later that night, Joey said the same to me. "Mom, you are generous," he proclaimed. And now I'm not sure if he really meant his sweet sentiments or if he was just practicing one of his new kindergarten vocabulary words. Regardless, it got me thinking about how generous his Nana really is.

My mom not only generously gave me life. She also saved my life -- not in the medical, scientific manner surgeons and oncologists saved my life but by the sheer force of love, support, comfort, and undying devotion that seems to involuntarily pour from the hearts of moms with sick children.

Continue reading Saved by a mother's love

Listen to some music to heal

The idea of music as a healing influence which could affect health and behavior is at least as old as the writings of Aristotle and Plato. The American Music Therapy Association (AMTA) promotes a vast amount of research exploring the benefits of music as therapy through publication of the Journal of Music Therapy, Music Therapy Perspectives and other sources. A substantial body of literature exists to support the effectiveness of music therapy.

You don't have to have a particular music ability to benefit from music therapy. No particular style of music is more therapeutic than any other. You just need to enjoy your experience. Music will lower stress and help you relax. It has been proven that it reduces acute and chronic pain. Even during child birth. It can elevate moods to counteract depression and it can counteract apprehension or fear.

So today just sit back and listen to some music, do some drumming or percussion rhythms, hum some tunes, blow on a flute or harmonica even if you don't know any particular songs. Be creative. Take advantage of the sunshine and beautiful weather and just step outside and listen to the birds, the wind, and the rhythm of mother nature. The stand by of anything else is to plug in a favorite CD and close your eyes and just let it sink in.

Anti-HIV drug use in pregnancy increases cancer risk

Antiretroviral drugs, used to prevent HIV transmission from mother to child, are now believed to cause genetic damage in infants. This damage, leading to an increased risk of developing cancer, makes it highly plausible these children may be diagnosed with the disease in mid and late adulthood.

Two new studies indicate there are cancer-causing effects of transplacental exposure to AZT, an antiretroviral drug. These effects -- like increased incidence of tumors and tumors with genetic changes -- have been demonstrated in mice and rats and seem to be cause for concern in humans too.

"The cumulative mutagenesis data suggest that infants exposed transplacentally to AZT may be at increased risk for cancer as they age," said one researcher, whose findings are published in Environment and Molecular Mutagenesis.

Sunday Seven: Seven sweet, simple spoken words

Seven sweet, simple words were hurled at me last night by my oldest child, Joey -- the boy who makes me as crazy as he does happy.

Joey, six, was all snuggled in bed, cozy with his soft blankets, squishy pillows, and three favorite stuffed puppies. I gave him my usual speech -- Sweet dreams. I love you. Now don't get out of bed -- and then made my usual trek to another room for some me-time. My trip was stopped short, though, because a strong urge inspired me to reverse my steps and return to Joey.

"What are you doing, mommy?" Joey asked as I walked back into the room.

"I thought I'd come rest with you for a little bit," I told him. "Is that OK?" I asked, knowing full well any excuse to avoid sleep is just fine with him

Joey sat straight up, pure joy coloring his tired face. I took this to mean he welcomed my return. And so I crawled into bed and hugged Joey tight. And that's when he spoke the seven words that caused tears to pour from my eyes -- the kind of tears that spill out when the human body can no longer harness its emotion.

The words:

"Mommy, I love you so, so much."

Ever since Joey blessed me with these words, I can't seem to get one thought out of my head.

The thought:

God, I hope I survive cancer long enough to hold this boy in my arms until he is all grown up, until he is wrapping his arms around his own loving child.

I really hope this is not too much to ask.

Prenatal vitamins protect kids from cancer

Besides preventing birth defects in the brain and spine and other congenital abnormalities, the folic acid found in prenatal multivitamins has now been shown to prevent cancer in children whose mothers take the vitamins during pregnancy.

A new Canadian study, appearing online in the journal Clinical Pharmacology & Therapeutics, estimates prenatal multivitamin supplements can save hundreds of children each year in Canada -- where only 40 to 50 percent of women take prenatal vitamins -- from developing leukemia, brain tumors, or neuroblastoma. And the vitamins may prevent 900 cases of pediatric leukemia and more than 300 brain tumor cases annually in the United States.

