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Posts with tag manage

ABCs Robin Roberts' doctor takes your questions

Good Morning America coanchor Robin Roberts returned to work on Monday, a little more than one week after her breast cancer surgery. Some think her return was a bit hasty. Some think it was the absolute right thing to do. I'm of this camp -- the jump-back-into-life approach. It's exactly what I did after my surgery and throughout every step of my treatment. And while there were surely days I could have cut myself some slack, I tried to keep on my toes. It was the only way I knew how to manage the chaos of cancer.

In the spirit of helping women cope with their breast cancer diagnoses, Roberts' very own doctor offers some insightful words of wisdom. Click here for guidance about returning to work, managing through surgery and radiation, maintaining emotional health, and the importance of mammograms and self-exams.

What is your take on how Roberts is handling cancer and how her doctor is handling the topics that become critical in the fight against this disease?

Breast cancer website reads: Show Us Your Chemo Style

If you've ever visited the website My Breast Cancer Network, part of the Health Central conglomerate of health and medical information, you know the appeal of this site is its insightful navigation menu, comprised of three helpful locators -- Find, Manage, and Connect.

With a click on the Find button, you can search answers to questions, check symptoms, and locate resources. Choose Manage and you can take action, achieve goals, and resolve problems. If you wish to get advice, find support, and share your experiences, take a simple tour through the Connect community.

My Breast Cancer Network currently invites all viewers to connect with one another through a new feature: Show Us Your Chemo Style. You can simply visit this portion of the site and view photos submitted by others. Or you can submit a photo and caption of yourself, a friend, a family member. My Breast Cancer Network says it like this:

What does it mean to be confident during and after chemotherapy? Are you proud to be bald and beautiful? Does a wig, scarf or hat make sense for you and your style? We'd also love to see your new hair, as it grows back in. Share your favorite photos!

I did it -- go take a look -- and you can too.

Stress helps cancer resist treatment

Way to go Wake Forest University scientists -- for adding to the body of evidence connecting stress to illness and for reporting before anyone else that the stress hormone epinephrine causes changes in prostate and breast cancer cells that may make them resistant to death.

Emotional stress contributes not only to the development of cancer, says lead researcher George Kulik, D.V.M., Ph.D, but it also reduces the effectiveness of cancer treatments.

Previous research shows levels of epinephrine, produced by the adrenal glands, are sharply increased during stressful situations and can stay elevated during long-term stress and depression.

During this study, published in the on-line Journal of Biological Chemistry, Kulik and colleagues found that a protein called BAD -- the cause of cell death -- becomes inactive when cancer cells are exposed to epinephrine.

This is huge for patients and researchers.

"It may be important for patients who have increased responses to stress to learn to manage the effects," said Kulik. "And, the results point to the possibility of developing an intervention to block the effects of epinephrine."

Sunday Seven: Seven happy, healthy habits

The experts at Canyon Ranch resort and spa know what they're talking about when it comes to health and happiness. They make a living off their expertise, in fact. But they're not stingy when it comes to sharing their know-how, and on the Canyon Ranch website, they offer us all a chance to better our lives.

I promised in an earlier post to share more of what the Canyon Ranchers have to say -- so here are seven more healthy habits you just might want to embrace.

To Carb or Not to Carb

Canyon Ranch has watched "fad" diets come and go, never falling for their quick, easy-fix mentality and consistently advocating for balance, moderation and basic good nutrition. In recent years, some diets have forsaken whole grains for foods rich in protein and essentially free of carbohydrates. Whole grains, which are carbs, have always been a vital part of good nutrition. And while removing high-carbohydrate foods from your diet may initially help you lose weight faster, over time their absence can negatively influence your health.

