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Mind games help clear fog left from chemotherapy

As evidence mounts, it's becoming more and more clear that chemo brain, a mental fogginess that can result from chemotherapy, is a real concern and not just a convenient excuse cancer patients use to explain away their flighty and forgetful tendencies. It seems the brain really can suffer cognitive damage from the poisonous drugs that fight off deadly cancer cells. And sometimes, this damage is present years after treatment.

Add to chemo brain the normal aging process as well as brain conditions such as mild cognitive impairment and even schizophrenia and the brain might not stand a chance of ever remembering anything. Unless we buy into the new concept of mental training -- somewhat like physical fitness training -- in which case we may be able to bring back a level of sharpness to our lives.

Research suggests this type of training may delay mental decline. And Betty Hall, 85, who is taking a brain fitness class at her senior living complex in Illinois, says brain-enhancing activities are definitely helping her.

Hall is participating in an eight-week program where she spends one hour per day, five days per week using a computer to match words and listen for details in stories. She says it's helping her remember where she places her keys and her grocery lists -- and it's even helping her in her bridge club.

"I've won four times out of the last five at bridge club, and I think the players are going to shoot me because I keep remembering the cards people have," she said. "It's much easier for me to concentrate . . . and I brag about it everywhere I go."

One clinical professor of neurology says brain health programs will explode over the next few years because of the stunning findings on this front. One study shows relatively short training regimens, lasting just five or six weeks, improve functioning for as long as five years. And booster sessions help advance these gains. Study participants says their everyday tasks, like managing finances, are much easier after mental workouts. Another study of the computer software Hall uses shows the program shaves an average 10 years off the mental age of users.

Not all mental training is alike, and different cognitive difficulties may call for different training protocols. But the simple fact that I can work out my brain like I can work out my body gives me hope that I can possibly reverse the effects of chemotherapy on my own foggy brain, that I can one day not worry anymore that I might find my check book in the refrigerator and my cell phone in my sock drawer. Bring on the workouts!


Thanks to Bev, my brainy friend, for this story tip!

LIVESTRONG notebook offers organization, guidance

I used a written journal and then a blog to record the stops along my cancer journey. I kept a file for financial paperwork, and I made lists of questions in anticipation of medical appointments. I saved all prescription instructions to track the abundance of drugs entering my body, and I earmarked a large white cardboard box as my cancer treasure chest. The contents of this box include cards, gifts, newspaper clippings, books, literature, and more. It's practically spilling over with stuff -- the stuff of cancer.

My system -- which may seem a bit unorganized and splintered -- worked well for me as I tried to keep my head above water following my cancer diagnosis. For others, a more central system may work -- a system that incorporates all pertinent information in one convenient location.

The LIVESTRONG™ Survivorship Notebook, offered by the Lance Armstrong Foundation, is one option for those seeking a clean, concise way to manage the details of cancer. It's designed to organize and guide. It's portable. It's available for the cost of shipping and handling only. And it includes the following:

Survivorship Tools -- this section includes a personal health journal, an appointment diary, a list for medications, a summary section for health and financial information, and a medical history and treatment area.

Survivorship Stories
-- this section features stories of cancer survivors that will inspire and empower.

Survivorship Topics -- this section offers readings, answers to questions, and resources about physical, emotional, and practical issues related to cancer.

This yellow notebook -- a symbol of one man's fight and victory against a mighty disease -- could be the perfect accessory for someone facing the unknown. Sometimes all it takes is a bit of organization to calm nerves, minimize anxieties, soothe fears, and instill a sense of control over an otherwise uncontrollable journey.

Sunday Seven: Stop the spread of seven breast cancer myths

Breast cancer is widespread -- so widespread that most of us have direct personal contact with someone living with this disease. Information about breast cancer is also widespread -- so widespread that it's easy to get lost in the maze of details that define this illness that two million women in the United States are living with at this very moment. Breast cancer has its own set of definitions and facts and statistics -- and myths too. And here are seven myths that are not worth spreading.

Most lumps in the breast are cancer.
Actually, most lumps in the breast are not cancer. But every lump should still be examined and diagnosed.

Breast cancer does not occur in young women.
While most breast cancer cases occur in women over the age of 50, breast cancer can and does occur in women of all ages. I was diagnosed at age 34.

Women with large breasts have a greater risk of breast cancer
.
Size does not affect risk. But it can be more difficult to examine large breasts and therefore detect a suspicious lump due to a larger amount of tissue.

A woman has little or no risk of breast cancer if she has has no family history of the disease.
Most women with breast cancer -- about 75 percent -- have no family history of breast cancer. Simply being female puts all women at risk. I have no family history of breast cancer -- but I still was diagnosed with this disease and have been treating it for almost two years.

If mammography shows nothing to worry about, then there is nothing to worry about.
Mammography can miss 10 to 15 percent of all breast cancers. So any suspicious mass should be investigated with further tests -- such as ultrasound and MRI. When my lump was examined during a mammogram, my doctor was not worried. But an ultrasound that followed revealed a solid mass -- and this was something to worry about. A biopsy came next. And then came my breast cancer diagnosis.

Once a woman is treated for breast cancer, she should avoid becoming pregnant.
Many breast cancer survivors go on to have successful pregnancies and healthy children. Women should consult their doctors, however, about current and previous treatments and should discuss any possible concerns about pregnancy after breast cancer.

Removal of the entire breast is safer than segmental mastectomy.
Survival is similar for women who have breast-conserving surgery -- like a lumpectomy -- and for those who have either a total or modified mastectomy.

