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Posts with tag different

The art of explaining away

I've read stories about women whose breast cancer diagnoses were delayed because they explained away certain symptoms. One woman, an athlete, was told by her husband one day that her nipple looked different from the other. "It's probably just the jog bra I've been wearing all day," she assured him. They both moved on.

Some time later, this woman learned that her different nipple was a sign of breast cancer. And she had it. She just didn't know it. And so her diagnosis came late. Eight years later, this young mother of two small children died from a disease she explained away.

This is normal -- the art of explaining away all the odd messages our bodies give us. Perhaps it's the stigma of whining about every little ache and pain that keeps us from pursuing immediate medical attention. It could be the likelihood that our complaints are pretty normal, so we refrain from rushing to judgment.

I'm practicing this well-established art right now. It's odd for me because I've already had breast cancer, and I am usually ultra-sensitive to every twinge of pain I feel. So when I woke this morning, with a tight and aching feeling in my chest, one would have thought I'd be racing out the door, headed for the nearest emergency room. I considered the fact that perhaps I need to be seen, that a chest X-ray might be in order, but I took no action -- because I explained the feeling away. It went something like this:

It must be the way I slept
. I slept in a different bed, with one child and one dog, and I don't think I moved an inch all night.

The feeling gets less intense with time. At this moment, I can only feel something -- and it's very mild -- if I inhale deeply.

If I have the same feeling tomorrow morning, I will pursue it -- no, I won't pursue it just yet because I wont' be sleeping in my own bed for a few more nights. I'll wait until I get back to my own bed and see what happens. Maybe this bed is not good for me.

This goes on and on. For me, I think it happens because I suspect nothing really is wrong with me. Perhaps I am dismissing something serious but mostly, I'm chalking this behavior to progress. Because there was a day when I ran to the dentist for a bump on the roof of my mouth -- it was nothing -- and I cried to get myself a next-day mammogram for some lumpy tissue I was convinced was cancer -- it wasn't -- and now, I am happy to feel more like a normal person. I am happy to have perfected my new art, which incidentally I will abandon in an instant if the discomfort persists.

My husband says he's had this feeling before when getting out of bed
. I think I'm going to be OK.

Thought for the Day: Cancer is not always a gift

I tend to think of cancer as a gift. I think it helps me prioritize life's details. I believe it has taught me to stress less. I know it's made me more sensitive to others sharing this planet with me. Yes, cancer has made me a better person. And I consider that a gift.

This is not how writer Lauren Terrazzano describes her dance with cancer.

"The truth is, having cancer just pisses me off," says Terrazzano.

"I wish I could be one of those people who has had the epiphany, who believes the disease has given me valuable insight into life. OK, I occasionally feel that way, but it might just be the pain medication."

Neither of us is right. We just have different takes on living with a deadly disease. And our opposite viewpoints make for a rather enlightening study on how cancer affects us all so differently.

I regularly write about the blessings I've found in the midst of cancer. So for today's Thought for the Day, I present to you some thoughts from Terrazzano about how cancer is not always a gift.

Think about this:

On cancer making her a better person

I don't really remember what kind of person I was before cancer. While I may not be better, I am definitely blunter.

I often say whatever I want to whomever I want, whenever the moment strikes me. These flashes can be toxic to those around me. I once yelled at a homeless man who asked me for a dollar. I yell at my husband sometimes, arguing about stupid things like how to shove a brisket into the freezer, above the peas and spinach.

And I sometimes wish bad things on bad people. Mostly the high-octane evil people, like Osama bin Laden (Why can't he have to go through chemotherapy? Why can't he have a good dose of radiation?). Are these really the musings of a better person?


On living each day as if it's your last

Nope. Can't do it.

While sometimes I am the carpe diem sort of girl, I want to live each day like just another day. I want to watch
When Harry Met Sally for the 17th time or surf the Internet for new pictures of Britney Spears' bald head. Then I want to cap it off by several hours of reading. Forget Tolstoy, though. I'd rather read People magazine. Why do I have to cram life into 20 seconds, while other people have the luxury of doing it over the span of 20 years?

