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Posts with tag groups

The burden of cancer: Support groups

A study published in Cancer, a peer reviewed journal of the American Cancer Society, found that cancer survivors are more likely to seek out support groups than individuals with other chronic conditions. They stated that one in four survivors participate in a support group after diagnosis.

According to the study, treating physicians seemed to recognize that support groups are helpful but only one in ten cancer patients studied had received a recommendation to seek out a support group. Support groups are widely available but seem to be poorly handled by the physicians.

Dr. Jason Owen, co-investigator in the study, says "This study sheds light on which individuals with cancer use (support) services. It will help clinicians recognize the importance of support groups for cancer patients. Assistance in identifying and accessing support groups should be a standard of care for all patients receiving curative, follow-up, or palliative care for cancer".

Continue reading The burden of cancer: Support groups

Careplace: Unique online support

What can I do at Careplace?

At Careplace you can connect with others who's lives are like yours. Discuss treatments in online forums, create personal webpages, show support with virtual hugs, send private messages, create your own photo albums, groups and online journals.

  • Join or start a group - Groups are places that people can organize to discuss common interests. If you take a certain medication and want to discuss your progress or side effects, you can share with other group members who take this medication. You can also create groups about fishing or baseball, anything goes!
  • Join a discussion - Forums are where people come together to support one another, ask questions and share news or experiences.
  • Send a private message - Sending private messages is a great way to get to know others better, share a friendly greeting or ask them for more information about something with which they have some experience.
  • Send someone a hug - Sending hugs are an easy way to show someone you care and remind them they are not alone.

Careplace is a knowledge portal that isn't bogged down with medical jargon and words you don't understand. The pages have lists of personal experiences people have had with medications,treatments, doctors and hospitals.

Merck stops cervical cancer vaccine campaign

Merck, maker of the cervical cancer vaccine Gardasil, is backing off its lobbying campaign following pressure from medical groups and parents who believe the vaccine should not be mandated as a school attendance requirement for adolescent girls.

The public outcry that caused Merck to announce its stop order on Tuesday stems from the fact that the vaccine protects against the sexually transmitted human papilloma virus (HPV), which causes cervical cancer. School-mandated vaccines are typically for diseases spread through casual contact, such as measles and mumps.

Merck's medical director for vaccines, Dr. Richard M. Haupt says, "We're concerned that our role in supporting school requirements is a distraction from that goal, and as such have suspended our lobbying efforts," adding that the company will continue providing information about the vaccine upon request.

Gardasil, launched in June and the first vaccine to prevent cervical cancer, has inspired controversy since day one. There's the cost -- $360 for three required shots -- and all sorts of insurance concerns and conservative groups who worry the vaccine encourages premarital sex and interferes with parental rights. Even those in support of the vaccine -- like the American Academy of Pediatrics and the American Academy of Family Practitioners -- question Merck's quick push to market this drug, especially in light of the company's withdrawn painkiller Vioxx.

"I believe that their timing was a little bit premature so soon after (Gardasil's) release, before we have a picture of whether there are going to be any untoward side effects," says Dr. Anne Francis, who chairs an American Academy of Pediatrics committee.

Legislatures in 20 states have taken steps to mandate the vaccine for young girls. And with the exception of Texas governor Rick Perry's February 2 executive order requiring Texas girls entering the sixth grade in 2008 get vaccinated, nothing has been made official so far.

Some children's bath products linked to cancer

Environmental groups claim some children's bath products contain a suspected cancer-causing chemical in amounts that reach or exceed safe limits. The chemical in question -- 1,4-dioxane -- is found in products made by companies such as Johnson and Johnson, Disney, Kimberly-Clark, and Gerber, says David Steinman, head of the environmental publishing company Freedom Press.

The Environmental Protection Agency (EPA) calls this chemical, already known to cause cancer in animals, a probable human carcinogen. But there is no real regulation on the petroleum-derived chemical and the Food and Drug Administration (FDA) only recommends cosmetic companies limit the concentration of 1,4-dioxane to 10 parts per million (ppm).

