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Posts with tag commentary

One hot topic: Some children's bath products linked to cancer

I had no idea my February 10 post Some children's bath products linked to cancer would spark such great debate. At the very moment I write, the post has received more than 64,000 hits and 70 comments.

I must admit when the comments started rolling in, I was a bit nervous. Even though I merely reported the facts on this topic, had no claim to any of the information, and didn't even share my opinion on the matter, the highly charged words written by so many well-meaning readers made me feel a bit like I was caught in the middle, like I started an argument and needed to jump back in, sort things out, and create harmony among those responding to my words.

But then I realized debate is not such a bad thing. It sheds light on all sorts of valid viewpoints. It educates. It raises awareness. And that's what cancer causes are all about.

Having read all the comments that now are officially assigned to this one post, I am so much more enlightened than when I summarized the story I came across revealing that some bath products contain a bit too much of a chemical called 1,4-dioxane, a probable human carcinogen that is already known to cause cancer in animals.

All I really knew at the time I wrote the post is that the FDA has no regulation over this chemical and that cosmetic companies must monitor themselves. Some don't do such a good job, and herein lies the debate.

Some readers say big deal, what's the harm really in a little extra dash of chemical in a whole tub of water. Perhaps if our children soaked all day for many days in this chemical, cancer might strike. But a quick bath with a tiny trace of 1,4-dioxane is not likely to do any harm. One reader wrote that we shouldn't stress so much about headlines that scare us into believing everything causes cancer, that we'll probably live a whole lot longer just living our lives free of constant worry.

Another camp of readers say a little bit of something bad is still too much. Over the course of a lifetime, how do we know our children won't pay for our mistaken belief that this hype is just -- hype. Some cancer surviving readers wonder if their cancer was caused by their plentiful childhood bubble baths. And some go to great lengths to find natural, organic, chemical-free products, whatever the financial cost.

A few consultants for these natural products left their own comments, claiming to help those consumed with anxiety. Others scolded these business people for capitalizing on the fears of others with products that have not been proved any safer.

There are advocates of moderation who wrote. And individuals seeking more information. And people who located resources for others to investigate.

There is indeed a rich commentary on the link between bath products and cancer that follows one short post I wrote late one night, after my own children were bathed -- with Dove soap and generic shampoo -- and put to bed. And I am indeed happy to know my small contribution on the topic has generated such a powerful windfall of thought and concern.

Sunday Seven: Seven survivors inspired by Lance

Lance Armstrong, champion of both cycling and cancer, wrote a commentary recently for CNN. His message was loud and clear -- he is losing patience with Washington politicians set on cutting funds for cancer research -- and while his words have not yet spurred positive change for cancer initiatives, they have inspired cancer survivors from all over the world who are responding with their own commentaries on sickness and survival.

The outpouring of sentiment inspired by Armstrong's commentary is overwhelming. Today, I offer just a glimpse into what survivors -- seven of them -- are expressing in the spirited e-mails they are sending to CNN.

Jerry Kelly of Birmingham, Alabama
My dad died of cancer 10 years ago, almost the same time Lance was diagnosed and subsequently founded the Lance Armstrong Foundation. My wife and I met Lance a few years later after I was diagnosed and we went to Austin for the LAF Ride for the Roses (fundraising bike ride). Lance's story had been very inspirational when I found it just minutes after my diagnosis with testicular cancer. What we didn't realize was how much inspiration we would get from other survivors and caregivers as we shared stories. Lance also spoke of something his doctor told him about, the Obligation of the Cured. The important thing to remember is that we can all make a difference if we are willing to give the effort. You don't have to win the Tour de France to join the LiveStrong Army!

Brian D. of Austin, Texas
The costs of this disease even for folks that have good insurance are well beyond reach. Depending on when you discover the cancer and what type of cancer you have, the out-of-pocket costs are far beyond the average person's ability to pay. This is of course assuming that you want to extend your quality of life and you want access to the latest advancements in cancer treatment. We are called society's "catastrophic cases." I am a 4½-year survivor of primary brain cancer. The technical name for my disease is anaplastic astrocytoma grade III. It is basically a slow-growing glioblastoma multiforme -- a death sentence. But I am young and up to the challenge. I am a card-carrying member of the LAF organization. I think what Lance is doing is great ... I think this article is great and I think our Congress should give more tax credits to those of us trying to live a normal life. Shame on them for not acting!

