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Posts with tag inspiring

Hijacked by breast cancer

The profile on her blog reads: Living in London. Working in ads. Currently undergoing treatment for Breast Cancer. And that about sums it up for this woman whose life has become hijacked by cancer. That's the way it goes. Cancer strikes and life revolves around it for so much longer than we'd like.

The 30-something Anne-Marie Weeden writes in a recent blog post:

I was genuinely confident at the beginning of this process that the whole chemo thing should not affect life too much. And in the first three treatments it didn't really. But the last three have just escalated in terms of the challenges they have thrown my way. They said it would be cumulative but I didn't realise it would accumulate on such a scale. I'd say the last two treatment cycles have been at least ten times as hard as the first one.

Continue reading Hijacked by breast cancer

Exotic dancer donations rejected by cancer organization

I guess I've just assumed that breast cancer organizations happily accept every donation they receive and joyfully funnel all charitable gifts into their noble endeavors. I mean, without money and research and programs and services and education, where would we be? We'd be uninformed and lagging behind the force of this disease instead of gaining momentum on its trail. That's where we'd be.

Now, I've never assumed these organizations accept money obtained through illegal measures. But I've also never assumed they'd turn away money just because it came from a group of women whose profession and means of fundraising might be considered unacceptable. I suppose I shouldn't make assumptions. Because I seem to be wrong on all accounts.

The Breast Cancer Society of Canada has officially rejected a donation from a group of Vancouver strippers because of the controversial nature of their fundraisers. Exotic Dancers For Cancer these women call themselves, and for four years they have been raising money in honor of another dancer who lost her battle with terminal cancer.

Trina Ricketts, founder of the exotic dancer website nakedtruth.ca and recipient of the letter rejecting the donation, is shocked that people consider this contribution dirty money. And she is so bothered by this unfair judgment that she has been contacting the media and outting the Breast Cancer Society of Canada's discrimination practices. Her protests are working.

In a supportive turn of events, Ricketts has been met with an overwhelmingly positive response -- and she now has several organizations willing to accept all donations she wishes to offer.

This story is not nearly as simple as presented here. It's so much more detailed and touching and moving when told by Ricketts herself -- who happens to share her inspiring journey right here.

CORRECTION: Trina Ricketts reports that she did not seek out the media to out the Breast Cancer Society of Canada.

"The decision to go public was not in the interests of outing the Breast Cancer Society of Canada, but rather to seek out charities that would be willing to accept our donations," she said.

Support to Go: The Unbook for the Journey Through Breast Cancer

My nose was buried in books just after my breast cancer diagnosis. I craved information and thought the pursuit and acquisition of it would somehow help me gain control over a seemingly uncontrollable disease.

For the most part, reading helps me. But sometimes, I read too much -- "Stop reading", my oncologist instructed me one day after I rambled off a bunch of worries I'd gathered from research -- and I've been known to get overwhelmed by statistics and numbers and theories and clinical jargon. When this happens, I usually find refuge in the personal stories of women living with breast cancer. Those who have weathered the cancer storm are often the real experts on cancer and know how to sift through the details, offering just what's important to all who follow.

For more than a decade, two-time breast cancer survivor Pat McRee searched for the perfect guide she could recommend for women she saw at the Flying Colors cancer resource and support center she directs.

"Too long," "Too detailed," "Overwhelming," "Just plain scary," were the responses she heard about the books she had found.

So she decided to think outside the book, to create her own support guide. An unbook is what she calls it. And it's not too long, too detailed, too overwhelming, or too scary.

Support to Go, The Unbook for the Journey through Breast Cancer is instead a compilation of survivor secrets, affirmations, inspiring quotations, poetry, song lyrics, attitude buttons, funny anecdotes, and referrals to expert resources in oncology, radiology, surgery, psychology, and complementary therapies.

McRee considers her book a support group of sorts, a place where survivors can turn their wild rides into unforgettable journeys.

Survivor Spotlight: Jennifer Matherly inspires with grace

Jennifer Matherly is a 27-year-old wife, mother, daughter, sister, insurance broker, student, and friend. She is also a breast cancer survivor. Jennifer, who lives in Columbus, Ohio, enjoys golfing, watching football, and spending time with friends and family. She doesn't have much free time lately -- but when she finds moments all to herself, she tends to her hobbies which include cross-stitching and working on her blog.

