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Posts with tag hopeful

Sunday Seven: Seven bits of hope sent from a survivor

A friend of mine with breast cancer just sent out an update e-mail to friends and family. She began her message with an apology for her recent lack of communication. But she assured us all that she's been out of the loop not because she's felt sick or tired. It's because she's been too busy with normal life. And that's a good thing, she says.

This friend wasn't so sure how she would fare -- both physically and emotionally -- when she was first diagnosed with cancer. But she seems to have done a champion's job of rolling with the punches. Sure, she's had ups and downs. But she is overwhelmingly positive and hopeful. And jumping off my computer screen as I read her e-mail were at least seven bits of hope that tell me she is doing just fine despite all that is unbelievably hard about breast cancer.

My friend just had her first infusion of Taxol. A breeze, she calls it. One. So easy on her body -- two -- that she headed right out and took her daughter communion dress shopping. Her little love looked beautiful, she wrote. Like a mini-bride. The mother of the mini-bride then -- three -- turned a sad moment into a comforting one when her daughter asked, "Mommy, who do you think will bring me wedding dress shopping?"

"Me of course, why?" responded my friend.

"Well, you know, if that thing that we don't want to happen happens and you die, then who would bring me wedding dress shopping?" this little girl asked her mom.

Holding back tears, mom reassured daughter she would definitely be the one taking her wedding dress shopping. She'd be dancing at her wedding too, she declared.

My friend also shared in her correspondence -- four -- that she plans to walk, and maybe run, in her local American Cancer Society Relay for Life event in April. And she has already rallied a bunch of support -- five -- and is thrilled to have a group of co-workers, and even the principal at her school, forming a team in her honor.

"I am so lucky to have such a wonderful school family," wrote my friend who plans to raise oodles of hope -- six -- when she begins collecting funds for Relay for Life.

What inspires me most about my friend's e-mail is the light and happy manner in which she spouts off all the good in her life -- seven -- when there is so much at this very moment that is downright difficult, like entire days spent in an infusion room, plummeting red blood cells, aching bones and joints, and tingly fingers and toes.

I think my friend knows this phase of her life is temporary, that she will overcome all obstacles, that she will really fare just fine both physically and mentally throughout this ordeal. And this must be what powers her through the days she amazingly calls -- normal.

Photo essay paves visual path for women who follow

Photographs tell powerful stories. They depict people and objects and landscapes and emotions in deep, meaningful ways. They capture permanent visual representations of moments in life. They paint pictures that even the most well-crafted words could not reproduce.

When Mary Ann Nilan was diagnosed with breast cancer in 2004 at the age of 40, she knew her story must be told -- through pictures. So she asked a photographer to record it all, stating, "I hope the pictures make the road easier for other women." The rest is history.

She calls it a photo essay and titles it The Diary of Healing. For 17 frames -- with photographs dominating each space and text kept to a minimum -- Nilan shares her journey that began with the discovery of breast cancer in both breasts and several lymph nodes, the journey that took her through chemotherapy, a double mastectomy, and reconstruction with implants.

Her photographs document significant stops on her physical and emotional trek. They show her bald head, the wig she wore only once and then let hang on a hook, the scars that crossed her flat chest after surgery, an injection of saline that painfully pierced the skin of her new breasts, her children measuring her hair as it grows in after chemotherapy. The photographs are both hopeful and chilling. They are breast cancer. They are more than words could ever capture.

If only bugs could cure cancer

I took my boys yesterday for a tour of the University of Florida's Department of Entomology and Nematology. Translation for these little boys -- ages five and three -- involves one simple word. Bugs. They love bugs, hunt for bugs, capture bugs, and reluctantly set them free because I coax them into allowing these itty bitty creatures to continue living with their "mommies and daddies." I have a soft spot for all living beings -- bugs included.

We learned some crazy facts about bugs yesterday -- insects is the proper term really. We learned there is one cockroach that can live for seven days without its head. We learned there are two types of Madagascar cockroaches living in a lab in the very same building we visited that if set free, would reproduce so quickly they would become a major pest problem in the state of Florida. And we learned that of all animals on this planet, most are insects. But not only did we learn some crazy facts, we -- well, Joey -- shared a crazy fact too.

Joey is five years old. He is the boy who remembers much of my breast cancer journey. He is the one who helped shave my head, the one who thought a banana would make my sick tummy feel better. He's the one who would blurt out to people we never knew very well, "My mommy is bald," the one who asked me just last night if the metal thing -- my port -- was still in my chest. When I told him it's gone, he jumped up and announced, "Yeah, it's gone!" Cancer is one of many vocabulary words housed in Joey's brain. And sometimes the word comes up unexpectedly, in strange contexts, in surprising ways. Like today.

Our bug tour guide told us that in Africa, mosquitoes transmit diseases that kill millions of people. But those with sickle cell anemia are immune to the deadly diseases due to their compromised red blood cells that somehow fend off disease. This fact prompted Joey to share with the guide, "Did you know when people have cancer, there are bugs that can kill the cancer?" Our guide listened to this crazy fact and said in a kid-friendly way, "No, I did not know that. Who told you that?" Joey told her, "I don't remember but someone told me."