Anne Hawkins of Douglasville, Georgia
I was diagnosed with breast cancer at age 36. I am now 42½ and I have been diagnosed with breast cancer again -- a different type than the first time. I caught it in time thanks to my diligence in screening. However I am going through chemo for a second time in my life since it was an aggressive cancer and I'm so young. I am appalled that none of our politicians consider this a running topic! And the funding has been cut? That's unbelievable.

Marianna Costa, Melbourne, Australia
While I am writing from Australia, unfortunately the experiences of others sound all too familiar in our world. My wonderful father died in 2005 from cancer. The devastation to lives infested by cancer could never be measured in dollars. My conclusion is that cancer treatment is a global business. While I have faith in people of science to rid us from this world catastrophe, there is a global lack of resolve in governments, the corporate sector and medical institutions.

Casey Cronin of Austin, Texas
I'm 19 years old and I was diagnosed with cancer on December 3. I had my first surgery on December 7 and the second surgery on December 22. The pain I experienced was beyond belief. I had to accept the fact that I had cancer, go through with these surgeries, and sit in a hospital on Christmas. The second surgery was to remove my lymph nodes on my back and the nodes came back negative. Without cancer research I might not have been so lucky. I'm outraged that Congress has cut funding towards cancer research but continue to spend an arm and a leg on defense spending. I have a friend with Hodgkins lymphoma and unfortunately he doesn't have insurance. He's 23 and scraping by trying to make sure he might live past his 30s. Cancer is real threat to our health.

Betty Hoffmeister of Taylorville, Illinois
A year ago, October 2005, my daughter was diagnosed with stage 4 cancer of colon and liver. Not given much hope, but she is a fighter and a real sweet person. She takes chemo every other week on Monday, Tuesday and Wednesday, and then is so sick she has to stay in bed for a day or two. But then she gets up and does what ever her little body will let her do. They just say keep doing what you are doing, but we are really worried. I would like for her to hear some real encouraging news soon before she loses the will to keep fighting. God is very good. But we need help.

Scott Joy of Portsmouth, New Hampshire
I'm a 3½-year testicular cancer survivor, and an administrator for an Internet support forum for other survivors. As the Lance Armstrong Foundation sagely notes, "Cancer may leave your body, but it never leaves your life." Dealing with cancer is life-changing. I was blind to it before it hit me, but now I see cancer -- and its effect on individuals, families, and society -- every day. I am forever grateful for the LIVESTRONG movement, and the passion and power of the community of cancer survivors.

SpeedFreaks benefit infants and children with cancer

SpeedFreaks, the country's largest motorsports radio show, has joined the America's Baby Cancer Foundation (ABCF) to raise awareness for childhood cancers. Kenny Sargent and Lugg Nuttz, hosts from the SpeedFreaks radio and television programs, have been elected to ABCF's board of directors.

The ABCF will benefit from the media exposure SpeedFreaks can provide, and according to the SpeedFreaks hosts, they have finally found a cause they feel they can "really grab a hold of and make a difference." ABCF is not new to Nuttz, who began supporting ABCF three years ago and as part of his involvement, helped establish a program at Irwindale Speedway that provides ABCF families with tickets for Saturday night races.

Backstretch Motorsports quotes Nuttz as saying, "You talk about a wake up call, baby cancer will affect over 11,000 children under the age of 15 this year. If that wasn't enough, childhood cancer rates are increasing at a rate of approximately 1 percent each year."

In 2000, the ABCF was founded as Sebastian's Baby Cancer Foundation. Started by Bernard and Antonia Hicks, following the loss of their child, Sebastian Hicks, at the age of nineteen months to cancer -- they provide a resource library, information and help for other parents with infants and children diagnosed with cancer. SpeedFreaks, with Kenny Sargent, Lugg Nuttz, Statt Mann Caruthers and Crash Gladys, began in 2000, as a result of Sargent's frustration with motorsports coverage. SpeedFreaks bills itself as a lethal combination of motorsports commentary and entertainment.

Antioxidant supplements: cancer prevention fairy tale or fact?

Dr. Lisa Melton of the London-based registered charity Novartis Foundation, has written The antioxidant myth: a medical fairy tale, published in the New Scientist, that takes a look at the benefit of whole foods versus antioxidant supplements -- and concludes that something is lost in the extraction from whole foods making supplements essentially useless to health benefit. She even suggests, based on research, that some antioxidant supplements have been shown to create health problems.

Continue reading Antioxidant supplements: cancer prevention fairy tale or fact?