Jennifer's blog began as a story about her journey to motherhood. It turned into a story about her journey with breast cancer. It's an inspiring read, full of trials and triumphs. It's a testament to her strength and courage and sheer determination. It's a story of survivorship -- a little something like what follows.

Continue reading Survivor Spotlight: Jennifer Matherly inspires with grace

Making money for Making Strides makes many profit

I am in awe at this very moment, after receiving a generous donation -- from a friend I have not seen in nearly five years -- for the Making Strides Against Breast Cancer 5K Walk I plan to run in less than two weeks. I am not in awe simply because of this one donation. I am in awe of the combination of generous donations I have received over the past two months. My grand total right now -- headed for my local American Cancer Society team and earmarked for use in my own city -- is $3,808. My goal is $4,000.

I don't take any credit for this large sum of money that will earn me recognition on the day of the event. I merely reached out to friends and family and they delivered. Day after day, donations as high as $250 flow my way -- and while the American Cancer Society and cancer patients in North Florida stand to profit because of my giving support network, it occurs to me that I may be the biggest winner to cross the finish line. Me -- one woman, one cancer survivor, with one inspiring crowd rallying to support -- me.

It doesn't matter what I do on the day of the race -- although I do hope to accomplish my personal physical challenge -- because I have already done what I set out to do. I raised funds for a fabulous cause. And I gained a little something -- well, a big something -- in the process. I witnessed the wonder of overwhelming kindness. And for that, I am nothing less than grateful.

Hurricane Voices raises consciousness, incites public action

I love the terminology used by those behind the scenes at Hurricane Voices. This is where I first read the words breast cancer dancer and where individuals have gathered to advance the rebellion against breast cancer. The content on this site is powerful, edgy, and truly inspiring -- it incites public action. And it makes me want to jump up and do something -- now. To break down the barriers to progress in pursuit of the causes and cures for breast cancer -- which is the whole purpose of Hurricane Voices.

Hurricane Voices began because of one woman -- Lois Egasti, a wife and mother living with metastatic breast cancer. Lois, who passed away on April 15, 2003, knew she was not alone and felt the need to take a stand against the disease. So she put her urge into action and formed this not-for-profit organization. And in just four years, a great community of voices emerged -- voices that have helped raise support and participation in far-reaching programs and events.

Hurricane Voices offers on its website a family reading list, a regular newsletter, an empowering overview of breast cancer and its statistics, and a sampling of various myths surrounding breast cancer. Hurricane Voices provides direction for involvement in unique conferences -- such as When a Parent Has Cancer: Strengthening the School's Response which helps school systems support families affected by parental cancer and Breast Cancer: Truth & Consequences, a conference that challenges the status quo concerning breast cancer. Hurricane Voices initiates thought-provoking public awareness campaigns and strives to inform the public that the disease we call breast cancer is a very serious illness.

Every day, more people are being diagnosed. Every day, more people are dying. Yet we are not beating this disease -- in fact in the time it takes to brush our teeth or drink a cup of coffee, another person has died of breast cancer. And this is what Hurricane Voices wants us to know. This and the fact that well-meaning, misconstrued survival rates in the 90 percentiles only extend for five years. And five years is just not enough.

Powerful -- that's what Hurricane Voices is -- powerful. And each of us can contribute our own power to this organization by becoming a Hurricane Voice. So speak up -- by simply clicking here.

Pages of book woven with storyline of friendship, cancer

I like to read. I just don't find much time to do it -- with two kids, two jobs, an unpredictable exercise schedule, endless medical appointments, and all the other craziness that accompanies life. I would like to find more time for books -- books a bit more complex than the one I found time to read at bedtime tonight about a frog and a toad who spend their days flying kites and enjoying picnics together. I would like to read books that capture relationships and life experiences and a bit of mystery too.

The last book I read -- The Shop on Blossom Street -- is the kind of book I like. It is easy to read and captivating and inspiring and comforting. It is the kind of book I want to keep reading -- long after I have to put it down to tend to distractions. Perhaps it's the thread of cancer woven into the storyline of this book that kept me wanting more.

