H.E.A.R.D. stands for Hemangioedothelioma, Epithelioid Hemangioendothelioma (EHE), And Related vascular Disorders.

It is a support group established in 2004 to help these rare diseases. Hemangioendothelioma (HE) is the name for a composite group of vascular cancers, which can involve soft tissue, bone, skin, liver, lymph nodes and/or the lungs.

Due to the rarity of Hemangioendothelioma, it is preferable for patients to seek a sarcoma specialist for treatment.

There are only about twenty cases diagnosed each year of HE. The H.E.A.R.D support group has been able to locate about 120 people around the world who have this disease.

The members of this unique group tell us on the website:

Together, our voices will be HEARD!

Is the cancer in your family inherited? Some families experience large amounts of cancer and whether it is environmental, every day living habits, or genetics are all factors that should be looked into. Genetic testing, usually performed with a blood sample, may provide information about you and an increased risk for cancer because of family genetics.

For instance, nearly everyone born with familial adenomatous polyposis (the genetic predisposition to colon cancer) develops the disease by age 40 if preventive surgery isn't done. Knowing this early can aid in prevention and early detection. Talk with your doctor about genetic counseling. A Genetic Counselor provides individuals and families with information on the nature, inheritance, and implications of genetic disorders to help them make informed medical and personal decisions. Genetic counselors often work in clinics with oncologists or gastroenterologists and focus on cancer risk.

Radioactive cancer patients attending this weekend's Super Bowl in Miami could be in for an alarming experience when they pass through radiation detectors designed to signal the presence of dirty bombs. Such cancer patients -- who have received treatment using radioisotopes and still may have tiny amounts of radioactive material in their bodies -- may want to come armed with letters from their doctors explaining their precarious set of circumstances.

The use of radioisotopes in medicine is growing -- and so is the use of radiation detectors in our security-conscious nation, which means patients are triggering alarms when they are not even aware they are being scanned, doctors and security officials say.

Nearly 60,000 people a day in the United States undergo treatment or tests that leave traces of radioactive material in their bodies, according to the Society of Nuclear Medicine. These traces are not enough to hurt anyone, but they are enough to trigger radiation alarms for up to three months.

Radioisotopes are commonly used to diagnose and treat certain cancers and thyroid disorders, to analyze heart function, and to scan bones and lungs. And many doctors already know to equip their patients with travel cards because of the problems they can encounter in public places.

Nearly 20 million nuclear medical procedures were performed in the United States in 2005 -- up 15 percent from 2001. Clearly, the number of people who could be mistaken for terrorists is quite large. So if you are one of these people -- with the power to create a buzz in a public setting -- get your papers in order so you can quickly confirm your identity as nothing more than a cancer patient.

Women with ovulation disorders -- and related infertility problems -- have a lower risk of developing breast cancer, according to a study of more than 116,000 women.

Researchers from the Harvard School of Public Health in Boston studied data from the Nurses' Health Study II and evaluated female nurses aged 25 to 42, tracking them every two years beginning in 1989 and ending in 2001.

Results of the study, reported in the Archives of Internal Medicine, revealed 1,357 diagnosed cases of invasive breast cancer. Overall, women with ovulation disorders had a 25 percent less chance of developing this disease than those without the disorder.

Also detected was an even lower risk of breast cancer for women who experienced induced ovulation for treatment of infertility. This is potentially great news -- pending more research, of course -- for women worried about breast cancer implications of infertility treatment.

I wish I could reverse the damage I've already done to my skin after too much time spent in the scorching sun, in search of a tan. It's seems unfair that a tan is so temporary -- yet its damage is everlasting. And it seems crazy that so many people are still searching for a tan -- when it has become so clear that is it so harmful.

As many as 60,000 people a year die from too much sun -- mostly from malignant skin cancer -- according to the World Health Organization (WHO). About 48,000 deaths are caused by malignant melanomas, and 12,000 deaths are caused by other kinds of skin cancer. And 90 percent of these cancers are caused by ultraviolet light from the sun. Cancer is not the only side effect of sun exposure, though -- serious sunburn, wrinkling, eye cataracts, growths on the flesh of the eye, cold sores, and other illness can result from the sun.

We all need some sun -- the vitamin D that is produced in the body by the sun helps to prevent disease and immune disorders. But too much is dangerous and sometimes deadly. Yet almost all ill effects from the sun can be prevented. And the WHO has released a report that advises people to seek shade, to use sunscreen with an SPF of at least 15, and to stay out of tanning salons. The report operates under the premise that sunscreens be used not to prolong sun exposure but to protect the skin when exposure is unavoidable.

A drug prescribed for several sleep disorders including narcolepsy, depression and multiple sclerosis, has been found effective for treating the debilitating fatigue brain cancer patients suffer.

According to medical oncologists, this is very good news as attention, memory and fatigue problems and the poor quality of life that results are very common for brain cancer patients. In the study, 30 patients took Provigil, or modafinil, for two months. At the end of the study, the majority reported significant improvement in lessening fatigue. The researchers noted only mild to moderate side effects.

More and more, we hear in the news of crossover drugs, drugs used for one disease being found effective for another disease. In my personal opinion, this is not surprising. Many diseases share common characteristics. Quality of life issues are extremely important when it comes to surviving cancer.