Man writes bad check to save life

Roy Thayers has experienced death up close, as he was caregiver for his first wife as she battled cancer -- he knows what it is like to watch someone fight for their life -- and he was there when she lost her life to cancer.

Thayers, who at the age of 77 lives alone, was recently told by his doctors that he was at risk for a fatal heart attack and might lose his life if he didn't undergo heart surgery to unblock the heart valves immediately.

The problem of avoiding death and living longer became a matter of time and money. When the NHS put Thayers on a nine-month waiting list for heart surgery, he worried he might not have that long to wait -- considering the urgency with which the doctors had impressed upon him concerning the imminent threat of a fatal heart attack without surgery. He was told he could have the surgery immediately if he paid for it himself.

Continue reading Man writes bad check to save life

Miriam Engelberg blogs cancer made me a shallower person

Over a month ago we introduced you to Miriam Engelberg, breast cancer survivor and author of Cancer Made Me a Shallower Person: A Memoir in Comics. Years before she was diagnosed with cancer, she had planned on creating comics featuring life as a mother.

Instead, she used cartooning as a way to cope with the shock of diagnosis, surgery, chemotherapy, support groups, and a second cancer diagnosis. Today I discovered her blogging at Live Journal about her current cancer treatments, adventures in the world of being a published author and every day life as Miriam Engelberg.

In addition, at her Miriam Engelberg website, she features a weekly cartoon. Engelberg is simply delightful and deliciously funny. You'll enjoy the blog and the featured weekly cartoon.  

Permanent marker to save healthy kidney

The first time you hear incredulous news you might be inclined to wonder aloud in stunned amazement -- how did that happen?! -- which is exactly how I reacted when I read about John Heron in Scotland, who was diagnosed with kidney cancer and scheduled to have his cancerous tumor removed only to have his healthy kidney removed instead. The hospital apologized, his wife refused comment. Aren't there just times when saying you are sorry just does not mean what it could. I understood his wife's silence. There are events in life that just leave you speechless. What happened to Heron more than qualified.

In today's The Daily Times of Marysville Tennessee is a new report that Goldie Claude has quite a bit to say about the surgeon who removed her healthy kidney and left the cancerous kidney. The 86 year-old woman is distraught and suing her doctors over the tragic error. Before the operation she worked two 12-hour shifts every weekend taking care of patients at a small health care facility. Bless her heart, she's 86. According to Claude, who is left with one-third of one kidney, says she can't work now and is having nervous spells. I can imagine.

There is a lesson here that needs to be put forward. In the event you ever find yourself scheduled for surgery, take a permanent marker and ask a trusted family member or friend to write on your body instructions on what should be removed. With arrows if necessary. Never mind if you grew up with your mother telling you to quit writing on yourself with a ballpoint pen. Just do it. Remember what happened to John and Goldie.

Fighting obesity: just exactly who is making us fat?

In the continuing battle of the bulge, and realizing that more families eat out more often than ever before, the Food and Drug Administration, FDA, commissioned a report to discover ways to stop the growing weight gain epidemic. Based on the Keystone Report, the FDA is recommending that restaurants cut back on portions, serve more fruits and vegetables and provide nutritional and caloric information with the meals they serve.

You can imagine how well this is going over with the 900,000 restaurants and other food establishments in this country. For a restaurant to implement what the government is suggesting they do, the report itself notes that the laboratory work needed to calculate the calorie content of a menu item can cost $100, or anywhere from $11,500 to $46,000 to analyze an entire menu. That is not taking into account any menu changes. But who exactly is making us fat?

Continue reading Fighting obesity: just exactly who is making us fat?

Hacks vs Lab Rats: who is at fault for consumer confusion

Stephen Daniells, a journalist and scientist, has worked both sides of the fence, and as such, has as qualified a voice as any in addressing the controversial debate that rages between science and the media. Scurrilous accusations of journalistic conspiracy are made by scientists when it comes to the sensationalism media employs when reporting scientific research and medical news -- and the journalists equally complain that scientists use the same tactics when they pull out the most attention-getting part of a study while leaving out the better but less interesting facts buried deep within the research findings.

Both sides seem to be exploiting the other by manipulative means. According to Daniells, currently a food science reporter with a PhD in Chemistry from Queen's University Belfast who has worked in research in the Netherlands and France, suggests that all the shaming and blaming needs to stop. The relationship between journalist and scientist must be mended and developed amicably if science is to get a fair deal in the press. Ultimately, where this all leads is to consumers being presented with balanced and accurate science and medical news coverage. Daniells writes an excellent commentary with great examples to support his observations and conclusions.