Studies show Johnson's Kids Shampoo Watermelon Explosion contains the maximum recommended level of 10 ppm. They also reveal that Kid Care's Hello Kitty Bubble Bath contains 12.3 ppm of the chemical. And two adult shampoos have been found to have twice the recommended level of this chemical that is typically a manufacturing by-product.

It's been reported that nearly 57 percent of all baby soaps contain 1,4-dioxane. But Iris Grossman, director of communications at Johnson and Johnson, stresses that all of her products are within FDA limits.

Cancer is not the only risky link to children's bath products. It seems these items are also linked to early puberty development. And this is concerning because a fast-paced growth rate combined with children's porous skin increases susceptibility to toxins that can enter the bloodstream. One breast cancer expert says an increase in breast cancer risk is linked to toxic exposures during the formative years of life.

New Arizona cancer center opens doors tomorrow

Cancer patients receiving treatment at the Arizona Cancer Center in Tucson will walk through the doors of a new building -- the Fasseas Cancer Center-- beginning tomorrow morning.

The new center, named after major donors Peter and Paula Fasseas, is built on the skeleton of a defunct Tucson hospital. It took 16 months to build and cost an estimated $30 million. And now the comprehensive cancer center is ready for use.

More than 800 cancer patients have appointments during the first week, and 110 medical staff will relocate to the new clinic that has been called the crown jewel of new University Medical Center North Campus and one of the most modern cancer treatment centers in the United States.

The new two-story clinic -- to be joined later by facilities for radiation oncology, ambulatory surgery, imaging services, and a Ronald McDonald House for pediatric patients and their families -- will feature patient support groups, counseling, therapeutic massage, a healing garden, a resource center, and a salon to help patients cope with hair loss and other side effects of cancer treatment.

A formal grand opening for the new clinic is planned for February 18.

Hyundai drives childhood cancer efforts

The Child Cancer Foundation -- a non-profit charity in New Zealand providing practical and emotional assistance for children with cancer, their families, and their health care providers -- operates solely from the support of its 22 branches scattered across the country. The foundation receives no funding from government agencies or other cancer support groups. So any bit of support they receive is a big deal.

Lately, the Child Cancer Foundation is making a big deal about Hyundai, the fast-growing vehicle brand supplying a range of SUVs and cars to the foundation. Five Hyundai Tucson SUVs and three Hyundai Getz will be donated, and the head of the Foundation will drive a Hyundai Sonata V6 sedan.

The Child Cancer Foundation provides support in the form of financial assistance, meals, transportation, accommodation, support groups, education scholarships, and access to holiday homes. It also contributes financially to research initiatives. The donated vehicles will help tremendously in the delivery of this support.

Ovarian cancer: Young women have better survival rates

According to new research published in the British Journal of Cancer, younger women diagnosed with ovarian cancer have a greater chance of surviving the disease for five years or more. Researchers at Stanford University in California looked at the records of more than 28,000 American women diagnosed with ovarian cancer between 1988 and 2001.

They researchers found that:

  • Women diagnosed under the age of 60 were more likely to survive at least five years than women over 60.
  • Women diagnosed under 30 generally had better survival rates, although the disease is rare in this group.
  • Women diagnosed under 30, 79 percent were still alive at five years.
  • Women diagnosed between 30 and 60 years the survival rate for five years was 59 percent.
  • Women diagnosed over the age of 60 had a 35 percent survival rate at five years.

The researchers are not sure of the reasons for the differences in survival at this point. It could be that the younger women had their cancer detected sooner or it could be due to biological differences. The researchers think that understanding the differences in survival for different age groups may help to improve survival for all age groups in the future.

Men get breast cancer -- online resources and support for men

My father taught me that when you have a problem, find someone else who has the same problem and talk to them about it. Real life experiences trump almost every other kind of information. Although women are 100 times more likely than men to be diagnosed with breast cancer, and less than one percent of breast cancer patients are men, men do get breast cancer.

