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Posts with tag diary

LIVESTRONG notebook offers organization, guidance

I used a written journal and then a blog to record the stops along my cancer journey. I kept a file for financial paperwork, and I made lists of questions in anticipation of medical appointments. I saved all prescription instructions to track the abundance of drugs entering my body, and I earmarked a large white cardboard box as my cancer treasure chest. The contents of this box include cards, gifts, newspaper clippings, books, literature, and more. It's practically spilling over with stuff -- the stuff of cancer.

My system -- which may seem a bit unorganized and splintered -- worked well for me as I tried to keep my head above water following my cancer diagnosis. For others, a more central system may work -- a system that incorporates all pertinent information in one convenient location.

The LIVESTRONG™ Survivorship Notebook, offered by the Lance Armstrong Foundation, is one option for those seeking a clean, concise way to manage the details of cancer. It's designed to organize and guide. It's portable. It's available for the cost of shipping and handling only. And it includes the following:

Survivorship Tools -- this section includes a personal health journal, an appointment diary, a list for medications, a summary section for health and financial information, and a medical history and treatment area.

Survivorship Stories
-- this section features stories of cancer survivors that will inspire and empower.

Survivorship Topics -- this section offers readings, answers to questions, and resources about physical, emotional, and practical issues related to cancer.

This yellow notebook -- a symbol of one man's fight and victory against a mighty disease -- could be the perfect accessory for someone facing the unknown. Sometimes all it takes is a bit of organization to calm nerves, minimize anxieties, soothe fears, and instill a sense of control over an otherwise uncontrollable journey.

Breast cancer champion, anchor departs Early Show

Rene Syler, member of the four-person anchor team on the CBS' morning news program The Early Show, will leave her post just before Christmas.

Syler says she will leave the show to pursue other media interests and to promote her new book -- Good Enough Mother -- that will be published next year. And she will undoubtedly continue raising awareness about breast cancer.

After doctors told Syler she had an increased risk of developing breast cancer since both her mother and father have had the disease, she kept a video diary of her experience for a story that won the 2004 Gracie Allen award. She has long been a breast cancer champion. But her personal experience with the illness upped her commitment to the cause.

Syler's final broadcast will be on December 22.

Photo essay paves visual path for women who follow

Photographs tell powerful stories. They depict people and objects and landscapes and emotions in deep, meaningful ways. They capture permanent visual representations of moments in life. They paint pictures that even the most well-crafted words could not reproduce.

When Mary Ann Nilan was diagnosed with breast cancer in 2004 at the age of 40, she knew her story must be told -- through pictures. So she asked a photographer to record it all, stating, "I hope the pictures make the road easier for other women." The rest is history.

She calls it a photo essay and titles it The Diary of Healing. For 17 frames -- with photographs dominating each space and text kept to a minimum -- Nilan shares her journey that began with the discovery of breast cancer in both breasts and several lymph nodes, the journey that took her through chemotherapy, a double mastectomy, and reconstruction with implants.

Her photographs document significant stops on her physical and emotional trek. They show her bald head, the wig she wore only once and then let hang on a hook, the scars that crossed her flat chest after surgery, an injection of saline that painfully pierced the skin of her new breasts, her children measuring her hair as it grows in after chemotherapy. The photographs are both hopeful and chilling. They are breast cancer. They are more than words could ever capture.

Glamour editor blogs Life with Cancer

Glamour editor and leukemia cancer survivor Erin Zammett Ruddy blogs Life with Cancer and is the author of My (So-Called) Normal Life. Five years ago, at the age of 23, Erin was diagnosed with chronic myelogenous leukemia (CML). Immediately after her cancer diagnosis, Erin began chronicling her life with cancer in a monthly Life with Cancer column for Glamour magazine. Recently, she has launched a blog after the same name as her column.

"I am excited to be starting my blog for Glamour. I am going to be talking about whatever it is I am feeling about that particular day.

I hope to hear from readers that instead of being a patient or a victim -- it's something like I have this disease, what can I do with it -- how can I help other people.

Do I wish I didn't have cancer? Yes, but I wouldn't trade my life right now for anything and that life includes cancer."

While Erin is new to blogging, she is not new to writing, and she is an excellent writer. Frank, serious, open, vulnerable, and bouyant with a delightful sense of humor, her writing makes for a blog that is difficult to leave until you have read every post. Erin takes Gleevac, and in order to have a baby she will need to stop taking the drug that keeps her in cancer remission. She is very honest in sharing the anxiety and anticipation of making this choice.

