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Posts with tag informed

Doctor Evidence: making informed medical decisions avoiding mistakes

As a resource of medical information, take into account that there are over 25,000 medical journals published worldwide. For most of us, it is an overwhelming volume of information.

Doctor Evidence is an independent user-friendly fee-based medical search service connecting patients and doctors to the latest in relevant information which can then lead to the formulation of informed decisions about medical treatments -- and avoid potentially deadly mistakes in misdiagnosis, treatment or surgery.

In 2000, Dr. Todd Feinman founded Doctor Evidence after undergoing unnecessary surgery for intestinal cancer. After surgery he was told that the test that led to surgery had been a false-positive. He did not have cancer.

According to Dr. Feinman, "Every year, hundreds of new therapies and diagnostic tests are introduced to treat the thousands of diseases that are afflicting millions of adults and children. Finding evidence about the most accurate diagnostic tests and effective treatments requires the proper resources. This includes specialized information technologies, subscriptions to medical databases, medical librarians, and much more that is not readily available to most doctors and patients."

Yesterday, Extra aired a feature about Dr. Feinman and the Doctor Evidence service. During the report, a patient who had been told he might have pancreatic cancer turned to the Doctor Evidence website only to find out that one of the high-niacin level medications he was taking was mimicking symptoms of pancreatitis or pancreatic cancer. You can view the video of the segment online here.

Doctor Evidence staff is comprised of doctors with expertise in evidence-based medicine, medical librarians with masters in library science, other professionals with expertise in healthcare, and information technology experts. To learn more, visit the Doctor Evidence website.

Cancer by the Numbers: A breakdown of cancer, one by one

All cancers are not treated equally. Some attract a frenzy of attention -- breast cancer -- and some receive not much attention at all -- gallbladder cancer. Some are vigorously researched and studied. Others sit by idly, rarely the subject of investigation. Some are feverishly funded. Some never prosper by way of financial support. Yet they all share something very important in common. They are all cancer.

All cancers are marked by an uncontrollable division and spread of abnormal cells. And they are all capable of delivering shock and despair and even death to any one of us. And that makes each one -- brain cancer, cervical cancer, colon cancer, eye cancer, liver cancer, prostate cancer, stomach cancer, you name it -- worthy of equal attention.

And so I bring to you Cancer by the Numbers, a series of posts that will feature the basics about all sorts of cancer, beginning with the numbers -- the statistics -- to help define the prevalence of each cancer, followed by important facts about screening, diagnosis, treatment, survival, and more. I will cover the well-known cancers, the sort-of-known cancers, the barely-known cancers. And while I can only offer what I can track down on each form of cancer, I intend to dish out every piece of data I can dig up -- so we all can become a little more informed, a little more prepared should we have to personally do battle with any one of the 100 possible cancers out there.

The American Cancer Society reports that 1,399,790 new cancer cases will be diagnosed in 2006. This estimate does not include most carcinoma in situ (noninvasive cancer) cases and also does take into account the estimated one million cases of basal and squamous cell skin cancers that will be diagnosed this year. Of these predicted cases, about 564,830 will result in death -- that's more than 1,500 people each day. Cancer is the second most common cause of death in the United States, exceeded only by heart disease, and accounts for one of every four deaths.

These numbers are staggering. But without further explanation, they are broad and all-encompassing and don't say much about how all the individual diseases add up. That's what I plan to do -- break it all down, cancer by cancer, until the numbers make sense. And the cancers do too.

Cancer help delivered to mailbox, for free

Living Beyond Breast Cancer (LBBC) -- a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life -- recently began offering a new resource for breast cancer survivors, for both the newly diagnosed and those with metastatic disease.

"The first few weeks after diagnosis can be extremely difficult emotionally, and women with advanced disease often do not get the support and resources they need," said Jean Sachs, LBBC executive director. "We want to give them an understanding of their choices to help them make informed decisions regarding their physical and emotional health."

This understanding comes in the form of a 28-page brochure -- What to expect . . . today, tomorrow and beyond: Steps for coping with the medical, emotional and practical concerns of breast cancer -- available free on the Internet or by request. This guide, a road map, addresses topics such as coping with the news of a new diagnosis, telling family and friends, understanding pathology reports, choosing a medical team, asking for help, and finding support.

LBBC offers multiple addidtional resources -- including specialized navigation tools on its website that lead to a wealth of information. Visitors can Learn More about LBBC. They can Stay Informed through news, message boards, and other resources. They can Participate in events and programs. And they can Support LBBC through volunteer efforts and financial donations.

LBBC was founded in 1991 by a radiation oncologist who focused exclusively on meeting the needs of women post-treatment. She ran the organization out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer at the time, and so she tried to fill the void. In 1986, an executive director came on board, increased the LBBC budget from $100,000 to $1.8 million per year, expanded all programs and services, and worked to secure LBBC as a solid, dependable resource for all women, of all stages of breast cancer and in all phases of treatment and recovery. And now, in 2006, that is exactly what it is.

Sunday Seven: Seven survivors speak about recurrence

When I was first diagnosed with breast cancer almost two years ago, my greatest fear was losing my hair. The fear was consuming, painful, over-the-top. That was long ago -- and I survived. I can look back now and realize that the panic about losing my hair was such a small-scale fear -- compared to what I fear now. Now I fear a recurrence of cancer. And it's a whole lot more disabling than a little worry about being bald.

I have a few techniques for settling my fears when they get out of control. Sometimes I take deep breaths. Sometimes I distract myself and occupy my mind with something more pleasant than anxiety -- like writing, exercising, playing with my little boys. And sometimes I read about others who have come before me and have handled the same distress I sometimes feel about cancer taking up residence in my body again. Mostly I learn from stories of other women who have survived breast cancer. And I learn that I can handle the fear, that I can handle cancer if it does come back. And the women I find most inspiring are those who have had a recurrence -- or two or three -- and who still manage to happily tackle the life they have in front of them. They give me hope that if a recurrence comes my way, I too can conquer it. And here are seven snippets of hope from the book Hope Lives! The After Breast Cancer Treatment Survival Handbook -- from women who keep on surviving breast cancer.

Continue reading Sunday Seven: Seven survivors speak about recurrence

Lessons in life come at all ages, all hours, all the time

Joey has a hard time staying in bed when we put him down for the night. When we ask him why he continually gets up, he tells us that he wants to be with us -- mommy and daddy --  and that he wants to watch TV and that he's just not tired. He is five years old. And he will try anything to coax us into allowing him to stay up just a little bit longer. Lately, he's been asking serious questions he knows will take some time to answer -- like how exactly does a light bulb work? And how does lightening get in the air? And how do you build a house? Last night, his questions followed a medical path -- a cancer path really.

Continue reading Lessons in life come at all ages, all hours, all the time

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