Some of the signs of breast cancer include:
  • Lump or thickening in the breast.
  • Skin dimpling or puckering.
  • Development of a new retraction or indentation of the nipple.
  • Redness of scaling of the nipple or breast skin.
  • A spontaneous clear or bloody discharge from the nipple.
Some of the known risk factors include: age, family history, genetic predisposition, radiation exposure, Klinefelter syndrome (a congenital abnormality of the sex chromosomes X and Y), exposure to estrogen, liver disease, excess weight and excess alcohol consumption.

Breast cancer resources for men are few and far between, but to follow my father's advice about finding someone to talk to and learn from that has faced the same real life experience, I tracked down several resources men diagnosed with breast cancer might find of interest.

Newsday is featuring the personal story of breast cancer survivor Cameron Alden. Alden tells his breast cancer story as part of a personal cause to raise awareness that men can be diagnosed with breast cancer.

USA Today's Richard Roundtree 'Knows the Score' on cancer features breast cancer survivor Roundtree's personal story and his work with the Susan G. Komen Breast Cancer Foundation to raise men's awareness about the disease.

The John W. Nick Foundation was created in memory of John W. Nick, who died from breast cancer at the age of 58. Male breast cancer survivors John W. Nick, Captain Edward J. Wilson, Bob Stafford, Walter Creekmore, David Eisenberg, Mark Eldridge, Dave Lyons, and Ken Graham by Sue Graham share their personal stories of breast cancer on the foundation website.

MALEBC is a discussion mailing list for men with breast cancer. Currently it has 27 members.

Because men often face shock, embarrassment and isolation when diagnosed with breast cancer, the National Breast Cancer Centre has launched Breast Cancer in Men, Australia's first website launched for men with breast cancer offering information and resources from diagnosis to living beyond breast cancer written specifically for men.

The American Cancer Society estimates that 1,720 men will receive a breast cancer diagnosis this year, and 460 men will die from the disease. For men, breast cancer is most frequently diagnosed between the ages of 60 and 70. If any of our readers are aware of other internet resources specifically written for men facing breast cancer, please leave the resource and a link in the comments area following this post.

Survivor Spotlight: Jennifer Matherly inspires with grace

Jennifer Matherly is a 27-year-old wife, mother, daughter, sister, insurance broker, student, and friend. She is also a breast cancer survivor. Jennifer, who lives in Columbus, Ohio, enjoys golfing, watching football, and spending time with friends and family. She doesn't have much free time lately -- but when she finds moments all to herself, she tends to her hobbies which include cross-stitching and working on her blog.

Jennifer's blog began as a story about her journey to motherhood. It turned into a story about her journey with breast cancer. It's an inspiring read, full of trials and triumphs. It's a testament to her strength and courage and sheer determination. It's a story of survivorship -- a little something like what follows.

Continue reading Survivor Spotlight: Jennifer Matherly inspires with grace

Sunday Seven: Seven super searches to make at Wikipedia

I have made on-line visits to Wikipedia many times -- mostly for information on cancer. And what I've found are endless resources, thoroughly-covered topics, and material that is easy to read and easy to understand. Wikipedia, a free on-line encyclopedia -- where readers can participate in editing and changing content -- offers information on just about any topic you can imagine. And here are seven stops you might make in pursuit of cancer-related material.

Continue reading Sunday Seven: Seven super searches to make at Wikipedia

Reach to Recovery program helps those grasping for support

It's kind of a blur how exactly I came to receive a phone call from a volunteer at the American Cancer Society just after my breast cancer diagnosis. I must have checked a box on one of many medical forms shuffled my way during this confusing time. Or I requested assistance from someone, somewhere, at some point in time. I'm not really sure. But I am sure of this -- one very nice woman, a young breast cancer survivor herself, called me one afternoon from the Reach to Recovery program. She asked me about my situation, told me of hers, and led me to resources -- other survivors, support groups, and the fitness group Team Survivor -- and she met me one afternoon with a goodie bag full of information and comforting gifts. She was my first link to the world of breast cancer survivors.

