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Posts with tag moments

Searching for stillness

When I sit still in the middle of the day, I fall asleep. I'm not sure if it's a side effect of cancer or of life in general, but as a result, I keep myself moving at all times.

I'm always doing something -- writing, emptying the dishwasher, packing a school lunch, reorganizing cabinets and closets and drawers. There's always something to fiddle with, something to keep my body from crashing into a deep sleep.

My little boys have been playing with Lego all afternoon. For hours they have been content and happy and full of imagination. They've built flying boats and castles and pirate contraptions. My wish: to just sit and watch them, to absorb their words, their sound effects, their interactions.

I tried to just sit and watch, tried to hone my quiet observation skills. And then I fell sleep.

It's a dozing-off kind of sleep that creeps up on me and for brief moments, I am lost to the world, sometimes even dreaming for short periods of time. So I find I am more alert and productive in the study of my children when my mind is busy with some sort of task. It's not my ideal scenario. But I figure it's better to be awake and bonding with my boys -- even if it means I'm multitasking -- than sleeping through their special moments.

My boys are still building -- they are making flags for their ships -- and I'm awake. And writing and preparing dinner too.

Photo essay paves visual path for women who follow

Photographs tell powerful stories. They depict people and objects and landscapes and emotions in deep, meaningful ways. They capture permanent visual representations of moments in life. They paint pictures that even the most well-crafted words could not reproduce.

When Mary Ann Nilan was diagnosed with breast cancer in 2004 at the age of 40, she knew her story must be told -- through pictures. So she asked a photographer to record it all, stating, "I hope the pictures make the road easier for other women." The rest is history.

She calls it a photo essay and titles it The Diary of Healing. For 17 frames -- with photographs dominating each space and text kept to a minimum -- Nilan shares her journey that began with the discovery of breast cancer in both breasts and several lymph nodes, the journey that took her through chemotherapy, a double mastectomy, and reconstruction with implants.

Her photographs document significant stops on her physical and emotional trek. They show her bald head, the wig she wore only once and then let hang on a hook, the scars that crossed her flat chest after surgery, an injection of saline that painfully pierced the skin of her new breasts, her children measuring her hair as it grows in after chemotherapy. The photographs are both hopeful and chilling. They are breast cancer. They are more than words could ever capture.

Sunday Seven: Seven steps for surviving after treatment

I really do believe deep down in my gut that I will survive breast cancer -- that I will witness the wonder of my children growing up, that I will be married long enough that the years blur together, that I will live to a ripe old age. But I still have moments of doubt -- moments powerful enough to make me think I should not have a third child, just in case cancer comes back. To combat these moments -- that seem to surface more now that my treatment has stopped -- I try to keep busy, keep my mind occupied, keep living. My steps for surviving in the short-term include writing, journaling, exercising, relaxing, and spending time with family. But I also follow some steps for long-term survival -- steps that transcend the moment and give me purpose and direction. And here are seven of them.

Continue reading Sunday Seven: Seven steps for surviving after treatment

Kindergarten milestone sweetened by bitterness of cancer

I don't take for granted that I am alive. I am fully aware of it, consciously grateful for it, continually amazed by it. Before I was confronted with breast cancer, I still knew I could die -- in a car accident maybe -- but I thought chances were pretty good that I would make it to a ripe old age. Death was never at the forefront of my mind. I had no reason to believe that life could be snatched from me. And because of this, I am sure some pretty important moments slipped by me, virtually unnoticed. But now -- after a breast cancer diagnosis, surgery, chemotherapy, radiation therapy, and then more therapy, I realize life is not a guarantee for anyone. Me included. Even at age 36, I am not safe. I feel confident about my future -- and I believe cancer has left my body -- but my life has been threatened like never before. And that makes me wake up and take notice -- really notice -- the moments that are too important to take for granted.

