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Posts with tag newly
Posted Sep 2nd 2007 8:00AM by Jacki Donaldson
Filed under: Breast Cancer, Sunday Seven

My mom's friend was diagnosed with breast cancer the other day. Since I've already been down the breast cancer path, she asked me to send this friend a supportive e-mail. I've done this before -- reach out to someone newly diagnosed -- but it's never easy. I never know quite what to say. Somehow, I figure it out, though.
Here are seven of the messages I shared with this woman who is just beginning her journey with Paget's disease of the breast, a form of breast cancer that shows up in the nipple as an itchiness or scaling that doesn't get better.
- In the face of uncertainty, worry, and fear, here's some good news: once you gain more and more information about your diagnosis, the easier it gets. The waiting really is the hardest part. Knowing what lies ahead will give you some control over your path.
Continue reading Sunday Seven: Seven messages for the newly diagnosed
Posted Feb 15th 2007 10:00AM by Jacki Donaldson
Filed under: Breast Cancer, Cancer Survivors

I'm just waiting for the call -- the call that prompts my first visit with any number of newly-diagnosed breast cancer patients who want someone to lend an ear, a shoulder, and a few good tips for steering through a scary journey.
I am a new American Cancer Society
Reach to Recovery volunteer, trained this past Saturday and ready to help others who are slipping into the shoes I started wearing two years ago. I was first a recipient of this program -- designed to match new breast cancer patients with veteran survivors through face-to-face visits -- and I know well the comfort that comes from the support of someone not so overwhelmed by cancer. So now it's my turn to offer the comfort. And I am oh so ready.
I am armed with literature, communication techniques, gift bags for my patients, and my own official volunteer pin. And while I am a bit anxious about how my first meeting will go, I learned on Saturday that my mere presence will be enough to calm the women whose lives I am about to touch.
There is no better vision for someone just diagnosed with breast cancer than a healthy, happy woman who happens to be surviving the same disease. And so it is hope that I will spread and my unspoken portrayal of life after cancer that will inspire these women. My words will be icing on the cake. It's me these women want to see. And it's these women I want to see as I begin to reach to recovery -- a recovery I suspect will largely be my own.
Posted Oct 13th 2006 1:00PM by Kristina Collins
Filed under: Breast Cancer, Young Adult Cancers, Cancer Survivors, Survivor Spotlight
I loved Ann's story, you will too. Ann is a fellow young breast cancer survivor. She lost her mother at a young age to breast cancer. Ann has two sons and when she was diagnosed she knew that she had to handle the situation differently when it came to telling her children what was going on. When she was young and her mother was diagnosed the family tried to protect her by not giving her information about what was going on with her mom. She knows first hand how that approach, though well meaning, only made her more scared and confused. Ann has a lot of good advice to share and feels honored to share her story with us. You can also read more about Ann in her blog called The Life Journal of Geeky Gal.
Continue reading Survival Spotlight: Ann changes family history
Posted Oct 2nd 2006 3:30PM by Dalene Entenmann
Filed under: Breast Cancer, Chemotherapy, Prevention, Stress Reduction, Exercise, Radiation