I've come to know this woman in different circles since she first called me. She was a physical therapist at the same center where I received therapy for post-surgery and radiation concerns. She has been present at every walk and fitness event and cancer function I have attended. And she leads the local Team Survivor group -- so I receive e-mails from her about all sorts of events and gatherings and opportunities for joining a spirited group of strong women. And just today, I received an e-mail invitation from her -- intended for all young survivors she knows who might be interested in becoming Reach for Recovery volunteers. I replied instantly. Yes, I want to do it. She happily replied. So in a short time, I will receive training for this very important job.

It's not a hard job -- it just requires some phone calls and a few personal visits. And the ability to share advice. And words of wisdom. And love and care and compassion for those who may not know how to manage during a personal brush with breast cancer. Whether facing a possible breast cancer diagnosis, a new diagnosis, or a troubling time with lymphedema or reconstruction, Reach to Recovery volunteers offer a hand to anyone grasping for assistance.

I must have been grasping during my own difficult time. I just don't remember much about that time. All I know is that someone helped me at a critical time. And now it's my turn to be that someone.

Saturday Six: self care tips for cancer caregivers

Caregivers are quiet heroes, helping and caring without asking for anything in return. Caregivers step in when there is a need and they bring with them a sense of hope and comfort during the challenges facing a loved one diagnosed with cancer. In the selflessness of love, they sometimes forget to take time to care for themselves. To avoid caregiver depression, frustration, resentment, illness and burnout, here are six ways a cancer caregiver can care for themselves while caring for someone else:

Take a daily walk. Exercise is a great stress reducer. Taking the time to stroll through the neighborhood or local park is like a deep calming breath for the body and emotions. If you are a jogger, go jogging. The point is to get away for a moment, get the body moving, and enjoy a change of scenery as you go.

Keep a journal. Daily journaling is a way to outwardly express your thoughts and emotions and can act as a relief value for emotions that are building up inside. It can also give you a better perspective. Sometimes we need to see what we are thinking and feeling to sort it all out.

Pursue personal interests. If you have a hobby or activity -- like writing poetry, photography, crafts, painting, knitting, reading, gardening, or listening to music, that has always been fun and brought you a sense of joy and contentment -- make time each day for your personal pleasurable pursuits.

Maintain friendships. We need our connection to others for the enjoyment of company and for comfort and support. Make regular weekly dates with friends and meet for coffee. Join a book club or start a book club. If there is a caregiver support group in your area, or a support group for families affected by cancer, consider joining.

Learn ways to relax. Try breathing exercises and muscle relaxation exercises. Schedule a massage. Take a weekly yoga or tai chi class. Cannot get away? Pop in a yoga or tai chi video and follow along.

Make your health a priority. Eat well-balanced meals, get plenty of rest, drink plenty of fluids. Find inspirational quotes that lift your spirits and display them where you can read them each day. Remember to laugh each day. Hug and be hugged.

To offer the very best care for your loved one, you must take care of yourself too. It's not selfish, it's wise.

If you are a caregiver that has found unique fun ways to take a moment to take care of yourself while taking care of someone you love, please share your ideas with other caregivers in the comment area following this post. If you are a reader with fun tips or ideas on ways a caregiver can take care of themselves while caring for someone else, please share in the comment area. We are all in this together, and we will get through the challenges and struggles of cancer much better with each other's support and encouragement.

Green Goddess: Diana Moran fitness guru breast cancer story

Britain's television and radio fitness guru Diana Moran recently shared her breast cancer experience in an interview with BBC News. Back in the 80's, Moran led a national campaign for health and fitness with a program called Get Britain Fit. She gained the nickname Green Goddess for her trademark green leotards. When she was diagnosed with breast cancer, she said it came as a complete surprise to her. She had never felt better. She had no symptoms that told her anything was wrong.

