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Posts with tag hug

Constant support

The one constant thing that gives people fighting cancer hope is the continued support of friends and family. Phone calls, emails, a surprise or planned visit at the door that has a big hug on the other side, a held hand over coffee or tea, or sitting patiently by their side as they go in for treatments. When that support falls by the wayside, it makes the determination to fight this disease or any other less worth the effort. In my humble opinion as someone fighting cancer, we sometimes fight harder to overcome disease for others more than ourselves. Because it is in their caring and the will in their eyes that gives us a much brighter hope than we find in ourselves. It is the lack of support or caring that sets off an internal depression that makes it ten times harder to find the will to fight. People seem to find it easier to hug a tree than a human. Try to imagine if you will sitting in a house alone and thinking about a disease that can run rampant through your body. It is hard to imagine and something that we do not want to think about. Yet many many people face that struggle every day of their lives.

So if you haven't reached out to someone you know, a neighbor, a friend, someone in your church or where you work, or even a family member that is struggling with cancer or any other disease, then find it in your heart to do so. It will make a difference. And if you have reached out to someone once or even twice, know that once is not enough and twice is not enough. No matter how much you think you are being a nuisance, that constant reminder of love and support is 95 percent of your friend's battle. The old saying "You never know who your true friends are until you go through a crisis and see who stands by our side" is very very true. So go stand by someone's side today, tomorrow, and for many days to come to offer support and encourage strength until their fight is successful. Even a phone call goes a long long way.

For those of you who stay in touch with me by phone and emails and that come knocking on my door in this time of need, I thank you very much for giving me the strength and will to survive.

Small gestures spread sunshine

Sometimes all it takes is a small gesture to warm the heart of a cancer patient. It doesn't take anything huge. It shouldn't cause any stress or discomfort. And it shouldn't require a whole lot of thought. It should be simple. Simply simple.

A whole lot of small gestures spread a whole lot of cheer my way when I was knee-deep in cancer treatment and needed a lift. Cozy socks kept my feet and my spirits toasty. A package of brownies sweetened my sour days. Flowers brightened my dining room and my state of mind. Books left on my doorstep delivered knowledge and wisdom and a bit of humor to my world.

The options for spreading sunshine are endless. The list of possibilities could go on and on. Here is just a start -- a small list of small gestures that can make a dreary day downright delightful.

Give a hug
Send a handwritten letter
Make a homemade card
Write a poem
Give a journal
Deliver a candle
Make a home-cooked meal
Arrange for food delivery
Babysit children
Play with children
Drive to appointments
Go wig or hat shopping
Visit during chemotherapy sessions
Give something comfy -- socks, pajamas, hat
Do grocery shopping
Accompany to lunch, dinner, movie
Take a walk
Attend church
Have a picnic
Go fishing
Make a donation to favorite charity
Walk, run, volunteer, raise funds in honor of your special someone

Be specific in your gesturing. Trade a comment like "let me know if I can do anything" for "I'm going to come over and wash and clean your car on Saturday." Vague offers are rarely successful -- cancer patients are not likely to recall every general offer they receive and then manage them all into a schedule. It's just too much to consider in the midst of turmoil. But an offer that comes to life right before them is easy. It's effortless. It is truly a gift. A simple, priceless gift.

The Journey Through Cancer: What Is The Purpose of Medicine?

My own oncologist did it just two days ago. He checked in on my mental health, asked how I was surviving, and eased my fear of cancer recurrence and possible death. He reached beyond the medical scope of our relationship -- literally. He placed a hand on my shoulder. He offered me a hug. He cared.

Yet many doctors refrain from reaching too far into the lives of the patients they treat. They stay at a distance. They focus on merely replacing illness with health. This is, after all, the purpose of medicine -- to fix people.