From the blog, you can access the monthly column Erin writes for Glamour magazine. One of the most recent features an interview with MTV's Real World/Road Rules Challenge: Fresh Meat Diem Brown, a 25-year-old woman currently battling ovarian cancer. After hearing about Diem, and watching her on the reality show, Erin was intrigued to meet her. As a result of the time the two spent together, and sharing stories with Diem, Erin was inspired to stay positive in the midst of uncertainty.

Erin Zammett Ruddy is a phenomenal woman with a terrific attitude, and a blog we are glad she keeps.

Breast Cancer Diaries: video documentary of one woman's breast cancer journey

Diagnosed with breast cancer in 2004, television journalist and young mother Ann Murray Paige set up a video camera in her bedroom to chronicle her struggle to fight and survive breast cancer.

With filmmaker Linda Pattillo, Paige, who was 38 at the time of her breast cancer diagnosis, documents her thoughts and feelings and the experiences of her family as they go with her through cancer treatment and recovery.

"Ann's journey reveals her previously untapped power as she fights not only for her own survival, but to be there for her children. The Breast Cancer Diaries unflinchingly documents one woman's battle against a disease that every woman fears. It does so with wit, compassion, insight and best of all--an unvarnished commitment to the embrace of life!" You can watch Uncut Video excerpt interviews with Paige here.

You can learn more about the documentary here. You can read Paige's blog here.

Ten Top Tips weight loss healthy diet diaries

According to Breast Cancer UK, maintaining a healthy weight is one of the best ways to reduce the risk of developing cancer. The organization is featuring the efforts of three women and one man as they chronicle their progress in the Ten Top Tips ten week weight loss program.

Led by specialist dietician Weight Concern Alison Chipperfield, the four volunteers Liz Ainsworth, Emma Russell, Stacey Delaney and Mike Chapman will share the personal efforts of losing weight with diet and lifestyle changes in reaching a greater level of health. To follow the weekly updates, visit Ten Top Tips Reduce the Risk.

Cancer Research UK also features a Healthy Eating area of the organization's website highlighting comprehensive information and resources in cancer prevention through diet and healthy eating tips.

According to Cancer Research UK, "Experts think that about a quarter of all cancer deaths are caused by unhealthy diets and obesity. Our diet influences our risk of many cancers, including cancers of the colon, stomach, and breast. You can reduce your cancer risk by eating a healthy, balanced diet that is high in fiber, fruit and vegetables, and low in red and processed meat and saturated fat."

Through support in funding, Cancer Research UK is involved in the EPIC study. The study -- called the European Prospective Investigation into Cancer and Nutrition (EPIC) -- is an enormous undertaking involving 521,483 individuals in 10 different European countries. EPIC is unique because the populations being tracked are so diverse in eating habits. But this is precisely what gives the study the advantage it has in making comparisons and noting trends.

30 Days of Fashion: Hearst magazines benefit ovarian cancer

During Hearst Magazines 30 Days of Fashion and New York Fashion Week, thirty fashion photographs showcased in the photography exhibit titled Getting Ready: The Art of Choice will be auctioned by Jamie Niven of Sotheby's to benefit the Ovarian Cancer Research Fund (OCRF) whose mission is devoted to research, raising awareness and finding an ovarian cancer cure.

In 1994, Sol Schreiber founded OCRF to honor the memory of his wife, Ann, who fought for five years against ovarian cancer. The late editor-in-chief of Harper's Bazaar Liz Tilberis is credited for her influence in gaining attention for OCRF due to her numerous contacts in the worlds of fashion, beauty, and entertainment.

The photographs that will be auctioned feature works by well-known photographers Bryan Adams, Tina Barney, Patrick Demarchelier, Jessica Todd-Harper, Karl Lagerfeld, Peter Lindbergh, Matthew Pillsbury, Timothy Greenfield-Sanders, Vee Speers, and Timothy White.

In my mother's words

Zach Urlocker lost his mother Mary to ovarian cancer on July 4th. During the last year of Mary's struggles and challenges in her fight against ovarian cancer, Zach blogged Tuesdays With Mary as a way to keep family and friends informed of his mother's progress. He also wanted to be a resource for other families facing ovarian cancer.

In a recent post, Zach shares that shortly after his mother died, the family discovered a diary. The family was not aware that she had kept a diary. At the time of the discovery of Mary's diary, Zach said he could not bring himself to read it, and the diary sat on his desk for several weeks. Finally opening the pages, he describes the writing as raw and personal. He has chosen to share some entries that his mother wrote on the Tuesdays With Mary blog.

