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Sunday Seven: Seven tips for trusting lab results

What if the lab results thought to be our own really were not? Hey, mistakes happen in all walks of life. And labs are not immune. But there are a few steps we can take to protect ourselves. Here they are:
  • Ask your doctor about the lab he or she uses. It should be accredited and approved by the College of American Pathologists, a sign the lab meets high standards.

  • If you can see the test tube or slide, make sure your name is on it. If you are in the hospital, make sure your wristband is accurate.

Continue reading Sunday Seven: Seven tips for trusting lab results

Sunday Seven: Seven thoughts on coordinating cancer care

Nearly half of all cancer patients and others in their households have trouble coordinating cancer care, according to a recent public health poll.

Many who participated in a recent telephone poll revealed they were confused about prescriptions, were sent for duplicate tests, and received conflicting information about their treatment plans.

Experts say choreographing care is one of the most important challenges in the world of cancer. Navigating the maze of medical madness can be emotionally draining and can even hurt a patient's chance of recovery.

Now is the time to become advocates for our own health -- before we are left behind. So get ready to take charge -- and consider these seven thoughts on actively coordinating your own cancer care.
  • Today, cancer patients spend more time at home and not in hospitals like they did generations ago. This leaves them to manage much of their care on their own -- often a monumental and overwhelming task. Patients, or a designated friend of family member, should document every tidbit of medical information, including names, phone numbers, medical records, instructions, medications, dosages, appointments, questions, responses, and more. Jot down symptoms and worries and concerns. File away pamphlets and handouts and bills and receipts. Don't count on memory alone to provide all the details. Allow for back-ups. They will serve you well.
  • Most cancer patients need a whole team of doctors -- radiologists, pathologists, medical oncologists, radiation oncologists, surgeons -- but each doctor may handle only one aspect of care while no one runs the show. It's the perfect scenario for disrupted and piecemeal care, says one doctor. Consider searching for comprehensive cancer centers where a variety of professionals are housed under one roof and patients can often meet with all their doctors at one time. Currently, only about 10 percent of cancer patients are seen at this type of large center.
  • Many doctors are stuck in electronic gridlock because doctors in one building may be unable to access the records of doctors in other locations due to incompatible computer systems or paper charts. Patient advocates say all patients should have easily accessible electronic medical records. One cancer center hopes to start a program that would allow for storage of patient records on small, portable USB flash drives. Patients would keep the drives and could plug them in at home or at their doctor's office.
  • Cancer patients often suffer from lack of information. Long-term survivors, for example, often have trouble recalling exactly what was done to them. And over time, doctors may relocate or pass away, leaving survivors with little to reconstruct their journeys.
  • Shortly after diagnosis, patients should request from their doctors a care plan -- an outline of how doctors plan to treat their cancers.
  • Patients should also receive a treatment summary at the end of therapy. This should outline all surgeries, chemotherapy, radiation, medications, and dosages.
  • A plan for ongoing care should be offered to all cancer patients so they know how to monitor their health. This plan should include guidance on screening tests, follow-up visits, and potential long-term side effects.
"A lot of anxiety results from not knowing what comes next", says one patient advocate. "People armed with good information tend to make better decisions."

The Rack Pack strives to support friend with breast cancer

Glamour's October magazine features stories about breast cancer survivors. Cancer Vixen Marisa Acocella Marchetto, cartoonist for Glamour and The New Yorker and author of Cancer Vixen: A True Story, is profiled. And another survivor -- young mom Kelly Corrigan who authors her online journal Circus of Cancer -- is highlighted. And Allison Briggs, diagnosed with breast cancer at the age of 26, shares her photo journal with readers who learn from all three survivors that more and more, women are sharing their cancer journeys in very public ways.

Allison -- Alli -- could not sleep the night she was diagnosed with breast cancer so she sent her boyfriend to the store for medication to calm her upset stomach. While he was gone, she noticed a camera sitting on the bedside table. She had an overwhelming urge to start snapping photos. So she took some self-portraits, had her boyfriend take some more when he returned home, and decided that night she would document her journey through photographs. She wanted to remember this phase of her life -- even though she had no idea how it would turn out.

Life is turning out just fine for Alli, who has rallied a support team called The Rack Pack, a group of women who aim to make a difference -- all because of the inspiration and strength they receive from their friend Alli. They are participating in the Susan G. Komen Breast Cancer 3-Day, 60-mile walk in San Diego November 10-12. They sell Rack Pack t-shirts. They offer e-mail notification of exclusive Rack Pack events. They share updates about Alli. They never stop trying to make a difference -- for Alli and for women everywhere fighting breast cancer.

Heather Mills McCartney: PCRM issues dairy-free challenge

On May 24, 2006, The Vegetarian and Vegan Foundation will be launching White Lies, a campaign to raise awareness of the health risks of consuming dairy products. Why You Don't Need Dairy, an event to mark the beginning of the campaign, will feature Heather Mills McCartney as a speaker who will call for milk to be dropped from the nation's diet. At the same time, the Physicians Committee for Responsible Medicine, PCRM, a nonprofit health organization comprised of physicians and nutritionists, will be asking consumers to eliminate dairy from their diet for three weeks to see if they notice an improvement in health.

In three short weeks, PCRM is confident those who take the dairy-free challenge will notice immediate benefit in better digestion, easier breathing, better sleep, a lessening of headaches and for sufferers of acne or dermatitis -- clear skin. Health benefits that are not immediately noticeable but of significant value is a reduction in the risk of prostate and ovarian cancer. Research had proven the link between dairy and these two cancers. Because dairy products such as cheese, ice cream, milk, butter, and yogurt all contain high levels of fat, it is reasonable to assume there might be a dairy link to other cancers as well.

The Nutrition Resource Centre of the Ontario Public Health Association, has published Non-Dairy Sources of Calcium, available as a PDF document online, with food suggestions that offer plenty of calcium.

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