Dr. Jeremy Geffen, author of The Journey Through Cancer: Healing and Transforming the Whole Person, shares in his book that "at present, doctors focus primarily on the physical characteristics of their patients -- bones and organs, tissue samples, test results, height, weight, and age. Yet in each of us, there is a rich mental, emotional, and spiritual reality that influences, even directs the course of our lives."

Conventional medicine responds to cancer patients with surgery, chemotherapy, radiation, and other treatment protocols to essentially get rid of the cancer. Physical signs, symptoms, and responses are carefully monitored -- while other areas of patients' lives receive little attention.

A whole component of true medical care is missing -- as doctors may feel unprepared to address emotional issues, and time restraints allow for limited interaction between doctor and patient.

Geffen believes the ultimate purpose of medicine is to help all beings "experience unbounded love, joy, and inner peace, and to know this is the essence of who we truly are." This purpose, he believes, deserves as much attention as the purpose of treating symptoms and curing disease.

And so Geffen created a program based on his Seven Levels of Healing -- a program that includes both the relative and ultimate purposes of medicine, both the doing and the being.

Level One: Education and Information -- provides basic information about cancer and treatment options and encourages patients to actively participate in and obtain benefit from their care.

Level Two: Connection with Others -- explores the importance of reaching out to others for comfort and support on the journey through cancer.

Level Three: The Body as Garden -- invites patients and family members to see the human body as growing and evolving, as a complex garden rather than a machine. This level touches on good nutrition, exercise, massage, acupuncture, and a variety of complementary and alternative approaches to healing.

Level Four: Emotional Healing -- enters the realm of the human heart, shedding light on fear, pain, anger, self-love, and forgiveness.

Level Five: The Nature of Mind -- examines how life with cancer is influenced by our thoughts, beliefs, and the meanings we give events.

Level Six: Life Assessment -- delves into aspirations, goals, and purposes of our lives.

Level Seven: The Nature of Spirit -- embraces the spiritual aspects of the healing process.

As a physician, Geffen aims to bring his vision of medicine and healing to cancer patients everywhere. And he uses his book as an instrument of communication -- so readers can participate in his vision, so they can learn to settle for nothing less than medical care that centers on the whole person. And not just the parts.

To read previous posts on the same topic, visit:
The Journey Through Cancer: Introduction
Sunday Seven: Seven Levels of Healing on Cancer Journey

Stay tuned for:
The Journey Through Cancer: Beverly Is Every One Of Us

Survivor Spotlight: Amy Wilson's breast cancer battle ends

In July 2005, Amy Wilson was diagnosed with breast cancer. In the months that followed, Amy endured a lumpectomy, a mastectomy, reconstruction, and chemotherapy. In January 2006, Amy's treatment ended. And she set off on a journey of survivorship.

In August 2006, Amy found out her cancer had spread to her brain and lungs. Her doctors gave her two to 12 months to live. On Thursday, October 5, 2006, Amy died. She was 35 years old.

Amy became my friend shortly after her original diagnosis and eight months after my own breast cancer diagnosis. A mutual friend brought us together and for a little more than one year, we shared a rich connection, cemented in shared struggles and victories. Through phone conversations and e-mail exchanges and cards and gifts sent through the mail, Amy and I shared a special friendship. But I never looked Amy in the eye, never offered her a hug, never met her husband and children. I knew her only from a distance. Still, our partnership was powerful. It was comforting. And sadly, it is over.

Our same mutual friend called me Friday morning to tell me Amy had passed away -- a mere 15 months after her battle began, three months shy of the end-of-treatment anniversary she happily anticipated, five years from the age of 40 -- the age she had determined would mark her first true survivor milestone.

I miss Amy. I miss the pieces of hope that vanished with her death. I miss that I never met her, never hugged her, never said goodbye.

Amy, whose journey was chronicled in her local Ohio newspaper, is survived by her husband, her two children -- Luke, age five and Ella, age two -- and among others, her mother, who is currently fighting her own breast cancer battle.