It's not clear which vitamins or minerals, and in what amounts, could be protecting babies from cancer, but it's possible folic acid -- critical for cellular function -- may be acting alone.

One thing is certain, says lead investigator Dr. Gideon Koren -- this is one inexpensive way to prevent cancer.

Toddler beats cancer, heads home from hospital

Little Layla Schilling is just two-and-a-half years old -- and for more than one year of her short life, she has been fighting a rare liver cancer that spread to her lungs. But a series of medical interventions has worked miracles -- and Layla now gets to leave the hospital and head for home, where a belated Christmas gift from Santa awaits her -- a trampoline.

When Layla's cancer was first discovered, doctors at Royal Children's Hospital in Australia immediately removed 80 percent of her liver to stop the tumor growth. Several months later, cancerous spots appeared again in her liver -- and in her lungs too.

Five months of intensive chemotherapy did its job -- and Layla's mom, Sara Wright, says her daughter is now doing well.

"The chemotherapy has successfully shrunk the tumors in her lung and what was left was removed by surgery," she said. "The tumor in her liver is under control, but the only way to be sure it doesn't come back is to have a transplant."

While a transplant is in Layla's future, she is focused right now on the moment. As every child should be.

Cancer survivor's kit helps others keep on living

Survivorship is the new cancer buzz word -- and what an important word it is. Once left to each individual to define, manage, and transcend, survivorship is now recognized as a distinct phase of cancer recovery -- just as important, and maybe even more so, than diagnosis and treatment.

Linda Griggs, a 13-year breast cancer survivor, clearly remembers the day her chemotherapy ended. With her therapy complete, her hair growing back, and her medical team sending her off to have a nice life, she thought she'd be fine. But she wasn't.

Three months after her last dose of chemotherapy, Griggs was depressed, consumed with worry about how her cancer might come back. And she realized that the end of treatment is not really the end. It's just the beginning.

Griggs told her doctor about her anxiety, about how she was just trying to make it to her next three-month-check up. When her doctor told her, "that's not living," something clicked for Griggs who instantly decided to start living -- really living.

Surviving is about self-nurturing, says Griggs, who has created a kit to help others survive cancer. On her website, she writes that there are a couple of other breast cancer survivor kits out there -- containing tissues, herbal teas, meditation tapes, medical appointment books, and breast cancer resource materials.

"This is not that," she says of her kit that focuses on the emotional upheaval cancer creates.

Griggs' kit is full of hands-on creative materials -- like an inner child notebook, complete with magic markers for journaling and expressing emotions. If you're angry, you can write down angry thoughts. If you're sad, write what makes you sad. Save the pages, tear them up, burn them, do what you wish -- but allow your emotions to flow, Griggs says.

The kit also includes a wooden box with instructions on how to create a healing shrine, a copy of Griggs' non-fiction account of the first five years of her cancer journey, and so much more.

Griggs, who also teaches healing workshops, guides others to understand cancer as a hero's quest. She says when something happens to us -- death, divorce, disease -- we are receiving a call to adventure. All bet's are off. We must start fresh, gather our spirit guides, collect ourselves, dive into the underworld, overcome, and then emerge full of wisdom of growth.

Griggs has emerged -- full of her own wisdom and growth. She is a hero -- on a quest to help others survive a disease that threw her way off track for way too long.

Sunday Seven: Seven simple life instructions

I've had the little book, with its glossy plaid cover, ever since it was released in 1991. I was 21 years old and already a fan of well-crafted, powerful words. So it was no surprise I picked up Life's Little Instruction Book: 511 suggestions, observations, and reminders on how to live a happy and rewarding life. And it's no surprise I have kept it with me for all these years, allowing it a lifetime membership on my bookshelf, where I can swiftly pluck it from its spot when I need a little inspiration.

Now in a worn, faded, and tattered state, this book is still one of my favorites. Its words are timeless, its messages are meaningful -- even more so now that I am 36 years ago. Now a college graduate, a one-time working professional, a wife, a mom, a writer, and a breast cancer survivor, the reflections printed in this book speak to me more clearly than ever before.