On why she is not so brave

Firefighters and police officers who plunge head first into dangerous situations are brave. A child protective worker who gets paid next to nothing and tries to be a mother to as many as 50 dysfunctional families is brave. Those people chose their positions in life. Cancer chose me. It's not bravery that gets me up every morning to try to beat back the monster. It's a survival instinct that kicks in, pure Darwinism.

The fact is, most of the time I am scared to death. I wear Band-Aids far too long because I can't take the agony of pulling them off. I hate needles (though I don't know anyone who likes them). Why is it that people who hate getting blood drawn are the ones who usually end up with serious illnesses that require getting stuck often? It's a mystery of the universe, much like why tornadoes seem to seek out trailer parks to do their damage.

Organized awareness just a click away

If you like organization and you like pink and you like your purchases to make a worldly difference, the Ampad Breast Cancer Awareness Filing Folder Kit may be just up your alley.

This kit comes complete with 12 letter size pastel pink folders and 12 pastel pink hanging file folders for the on-line price of $15.30, plus shipping. A portion of all profits are donated to the National Breast Cancer Foundation in support of breast cancer research and education.

The Journey Through Cancer: Introduction

It was his father's death from stomach cancer -- and the cold, impersonal, clinical manner in which his father was treated leading up to his death -- that inspired Dr. Jeremy Geffen to become the kind of oncologist he wished had been available for his father -- "someone who could look into the mind, heart, and spirit of a human being as intently as he could gaze at an MRI scan or pathology report; someone who provided love, support, wisdom, and hope."

For the 20 years that have followed his father's death, Geffen's inspiration has led him in exactly this direction. He credits education and a strong network of mentors for preparing him for the path less traveled, for allowing him to achieve his vision for comprehensive, integrative medical care.

Geffen founded the Geffen Cancer Center and Research Institute in 1994, and directed it until 2003. It was one of the first cancer centers in the United States created specifically to provide complete, holistic care for people with cancer and their loved ones.

After working closely with cancer patients over the years, Geffen observed that every single question and concern encountered on the journey through cancer falls precisely into one of seven different yet interrelated domains.

Geffen wrote down these domains -- he calls them the Seven Levels of Healing -- and began sharing them with his patients and staff who remarked that the levels perfectly mirrored their own experiences. And so Geffen kept them fresh in his mind and over the course of time developed them into a formal program that became the foundation for the standard of care offered to his patients and their loved ones.

Geffen's book -- that brings life to the Seven Levels of Healing -- is called The Journey Through Cancer: Healing and Transforming the Whole Person. It is a result of his own personal journey that began the day his father left a dreaded string of words on his answering machine. "Oh, Jeremy. I think I've got a little problem. I had an endoscopy today and the doctor said I have a tumor in my stomach. Unfortunately, it's malignant. Maybe you could give me a call."

Geffen was in medical school when his father recorded these words. Now he is an accomplished oncologist, author, public speaker. He is the father of the Seven Levels of Healing -- soon to be revealed right here on The Cancer Blog.

To read previous post on the same topic, visit:
Sunday Seven: Seven Levels of Healing on Cancer Journey

Stay tuned for:
The Journey Through Cancer: What Is The Purpose of Medicine?

Metastatic cancer is different

A young woman with metastatic breast cancer told me, "I find it extremely frustrating when people can't or they simply refuse to understand or acknowledge science/biology and that metastatic disease is different. I just keep banging my head against the wall explaining the effectiveness and limitations of chemotherapy, response rates etc. and that ultimately there is no cure for this."

She also says that she usually hears the Lance story, which she loves but most people do not understand that testicular metastatic cancer is different than metastatic breast cancer and every other metastatic cancer out there. After going over it on and on in her mind she was asking herself, "Why do I get so worked up about it? Why do I need for people to acknowledge that metastatic disease is different? What difference does it make?"

She then goes on to say that it does matter because she "realizes it because I hope someday, if they don't find the magic bullet or cure in my lifetime and we do run out of options, these people will understand what my dedicated family and doctors already know -- that there wasn't anything more or different that we could have done, that we fought as hard as we could. We didn't want to quit or give up. We just didn't get the medical breakthrough or the miracle that we hoped for."

Thanks to the special woman at the Young Survival Coalition that shared her thoughts and feelings.