The Red Devil author inspires creation of support group

The breast cancer chemotherapy drug Adriamycin is often called The Red Devil. It's red in color and devilish in it's attack on both cancer cells and healthy cells. After her own personal attack by this drug, Katherine Russell Rich wrote a book, and she called it The Red Devil: To Hell with Cancer -- and Back. It's her account of how she got sick at the age of 32 with a relentless form of breast cancer. Although she was given just a short period of time to survive, Rich conquered cancer. And years later, she is alive and well. And she has discovered -- by mere coincidence -- that her book years ago inspired a group of women in Baltimore who are helping breast cancer patients through kind deeds. They foot the bill for transportation costs, housecleaning, and massage. They pick up and deliver medications. They gather and hug and eat. They take strolls. They call themselves The Red Devils.

Rich only found out about The Red Devils support group when a friend noticed a mention of the group in a newspaper. She informed Rich who visited the group's website. What she found took her breath away.

It seems a woman named Lark Schulze had at one time been desperate to learn about young women with stage IV breast cancer -- the same stage her 30-year-old daughter faced -- and she could not find any helpful resources. Until she came across Rich's book and poured herself into one woman's story. Moved by Rich's words, she tried to locate her, with no luck. So she took what she gathered from the book and after losing her daughter 19 months after diagnosis, became a founding member of a powerful support group -- The Red Devils -- in late 2002.

Despite failed attempts at finding Rich, Schulze says Rich changed her life. And now that the women have connected, Rich says Schulze has changed her life. At first Rich was afraid to be drawn into Schulze's world. But with a hunger to understand breast cancer from a mother's perspective, Rich took the plunge. She talked to Schulze, visited her, strolled with her, and soon the hard lump she'd carried in her stomach for so long began to soften as she connected in a deep and bizarre way with a woman she had inspired -- a woman she had never before known.

Coloring book speaks volumes about bone marrow transplant

I was hospitalized twice last year for chemo-induced fever and low blood counts. My first stay came at a busy time -- the hospital's oncology floor was full and there was no space for me. So I was admitted to the bone marrow transplant unit as an overflow patient and suddenly -- even in my very sick and compromised state -- I became the healthiest person on the floor. My white blood count was 700 -- sounded pretty bad to me -- but some of the patients staying on this floor with me had no blood counts because in order to receive a transplant, their own bone marrow is completely depleted in order to prepare for new bone marrow. Patients on this floor are considered pretty healthy when their counts reach 500. I was considered sick and was hospitalized at 700. Adults and children on this floor stay in rooms behind glass panels and with special -- and loud -- air flow systems that push germs out of the room. Visitors must wear gowns and shoe covers and must wash their hands before entering the rooms. Patients might stay on this floor for months at a time, receiving chemotherapy and preparing for their eventual bone marrow transplants. Some patient rooms are decorated and arranged just like home. Parents prepare rooms for children with play areas and craft areas and television areas. This floor is home to many sick children -- and this is what affected me most. For my five days on the bone marrow transplant unit, I gained an up-close and personal look at what many parents and children encounter when cancer derails their lives. It was so much more than I had to encounter. It must be quite an undertaking to prepare a child for this experience.

I picked up a coloring book the day I was discharged and walked off this floor and back into my own life. It's a coloring book that comes from The Leukemia & Lymphoma Society and is made by bone marrow transplant patients for children preparing for their own transplants. There is a poster for children to color and hang on their hospital room walls that says I Will Get Well, there is a page that terms chemo and radiation as Laser Rays and Guard Dogs and pages that help children visualize happy moments -- like playing a favorite sport or activity and jumping rope in the warm sunshine. This book reminds children that it is okay to cry and it even includes a prescription: Make sure you get at least one hug every day!

The overall message of this coloring book, which is stated in writing is, "A good attitude does not mean being cheerful all the time; it just means that you know that this is necessary to help fight your cancer."  Well said. And something I will always remember.

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