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Cancer returns home

After several weeks of hiding and down time, a few weeks ago I made an official announcement to the non profit organization that I founded Indie Music For Life and its two entities Laughs For Life and Indiegrrl. I dropped off of this blog page for a month and am ready to write again. I needed a break. A break to sort through things. To sort through life.

When you or a loved one are diagnosed with cancer it changes your life. Finding out you have cancer takes your breath away and from that point your breath is the most valuable thing to you in your life. Breath and time. Nothing is normal any more. Not your dreams, your nightmares, and not your waking moments.

A personal diagnosis of chronic myloid leukemia in February sent me into a whirlwind of emotions. At that point, all the fear, terror, and stomach knots from my past rounds of cancer came back. Nobody free of cancer could ever appreciate how utterly devastating the news of contracting it could be and the news that it has returned is even more devastating because you know what uphill climbs you must make again. Once you have been diagnosed with cancer you always look over your shoulder for the beast to return. He has caught up with me several times now and so I am speeding up in my race trying to see who is the best long distance runner. Every ache you feel or every little un-ordinary thing that happens with your body sends you into " What If " mode. It is extremely hard living in that mode of thinking but you can't avoid it.

My past struggles with cancer were very private. But then I was not the head of a non profit organization that raises money for cancer research and educational awareness on the powers of music and laughter as therapy for cancer patients. I wasn't the head of the largest networking group of female songwriters known as Indiegrrl that has since become a part of Indie Music for Life. Laughs For Life had not even been thought of yet and now with the direction and help of good friend and comedian Shelly Ryan it is now a reality. I hadn't even started my music career. Having cancer is what lead me to pursue my career in music and chase my dreams. It wasn't until I started working on my CDs that my cancer became really public other than with my close friends and family and then working to set up the Indie Music For Life non profit put it out there even more.

Continue reading Cancer returns home

The Journey Through Cancer: What Is The Purpose of Medicine?

My own oncologist did it just two days ago. He checked in on my mental health, asked how I was surviving, and eased my fear of cancer recurrence and possible death. He reached beyond the medical scope of our relationship -- literally. He placed a hand on my shoulder. He offered me a hug. He cared.

Yet many doctors refrain from reaching too far into the lives of the patients they treat. They stay at a distance. They focus on merely replacing illness with health. This is, after all, the purpose of medicine -- to fix people.

Dr. Jeremy Geffen, author of The Journey Through Cancer: Healing and Transforming the Whole Person, shares in his book that "at present, doctors focus primarily on the physical characteristics of their patients -- bones and organs, tissue samples, test results, height, weight, and age. Yet in each of us, there is a rich mental, emotional, and spiritual reality that influences, even directs the course of our lives."

Conventional medicine responds to cancer patients with surgery, chemotherapy, radiation, and other treatment protocols to essentially get rid of the cancer. Physical signs, symptoms, and responses are carefully monitored -- while other areas of patients' lives receive little attention.

A whole component of true medical care is missing -- as doctors may feel unprepared to address emotional issues, and time restraints allow for limited interaction between doctor and patient.

Geffen believes the ultimate purpose of medicine is to help all beings "experience unbounded love, joy, and inner peace, and to know this is the essence of who we truly are." This purpose, he believes, deserves as much attention as the purpose of treating symptoms and curing disease.

And so Geffen created a program based on his Seven Levels of Healing -- a program that includes both the relative and ultimate purposes of medicine, both the doing and the being.

Level One: Education and Information -- provides basic information about cancer and treatment options and encourages patients to actively participate in and obtain benefit from their care.

Level Two: Connection with Others -- explores the importance of reaching out to others for comfort and support on the journey through cancer.

Level Three: The Body as Garden -- invites patients and family members to see the human body as growing and evolving, as a complex garden rather than a machine. This level touches on good nutrition, exercise, massage, acupuncture, and a variety of complementary and alternative approaches to healing.

Level Four: Emotional Healing -- enters the realm of the human heart, shedding light on fear, pain, anger, self-love, and forgiveness.

Level Five: The Nature of Mind -- examines how life with cancer is influenced by our thoughts, beliefs, and the meanings we give events.

Level Six: Life Assessment -- delves into aspirations, goals, and purposes of our lives.

Level Seven: The Nature of Spirit -- embraces the spiritual aspects of the healing process.

As a physician, Geffen aims to bring his vision of medicine and healing to cancer patients everywhere. And he uses his book as an instrument of communication -- so readers can participate in his vision, so they can learn to settle for nothing less than medical care that centers on the whole person. And not just the parts.

To read previous posts on the same topic, visit:
The Journey Through Cancer: Introduction
Sunday Seven: Seven Levels of Healing on Cancer Journey

Stay tuned for:
The Journey Through Cancer: Beverly Is Every One Of Us

Survivor Spotlight: Amy Wilson's breast cancer battle ends

In July 2005, Amy Wilson was diagnosed with breast cancer. In the months that followed, Amy endured a lumpectomy, a mastectomy, reconstruction, and chemotherapy. In January 2006, Amy's treatment ended. And she set off on a journey of survivorship.

In August 2006, Amy found out her cancer had spread to her brain and lungs. Her doctors gave her two to 12 months to live. On Thursday, October 5, 2006, Amy died. She was 35 years old.

Amy became my friend shortly after her original diagnosis and eight months after my own breast cancer diagnosis. A mutual friend brought us together and for a little more than one year, we shared a rich connection, cemented in shared struggles and victories. Through phone conversations and e-mail exchanges and cards and gifts sent through the mail, Amy and I shared a special friendship. But I never looked Amy in the eye, never offered her a hug, never met her husband and children. I knew her only from a distance. Still, our partnership was powerful. It was comforting. And sadly, it is over.

Our same mutual friend called me Friday morning to tell me Amy had passed away -- a mere 15 months after her battle began, three months shy of the end-of-treatment anniversary she happily anticipated, five years from the age of 40 -- the age she had determined would mark her first true survivor milestone.

I miss Amy. I miss the pieces of hope that vanished with her death. I miss that I never met her, never hugged her, never said goodbye.

Amy, whose journey was chronicled in her local Ohio newspaper, is survived by her husband, her two children -- Luke, age five and Ella, age two -- and among others, her mother, who is currently fighting her own breast cancer battle.

Sunday Seven: Seven sentiments that help me survive

I sometimes complain about the lack of warmth I've encountered from medical professionals throughout my journey with breast cancer. There have been glimpses of compassion. And there are a few who stand out as truly caring and concerned. But there seems to be a general lack of sensitivity. Maybe it's a side effect of the job -- distance -- that I should have been prepared for. But instead I was shocked by how I often felt forgotten, like a number, just one of many in my same boat. And this makes me sad -- for me and for all the others who sail rough waters in search of health. I have waited in lobbies for hours -- four hours one time -- and I've been encouraged to toughen up. I've rarely felt comforted -- except by a few who have hugged me or placed a hand on my shoulder. That's all it takes. A simple gesture or kind word.

Continue reading Sunday Seven: Seven sentiments that help me survive

Power of connections makes for powerful healing

My friend called me last night as she was having a miscarriage. She had been to the doctor, heard no heartbeat, and learned via ultrasound that her baby had stopped thriving weeks ago. Her doctors told her what to expect -- bleeding and cramping and contractions and possibly a D & C -- and she was experiencing some of these inevitable symptoms as we spoke on the phone. My friend called me because the same thing happened to me six years ago -- and when she remembered this, she dialed the phone from a state thousands of miles away. And despite our distance, our connection was close enough for comfort.

Continue reading Power of connections makes for powerful healing

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