Happiness may be just a hop, skip, and jump away

It may be possible to learn happiness -- like we might learn to cook or learn to dance -- by merely taking a class. Some refute this idea and believe you can't actually pursue happiness. You either have it or you don't. But some psychologists are embracing a whole new approach to psychology -- they call it positive psychology -- and they say it focuses on training the mind to focus on the past as very positive. It's completely different from traditional psychology where time is spent trying to determine why someone is so horribly sad. This movement, invented by University of Pennsylvania psychologist Martin Seligman in 1998 when he was president of the American Psychological Association, provides a scientific validated set of exercises -- known as interventions -- that lead happiness seekers to their ultimate destination.

Continue reading Happiness may be just a hop, skip, and jump away

Memories of long-lost hair remain fresh, familiar

The topic of my hair is often the subject of conversation -- and is a constant reminder that this brown curly hair I have covering my head is nothing like the straight blond hair I was born with, grew up with, was known for. Because my little boys have white blond hair, I am consistently asked by strangers, "Where did your boys get that blond hair?" "From me," is what I want to say because it's the truth -- but that would make no sense to anyone who does not know me, anyone who does not know that my hair -- that once looked much like my boys' hair -- was lost to chemotherapy and returned shockingly different. So sometimes I just chuckle in wonder with these strangers who may not expect an answer anyway. Or I tell them the story -- if they seem to really want in on the details of the mystery. Most people are surprised that my hair grew back like it did. I am not surprised -- I was warned that it might happen -- although it is still a startling discovery each time I look in the mirror, each time I look back at photos, each time I see gray hairs emerging through my dark hair -- gray that only slightly showed up in the midst of my blond locks.

The memory of my blond hair keeps popping up. My husband told me the other day that he had a dream about me -- I was in a restaurant, at a table, by myself. He was walking toward me. And I had blond hair. The rest of the dream is insignificant. The blond hair is significant. And the other day, I pulled my brush out of my purse. It hasn't been used in more than a year -- because I don't brush my curls at all -- and at the base of the brush, wound around the bristles, were long blond strands of hair. My blond hair. My old hair. The same hair I showed my friend who visited from Ohio last week -- the hair that was once on my head, was cut off in preparation of the great fallout, and is now kept in a ziplock bag.

I like my brown hair. I like my curls. But I miss my blond hair. I am sad that I no longer match my children, that I don't look like the bride in my wedding photo, that I will attend my 20-year high school reunion in two years and will wear a photo name tag that looks nothing like me. I like the familiar -- which is why I never wanted to show my bald head, why I covered my head with blond wigs and hats to keep my appearance as close to normal as possible. And then in a strange turn of events, my hair grew back in an unfamiliar fashion -- and somehow the question, "I see where your boys get that blond hair" flip-flopped into "Where did your boys get that blond hair?" It is all still new to me. I know one day it will become familiar and normal and not such a big deal. Some day. I hope.

Sunday Seven: Seven hidden treasures found through cancer

If I could go back in time, I would not repeat my journey with breast cancer. I would choose a different path -- one free of disease and treatment and the fear that comes with it all. I would choose the route where my children would never hear me say, "mommy has cancer." The route where there would be less worry about dying, less worry about how my kids would do without me, less worry about how all my loose ends would be tied up without me here to tie them. I would choose another direction in a heartbeat. But there are some things I do treasure about my trip down breast cancer lane -- some things I do not wish to give back, even if given the chance to choose a different path. They are the hidden treasures I discovered along the way, in the midst of a harrowing, sometimes horrendous battle. There are many treasures that have come my way -- and I'm sure there are more to come. Here are seven of my valuable finds.

Continue reading Sunday Seven: Seven hidden treasures found through cancer

Lung cancer patients not treated the same

No one wants to openly admit this is true but one of the reasons why lung cancer has not received the research dollars other cancers receive and why treatment for cancer seems to differ for lung cancer patients than treatment for patients diagnosed with other more acceptable cancers is, in part, because there is a widespread belief that lung cancer is directly tied to smoking. As a result, lung cancer has long been stigmatized. However, as Dana Reeve's death from lung cancer illuminated, lung cancer is not entirely the karmic consequence of bad health habits or from a willful lack of prudent decision-making in lifestyle. Sometimes lung cancer has nothing to do with smoking.

Continue reading Lung cancer patients not treated the same

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