Because Moran, at 47, was entering menopause, she had gone to the doctor to see if she qualified for hormone replacement therapy (HRT). It was then she had a mammogram and breast cancer diagnosis followed. From disbelief, to fear, to anger, she searched for information but back then, no one talked about breast cancer and little information was available. Moran decided, as a high-profile personality, to keep her breast cancer diagnosis and double mastectomy private, and in retrospect she feels that was wrong. Five years after the cancer diagnosis, she found herself in counseling working through all the intense emotions she had buried in putting on a strong front and concealing all that she faced as a cancer survivor. Her message is to connect with others, be open, share what is going on.

Moran, now 66, is still going strong and is the published author of numerous fitness and beauty books focusing on women's issues, ageism, health, fitness and beauty; is a sought-after public speaker; and well-known celebrity with more than four decades of work in television and radio. She devotes a considerable amount of time to charities involving cancer, cerebral palsy and older people.

Letting it all out might increase chances of cancer survivorship

Stuffing your emotions, or keeping it all inside, has led more than one person down the path to trouble. At some point, if you do not express your thoughts and feelings, especially the negative ones, you stay emotionally frozen in time. It's kind of like physically clubbing yourself over the head repeatedly day after day. Of course, we cannot go around randomly screaming at people or speaking before we give ourselves time to think. There are effective ways to open up and share that will lead you to better health and help you to maintain a good relationship with family members and friends at the same time. Journaling is good, as is talk therapy or belonging to a support group.

The point is, until expressed, you are stuck with whatever you are feeling. With the passage of time, you might not even be aware of the emotions you are carrying around inside affecting you and your health, as they tend to pile up and become obscured from view.

Adelaide University psycho-neuro-immunology researcher Vikki Knott understands the benefit of letting it all out emotionally, and that sharing and releasing distressful emotions can help a cancer survivor survive cancer longer. Knott will be conducting research in emotion-focused treatments to improve cancer survivorship by charting the physical changes to the immune system before and after talk therapy sessions.

According to Knott, "It's about the link between the mind and the body and how your mind state can affect the disease state in the body." The researchers will be examining three techniques -- journaling, meditation and hypnosis. Previous research has already proven that breast cancer survivors who belong to a support group tend to live longer than their more isolated and disconnected counterparts.

Debate surfaces about executives diagnosed with cancer

Dealing with cancer in private is hard. Dealing with cancer publicly can be even harder. CEO Donna McAleer -- the founding executive and public face of the large, growing health care company Elant -- knows this firsthand. She just recently went public with her breast cancer diagnosis and prognosis after rumors of her demise started circulating. McAleer set the record straight, announcing that she is doing just fine. While her experience has been frightening, she is surviving well -- and she wants the public to know. She has run Elant for 20 years and wants to dispel any myths about its stability. Apple CEO Steve Jobs faced the same public drama in 2004 after surgery for pancreatic cancer and subsequent drops in Apple stock. Jobs recovered -- and so did the stock -- but the speculation that swirled was powerful and potentially damaging. Just as it was that same year when Kraft Foods was criticized for withholding details of its CEO's hospitalization.

There is some debate in the business world about all of this -- about whether or not executive illnesses should be disclosed. For public companies, one opinion is that there is an obligation to respond quickly to the public. In a private company, it's up to the CEO. McAleer's Elant is not a publicly traded company and there is no worry about stock price -- but her decision to reveal her personal health crisis was the right thing to do, she says. "I have an obligation to share this news in how I progress, in order to educate and make sure people aren't frightened by it," she said in reference to the memo she sent to her 700 employees and community groups too.

I'm open and honest about my own cancer experience because I believe it can help others -- and it helps me to talk about it too. So I'm a fan of a forthcoming approach in the workplace. I appreciate that some fear repercussions that might result from such a disclosure. But honesty may be the best policy -- for prevention of rumors and addressing worry and raising awareness too. McAleer seems to agree as she takes this opportunity to speak up, to encourage women to seek mammograms and to follow up on them.

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