Making Time for Time

People take classes to learn time management, they rely on the latest technologies to make the most of it and budget time as carefully as their money. Still, when it comes to health care, you may find yourself in a time crunch. Fortunately, Carl Pratt, managing director of the Canyon Ranch in Lenox, offers a timely solution: The 90-Minute Program. "It really only takes 90 minutes a week to stay focused on maintaining a healthy lifestyle. If you aren't willing to dedicate 90 minutes, you aren't willing to take care of yourself, and you need to accept that fact," says Carl. Carl breaks down the 90 minutes per week as follows:
  • 15 minutes of planning for "mindful eating"
  • 45 minutes of exercise (15 minutes, three days a week)
  • 30 minutes of relaxation (five minutes, six days a week)
Commuting Bliss

When you change your mindset and treat commutes as a transition time for relaxation or education by listening to music or books on tape, your daily drive becomes a worthwhile experience. "We all see commutes as inconvenient, and we need to think of them as something valuable. Remember, the ultimate removal of commute time is not what people want. Otherwise, we would go directly from birth to death and skip everything in between. If you can't enjoy the commute -- and indeed, some are more difficult than others -- you are simply losing part of your life," says Robert Rhode, Ph.D., clinical psychologist at Canyon Ranch in Tucson.

Family Bonds Tied to Well-Being


Even painful family connections can be a significant part of personal growth. Learn to feel reverence toward yourself even as you feel pain. This connects you with your humanity and your ability to give and receive love. How to get comfortable with painful memories? Relax your body and allow yourself to feel emotions -- anger, pain, sadness -- while maintaining a positive attitude toward you.

An Attitude of Gratitude


Being thankful each day for the good things in your life and the ability to appreciate what you have rather than what you do not have is an important aspect of emotional health and well-being.

Think Big

One key to spiritual well-being is to get outside yourself with activities such as volunteering or contributing to worthy causes."Get involved with others and become committed to something greater than yourself. You start worrying about the greater good and you feel better about yourself," says Evan Kligman, M.D., at Canyon Ranch in Tucson.

Not a Morning Person? It's OK


Giving yourself a workout boost first thing is great for some, but an early morning workout may not be for everyone. Phil Eichling, M.D., sleep expert at Canyon Ranch in Tucson, encourages people with sleep problems to put off their workout for later. He says to enhance sleep, the best time to exercise is usually late afternoon. And people who have cardiovascular issues or certain other health concerns may also want to ease into the day before they strap on their running shoes or cross trainers.

LIVESTRONG notebook offers organization, guidance

I used a written journal and then a blog to record the stops along my cancer journey. I kept a file for financial paperwork, and I made lists of questions in anticipation of medical appointments. I saved all prescription instructions to track the abundance of drugs entering my body, and I earmarked a large white cardboard box as my cancer treasure chest. The contents of this box include cards, gifts, newspaper clippings, books, literature, and more. It's practically spilling over with stuff -- the stuff of cancer.

My system -- which may seem a bit unorganized and splintered -- worked well for me as I tried to keep my head above water following my cancer diagnosis. For others, a more central system may work -- a system that incorporates all pertinent information in one convenient location.

The LIVESTRONG™ Survivorship Notebook, offered by the Lance Armstrong Foundation, is one option for those seeking a clean, concise way to manage the details of cancer. It's designed to organize and guide. It's portable. It's available for the cost of shipping and handling only. And it includes the following:

Survivorship Tools -- this section includes a personal health journal, an appointment diary, a list for medications, a summary section for health and financial information, and a medical history and treatment area.

Survivorship Stories
-- this section features stories of cancer survivors that will inspire and empower.

Survivorship Topics -- this section offers readings, answers to questions, and resources about physical, emotional, and practical issues related to cancer.

This yellow notebook -- a symbol of one man's fight and victory against a mighty disease -- could be the perfect accessory for someone facing the unknown. Sometimes all it takes is a bit of organization to calm nerves, minimize anxieties, soothe fears, and instill a sense of control over an otherwise uncontrollable journey.

Sunday Seven: Seven levels of healing on cancer journey

I love it when seven of something lands before me, offering me potential material for the Sunday Seven series. In fact, it just happened. And I can't wait to start writing about the Seven Levels of Healing common to cancer patients and those who love them.

I have a new book. It's called The Journey Through Cancer: Healing and Transforming the Whole Person by Jeremy Geffen, MD.

Dr. Geffen knows cancer. He lost his father just three months after a stomach cancer diagnosis. He became an oncologist. He founded a cancer research center. He travels and speaks and writes about health and wellness. And inside the pages of his newly revised and updated paperback, he details the Seven Levels of Healing -- a blend of conventional and complementary principles-- and the true stories of cancer patients who have directly experienced them.

