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Posts with tag community

Give the gift of blood, if you can

I heard today on the radio that there's a shortage of blood supply here in Gainesville, Florida. Reserves are so low there's barely enough blood to last one full day at a time. LifeSouth Community Blood Centers reports about this emergency blood shortage on their website.

"The blood supply stands at less than a one-day supply which has blood center officials very concerned," writes John David Larkin Nolen, LifeSouth's Medical Director. "All eligible residents are asked to give blood. Blood donations haven't kept pace with demand and we've had a very tight supply for the past few weeks. But today several patient situations involving children and adults facing life threatening medical conditions depleted the reserve supplies. We're worried about our overall ability to make sure the patients that need blood will receive what they need during the next few days."

I wish I could donate my blood, but I can't. Until I've been free from cancer treatment for five years, no none wants it. But maybe you can help. Try tracking down your local blood center and see what you can do to help. It may just be the gift that saves a life.

National Cancer Institute: Program to bring quality cancer care to all

The National Cancer Institute (NCI) is launching a three-year pilot phase of a new program that will help bring state of the art care to patients in community hospitals across the country.

The NCI Community Cancer Centers Program (NCCCP) is designed to encourage the collaboration of private practice medical, surgical, and radiation oncologists. Building on this expanded network, the NCCCP will explore ways of sharing information, via electronic medical records, to further enhance patient care. Evidence from a wide range of studies suggests that cancer patients diagnosed and treated in a setting of coordinated multi-specialty care and clinical research may live longer and have a better quality of life.

The pilot program will research new and enhanced ways to assist, educate, and better treat the needs of under served populations -- including elderly, rural, inner-city, and low-income patients. As well as racial and ethnic groups with unusually high cancer rates.

Thought for the Day: What kind of world do you want?

John Ondrasik, the man and musician behind the band Five for Fighting, has released a new album and a new website that just happens to benefit the Breast Cancer 3-Day, a 3-day, 60-mile walk sponsored by Susan G. Komen For the Cure.

Think about this:

Ondrasik's new album, "Two Lights," features a song called "World" which is in heavy rotation on pop radio stations across the country. This single is the inspiration for Ondrasik's new website, What Kind of World Do You Want -- the first video community that gives back by allowing visitors a chance to make a difference.

This is how it works: reveal what kind of world you want and help raise money for charity by watching videos or creating and uploading a video of yourself, your friends, or your family. In your video, answer the question What Kind of World Do You Want? and then choose which charity you wish to help fund.

In addition to the
Breast Cancer 3-Day, selected charities include the Fisher House, Save the Children, Autism Speaks, VH1 Save the Music Foundation, and NY Police and Fire Widows & Children. Video clips describing each charity, a message from Ondrasik, and a video of the song "World," are all featured on the site.

Women leading the fund raising

While it is true that women are far outnumbered in high level management positions in top 500 fortune companies, it is the backbone of the women in this country that lead the fund raising efforts in non profits. Women last year accounted for one out of 13 clout positions as an executive vice president or higher in the 500 largest U.S. companies. This figure was up from one in 40 as recently as 1995. Back then only one of those companies had a female chief executive officer and today seven do.

Women account for a higher percentage of executive positions in larger, self staffed non profit organizations. In 2005, the Non-Profit Times' "Power & Influence Top 50" list named the 50 top senior level executives in the non-profit sector and 26 were women. The role of women in non profit organizations was alive and well long before the concept came to exist. In the United States, the non profit sector encompasses an enormous range of organizations engaged in education, health care, research, the arts, religion, the environment, civil rights, and human services. The historical role of women in these sectors has always been significant and has evolved as the resources of the nonprofit sector have expanded and become formalized.

Women affirm their belief in humanity by providing services to millions of people every year, day in and day out. Many of the executive directors, board members, staff, and volunteers of these human services organizations are women, and they provide the backbone support for our community services.

As the major season for fund raising kicks off to bring in funds for cancer research and awareness, my many applauds to the multitudes of women, and also the men, who take their efforts seriously and have a strong commitment to community and a better quality of life to us all.