Here are seven of my current favorites from Life's Little Instruction Book -- written by H. Jackson Brown, Jr. for his college-bound son at a time when he had no idea the road map he provided for his child would come to serve so many others.
  • Always have something beautiful in sight, even if it's just a daisy in a jelly glass.
  • Don't forget, a person's greatest emotional need is to feel appreciated.
  • Choose work that is in harmony with your values.
  • Don't be intimidated by doctors and nurses. Even when you're in the hospital, it's still your body.
  • Don't use time or words carelessly. Neither can be retrieved.
  • Live so that when your children think of fairness, caring, and integrity, they think of you.
  • Keep it simple.

Pajama pick-me-up provided for sick kids

Sarita Zouvas knows what it's like to have a child in the hospital. Her daughter, Isabella -- who died while receiving treatment for cancer -- spent many days in the hospital, and Zouvas says it's hard to anticipate what items from home will make a child's stay more comfortable.

"We don't go prepared," she says. "You don't take clothes; you don't know what's going on. You get there and they put a gown on them. My first response is, 'I want to make them comfortable because they're scared.'"

Zouvas has found a way to bring comfort to the lives of children at her local Children's Hospital. And her goal is to make sure every child admitted to the hospital during the holiday season gets a complimentary pair of pajamas.

After the death of her daughter, Zouvas became involved with the Friends of Scott Foundation (FSF) -- a non-profit organization founded in memory of Scott Delgadillo who lost his life to childhood cancer. FSF strives to help children with cancer and their families with emotional and financial support in order to cope with this devastating disease. Zouvas became a part of the FSF support team and is thrilled she can help bring comfy jammies to sick children.

Zouvas says the response to her call for help has been overwhelming. Most pajamas are donated and have come from as far away as Boston. Employees of the San Diego Padres, Southwest Airlines, and the district attorney's office have also helped Zouvas in the endeavor she hopes will continue year-round.

For more information on the Friends of Scott Foundation and Zouvas' pajama drive, click here.

Obesity: stomach stapling for children

Stapling the stomach of an obese child is a last resort, but the National Institute for Health and Clinical Excellence (NICE) has issued a stamp of approval for bariatric surgery as part of a national guideline aimed at reducing obesity in children and minimizing the long-term adverse health effects that being overweight has on health.

This is the NICE organization's effort to find solutions to England's rising obesity epidemic where the number of overweight and obese people in the last quarter century has tripled.

Stomach stapling is not the only solution, but it is now an approved option. Other recommendations include the following: local authorities working with local partners, such as industry and voluntary organizations, to create safe spaces for physical activity; providing cycling and walking routes, cycle parking, area maps and safe play areas; creating pedestrian-friendly streets; designing building and spaces to encourage more physical activity; requiring schools to provide an environment that promotes healthy eating and physical exercise; healthcare professionals taking the time to educate and give advice on how to maintain a healthy weight; raising public awareness and encouraging daily physical activities such as walking, cycling, swimming, aerobics or gardening.

Obesity cannot go unchecked and it is a threat to the health and welfare of children and adults alike, as obesity is linked to greater increased risks for a number of life-threatening diseases like heart disease, diabetes and cancer. But, it is uncomfortable to think that one of the solutions to childhood obesity is a scalpel. The NICE press release New NICE guideline calls for urgent action to stem the rising tide of obesity in England and Wales is available as a pdf document here.

The contrary kid

I never knew how to accurately describe the personality of my oldest child until his preschool teacher told me about her son. The contrary kid, she called him, for his tendency to resist everything that crossed his path. The moment I heard this title, I adopted it and immediately applied it to Joey. It's a perfect fit for this boy, who has spent almost six years embracing disagreement as a way of life.

Yesterday, I picked up Joey from kindergarten and told him he and his brother would play at my sister's house for the afternoon while I went to an appointment. I told him he'd get to play with his cousin on her new swing set and play his favorite motorcycle video game. Three-year-old Danny liked this plan, and was set to instantly jet to Aunt Tracy's house. Joey, however, took his typical against-the-grain approach.

"Nope, I'm not going there," he reported, even though he always has a great time at Tracy's house -- and rarely wants to leave.

