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Thought for the Day: Fighting cancer on the road

The best cancer treatment centers are not always right around the corner. Sometimes, it's necessary to travel far and wide to reach facilities offering the latest and greatest in cancer therapy. And when a back-and-forth commute is not possible due to daily or long-term treatment protocols, lodging becomes a necessity. And often, a hassle.

If you find yourself confronted with a stressful travel scenario, key into Joe's House. It's sure to ease your burden.

Think about this:

Joe's House is a non-profit organization that serves hospital staff and cancer patients in search of lodging. Founded in 2003 by Ann Calahan who for six years struggled to find appropriate accommodations during her late husband's cancer battle, Joe's House makes life a little easier for those fighting cancer on the road.

Joe's House features a centralized listing of lodging information for patients to access online or with a simple phone call (877-563-7468). For online searches, a drop-down menu allows patients, loved ones, and caregivers to locate lodging by selecting states, cities, and treatment facilities. Details on each lodging facility are available with information on amenities, rates, and reservation methods, and requirements.

I just gave this system a whirl. I chose Florida as my state, Gainesville as my city, and the hospital where I receive my treatment. Up popped four lodging locations -- two are free for cancer patients, one runs $10 per night, and the other charges $77 per night. Fortunately, I live right around the corner from my treatment center. But for those who don't, this service -- it's free -- is definitely worth trying.

Cancer hits like a brick wall, takes life of courageous man

I just finished reading the words of Mark Raymond Clements -- and the words of his wife, Marianne, written when Mark was too ill to comment. I am overcome and overwhelmed with emotion because each string of sentences filling the pages of the Clements family homepage has touched me, inspired me, and saddened me all at the same time.

Clements was diagnosed in October 2005 with cholangiocarcinoma, a rare cancer of the bile duct normally found in people in their 70s.

"There is no known cure," writes Clements. "It does not respond well to chemotherapy. It is fast moving."

And fast moving it was. Surgery -- rarely a good option for this cancer -- was attempted but without success.

"After they opened him up, they discovered that the cancer had just spread too far," Marianne writes. "They closed him back up."

Chemotherapy came next and while there were some hopeful moments -- "overall distribution of the disease has decreased" -- the overwhelming course of Clement's disease continued on a fast track. And by June 2006, Clements realized, "the cruel reality of CANCER hits like a brick wall," when a CT scan revealed the presence of as many as 20 new tumors in his liver.

The Clements family never abandoned hope and were steadfast in their faith as cancer continued to dominate their lives. In October -- one year after diagnosis -- when Marianne believed doctors were sending a let's make you as comfortable as we can message, the family began pursuing alternative methods. But by December, when it had become clear treatment of any kind would no longer help, Mark Clements was welcomed by the loving arms of hospice -- where he remained until he passed away on January, 19, 2007. He was 40 years old.

On the very day of her husband's death, Marianne writes, "I know I am not alone in feeling complete anguish at this time. I know it will lessen over time. I know I will not understand 'why' until I'm with him again, but what I do know is that Mark loved me. He loved his children. He loved his family and friends. He will be waiting for me with our loving Father in Heaven. And we will be together again. Our Father in Heaven is aware of our pain and will comfort us still as he has through this past year."

And these are just some of the words that have has touched me, inspired me, and saddened me all at the same time.

Journey Through Cancer: Beverly Is Every One Of Us

Beverly called Dr. Jeremy Geffen in a state of panic. She had just been diagnosed with breast cancer that had spread to her lymph nodes, just had her breasts removed, and was terrified of her recent diagnosis -- high grade infiltrating ductal carcinoma.

Beverly, age 44, was told by her doctor that she would need chemotherapy and radiation. She had heard horrible stories about chemotherapy. And having never been sick a day in her life, she was scared. So when a friend told her about a caring doctor she heard speak at a conference, Beverly knew she had to locate him. She tracked down his phone number, picked up the phone, dialed, got Dr. Geffen on the phone, and asked him to help. He did.

Beverly was a complete stranger to Dr. Geffen, author of The Journey Through Cancer: Healing and Transforming the Whole Person. Yet she was like so many people he knew -- people with cancer, confronted with the greatest challenges of their lives, seeking more than just physical remedies, grasping for someone who really cares.

Dr. Geffen received calls like Beverly's every day. And the number of calls seemed to increase with time. It's no wonder really. Cancer is a growing presence -- and more and more people like Beverly are confronting the disease. More and more people like Beverly are seeking more than just science to cure their ailments. And in an effort to harness a little compassion in their lives, patients are reaching for alternative methods of healing -- for their minds and hearts and spirits. Yet few disclose to their doctors their secret missions for fear they will be dismissed.

Beverly knew of Dr. Geffen's belief in holistic healing, his desire to treat the whole person and not just the organs and tissues and cells. So when she asked for his guidance on what treatment protocol to follow -- conventional, alternative, or complementary -- she was a bit surprised at his response.