It's not surprising that inaccurate information is floating around about breast cancer -- because there is so much information on the topic and much of it is not completely understood by those who study the disease every day. But we all can take an active part in our own education by researching each tidbit of news that comes our way. We can confirm it, deny it, and understand it better if we take matters into our own hands. And if we don't spread anything we just are not sure about. We owe it to ourselves -- and women everywhere -- to spread only the most accurate information about this disease we all need to better comprehend.

John "Jack "Murtha makes news about war, breast cancer

Less than one year ago, Rep. John P. "Jack" Murtha, D-Pa., came crashing onto the national scene with his opinion that the U.S. military could accomplish nothing more in Iraq and should be pulled out of the war zone. It was a harsh opinion -- and one his Democratic partners thought might hurt their party at a time when they were trying to gain control of Congress. The fact that the Democrats had been seen as weak on national security didn't help. And then a funny thing happened.

Murtha, 74 -- a decorated Marine and the first combat veteran of the Vietnam War elected to the House of Representatives -- became one of the most popular Democrats around, despite or maybe because of his passionate beliefs. Once a behind-the-scenes kind of man, he is now in the public eye. He's out raising money for Democrats in many states. He's attending fundraising events with Al Gore and others. And he's gathering allies at every turn. And while he still faces opposition, he believes that he must make public what he stands for. And so he does. And because of his recent uncharacteristic charismatic presence, details about this once-to-himself man are emerging. Details like these: A local airport is named for him. An institute for the study of neuroscience and pain is named for him. And a breast cancer center bears the name of his wife, Joyce.

The Joyce Murtha Breast Care Center at Windber Medical Center opened its doors in February 2002. Located in Windber, Pennsylvania, this center began as a collaboration between Walter Reed Army Medical Center and Windber Medical Center and ever since its beginning has offered full diagnostic services for breast health and disease in one convenient location.

Murtha is surely raising awareness with his opinion about the military and national security and war. And even breast cancer gets a little press out of the whole frenzy surrounding this man and his efforts. Which reminds me that somehow, breast cancer seems to touch the lives of just about everyone is some way.

Debate surfaces about executives diagnosed with cancer

Dealing with cancer in private is hard. Dealing with cancer publicly can be even harder. CEO Donna McAleer -- the founding executive and public face of the large, growing health care company Elant -- knows this firsthand. She just recently went public with her breast cancer diagnosis and prognosis after rumors of her demise started circulating. McAleer set the record straight, announcing that she is doing just fine. While her experience has been frightening, she is surviving well -- and she wants the public to know. She has run Elant for 20 years and wants to dispel any myths about its stability. Apple CEO Steve Jobs faced the same public drama in 2004 after surgery for pancreatic cancer and subsequent drops in Apple stock. Jobs recovered -- and so did the stock -- but the speculation that swirled was powerful and potentially damaging. Just as it was that same year when Kraft Foods was criticized for withholding details of its CEO's hospitalization.

There is some debate in the business world about all of this -- about whether or not executive illnesses should be disclosed. For public companies, one opinion is that there is an obligation to respond quickly to the public. In a private company, it's up to the CEO. McAleer's Elant is not a publicly traded company and there is no worry about stock price -- but her decision to reveal her personal health crisis was the right thing to do, she says. "I have an obligation to share this news in how I progress, in order to educate and make sure people aren't frightened by it," she said in reference to the memo she sent to her 700 employees and community groups too.

I'm open and honest about my own cancer experience because I believe it can help others -- and it helps me to talk about it too. So I'm a fan of a forthcoming approach in the workplace. I appreciate that some fear repercussions that might result from such a disclosure. But honesty may be the best policy -- for prevention of rumors and addressing worry and raising awareness too. McAleer seems to agree as she takes this opportunity to speak up, to encourage women to seek mammograms and to follow up on them.

Sunday Seven: Seven simple suggestions for journaling

I've been keeping a journal ever since I was first diagnosed with breast cancer. I first wrote by hand in a pink fabric-covered book, sprinkled with multi-colored polka dots. It looked feminine -- which is why I bought it -- and it's vibrance made me feel inspired, motivated, eager to write down the dreaded details of the beginning of my journey. Then I stopped writing in this book and began typing my words in an on-line journal -- a blog. My husband designed the presentation of it, with a pink banner that serves as the backdrop for the title -- my Breast Cancer blog. My first entry was completed on December 21, 2004 and I am still chronicling my journey here. I am also writing for this site -- the Cancer Blog -- and I write whenever and wherever else I can record my words. I do it because it helps me process information in a quiet, calming, introspective way. It soothes me, helps me work through panic and anxiety, helps me heal, and helps me chart my progress. When I look back at what I've written, I realize how far I've come -- or haven't come -- and it helps me move forward. I recommend journaling for everyone, and I recommend these seven simple suggestions for getting started.

Continue reading Sunday Seven: Seven simple suggestions for journaling

Sunday Seven: Seven hidden treasures found through cancer

If I could go back in time, I would not repeat my journey with breast cancer. I would choose a different path -- one free of disease and treatment and the fear that comes with it all. I would choose the route where my children would never hear me say, "mommy has cancer." The route where there would be less worry about dying, less worry about how my kids would do without me, less worry about how all my loose ends would be tied up without me here to tie them. I would choose another direction in a heartbeat. But there are some things I do treasure about my trip down breast cancer lane -- some things I do not wish to give back, even if given the chance to choose a different path. They are the hidden treasures I discovered along the way, in the midst of a harrowing, sometimes horrendous battle. There are many treasures that have come my way -- and I'm sure there are more to come. Here are seven of my valuable finds.

Continue reading Sunday Seven: Seven hidden treasures found through cancer

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