Joey's sixth birthday is approaching, and he has been helping me brainstorm ideas for an extravagant pirate party. I asked him recently to help me address the envelopes for his invitations. My plan -- since his teacher says he needs to work on his writing -- was to have him write the first name of each invitee on each envelope. I told him about this project -- he loves projects -- and he said, "Oh, no, I'm not going to do that," despite his love for writing and drawing and creating.

A pediatrician told me when Joey was just three months old and I was concerned he was not a very content baby that a child's personality is carved in stone beginning in infancy. There's no changing it, he told me, just before he advised me to find a way to cope with my not-so-easy boy. He also told me to instill in this delicate boy strategies for coping with a disposition defined by resistance. This coping thing is a work in progress for our whole family. Sometimes we do well -- when we find a balance between occasionally allowing Joey decision-making control and other times calmly disregarding his protests. Sometimes -- when we can't seem to find any sort of balance -- we don't do so well.

I watched a video of Joey last night. He was three years old and just as defiant as he is today. It makes me sad for Joey that he has spent all these years fighting the current of life. It makes me worry that his little insides will one day suffer from a lack of easiness. But I also try to see the bright side of this spirited little boy -- the side experts say may help him when he grows up and can assert himself in all sorts of scenarios.

When faced with peer pressure, Joey may simply put his foot down, say "No," and move on his merry way. He's done this once already -- when preschool classmates laughed at his toenails that were painted orange and blue. When his daddy and I asked how this made him feel, he said, "I don't care. I like my toes." Good for him, his preschool teacher -- the mother of her own contrary kid -- told me. He is very sure of himself, she said.

When my perspective on Joey's temperament is optimistic, I realize my little guy helps me stay strong. Ever since I was diagnosed with breast cancer two years ago, Joey has helped me resist the tendency to feel sorry for myself and give in to weakness. He reminds me to adopt my own contrary view on cancer -- to resist the notion that cancer will limit my life possibilities. When I doubt myself, he senses it and tells me, "You can do it, mommy," and "You are tough." And just the other night, following a family dancing frenzy at his Nana's house, he told me, "I love you, babe."

I love you too, Joey. You are one heck of a contrary kid.

Note: Joey did go to his Aunt Tracy's house to play. He had a marvelous time. He did not help me address the envelopes.

Hyundai drives childhood cancer efforts

The Child Cancer Foundation -- a non-profit charity in New Zealand providing practical and emotional assistance for children with cancer, their families, and their health care providers -- operates solely from the support of its 22 branches scattered across the country. The foundation receives no funding from government agencies or other cancer support groups. So any bit of support they receive is a big deal.

Lately, the Child Cancer Foundation is making a big deal about Hyundai, the fast-growing vehicle brand supplying a range of SUVs and cars to the foundation. Five Hyundai Tucson SUVs and three Hyundai Getz will be donated, and the head of the Foundation will drive a Hyundai Sonata V6 sedan.

The Child Cancer Foundation provides support in the form of financial assistance, meals, transportation, accommodation, support groups, education scholarships, and access to holiday homes. It also contributes financially to research initiatives. The donated vehicles will help tremendously in the delivery of this support.

Minnesota ranks as healthiest state

Minnesota tops state health rankings for the fourth straight year, according to the annual United Health Foundation report -- which also shows Americans are 0.3 percent healthier in 2006 than they were in 2005.

The United Health Foundation survey has been around for 17 years -- and for 11 of these years, Minnesota has been at the top of the healthy list.

Rankings are based on factors such as access to health care, incidence of preventable disease, smoking rates, child poverty rates, and motor vehicle deaths. Minnesota boasts a low rate of uninsured (8.4 percent), a low rate of child poverty (10 percent), and a low infant mortality rate (5.1 deaths per 1,000 live births).

The other states in the top five are Vermont, New Hampshire, Hawaii, and Connecticut. Louisiana was rated the least-healthy state and shares this spotlight with Mississippi, South Carolina, Tennessee, and Arkansas.

A few states -- New Mexico, Idaho and West Virginia -- show declines in overall health. And others -- Illinois, Ohio, Wisconsin, and Kansas -- show the most improvement.

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