Mary's diary begins, April 29, 1999 -- Hysterectomy. This is my journal, so I believe I can swear all I want to. Today we saw Dr. Manus (chemo) -- overwhelming -- 3 hrs there -- I feel that I had no control over what is happening. Would like to run away & hide ... continue reading here.

When Cancer Calls: diary of fear and hope in cancer fight

Arizona Daily Star assistant features editor and critic Kathleen Allen was diagnosed with uterine cancer in March. The newspaper where she works is publishing her diary When Cancer Calls as a feature on the newspaper's website.

Allen begins at the beginning, when the first symptoms that something was wrong began to be appear, and at first she ignored the signs of uterine cancer -- her mother had died from uterine cancer but still, Allen told herself it was nothing. From denial, to acceptance to fear, to understanding what cancer meant to her, she takes you with her as she personally recounts the experiences of a cancer diagnosis to cancer survivorship. Here are a just a few excerpts from Allen's diary:

"I do not want to be alone with my thoughts. I don't want to think about what I know I have to think about: healing, changing my lifestyle, changing my life, being a person who has cancer."

"It hits me: I am now a person with cancer. That's my identity. I'm not a sister, writer, wife, aunt, independent woman. I am a cancer victim (I hate that word). And, hopefully, a cancer survivor (oh how I hate that term, too). The realization is paralyzing."

"Last night I was bombarded with vivid dreams. Most were of doctors saying I had to wait to have the cancer cut out. Or that I'm not that sick. You'd think I'd be happy with the last one. Instead, oddly, I fear that people would stop loving me if I was well."

"Funny, I had expected great profundities to come out of having cancer. But my thoughts are consumed with moving without pain, eating right, paying bills, staying healthy. It's very mundane, really. "

"Then, last week, I was gripped with a fear that I was going to die. Soon. I became obsessed with planning trips and activities I've always wanted to do."

And in the final diary entry, Allen reveals what cancer taught her. When Cancer Calls.

Saturday Six: self care tips for cancer caregivers

Caregivers are quiet heroes, helping and caring without asking for anything in return. Caregivers step in when there is a need and they bring with them a sense of hope and comfort during the challenges facing a loved one diagnosed with cancer. In the selflessness of love, they sometimes forget to take time to care for themselves. To avoid caregiver depression, frustration, resentment, illness and burnout, here are six ways a cancer caregiver can care for themselves while caring for someone else:

Take a daily walk. Exercise is a great stress reducer. Taking the time to stroll through the neighborhood or local park is like a deep calming breath for the body and emotions. If you are a jogger, go jogging. The point is to get away for a moment, get the body moving, and enjoy a change of scenery as you go.

Keep a journal. Daily journaling is a way to outwardly express your thoughts and emotions and can act as a relief value for emotions that are building up inside. It can also give you a better perspective. Sometimes we need to see what we are thinking and feeling to sort it all out.

Pursue personal interests. If you have a hobby or activity -- like writing poetry, photography, crafts, painting, knitting, reading, gardening, or listening to music, that has always been fun and brought you a sense of joy and contentment -- make time each day for your personal pleasurable pursuits.

Maintain friendships. We need our connection to others for the enjoyment of company and for comfort and support. Make regular weekly dates with friends and meet for coffee. Join a book club or start a book club. If there is a caregiver support group in your area, or a support group for families affected by cancer, consider joining.

Learn ways to relax. Try breathing exercises and muscle relaxation exercises. Schedule a massage. Take a weekly yoga or tai chi class. Cannot get away? Pop in a yoga or tai chi video and follow along.

Make your health a priority. Eat well-balanced meals, get plenty of rest, drink plenty of fluids. Find inspirational quotes that lift your spirits and display them where you can read them each day. Remember to laugh each day. Hug and be hugged.

To offer the very best care for your loved one, you must take care of yourself too. It's not selfish, it's wise.

If you are a caregiver that has found unique fun ways to take a moment to take care of yourself while taking care of someone you love, please share your ideas with other caregivers in the comment area following this post. If you are a reader with fun tips or ideas on ways a caregiver can take care of themselves while caring for someone else, please share in the comment area. We are all in this together, and we will get through the challenges and struggles of cancer much better with each other's support and encouragement.