My first baby boy starts kindergarten today. Before cancer, this still would have been a monumental day for us both. But now, after cancer, it's even bigger. Because I know of several moms who did not survive cancer long enough to see their children walk through their first classroom doors -- moms who thought, like me, that they would surely beat cancer and would see their kids off for every first day of school. So I am lucky to have made it to this day -- to witness the wonder of my sweet, shy, sensitive, challenging, demanding, loving boy as he leaves the comfort of home for the real world.

Two days ago, my littlest guy said, "Mommy, I love you and want to keep you forever." Joey -- the boy whose wisdom should guide him right through his first day of school -- said, "Danny, you can't have mommy forever. One day she will die, and you will never see her again." Fortunately, his harsh meaning was lost on three-year-old Danny who kept playing with whatever toy was occupying him at the time. But his meaning was not lost on me. He spoke the truth. And so I plan to soak up the kindergarten moment this morning -- and photograph it and write about it and cherish it for my days to come. And in two years, I hope to do it again with Danny as he starts off on the same path. With me by his side.

Witnessing death both heart breaking, soul strengthening

I was present for death only one time in my 36 years of life. I consider this both a bad and a good thing. It's bad because I did not want my grandmother to die -- and watching it happen made it so real, so vivid, so painful. I don't think I would have ever chosen to watch my grandma die -- to watch her slip from consciousness to coma, to observe her altered body once death arrived, to witness the movement of her body on a stretcher as it was wheeled out of the house from the bedroom I still see every time I visit my mom's house. But I think I am lucky really -- and this is the good part -- because I got to be with her during her final moments. I got to watch her body as it lay still, peaceful and calm and still breathing. I got to talk to her and although she could not respond, I believe she could hear my words. And it makes me happy to know my grandma may have known I was with just prior to her flight to heaven. And after her flight, I got to touch her cool hands. I got to feel the power of the passing of one life -- a long life -- and I got to feel the comfort of a death that was not ugly or painful or difficult. It was sad -- it's still sad -- that my grandma died three years ago. But what a privilege it was to be part of the day she left this world.

Susan DeWilde left this world in much the same way -- with loved ones by her side. She was a fighter and had conquered several rounds of breast cancer, a tumor in her spinal cord, uterine cancer, lymphatic cancer, and then leukemia, which took her life at the age of 53. I don't know this from Susan herself but from her friend, Christy Mack -- who helped her accept her death and guided her into her own final moments so that she could escape her pain and die peacefully. Christy writes about her beautiful friend and her empowering death in an article that appears in the August 2006 Oprah Magazine. Titled Friends to the End, Christy's story details how she soothed her friend, cradled her hand, and talked her through her last breaths. She helped her on her way during a time her friend feared most. Christy writes, "What she and I shared the night she died was a precious gift of friendship, emotionally profound and sacred in its perfection. It broke my heart. It strengthened my soul."

This I understand.

Remembering journey toward light at the end of the tunnel

The tunnel was long. And dark. And winding. And foggy. And ominous. It seemed to last forever -- at the time -- and at moments, time seemed to stand still. I was not sure if I'd ever pass through it and be okay -- if I'd ever see the light at the end. But I did. I tunneled through it all -- somehow -- and I came out feeling more alive than ever before. Now, some time after my escape from the fog, I am already taking for granted the fact that I am breathing, that I am healthy, that I am living. And when my fitness trainer noticed yesterday that I do not get dizzy and lightheaded anymore during my workouts -- when I once had to sit down, breathe, collect my whereabouts -- I realized that some of my progress since exiting my breast cancer tunnel is already lost on me. And I don't want to lose sight of where I was and how far I've come. I want to remember it and measure it and never forget how alive I am at this very moment. So I have started to really think about how things have changed since I felt stuck in time, in a dark place. I am thinking about my times in a hospital bed when I was barely able to stand up, barely able to walk a few steps without feeling like I would collapse. Now I can hop out of bed at a moment's notice, half asleep in response to a demanding child screaming from his bed. I am thinking about my once challenging pre-cancer exercise routine and how a time came when my legs felt so heavy I could not even contemplate walking down my street. Yesterday, I completed an hour of weight training. Today I ran for 20 minutes. Tomorrow, I go back for more weight training. And I remember feeling incoherent, unable to conjure of meaningful thoughts or sentences. And now, despite some potential chemo brain forgetfulness, I am back on track.