It occurred to me while first flipping through this book that I might read it in its entirety and then write a review of the material. Then I determined it would take much too long for this approach. With two small children, a few jobs, an exercise routine I must revisit, and all the other bits and pieces of life that keep me occupied, this would be quite an undertaking -- the actual reading, the remembering, the writing. Somehow, this would be too much to manage. But small steps. I think I can handle small steps. So this is how it's going to work.

I will present to you in this post the Seven Levels of Healing. I don't know much about them yet -- although by title alone, I am sure I have lived most of them in my own cancer journey. So I will simply lay the groundwork. And then I will start reading. And as I read, I will write. This will be my own one-woman book club -- with an open invitation for new members. Read my posts and reflect on them. Agree. Disagree. Leave comments. Buy your own book. Read with me. Apply what you learn to your own life. Share what you learn with others. The possibilities are endless as I journey my way through this new book in search of peace, clarity, and comfort -- all of which flow from these seven levels.

Level One:
Education & Information
Level Two: Connection with Others
Level Three: The Body as Garden
Level Four: Emotional Healing
Level Five: The Nature of Mind
Level Six: Life Assessment
Level Seven: The Nature of Spirit

And so that's what I have to offer for now. I'm sorry to keep you hanging. But rest assured, I am hanging right along with you, eager to find a moment to dive into this book. To sink my teeth into the words, sentences, paragraphs, chapters. To relay it all to you. I can't wait -- to really understand the Seven Levels of Healing.

Stay tuned for:
The Journey Through Cancer: Introduction

Sunday Seven: Seven super breast cancer websites

When a question or concern or worry related to breast cancer pops into my head, I typically find myself parked in front of my computer in search of instant answers, instant comfort, instant wisdom. There are several different websites I consult -- each one different from the others, each one complementing the others. They are my reference tools, my handbooks, my encyclopedias. They offer me a clear picture of a confusing, cloudy disease. And here they are -- seven super websites that have been become staples in my life.

Continue reading Sunday Seven: Seven super breast cancer websites

Reality show contestant tackles competitions, ovarian cancer

MTV is currently airing another installment of the Real World/Road Rules Challenge reality show. This season -- called Fresh Meat -- pairs former show contestants with individuals who have never before appeared on any MTV reality show. These new contestants -- the fresh meat -- compete with the veterans in tense and strenuous physical and mental challenges for an array of prizes and for a grand award of $250,000. Winning the money could be life-changing for any one of these participants. But for one woman, it could also be life-saving.

Diem Brown, 25, was cast on the MTV challenge show before hearing her diagnosis of ovarian cancer. She didn't want to regret passing on the opportunity so with two chemotherapy treatments completed and armed with medication to manage nausea and other side effects, she packed her bags and headed for Australia where her days consisted of challenging stunts and tough competition. She survived it all -- although fatigue and pain sometimes slowed her down -- and she is busy surviving ovarian cancer too.

Brown has started a foundation called Live for the Challenge -- kind of like a Make-A-Wish Foundation for patients who are stuggling with medical difficulties. And her own personal wish is that ovarian cancer -- "the disease that whispers" -- would get a megaphone to attract more attention and more research. Because one in 50 women will get ovarian cancer and with no accurate screening for this disease, it leads to tragic outcomes for many women.

It is clear that Brown is one tough contender -- both on TV and in her everyday life. And that makes her a winner no matter what.

Sunday Seven: Seven steps for securing a sane schedule

Cancer has helped me slow down -- a little. I am more patient in the moment without racing to the next task I think is waiting for me. I can better manage my priorities and can offer the most important things the majority of my time. I am better at passing on opportunities that are low on my wish list. And I can typically say "no" if I don't have the time or energy to devote to a request. I know that I have to be healthy and happy and fulfilled in order to operate effectively and joyfully in this world. So I try to enjoy peaceful moments and put priorities first and not overextend myself and slow down. I'm not completely there -- yet. But I plan to keep practicing. And I'm going to try these seven strategies -- offered by a freelance writer, wife, mother of two, and reformed over-committer -- in an article I stumbled across in a local family magazine I picked up this week.

Continue reading Sunday Seven: Seven steps for securing a sane schedule

Reach to Recovery program helps those grasping for support

It's kind of a blur how exactly I came to receive a phone call from a volunteer at the American Cancer Society just after my breast cancer diagnosis. I must have checked a box on one of many medical forms shuffled my way during this confusing time. Or I requested assistance from someone, somewhere, at some point in time. I'm not really sure. But I am sure of this -- one very nice woman, a young breast cancer survivor herself, called me one afternoon from the Reach to Recovery program. She asked me about my situation, told me of hers, and led me to resources -- other survivors, support groups, and the fitness group Team Survivor -- and she met me one afternoon with a goodie bag full of information and comforting gifts. She was my first link to the world of breast cancer survivors.

