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Posts with tag forty

Young Survival Coalition: Some stats on young women with breast cancer

I usually check the Young Survival Coalition message boards everyday. Even though I am five years out from my cancer diagnosis, this is a place I love to go to for support and also to help other young women who are newly diagnosed.

I hope that I can be helpful in some way, maybe by answering questions or just telling the girls that I did have a positive lymph node and I'm still here with no recurrence at this time. I know that when I was first diagnosed, one of the important things to me was finding someone with the same diagnosis that was years out from chemotherapy and doing fine.

There was a poll that was done by one of the board members. I found it to be interesting. The question put out to the women on the YSC message board was -- How old were you when diagnosed with breast cancer?

Continue reading Young Survival Coalition: Some stats on young women with breast cancer

Young Survival Coalition offers educational materials

The YSC produces a variety of educational materials which provide information on breast cancer in young women and the issues relevant to this population.

Brochures:

Changing the Face of Breast Cancer: Provides an overview of the YSC and its programs and outlines how, through Action, Advocacy and Awareness, the YSC works to change the face of breast cancer and increase the quality and quantity of life for all young women affected by breast cancer. Spanish version also available.

YSC Educational Brochure -- "What Every Young Woman Needs to Know about Breast Cancer": Offers important information on young women and breast cancer including statistics and what a young woman should do if she feels a lump. This brochure is a resource for all young women and the members of the medical community who serve them. Spanish version also available.

YSC ResourceLink Brochure -- Provides an overview of YSC's ResourceLink program, which provides peer support, information and resources to young women affected by breast cancer, their family and friends and health care professionals.

Fact Sheets:

YSC Fact Sheets provide basic and important information on young women and breast cancer and highlights some of the most critical issues affecting this population. The Fact Sheets give introductions to specific issues, answer the most common questions, and provide resources for further information.

Fact Sheet Topics:

  • Hereditary Breast Cancer
  • Inflammatory Breast Cancer
  • Young Women and Breast Cancer

DVDs/Videos:

YSC DVDs/videos are appropriate for young women at any stage of diagnosis, including those who are at increased risk but who have not been diagnosed with the disease, as well as their family members and caregivers. Medical professionals will find them informative and supportive and may want to use them as a resource for your patients and colleagues as well as place them in your medical center's resource libraries.

The Beautiful 8: Learning To Live with Advanced Breast Cancer

The YSC's newest educational DVD presents an intimate discussion among eight young women diagnosed with breast cancer. Join them on this journey filled with hope, fear, laughter, anxiety and determination to live life to the fullest. To order a copy, please send your full name and address to YWABC@youngsurvival.org or call 877-YSC-1011.

Fighting for Our Future

"Fighting for Our Future" is the only comprehensive survival guide for young women diagnosed with breast cancer, doctors, and caregivers. The Lifetime Television original documentary of the same name chronicles the lives of three young women with breast cancer and how they deal with issues such as dating and sexuality; fertility and pregnancy concerns; and mortality at a young age. It also chronicles the formation of the YSC and the movement behind young women and breast cancer.

This video also has a companion book entitled Fighting For Our Future.

You Are Not Alone

The YSC's educational video is an intimate conversation with six young women diagnosed with breast cancer at a young age. The companion resource guide, published in collaboration with the New York/Bronx division of the American Cancer Society, provides support, education, and hope for young women newly diagnosed with breast cancer. Please note: a limited number of VHS tapes are available; contact info@youngsurvival.org for information.


Breast Cancer Legacy

"Breast Cancer Legacy" focuses on the role that genetics and family history play in young women affected by breast cancer. The documentary tells the story of four young women and their families while illustrating the psychological, medical, ethical and interpersonal issues these women face as they confront their family histories of cancer and make life-altering decisions about their futures.

In addition to the film, the YSC has created a fact sheet on hereditary breast cancer in conjunction with FORCE: Facing Our Risk of Cancer Empowered,a non profit organization focused on education of risk and family history of breast cancer.


Publications

Fighting for Our Future

The companion book to the film "Fighting For Our Future" is available from the YSC and in bookstores. "Fighting for Our Future" is the only comprehensive survival guide for young women diagnosed with breast cancer, doctors, and caregivers. The Lifetime Television original documentary of the same name chronicles the lives of young women with breast cancer and how they deal with issues such as dating and sexuality; fertility and pregnancy concerns; and mortality at a young age.


Young Perspective Newsletter

Our informative newsletter contains updates on how the YSC is carrying out its mission of improving the quality and quantity of life for young women affected by breast cancer through action, advocacy and awareness.

Check out my breasts

Checkoutmybreasts.com is a webpage that shows how to do a self breast exam. It shows a woman examining her breasts so other women can learn what to look for when performing a breast exam on herself. I was shocked a bit when I saw this website, as I have not seen anything like it before. The website also tells about an organization called Rethink Breast Cancer.

Rethink Breast Cancer is an organization that was established to help young people who are concerned about and effected by breast cancer through innovative breast cancer education, research and support programs. They do this by educating young women about the importance of breast health awareness, providing a community for young people to make a difference in the fight for the cause, raising funds to advance breast cancer research and raising awareness about the unique needs of young women who are battling breast cancer.

Rethink Breast Cancer fills a unique niche in the world of breast cancer organizations in Canada by hosting dynamic fashion, music and fitness events to attract the attention of people under 40, spreading the important messages of breast cancer to a new audience.

(Thanks to Deb Kirkland for the tip)

Fighting for Our Future: Young women and breast cancer

Fighting for Our Future:How Young Women Find Strength, Hope, and Courage While Taking Control of Breast Cancer. Beth Murphy spent two years studing young women with breast cancer and her book gives young women a valuable resource.

Fighting for Our Future talks about many issues related specifically to women under forty diagnosed with breast cancer. Some of this issues are fertility, pregnancy, negotiating treatment, living with the illness, sexuality and dating. It reaches out to the newly diagnosed and those living with metastatic disease to all in between.

Breast Cancer patients tell their own stories throughout sections of the book. They decribe treatment and procedures and give the real information that the young women need to know.

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