I am not sure what prompted Joey to make this announcement. Perhaps he was trying to one-up the tour guide, to sound like an expert on one of his favorite subjects. Perhaps his imagination was in overdrive and he blurted out the best story he could offer. Perhaps he jumbled up a story he had heard on the topic of cancer. And perhaps he is just simply hopeful that one day, bugs will help cure cancer. And wouldn't that be nice -- a simple mosquito comes along, pierces the skin, and poof, cancer is gone.

My cancer journey would not be nearly as interesting, as enlightening, as tender if Joey was not along with me for the ride. He keeps me busy and keeps my spirits up. He keeps me grounded and keeps life simple. Best of all -- he keeps me laughing.

Beck family blogs about life interrupted by breast cancer

The Beck family blogs about life in California -- about soccer games and parades and hikes and family trips. They display happy photos of their kids eating pancakes made by daddy and playing on the beach and dressing up for Halloween. And they also blog about breast cancer -- because Valerie Beck, wife and mom of two young children, was diagnosed with this disease on June 26, 2006.

Valerie is just two months into her journey and has just completed her second chemotherapy treatment. She has already survived surgery and scary pathology results and some dark moments. But Valerie will surely conquer cancer with her happy take on life, her supportive family, and her ability to go with the flow -- however unpredictable it may be. And her husband -- author of the family blog -- keeps all readers updated on Valerie's progress. He is positive, hopeful, and a bit frightened too. On July 8, he wrote:

What a past couple days, my beautiful bride Valerie, my wife, my life long partner has a serious fight in front of her. She is going to grow old with me, she is going to help me spoil our grandchildren, we will beat this! I have faith, and I believe, but I also believe you cannot hide from the awful truths, this is not a nice disease. Three of the best doctors in the world do not come rushing to your aid in ONE DAY if they thought "you will easily make it through this" (which is what it seems I am always telling Valerie). I am trying to be strong, I feel I have to be, but sitting here in front of an inanimate object I find it easier to share my inner fears. I do have faith we will make it through this ..... it just won't be easy.

It won't be easy. But it can be done. Best wishes, Beck family!

Time heals all wounds not just a meaningless cliche

In the moment of despair, the cliche time heals all wounds may seem anything but comforting. But that's because it's true. It takes time to heal and we are not in the right frame of mind just as something unfortunate has happened to accept -- or believe -- this advice that might come flowing from a well-wisher's lips. It's popular wisdom. It's commonly offered as comfort. It's easy to spit out. And while our wounds do not exactly fade with the passage of time, we are able to put a more positive spin on them. But it's tough to appreciate this until the unfortunate moment is long gone.

According to a recent study -- summarized in the September 2006 Ladies Home Journal magazine -- memories of distressing events, like the death of a loved one, don't go away but they do gradually get colored by more hopeful emotions. As time passes, we tend to remember strongly emotional experiences as positive even if they were once harrowing. "People are resilient," says one researcher. "We come to terms with our experiences in as positive a way as we can." So we may eventually see the death of a friend as something that made us stronger, something that reminds us to treasure our friendships. Our ability to find such meaning in the saddest of times helps transform it into a valuable experience -- and not just a sad one.

And this is exactly how I feel about having had cancer. No one could have convinced me at the time of my diagnosis that time would heal my wounds. I wasn't even sure how much time I had left on this planet. I was panic-stricken and frightened and tended to defeat conventional wisdom. But now that two years worth of time has passed me by and I am pretty certain I will continue surviving for a long time, I realize time is responsible for my positive outlook. Time did not completely heal my wounds -- I still have days when my wounds are raw -- but it surely bandaged them. And so I do believe time heals all wounds -- in a way -- and I am thankful for each moment of time I have to marvel at this truth.

One woman with gallbladder cancer blogs new journey

Lynne began her blog on August 6 -- one week ago and two months after she endured surgery to clear a clogged bile duct and received the grim and frightening diagnosis of gallbladder cancer. Her cancer is stage IV -- not an uncommon staging for a hard-to-detect disease that many will only survive for two to six months. So Lynne is scared but still strong and hopeful and full of faith. Her goal is to live -- not die -- with cancer, even though her days may be numbered. So Lynne blogs her thoughts and fears and all the bits and pieces of information she gathers about a disease that is rare and resources that are scare. It helps her. And it will surely help others. And here is a glimpse into what she shared in her first post.

If you had only six months or a year to live, would you want to know? What would you do with the information? Would it make a difference in how you lived your life? These are questions I have been asking for the past two months. In asking them, I have also noticed how little guidance there is for this process. Who have I known personally who was able to anticipate their death? I can think of only two individuals, and I never asked them whether or not they were living differently in their awareness of their mortality.

So, those are the themes in this blog. I look forward to a dialog with those I know, and those I don't about this strange, life changing journey.

To Lynne -- and to all others who are faced with the disease -- may you find peace and comfort and strength in every step you take, every direction you follow, every path that becomes your road to recovery.

Live each day as if it's your last, one day it will be

Apple CEO Steve Jobs delivered a commencement speech at Stanford University on June 12, 2005. It was about following curiosity and intuition, about looking back and connecting the dots in life, about beginnings and endings, about death. Jobs, a survivor of pancreatic cancer, knows a thing or two about facing death. And the words he chose to relate his life-threatening experience to a crowd full of hopeful graduates are powerful and inspiring. I could paraphrase his message -- but surely something would be lost in my translation. So here is a bit of what he said -- word for word.

Continue reading Live each day as if it's your last, one day it will be

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