Sick children at St. Jude create hopeful holiday gifts

The kids at St. Jude Children's Research Hospital keep busy getting better. They keep busy making holiday gifts too -- like ornaments and ceramic plates and holiday cards and gift wrap. All of their hand-crafted creations fill the 2006 St. Jude Holiday Hope Gift Book, available now and jam-packed with powerful gifts of hope.

Proceeds from gift purchases -- 84 percent of each sale -- benefit sick children in every community in every country who come to St. Jude for life-saving treatment. Like Caleb, a seven-year-old boy diagnosed in 2004 with leukemia.

Caleb was referred to St. Jude -- where no family is ever turned away because of an inability to pay -- and received treatment for three years. Caleb is now in remission and expresses his feelings through his artwork.

Anna Grace, a five-year-old who was abandoned on a roadside in China when she was one day old, was adopted by an American couple and soon after was diagnosed with a cancerous tumor on her brain stem. After surgery to remove the tumor, Anna Grace was referred to St. Jude for chemotherapy and radiation. Today, Anna Grace is healthy and only returns for check-ups every six months.

St. Jude stories of hope are plentiful. And so are the kid-created holiday gifts offered this season.

Sunday Seven: Seven super breast cancer websites

When a question or concern or worry related to breast cancer pops into my head, I typically find myself parked in front of my computer in search of instant answers, instant comfort, instant wisdom. There are several different websites I consult -- each one different from the others, each one complementing the others. They are my reference tools, my handbooks, my encyclopedias. They offer me a clear picture of a confusing, cloudy disease. And here they are -- seven super websites that have been become staples in my life.

Continue reading Sunday Seven: Seven super breast cancer websites

AOL Think Pink! celebrates breast cancer survivors

As women facing the challenges of a breast cancer diagnosis and the triumphs of living beyond breast cancer, we share our stories and ourselves in the hope that it will help other women facing the same challenges in the fight to survive breast cancer and the special issues of breast cancer survivorship.

Beginning today, and lasting through October, AOL People Connection's Think Pink! will be featuring breast cancer prevention, diagnosis, treatment and survivorship resources within a dynamic interactive online community for women to learn about breast cancer, share their breast cancer story and make connections with other breast cancer survivors.

When you visit Think Pink! you will discover a blog featuring personal stories of breast cancer survivors told in their own words; a gallery of inspirational photos submitted by women going through breast cancer treatment and women who are living beyond breast cancer; articles and educational information about breast cancer; special profiles of breast cancer survivors; shop for a cause pink products; how to join a letter writing campaign to increase federal funding for breast cancer research and enhance the involvement and influence of trained breast cancer consumer advocates in all aspects of breast cancer policy and research; sign up for a breast check monthly reminder; learn about ongoing breast cancer events; and more.

While there, you are invited to share your story, submit a photo, start your own blog or create an AIM page.

Lung cancer breathing techniques can help us all relax

The Lung Cancer Alliance -- the only national non-profit organization dedicated entirely to lung cancer patient support and advocacy -- asked pulmonary clinical nurse specialist Donna Wilson to help educate the lung cancer community about healthy breathing. Wilson agreed and her breathing tips, available on podcast, are intended to relieve shortness of breath related to pain or activity. Her three breathing techniques -- detailed here -- are simple, easy-to-understand, and truly relaxing.

Before beginning this series of breathing exercises, stop whatever you are doing and sit down or lean against a wall.
  • Place chin to your chest to relax your neck muscles. Breathe 10 short bursts of air in and out of your lips. As you expel air, neck and chest muscles should relax.
  • Place chin to your chest. Breathe three times in through your nose and out through your mouth.
  • Place chin to your chest. Close your mouth, and breathe four times in and out only through your nose.
After completing these exercises, lift your head, breathe normally, and let your shoulders relax. In a few minutes, your entire body should start to relax -- and shortness of breath will resolve.

I don't have lung cancer -- but I do have moments of anxiety and panic. So I plan to save these tips. And I plan to use them. And I plan to share them. Because we all can benefit from a dose of relaxation.