For cancer survivor and Tai Chi, Yoga and Lebed Method teacher Dawn Stasko, her classes lead to more than a physical improvement in balance, a relaxing means of reducing stress, a boost to the immune system and increased energy for participants. It is a place for newly-diagnosed cancer patients, cancer patients undergoing treatments and cancer survivors to bond and find group support. Stasko accepts the initial non-belief of newcomers that Tai Chi and Yoga could possibly make a difference in the quality of their life, and is touched when they discover the classes do help.
"For me it is pure joy to have someone come into my class and say how can this help," she said with tears in her eyes and in a broken voice. "They listen to me and they are kind of hesitant and skeptical, and at the end of the class I get a 'thank you' and that makes the biggest difference in the world."
Valerie Cutshall features the benefits cancer survivors feel they have received by participating in Stasko's classes in
Yoga, tai chi classes help cancer patients survive.
Tai Chi is referred to as a graceful form of exercise and described as
meditation in motion. Yoga, when used as a form of alternative therapy to enhance flexibility, relaxation or stress relief, is a combination of breathing exercises, physical postures, and meditation. The Lebed Method focuses on healing through a therapeutic exercise and dance movement program designed for women who have had breast cancer, for all cancer patients who have undergone cancer treatments and for lymphedema. For more information, visit the
Lebed Method.
The Mayo Clinic has created the
Complementary & Alternative Medicine Center that publishes articles about Yoga, Tai Chi and other alternative therapies that can be incorporated to complement conventional cancer treatments.
You can find Tai Chi and Yoga classes in cities throughout the United States. To locate a class in your community, contact the local hospital, community center, community college, the YMCA or YWCA, health club or wellness center.
Posted Sep 26th 2006 12:00PM by Kristina Collins
Filed under: Chemotherapy, Esophageal Cancer, Opinion, Cancer Survivors
A few days ago I posted about Cathy's EC Cafe. It's a webpage designed to help those diagnosed with esophageal cancer. In that post I mentioned one of the stories I liked on the webpage written by a six year esophageal cancer survivor named Barry Bokhaut. I decided to email Barry and talk to him about his experience and any advice he might have for those diagnosed.
I think Barry's story is inspirational and can help others newly diagnosed know that survival is possible even though the statistics look grim. According to the American Cancer Society 13,770 of the 14,550 estimated cases of esophageal cancer in 2006 will die of their disease. At the current time only less than 20 percent of patients survive five years.
Barry answered the question as to why esphageal cancer is so hard to cure. "Esophageal cancer's low survival rates is in a large part due to the fact that the symptoms are very benign, and the disease is often very advanced before doctors properly diagnose it. Far too many people are told by their doctors that they are suffering from heart burn or indigestion, and are given antacids. By the time the difficultly in swallowing manifests, and the doctors get around to a full diagnostic workup, the disease is very established and extremely difficult to deal with, as it spreads quickly."
Continue reading Barry's tips for esophageal cancer survivors
Posted Sep 24th 2006 12:30PM by Kristina Collins
Filed under: Esophageal Cancer, Cancer Survivors
Cathy's EC Cafe' was started in 1995 to support those diagnosed with esophageal cancer. When Cathy's dad was diagnosed with the disease in 1995, Cathy could not find much information on the internet. Since then, The Cafe has celebrated more than ten years of providing information on esophageal cancer.
The website won the 26th OncoLink Editor's Choice Award in 2006. OncoLink site states "This award is given by the editors of OncoLink to the provider of the highest quality cancer information on the internet. Selection is based on the particular emphasis we at OncoLink place on patients and families who empower themselves with information about their disease. Your site is exemplary of this philosophy, and serves as a model for others."
You can find at Cathy's Cafe many survivor stories to read or you can join the EC-Group for a more personal touch. The information provided can help a newly diagnosed patient get all the information they need about esophageal cancer in one place.
One survivor story that I took particular interest in was Barry Bokhaut's. He also has on the website a story that he wrote called My Blue Hat. I loved his story and I really related to it being a cancer survivor myself.
Posted Aug 13th 2006 11:00AM by Dalene Entenmann
Filed under: Breast Cancer, Cancer events, Celebrity news, Cancer Caregivers, Cancer Survivors

Celebrity fashion photographer and co-founder of Dazed and Confused Magazine Rankin has launched a worldwide exhibit of his photographs conveying the special bond between women with breast cancer and the special family member or friend who comforted and accompanied them through the challenging days and nights from diagnosis to survivorship during the breast cancer journey.
Breast Friends is a photographic endeavor to capture the emotions of thirty international celebrities including Marcia Cross, Jerry Hall, Rosanna Arquette and Ronan Keating who have all been touched by breast cancer. Rankin began this campaign six months after he lost his mother Anne to lung cancer. He realized how important the bond between best friend and someone struggling to survive cancer can be when his mother died only weeks after she lost her husband, Rankin's father, to a heart attack.
Rankin is quoted as saying, "I thought my mother would have lasted another six months as she seemed so strong but the minute my dad died she deteriorated within a week." In July, supermodel Elle MacPherson helped Rankin with the initial launch of the Breast Friends campaign at the Oxo Tower Gallery in London. From there the exhibit will travel worldwide.
Posted Aug 13th 2006 10:00AM by Dalene Entenmann
Filed under: Breast Cancer, Celebrity spokesperson, Products, Cancer Caregivers, Cancer Survivors