Money-Driven Medicine: why health care costs so much

Few would disagree that the health care system in this country is breaking down. If you are one of the 45 million without health insurance you already know how difficult it is to get health care, and if you have medical insurance you continue to watch as your insurance premiums and deductibles go up year after year. Medicine has become more about money and less about patient care. We are told we spend more because we have the best health care system in the world.

But as Maggie Mahar points out in her new book, Money-Driven Medicine: The Real Reason Health Care Costs So Much, "We spend twice as much as Japan on health care -- yet few would argue that our health care system is twice as good." Mahar, a seasoned financial journalist, takes an in depth look at what she calls America's complicated and increasingly dysfunctional health care system, and what she finds is disturbing. Frankly, from a patient's perspective, it's reprehensible.

Doctors aren't allowed to function as doctors in putting a patient's needs first -- no -- medicine is business and corporations decide on a patient's treatment. To put it bluntly, medicine is a market-driven $2 trillion industry rife with competition. To cite just one example of what is taking place, and to illustrate how medicine truly sees itself  -- Milwaukee hospitals spent more in one year on advertising than fast food business did. Reviewers are calling Mahar's book a thoroughly researched and carefully reasoned study. I call it gutsy because she takes no prisoners and she isn't keeping any secrets. Until the day comes when doctors are allowed to practice medicine once again, with the priority on the patient and not corporate profit, the wheels on this buggy are going to keep falling off one by one until the axle completely splits in two. A must read for anyone who wants to understand how the system works and what motivates the players. The patients aren't even in the game. And that is what is truly appalling. 

Cancer survivor loses job for surviving cancer?

Bureaucratic silliness or grinchy meanspiritedness? Here's the facts. In 2003, Ronald Michalowicz, a fire inspector for the village of Bedford Park, was diagnosed with tongue cancer. He was not given great odds on surviving his cancer. He kept working while going through chemotherapy. Chemotherapy was rough -- he lost 107 pounds.

In 2004, at the end of chemotherapy, but before radiation treatment began, he finally took a leave of absence from a job he had worked 28 years. The community cared about one of its own enough to raise $25,000 dollars to help Michalowicz with medical and living expenses. Cancer is expensive.

Miraculously, he beat the odds and his cancer went into remission. When he went back to work, he was fired. Why? According to village officials, he had accepted monetary contributions from the community in violation of the Illinois Gift Ban Act and village code prohibiting employees from soliciting gifts that could affect their decision-making. He hadn't asked anyone for money. A building inspector, Steve Edwards, cleared a form letter with the mayor at the time, Ronald Robison, to ask for contributions on behalf of Michalowicz. There is a new mayor now. Michalowicz only has one more year to work before he is eligible for retirement. What's really going on? You decide. 

Brett Favre: cancer may loom in comeback future

I have been reading the sports columnists snarky take on Brett Favre's press conference that was intended to include an announcement of Favre's plans on whether he will play football again -- or not -- in the coming season. However, during the press conference, he stated he was not sure of his future plans. This is where the columnists get snarky, and I am reasonable sure all the crankiness might have something to do with the fact they expected something Favre did not deliver. New information on the status of his football career. One columnist began with, "In one of the last improbable acts of his already storied career, Green Bay Packers quarterback Brett Favre upstaged SpongeBob, the Wiggles and Dora the Explorer. Favre became the must-see TV that early morning risers had to watch, the alternative to the kids favorite cartoons. A Super Bowl hero trumping superheroes." Another sports reporter finishes his column with a palm-reading prediction, that "Not making a decision is making a decision. He's already made one. He just doesn't know it." Yeah, right -- we'll see.

From the perspective of those living with cancer, or has a loved one who has fought for their life against the disease, this state of indecision is understandable, if not unavoidable. When faced with mortality, top priorities in life can slip away, and when faced with mortality, it can become a struggle to envision a future. Making plans and making decisions about tomorrow take time. The concept and course of tomorrow is irrevocably altered. In the last two years, Favre has faced mortality with the death of his father and brother-in-law, and the breast cancer diagnosis of Deanna, his wife. If Favre got the reporters up too early on a Saturday morning, to give them news there was no new news, they could have gone back to bed and taken a nap. Give the guy a break for now because, unless you have experienced the aftermath of cancer, you have no idea what Favre means when he says he does not know what he will do tomorrow. He still may not be sure there is one.

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