I have only just touched the surface. There is so much more to reflect on. So I plan to think more about my travels so I can better appreciate how I arrived at the exact place where I am right now -- where it's light and clear, where time passes at normal speed, where I feel lucky to be alive.

Sunday Seven: Seven hidden treasures found through cancer

If I could go back in time, I would not repeat my journey with breast cancer. I would choose a different path -- one free of disease and treatment and the fear that comes with it all. I would choose the route where my children would never hear me say, "mommy has cancer." The route where there would be less worry about dying, less worry about how my kids would do without me, less worry about how all my loose ends would be tied up without me here to tie them. I would choose another direction in a heartbeat. But there are some things I do treasure about my trip down breast cancer lane -- some things I do not wish to give back, even if given the chance to choose a different path. They are the hidden treasures I discovered along the way, in the midst of a harrowing, sometimes horrendous battle. There are many treasures that have come my way -- and I'm sure there are more to come. Here are seven of my valuable finds.

Continue reading Sunday Seven: Seven hidden treasures found through cancer

A simple truth, simply stated: Fun is good for the body

We just had a family water balloon toss -- me, my husband, and our two little boys. Little hands helped fill tiny balloons that were tossed and fumbled and rolled all over our sidewalk and driveway. Our game resulted in wet clothing and wet hair and lots of laughs. And when we walked inside to prepare for dinner, Joey -- five years old -- said, fun is good for the body. I told him that he is so right -- fun is good for the body, And this one fact really needs no scientific proof or validation -- although I'm sure research is out there to support this simple truth. Fun is simply good for the body. And anyone who has felt the aftermath of fun knows what I mean. It sends good vibes through the body, it relieves stress, it refreshes and recharges, it lightens the load.

So try to incorporate some fun into your weekend -- organize your own water balloon toss, fly a kite, take a bike ride, go rock climbing or sailing or swimming. Whatever you choose, consider it a gift to your body. Celebrate yourself. Celebrate life. Celebrate Independence Day. Set yourself free and enjoy all the moments you have at your disposal. And if you like what you feel, try having fun every day.

Lessons in life come at all ages, all hours, all the time

Joey has a hard time staying in bed when we put him down for the night. When we ask him why he continually gets up, he tells us that he wants to be with us -- mommy and daddy --  and that he wants to watch TV and that he's just not tired. He is five years old. And he will try anything to coax us into allowing him to stay up just a little bit longer. Lately, he's been asking serious questions he knows will take some time to answer -- like how exactly does a light bulb work? And how does lightening get in the air? And how do you build a house? Last night, his questions followed a medical path -- a cancer path really.

Continue reading Lessons in life come at all ages, all hours, all the time

Serving of chicken soup comforts the soul

I've always been a fan of the Chicken Soup for the Soul books. I've been touched, motivated, inspired and brought to tears by the short stories that lie between the covers of these books -- stories that dive into the depths of family and parenthood and work and teaching and death and religion and even cooking. They warm my heart and rejuvenate my spirit. It's been a while since I've read one of these books, though -- it's been a while since I've read any book lately -- and I think I need another serving of chicken soup. Chicken Soup for the Surviving Soul is exactly what I need.

Continue reading Serving of chicken soup comforts the soul

Journaling helps manage the madness, soothe the soul

One of the first recommendations I received after my cancer diagnosis was this -- write everything down. I was told to write down dates and times of appointments, results of tests, names and doses of medications, all procedures and protocols, every question that popped into my mind, and the general gist of what doctors and assistants and nurses and technicians told me.

Because the stuff that comes with a cancer diagnosis is overwhelming and confusing and disorienting -- and writing it all down can help manage the chaos of it all.

Continue reading Journaling helps manage the madness, soothe the soul

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