The Shop on Blossom Street -- by Debbie Macomber -- follows four women who are all seeking change in their lives. The lead character opens a yarn shop, years after a cancer diagnosis and with the intention of moving forward despite an uncertain future. She hosts knitting classes and forms relationships with three other women in search of brighter days.

Character Lydia Hoffman -- the cancer survivor -- overcomes obstacles and challenges and even another cancer scare. She finds friendship and love and all sorts of unexpected discoveries. She even graces the pages of a second book -- A Good Yarn -- that follows her continued life journeys.

I have the book A Good Yarn. It's on my bookshelf. And I can't wait to read it. I just can't find the time.

Sing for the Cure CD: Poet Laureate Dr. Maya Angelou narrates

Sing for the Cure CD is a profound musical journey chronicling the experiences of women diagnosed with breast cancer. Narrated by Poet Laureate Dr. Maya Angelou, and featuring the performances of librettist Pamela Martin, the Turtle Creek Chorale and the Women's Chorus of Dallas, the CD offers original songs that capture the emotions of ten composers.

The selections on the Sing for the Cure CD include Prelude For The Uncommon Woman; The Community's Voice; Who Will Speak?; Facing Diagnosis; Borrowed Time; The Partner's Voice; The Promise Lives On; Taking Control; Livin' Out Loud Blues; The Child's Voice; The Sister's Voice; Girl In The Mirror; The Mother's Voice; Who Will Curl My Daughter's Hair; Pursuing A Cure; Groundless Ground; Proclaiming Hope; One Voice: I Will Not Be Silent; Testimonial and Come To Me, Mother.

Live concert performances of Sing for the Cure, dedicated to those affected by breast cancer, have been held in more than 50 US cities, including Carnegie Hall in New York City. The Sing for the Cure CD is available through the Susan G. Komen Breast Cancer Foundation gift shop.

Gallbladder cancer is rare and rarely covered too

A reader left a comment the other day on the Cancer Blog post death by cancer dims outlook of promise, hope, survival. It was positive and supportive and inspiring -- and sad too. The reader shared that her mother passed away in February after a year-long battle with gallbladder cancer. She wrote that her mother handled her diagnosis, chemotherapy, transfusions, medications -- and her final days -- with true grace. And this is a big deal. Because there is not much information floating around on the topic of this cancer. So this woman didn't have much to cling to. Like I do. As a breast cancer survivor, I have mounds of resources at my disposal. I have books and magazines and websites and blogs that devote generous coverage to breast cancer. There are walks and runs and yard sales and fashion shows and other fundraisers that make breast cancer survivors the lucky recipients of extensive research and study. I see pink ribbons all over town and license plates on the roads and clothing and hats and even tennis shoes that promote breast cancer awareness. I could go on -- and on and on.

Gallbladder cancer is rare. So perhaps that's why there is not an abundance of information on the disease that has no known cause or test to detect its presence in the body. The American Cancer Society estimates that about 8,750 new cases of gallbladder cancer and bile duct cancer (excluding bile ducts within the liver) will be diagnosed in 2006 in the United States. And about 3,260 people will die of these cancers in 2006. Of these new cases and deaths, about half are due to gallbladder cancer, which affects predominantly women and those who are older than 65. Diagnosis of this cancer is difficult because symptoms do not often surface until the late stages when aggressive treatment becomes necessary. Surgery, chemotherapy, and radiation therapy are typical treatment tools, along with palliative therapy to help control or reduce symptoms. There are also drugs currently under study in the areas of both targeted therapy and immunotherapy.

It's good to know that gallbladder cancer is rare -- and that it takes far fewer lives than breast cancer and other diseases -- but for the unfortunate ones who are diagnosed with this life-threatening illness, the lack of information and resources is a truly an unfortunate side effect.