I've come to know this woman in different circles since she first called me. She was a physical therapist at the same center where I received therapy for post-surgery and radiation concerns. She has been present at every walk and fitness event and cancer function I have attended. And she leads the local Team Survivor group -- so I receive e-mails from her about all sorts of events and gatherings and opportunities for joining a spirited group of strong women. And just today, I received an e-mail invitation from her -- intended for all young survivors she knows who might be interested in becoming Reach for Recovery volunteers. I replied instantly. Yes, I want to do it. She happily replied. So in a short time, I will receive training for this very important job.

It's not a hard job -- it just requires some phone calls and a few personal visits. And the ability to share advice. And words of wisdom. And love and care and compassion for those who may not know how to manage during a personal brush with breast cancer. Whether facing a possible breast cancer diagnosis, a new diagnosis, or a troubling time with lymphedema or reconstruction, Reach to Recovery volunteers offer a hand to anyone grasping for assistance.

I must have been grasping during my own difficult time. I just don't remember much about that time. All I know is that someone helped me at a critical time. And now it's my turn to be that someone.

Worry about hair dye and cancer colors future decisions

I never colored my hair -- until after cancer, when my once-blond hair lost to chemotherapy grew in mousy brown with touches of gray. I thought it needed some spark and dazzle so I doused my head -- and my bathroom counter and walls too -- with hair dye in an effort to brighten up my look. It worked. And I like it. But I don't like what I've now heard about a possible link between hair dye and cancer. And this is what I told a reporter from the New York Times who called me the other day. She had read my post here on the Cancer Blog about this news story -- about hair dye and cancer -- and she wanted to know more about my personal feelings as a cancer survivor and as a person with colored hair.

I told this reporter that it's a bit ironic that in 36 years, I had never applied hair dye to my hair and that only after cancer did I take the plunge -- only to learn that hair dye may be cancer causing. I told her that I wouldn't do it again -- dye my hair -- although I don't think one application of coloring chemicals will really affect me when research indicates a risk only when women use hair dye 12 or more times. But still, I don't choose to take even the smallest of risks when it comes to my health -- which has already been compromised once. I told the reporter that I have not witnessed any widespread panic among the public about this issue. And I think the people I know who color their hair will continue to do so. That's okay with me. Because when it comes down to it, I am responsible for my hair only, my health only, my life only. That's really all I can manage.

And once my colored hair grows out -- the colored hair that was photographed today for the story this reporter is writing -- I'll manage to live on with my mousy brown hair with natural gray highlights. It won't have much spark or dazzle. But it will be safe.

Witnessing death both heart breaking, soul strengthening

I was present for death only one time in my 36 years of life. I consider this both a bad and a good thing. It's bad because I did not want my grandmother to die -- and watching it happen made it so real, so vivid, so painful. I don't think I would have ever chosen to watch my grandma die -- to watch her slip from consciousness to coma, to observe her altered body once death arrived, to witness the movement of her body on a stretcher as it was wheeled out of the house from the bedroom I still see every time I visit my mom's house. But I think I am lucky really -- and this is the good part -- because I got to be with her during her final moments. I got to watch her body as it lay still, peaceful and calm and still breathing. I got to talk to her and although she could not respond, I believe she could hear my words. And it makes me happy to know my grandma may have known I was with just prior to her flight to heaven. And after her flight, I got to touch her cool hands. I got to feel the power of the passing of one life -- a long life -- and I got to feel the comfort of a death that was not ugly or painful or difficult. It was sad -- it's still sad -- that my grandma died three years ago. But what a privilege it was to be part of the day she left this world.