Hurricane Voices raises consciousness, incites public action

I love the terminology used by those behind the scenes at Hurricane Voices. This is where I first read the words breast cancer dancer and where individuals have gathered to advance the rebellion against breast cancer. The content on this site is powerful, edgy, and truly inspiring -- it incites public action. And it makes me want to jump up and do something -- now. To break down the barriers to progress in pursuit of the causes and cures for breast cancer -- which is the whole purpose of Hurricane Voices.

Hurricane Voices began because of one woman -- Lois Egasti, a wife and mother living with metastatic breast cancer. Lois, who passed away on April 15, 2003, knew she was not alone and felt the need to take a stand against the disease. So she put her urge into action and formed this not-for-profit organization. And in just four years, a great community of voices emerged -- voices that have helped raise support and participation in far-reaching programs and events.

Hurricane Voices offers on its website a family reading list, a regular newsletter, an empowering overview of breast cancer and its statistics, and a sampling of various myths surrounding breast cancer. Hurricane Voices provides direction for involvement in unique conferences -- such as When a Parent Has Cancer: Strengthening the School's Response which helps school systems support families affected by parental cancer and Breast Cancer: Truth & Consequences, a conference that challenges the status quo concerning breast cancer. Hurricane Voices initiates thought-provoking public awareness campaigns and strives to inform the public that the disease we call breast cancer is a very serious illness.

Every day, more people are being diagnosed. Every day, more people are dying. Yet we are not beating this disease -- in fact in the time it takes to brush our teeth or drink a cup of coffee, another person has died of breast cancer. And this is what Hurricane Voices wants us to know. This and the fact that well-meaning, misconstrued survival rates in the 90 percentiles only extend for five years. And five years is just not enough.

Powerful -- that's what Hurricane Voices is -- powerful. And each of us can contribute our own power to this organization by becoming a Hurricane Voice. So speak up -- by simply clicking here.

Cancer Buddy Network: new cancer community

Faced with a cancer diagnosis, or any challenging life event, you want to talk to someone who has already experienced what you are about to experience. You want to find stories about other people who have overcome adversity, preferably told by the people who went through it first-hand. You want to know what to expect.

Last year, when Katherine Brown's mother-in-law Ruth was diagnosed with Lymphoma, she went on an internet search to find people Ruth could talk to, who knew what it was like to be diagnosed with cancer, be inspired by the personal stories of triumph over the trials and tribulations of a cancer diagnosis and cancer treatment and cancer survivorship.

After an extensive internet search for the kind of community Ruth could connect with, Brown came up empty-handed. As need is the mother of all invention, Brown decided to create what she was looking for and could not find.

The Cancer Buddy Network is a result of Brown's vision. At the Cancer Buddy Network, you create an account; tell your story; be a buddy. Newly-diagnosed cancer patients, family members and friends, and cancer survivors are welcome. It is the blend of cancer patients, cancer survivors and the loved ones touched by cancer that brings real life hope and inspiration in cancer community support. The Cancer Buddy Network is a recent web destination and it looks very well done. Stop by and give it a look, add your voice to hope.

Hungry To Be Heard: older hospitalized patients going hungry

Some campaigns just make me sad. UK's Age Concern, a charity that works to promote the health and welfare of older citizens, has launched a campaign called Hungry To Be Heard because it seems nine of of ten nurses do not have time to make sure elderly patients are getting enough to eat during their stay in the hospital. As a result, over half of the elderly patients are at risk for malnutrition. As hospital patients, if the elderly are malnourished, they simply are not going to recover or heal as quickly; they are at greater risk for post-surgical complications and they suffer a higher rate of death.

Continue reading Hungry To Be Heard: older hospitalized patients going hungry

Breast cancer touches many lives in just one neighborhood

I ran into a neighbor the other day at the grocery store. She has breast cancer, has just finished her final chemotherapy treatment, and proudly displays her bald head as she enthusiastically takes on life. I introduced her to my husband, we all chatted, and then we parted ways. And soon after, my husband asked me if she is the neighbor whose husband we spoke with just recently about his wife's breast cancer journey. I told him this was a different woman -- another neighbor with breast cancer. Including me, that makes three of us with breast cancer in the same community of just 200 houses. And this shocked my husband -- that there are three of us in the same neighborhood with breast cancer. But I told him this really is not surprising, that it's probably not all that uncommon. And I told him there are probably more women with breast cancer residing in the houses on the streets that surround us. We just don't know them all.