Live each day as if it's your last, one day it will be

Apple CEO Steve Jobs delivered a commencement speech at Stanford University on June 12, 2005. It was about following curiosity and intuition, about looking back and connecting the dots in life, about beginnings and endings, about death. Jobs, a survivor of pancreatic cancer, knows a thing or two about facing death. And the words he chose to relate his life-threatening experience to a crowd full of hopeful graduates are powerful and inspiring. I could paraphrase his message -- but surely something would be lost in my translation. So here is a bit of what he said -- word for word.

Continue reading Live each day as if it's your last, one day it will be

Cancer survivor strives to survive fear of recurrence

I received a comment today on my Sunday Seven post about how inspiring sentiments help me survive. The comment was from a women who is surviving lung cancer and she asked a question to all readers really -- when will the fear of recurrence ever go away? How do you out there deal with it? So I replied to her private e-mail address and shared my thoughts about fear and recurrence and how I deal with these issues as a cancer survivor. She replied and wrote, your e-mail was so uplifting. I think I just found you on a really bad day and I am thankful that I did. And so I realized that maybe I should not limit my thoughts to just one person when others are surely in her same boat -- my same boat. So here is what I wrote to this one reader who -- like so many others on my journey -- has helped me by allowing me the chance to help her.

Just want to say that I think you are already dealing with the fear-of-recurrence thing because you have been surviving for as long as you have been traveling this bumpy road. So while you survive, you just need to live each day like it's your last and fight for your life at the same time. Someone once told me to think of cancer as a chronic condition -- something we will live with for the rest of your lives. And we just keep treating it, wherever it pops up. And the longer we survive, the more resources there are to help us survive even longer. As for getting through each day, I recommend counseling (I go once per month but at one time I went each week). I also take an anti-depressant (Zoloft) which I do not push on anyone, but for me, it has helped. I went to my oncologist one day and asked him how to live peacefully without worrying constantly that cancer is coming back to haunt me -- he said many cancer patients take anti-depressants to take the edge off so I began the drug and began counseling too. Neither completely take away the fear -- but they help me manage and that's all I can ask for. I also have two little boys who keep me busy and distracted from feeling sorry for myself. And I try to keep busy in other ways too. Helping others with cancer -- or others who just need help -- is healthy too!

Helping others with cancer does help me. It reminds me that I am not alone and that others have fears like me and that collectively, we can all survive better if we lean on one another and borrow from one another and inspire one another.

Sunday Seven: Seven creative morsels for the soul

I found Sark long ago -- about 10 years ago when I was working with college students on a campus in Virginia. Part of my job was supervising Resident Assistants -- students who live and work on the residence hall floors and are responsible for building community among residents -- advising them and counseling them and mentoring them and stepping in when conflict and trouble arises. It's a tough job -- being a peer and being in charge at the same time -- and Resident Assistants receive intensive training on how to best manage a floor of students possibly living away from home for the first time. I got to train these student leaders at times -- and Sark's books helped me motivate, inspire, and get to know these individuals. And over the years, as I assumed other jobs and roles and purposes, I found that Sark was still a great companion for me. And now I realize that what Sark has to offer really applies to anyone looking for a little inspiration, a little direction, a little creativity, a little delight.

Continue reading Sunday Seven: Seven creative morsels for the soul

Secret Language of Girlfriends benefit breast cancer

The Secret Language of Girlfriends: Talking Loudly, Laughing Wildly, and Making the Most of Our Most Important Friendships, written by the queen of comfort Karen Neuburger, is a book sharing the funny, enlightening, uplifting and sometimes sad stories of women and how no matter what happens in the life of a woman -- she can always count on her girlfriends to be there. Neuburger chronicles the stages of a woman's life -- from child rearing and workplace bonding to menopause and beyond. The book contains party ideas, recipes, crafts and craft disasters, and the ceremonies women use to cement and celebrate their friendships. The last chapter is devoted to daughters and how mothers pass the secret language of girlfriends to the next generation --  a group of girlfriends who totally have your back but always put you out in front.

A portion of book profits go to The Breast Cancer Research Foundation, in honor of girlfriends everywhere. While it is a last-minute gift idea for Mother's Day, it is an excellent gift idea for mom any day of the week. Right after you give your mother a copy of this book, tell her about The Secret Language of Girlfriends website, where she can find the Broad Squad, book clubs, newsletter, and other fun.

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