Susan DeWilde left this world in much the same way -- with loved ones by her side. She was a fighter and had conquered several rounds of breast cancer, a tumor in her spinal cord, uterine cancer, lymphatic cancer, and then leukemia, which took her life at the age of 53. I don't know this from Susan herself but from her friend, Christy Mack -- who helped her accept her death and guided her into her own final moments so that she could escape her pain and die peacefully. Christy writes about her beautiful friend and her empowering death in an article that appears in the August 2006 Oprah Magazine. Titled Friends to the End, Christy's story details how she soothed her friend, cradled her hand, and talked her through her last breaths. She helped her on her way during a time her friend feared most. Christy writes, "What she and I shared the night she died was a precious gift of friendship, emotionally profound and sacred in its perfection. It broke my heart. It strengthened my soul."

This I understand.

Crippling emotion diminished by comfort of counseling chair

When I first started going to counseling, I was told I would need eight to 10 sessions of cognitive behavioral therapy to help me deal with my anxiety, my panic, my fear of breast cancer recurrence. My first session was in May 2005 -- and I am still going. Those initial sessions are possibly all I really needed -- and perhaps I could have stopped the therapy long ago. But stopping never came up and no one told me I had to call it quits so I kept on marching into territory I had never before traveled. I have a degree in counseling -- but I'd never been counseled. I know how to listen to others and share empathy and ask open-ended questions -- but I'd never been the one talking and sharing and venting and crying and answering questions. Until last May -- when I discovered the appeal and the comfort of the counseling chair.

I marched into one of my sessions yesterday and plopped into a brown faux leather recliner. I talked about my recent graduation from Herceptin therapy and about how I might manage in life now that treatment is over. I talked about my jobs -- as a writer and a preschool teacher -- and how they fit into my world. I talked about the level of stress in my days and about how my once constant fear that cancer was trailing me has largely diminished. I talked about how breast cancer is no longer my constant companion -- about how it is now just an acquaintance. And I talked about how counseling was once so necessary and about how it is now just a luxury that helps me maintain peace as I live forward.

I am not sure when I will stop going to counseling. But I'm not completely sure of much anymore. And I've learned from counseling to not really question the future -- to just live in the moment and to give thought primarily to the here and now. And right here, right now, I'm sticking with my sessions, my one hour every month, my comforting counseling chair.

Cancer survivor strives to survive fear of recurrence

I received a comment today on my Sunday Seven post about how inspiring sentiments help me survive. The comment was from a women who is surviving lung cancer and she asked a question to all readers really -- when will the fear of recurrence ever go away? How do you out there deal with it? So I replied to her private e-mail address and shared my thoughts about fear and recurrence and how I deal with these issues as a cancer survivor. She replied and wrote, your e-mail was so uplifting. I think I just found you on a really bad day and I am thankful that I did. And so I realized that maybe I should not limit my thoughts to just one person when others are surely in her same boat -- my same boat. So here is what I wrote to this one reader who -- like so many others on my journey -- has helped me by allowing me the chance to help her.

Just want to say that I think you are already dealing with the fear-of-recurrence thing because you have been surviving for as long as you have been traveling this bumpy road. So while you survive, you just need to live each day like it's your last and fight for your life at the same time. Someone once told me to think of cancer as a chronic condition -- something we will live with for the rest of your lives. And we just keep treating it, wherever it pops up. And the longer we survive, the more resources there are to help us survive even longer. As for getting through each day, I recommend counseling (I go once per month but at one time I went each week). I also take an anti-depressant (Zoloft) which I do not push on anyone, but for me, it has helped. I went to my oncologist one day and asked him how to live peacefully without worrying constantly that cancer is coming back to haunt me -- he said many cancer patients take anti-depressants to take the edge off so I began the drug and began counseling too. Neither completely take away the fear -- but they help me manage and that's all I can ask for. I also have two little boys who keep me busy and distracted from feeling sorry for myself. And I try to keep busy in other ways too. Helping others with cancer -- or others who just need help -- is healthy too!

Helping others with cancer does help me. It reminds me that I am not alone and that others have fears like me and that collectively, we can all survive better if we lean on one another and borrow from one another and inspire one another.

Journaling helps manage the madness, soothe the soul

One of the first recommendations I received after my cancer diagnosis was this -- write everything down. I was told to write down dates and times of appointments, results of tests, names and doses of medications, all procedures and protocols, every question that popped into my mind, and the general gist of what doctors and assistants and nurses and technicians told me.

Because the stuff that comes with a cancer diagnosis is overwhelming and confusing and disorienting -- and writing it all down can help manage the chaos of it all.

Continue reading Journaling helps manage the madness, soothe the soul

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