I've heard many times that most people are personally touched by breast cancer in some way. It might be each of us with the diagnosis. Or it may be a family member. Or a friend. Or a co-worker. Or a neighbor. Because incidences of breast cancer have increased over the years, and in the United States, the rate of new cases has been increasing more than one percent per year since the 1940s. In the 1980s, the rate of new cases rose markedly -- perhaps due to increased and better screening -- and only recently have cases been leveling off. It is estimated that just over 200,000 new cases of breast cancer will be diagnosed in American women in 2006.

One in eight women will be diagnosed with breast cancer at some point in her life. And that is startling. Which is why it is not so startling to me that there are three of us in my neighborhood with this common disease -- the second-leading cause of cancer death for women, after lung cancer.

Scholarship opens doors for student, cancer community

Many college students are beginning their pursuits in higher education with private scholarships. Each year, millions of dollars are awarded to college students as a result of private gifts that flow from alumni and donors. These scholarships help universities compete for the best and brightest students. And the beneficiaries of these scholarships are many. Universities get what they want -- good students. Students get what they want -- funding for college. And the community gets something too.

Lauren Mareno, a senior at Kent State University and recipient of a Reach for Excellence scholarship, has been reaching into her community and is leading campus-wide efforts to raise money for the American Cancer Society -- an experience that has exposed her to new career opportunities. While she pursues a psychology degree and a certificate in non-profit management, Mareno -- who lost her own father to cancer at the beginning of her freshmen year -- serves as co-chair for the Relay for Life event. In April she saw the fruits of her labor blossom as more than 60 student groups participated in the 24-hour campus walkathon that raised more than $75,000.

Mareno sees more community outreach in her future and she is eager to continue raising funds for causes that are meaningful to her -- and to so many others too.

Labels 101: learning to read bath and beauty product labels

When I first discovered Bella Lucce, I cannot say if I was more impressed with the quality of the bath and beauty products or Lela Barker, the woman behind the company. First, Lela's sister is diagnosed with breast cancer, and based on research, Lela begins making natural bath and beauty products in her kitchen to keep her sister safe from chemicals that might threaten to increase risk of breast cancer recurrence. She shares the bath and beauty products of her hobby with her women friends.

Several years later, Lela, a young mother of two small children, is facing a divorce. Needing to find a way to earn an income to support her and her children, and wanting to be a stay-at-home mom, she turns her bath and beauty product hobby into a business. The success of Bella Lucce has been phenomenal on a worldwide scale because the quality of the products are luxurious and affordable. Lela is socially conscious and gives back to the indigenous communities where she takes what is needed to make Bella Lucce products. Lela employs who she calls, "an amazing group of inspiring women." I find Lela to be an amazing and inspiring woman.

On the Bella Lucce website, Lela writes informative articles explaining antioxidants and a how-to bath and beauty product labels guide. Because identifying bath and beauty products that contain significant antioxidants in the formula can be a challenge, according to Lela, women need to educate themselves what to look for and she offers an overview of antioxidants to watch for in Antioxidants Explained. The article Labels 101 is an essential primer for women who want to learn the basics on how to decipher bath and beauty product labels. In addition, Lela wrote an article called The Dreaded Chicken Skin and The Keys to Healthy Summer Skin.

CarePages: caregivers connect and share in online community

Eric and Sharon Langshur launched CarePages after their newborn son, Matthew, was diagnosed with a congenital heart defect. As a way to keep friends and family informed, they created a website that included updates, a message board and a photo gallery. The webpage worked so well for them that they started a business offering free webpages to caregivers to help them provide information to family and friends -- and to nurture an online community for caregivers. According to the Langshur couple, CarePages is touching the lives of more than one million families across the globe.

Getting started is easy. Sign up for your free webpage and in minutes you are ready to share information and become part of the CarePages community. Your webpage is as private or as public as you choose. As a CarePages member, you can create a virtual meeting place on the web, share news and photos, thoughts and feelings, and receive emotional support.

These days, there is no need to be alone as you and your loved one face the challenges and struggles of a cancer diagnosis and cancer treatment.

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