Cancer with Attitude: one woman's breast cancer journey

When Kay Stevens Lloyd was diagnosed with breast cancer, she began a daily diary as a way to work through the experiences of facing her struggle with cancer. Her diary eventually became a self-published book, Cancer With Attitude: One Woman's Journey Through Breast Cancer. Lloyd, 61, was a retired psychological examiner at the time of her breast cancer diagnosis, and her husband Mike Lloyd, a retired engineer. Her cancer diagnosis altered their retirement plans.

As the title suggests, Cancer With Attitude: One Woman's Journey Through Breast Cancer, chronicles the day-to-day challenge, suffering, anger, resentment and finally the resolve of one woman to fight cancer while undergoing cancer treatment and in becoming a cancer survivor. As Lloyd describes of the book -- it is not flowery, or the courageous tale against extraordinary odds, or of miraculous cures -- but the personal story found in the pages of a diary. It's everyday real.

Husband blogs of wife lost to cancer

Lynne Marie Smith, a young wife married to Michael for nine years and the mother of three small children, lost her life to colon cancer after a two month battle to survive. Her husband blogs the Lynne Smith Fund, in honor of Lynne and as a tribute and living legacy of her remarkably loving life.

Lynne had symptoms that bothered her, but as she says, as most typical mothers do, she took the children to the doctor but never went in for herself. When she finally did, she was diagnosed with colon cancer.

As a result of her experience, eight of Lynne's close family and friends have insisted upon and scheduled colonoscopies. None are near the recommended age of 50. Michael reports that three out of four of the people tested so far have had polyps -- tiny bumps that can become cancerous if left in the colon. As he says, "That is a shocking 75 percent folks!"

Lynne is gone, and Michael, Benjamin, Riley, Shelby miss her every day. Michael blogs to raise colon cancer awareness and encourage every one to get a colonoscopy much younger than the age when most are told they need one. Lynne was only 37 years old.

A survivor's tale: AA principles used during chemotherapy

"It's said that chemotherapy is like skiing in front of an avalanche. You do one thing wrong, and the avalanche is going to get you." -- Harvey Rushfeldt

Using the principles he learned in Alcoholics Anonymous, AA, helped Harvey Rushfeldt, 72, diagnosed with non-Hodgkin's lymphoma last October, create a strategy for successfully living through the often grueling ordeal of chemotherapy. Rushfeldt sees both cancer and alcoholism as mortal threats and he approached his cancer treatments with the same 12 step attitude and perspectives alcoholics adopt on the one-day-at-a-time road to recovery.

Continue reading A survivor's tale: AA principles used during chemotherapy

Family doctor blogs painful breast lumps breast cancer

Marjory, who is currently undergoing chemotherapy for breast cancer and her husband Gordon, a family physician, both blog Beating Breast Cancer. Marjory shares her perspective as a breast cancer patient and Gordon shares his knowledge as a doctor. I check in on Marjory and Gordon regularly, as Beating Breast Cancer is one of my favorite blogs in the cancer community.

In a recent post, Gordon admits to checking the blog's traffic report to see who is visiting and what they are searching for when they arrive at the Beating Breast Cancer blog. He noticed that a search for information on painful lumps in the breast is a topic frequently searched for -- and so he put together easy to understand information for readers interested in learning more about breast pain and painful breast lumps. Gordon is reassuring in letting women know most breast lumps do not turn out to be breast cancer (although he insists that a woman see her physician immediately should she find a lump in her breast) and he explains the causes of painful breast lumps. To learn more, visit Gordon's A Painful Breast Lump - Could It Be Breast Cancer?

Update: Jane Tomlinson begins epic ride across America

Back in May, we told you about Jane Tomlinson's plan to pedal across America, beginning in San Francisco and ending in New York, in a fundraising campaign for cancer charity. She planned to begin the epic ride, named Jane's Ride Across America, as soon as she finished chemotherapy for advanced metastatic breast cancer -- a terminal cancer diagnosis she received almost six years ago and was told at that time she only had six months to live. Her plan is to arrive in New York on August 31st, which will mark the six year anniversary of her cancer survivorship.

Still in back and hip pain from the chemotherapy she just finished two weeks ago, Tomlinson, 42, began her ride yesterday, leaving San Francisco. During her 4,200-mile journey she will endure temperatures of 100F and altitudes of more than 11,000 ft. Accompanying her on the trip are two friends - Leeds Metropolitan University lecturer Ryan Bowd, 27, of Calgary, Canada, and 40-year-old Martyn Hollingworth, of Huddersfield, West Yorkshire; her husband Mike, nine-year-old son Steven and 18 year-old daughter Rebecca. To learn more about the remarkable Tomlinson and read her ride diary, visit her website Jane's Appeal.

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