Sing for the Cure CD is a profound musical journey chronicling the experiences of women diagnosed with breast cancer. Narrated by Poet Laureate Dr. Maya Angelou, and featuring the performances of librettist Pamela Martin, the Turtle Creek Chorale and the Women's Chorus of Dallas, the CD offers original songs that capture the emotions of ten composers.
The selections on the Sing for the Cure CD include Prelude For The Uncommon Woman; The Community's Voice; Who Will Speak?; Facing Diagnosis; Borrowed Time; The Partner's Voice; The Promise Lives On; Taking Control; Livin' Out Loud Blues; The Child's Voice; The Sister's Voice; Girl In The Mirror; The Mother's Voice; Who Will Curl My Daughter's Hair; Pursuing A Cure; Groundless Ground; Proclaiming Hope; One Voice: I Will Not Be Silent; Testimonial and Come To Me, Mother.
Live concert performances of Sing for the Cure, dedicated to those affected by breast cancer, have been held in more than 50 US cities, including Carnegie Hall in New York City. The Sing for the Cure CD is available through the Susan G. Komen Breast Cancer Foundation
gift shop.
Posted Aug 5th 2006 9:45AM by Kristina Collins
Filed under: Breast Cancer, Blogs
Breast cancer and fun usually aren't in the same sentence. At Susan and Mary's blog that is what you're going to get! Susan was diagnosed with breast cancer in the spring of 2005. These girls do take the devastation of cancer seriously. Susan lost her mom at a young age to breast cancer.
Susan says that her webpage is "quirky but serious." She wants the website to save your day and help you focus on what is good.
You'll find on the website things like Julie loves radiation! and Beth LOVES chemo and is having GREAT FUN! These girls are determined to look on the bright side and make you laugh in the process.
Posted Jul 26th 2006 8:15PM by Kristina Collins
Filed under: Breast Cancer, Cancer events, Research, Events, Young Adult Cancers, Cancer Survivors
The Young Survival Coalition (YSC) is dedicated to the concerns and issues that are unique to young women that are diagnosed with breast cancer. My involvement with the YSC came shortly after I was diagnosed in 2001. My best friend Rita found the website and I immediately went on and read post after post that was on the message board. I was so grateful to find a place where others understood. Not only were these breast cancer survivors but they were my age! Deb was the first girl I met online. We both were newly diagnosed and scared. She helped me so much because she had started her chemotherapy treatments a week before me. I got all the details and was much less scared when it was my turn.
The YSC was founded in 1998 by three young women under the age 35 that had been diagnosed with breast cancer. They realized that there was really no where for them to go for support and information. It was very disheartening to also realize that there were hardly any studies done on women 40 and under with breast cancer.
The YSC seeks to change all that through action, advocacy and awareness. Young women diagnosed with breast cancer face higher mortality rates, fertility issues and the possibility of early menopause.
The annual YSC conference is something that shouldn't be missed if you are a young survivor or a family member of a young survivor. To find out more information about the upcoming 2007 YSC conference go here. I have been to four conferences so far. It's a great feeling to know you're not alone.
Posted Jul 12th 2006 12:00PM by Dalene Entenmann
Filed under: Breast Cancer, Products

If you are looking for an inspirational gift for a woman newly-diagnosed with breast cancer -- or for a breast cancer survivor -- Elisa Ilana Custom Designs sells exquisitely beautiful hand-crafted one-of-a-kind jewelry. As they advertise, nothing is mass produced as each piece is carefully made by hand, one at a time in their studio, and each piece is made with the finest metals, semi-precious stones, crystals, and handmade glass and lampwork beads available. The breast cancer bracelets are made from the highest quality Swarovski crystal, sterling silver and 14 karat filled gold balls.
The
Spectacular Cancer Awareness Bracelet has been featured in Vogue, In Style, W, Bon Appetit, Vanity Fair, Lucky, and Architectural Digest. The company guarantees that the jewelry is made to be sturdy and long-lasting.
Being surrounded by beautiful things and having treasured reminders of love and joy lift the spirit. I know each gift I was given carried me through the grueling days when I was struggling through cancer treatments. It wasn't always jewelry, and it never has to be jewelry, but if you are considering jewelry, when I discovered the Elisa Ilana cancer awareness jewelry collection I thought the jewelry was delightful. And very pretty.
Posted May 3rd 2006 10:18AM by Dalene Entenmann
Filed under: Melanoma, Prevention

In 1995, Sam Donaldson was diagnosed with melanoma when a tumor was discovered in a lymph node in his groin.
Donaldson blogged during last year's
Blog for Hope
event, where celebrities and public figures shared insights and personal stories of how cancer has affected their
lives. Donaldson, a veteran investigative journalist, currently appears on the Sunday morning television talk show,
This Week with David Brinkley. Donaldson blogged about joining the cancer club. As he pointed out, no one volunteers to
join the cancer club but you are automatically enrolled if you are diagnosed with cancer. Once a member, there is
important work to be done by the members.
"We work to obtain more money for research into the causes,
prevention and cures for cancer and for the alleviation of suffering from cancer. But there is something else that
those of us in the club can do." It is perhaps the most important task of being a member of the cancer club.
Donaldson explains it by sharing his personal experience. Donaldson, who reports news, became news with his cancer
diagnosis. Shortly after, a senator he did not know very well, called and said to Donaldson, "I read that you have
melanoma. Let me tell you, six years ago I had a number of melanoma lesions removed and I'm just fine today. You will be
too."
Donaldson said that was one of the most important telephone calls he ever received -- one he has
never forgotten. When I was in the hospital recovering from cancer surgery, a nurse came into my room and shared her
seven-year cancer survivorship story. She was there to let me know there was hope -- that I would be fine. It was the
turning point in my recovery, and it is the moment I will never forget. As cancer survivors, we have important work to
do. Reaching out to the newly-diagnosed is one of the most important tasks because it brings hope. Hope can be the most
powerful healing tool of all.