Dr. Geffen told Beverly that conventional medicine was her best line of defense. Science tells us these methods work -- and abandoning them could be tragic. Dr. Geffen told Beverly that chemotherapy and radiation, when used skillfully and sensibly, can be truly beneficial. But he also suggested she pursue complementary therapies related to diet, nutrition, exercise, and stress relief.

Dr. Geffen believes in balance. And he teaches through his Seven Levels of Healing how we all can achieve balance when considering how to scientifically and emotionally heal our bodies.

Dr. Geffen will detail throughout the chapters of his book how Beverly represents all the strengths and vulnerabilities of the contemporary cancer patient, how Beverly is every one of us.

To read previous posts on the same topic, visit:
The Journey Through Cancer: What Is The Purpose Of Medicine
The Journey Through Cancer: Introduction
Sunday Seven: Seven Levels of Healing on Cancer Journey

Stay tuned for:
The Journey Through Cancer: State-Of-The-Art Medical Care

Digital mammography detects hard-to-catch cancers

Technology has come a long way over the years -- and now the technology behind digital mammography is allowing life-saving screenings for the toughest patients to diagnose with breast cancer.

This is no small technological breakthough. It is a critical component for lowering the breast cancer death rate the American Cancer Society reports has declined 2.3 percent each year between 1990 and 2002. Since breast cancer is a treatable disease if caught early, digital mammography will up the odds of survival for women with this disease.

Digital mammography operates according to a computer-based technique that allows for digital manipulation of a breast X-ray. It exceeds the capability of film mammography -- and is much like the comparison between digital photography versus film photography. Both work. But one works better.

Studies show digital mammograms have a lot to offer. They detect tumors better in young women with dense breast tissue, for example. They allow for ease of storage and retrieval of images. And they can easily become part of a woman's electronic medical record.

There are still benefits of traditional mammography and women are still urged to use this less expensive option. They are also urged to conduct self-breast exams and to report for clinical exams with physicians. It's the whole package that contributes to comprehensive breast health, not just one isolated test. When used in combination with all other screening methods, digital mammography makes for a more accurate overall picture.

Volunteers coming up short for cancer clinical trials

Just before my treatment for breast cancer began and during a consultation about what chemotherapy drugs I was about to receive, my oncologist stepped away from my exam room to check on something. When she returned to the room, she told me that she was determining whether or not I qualified for a clinical trial. I had no idea what this meant at the time. All I knew was what she told me -- that my prognosis was too good at that moment to qualify for anything currently under study. I did not fit a profile for anything. I was not a candidate for a clinical trial.

I now know that clinical trials are a critical component of research -- they validate a drug's success or weakness and they provide hope for many who may be at the end of their treatment rope and need something new to consider. A clinical trial is a comparison of standard treatments to newer treatments in an effort to discover better methods for the diagnosis and treatment of cancer. Doctors, scientists, and other health professionals conduct these tests according to strict guidelines set by the Food and Drug Administration -- which establishes mandatory guidelines to ensure the maximum safety of the patient.

Clinical trials rely on volunteers -- and sadly, there is a current shortage of patients willing to participate in trials. Experts say that, for the past few decades, just five to 10 percent of all cancer patients in the United States have joined a clinical trial. There is an urgent need -- because the demand for willing, eligible participants far exceeds the supply. Some experts are even recommending that the small pool of candidates that does exist be rationed to only the most important cancer studies -- leaving other studies with no hope for completion. There is no good solution in sight. But the reasons for the shortage are becoming apparent. It's not that patients are unwilling to join. It's that they are unaware, uninformed, not even sure this opportunity is possible -- because doctors are not suggesting trials to their patients. Treatment on a protocol is more demanding for doctors than routine medical care. And it costs doctors to submit to a trial. And trials burden doctors with regulations and paperwork. And some doctors worry about litigation if something experimental goes wrong. So they often don't approach the topic -- and the result is that a wonder drug may sit in a dark freezer because there are not enough people to test it. This potential wonder drug may never show promise, may never save a life, may never see the light of day.

So I guess my oncologist was ahead of the game in this matter -- she compared my diagnosis and prognosis with the needs of all available clinical trials and found that there was not match. Had she not done this, I would have never thought to ask about the possibility -- which is exactly what patients should do instead of waiting for a doctor to make the suggestion. Because it may never happen.

For more information on clinical trials, please visit the Coalition of Cancer Cooperative Groups.

Cancer survivor shares healing recipe for a healthy life

Diana Dyer was diagnosed with neuroblastoma, a childhood cancer, when she was six months old. She was diagnosed with breast cancer at age 34. She was diagnosed with a second breast cancer ten years after the first. Each cancer was treated by conventional medicine and included combinations of surgery, radiation, and chemotherapy. But because her cancer kept returning, Diana realized that for her, something other then treatment was necessary to sustain her through a long life. So she considered a healthy recipe for living -- a blend of traditional medicine and alternative methods too -- and she implemented a holistic approach to healing into her personal world. She has not had a recurrence since 1995 -- and she credits this to the changes she's made in her life. She has tipped the scales in her favor, she believes, and she shares her approach with others who want to begin a journey toward recovery and healing after cancer.

Continue reading Cancer survivor shares healing recipe for a healthy life

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