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Posts with tag nonprofit

American Cancer Society files smoking lawsuit

The American Cancer Society (ACS) of Ohio has filed a lawsuit challenging the state's workplace smoking ban. The ban exempts some military veterans' halls and other private clubs -- and the ASC says this is not OK.

The exemption waters down the law and exposes people to secondhand smoke, say ACS spokeswoman Wendy Simpkins.

The smoking ban was approved by 58 percent of voters in November, took effect in December, and will result in fining beginning the first week in May. The law prohibits smoking in most public places, such as restaurants, bars, and office and excludes tobacco shops, designated hotel rooms, and enclosed areas of nursing homes. Halls and clubs can be excluded from the law only if there are no employees.

Jay Carey, spokesman for the state Health Department, says public health officials have the authority to set rules for enforcement. They ultimately decided that VFW halls and other private clubs were exempt if they had only members as employees. For the exemption to apply, such clubs also must be nonprofit and in a freestanding building. No nonmembers or children under age 18 can be present.

The ACS argues that the state rules are confusing and make the law unworkable.

Cancer returns home

After several weeks of hiding and down time, a few weeks ago I made an official announcement to the non profit organization that I founded Indie Music For Life and its two entities Laughs For Life and Indiegrrl. I dropped off of this blog page for a month and am ready to write again. I needed a break. A break to sort through things. To sort through life.

When you or a loved one are diagnosed with cancer it changes your life. Finding out you have cancer takes your breath away and from that point your breath is the most valuable thing to you in your life. Breath and time. Nothing is normal any more. Not your dreams, your nightmares, and not your waking moments.

A personal diagnosis of chronic myloid leukemia in February sent me into a whirlwind of emotions. At that point, all the fear, terror, and stomach knots from my past rounds of cancer came back. Nobody free of cancer could ever appreciate how utterly devastating the news of contracting it could be and the news that it has returned is even more devastating because you know what uphill climbs you must make again. Once you have been diagnosed with cancer you always look over your shoulder for the beast to return. He has caught up with me several times now and so I am speeding up in my race trying to see who is the best long distance runner. Every ache you feel or every little un-ordinary thing that happens with your body sends you into " What If " mode. It is extremely hard living in that mode of thinking but you can't avoid it.

My past struggles with cancer were very private. But then I was not the head of a non profit organization that raises money for cancer research and educational awareness on the powers of music and laughter as therapy for cancer patients. I wasn't the head of the largest networking group of female songwriters known as Indiegrrl that has since become a part of Indie Music for Life. Laughs For Life had not even been thought of yet and now with the direction and help of good friend and comedian Shelly Ryan it is now a reality. I hadn't even started my music career. Having cancer is what lead me to pursue my career in music and chase my dreams. It wasn't until I started working on my CDs that my cancer became really public other than with my close friends and family and then working to set up the Indie Music For Life non profit put it out there even more.

Continue reading Cancer returns home

Fit2cure rhabdomyosarcoma

In July I had written a post titled Raising awareness about alveolar rhabdomyosarcoma, about a young adult named Karin who was diagnosed with the disease in December of 2001. Karin created a blog to raise awareness for alveolar rhabdomyosarcoma. She continues to raise awareness and now she is setting her goal even higher, to raise money to research the disease.

In October of this year Karin Isabelle Dubois founded Fit2cure. It is a non-profit organization selling stylish products and apparel. The Fit2cure team is currently in its product development phase for their online store. Karin is realizing how hard it can be to get all this going, however with the help of her family and friends the Fit2cure products will hopefully be available soon.

Save the link in your favorites and check back later to order some of Karin's merchandise to support rhabdomyosarcoma research!

Cancer help delivered to mailbox, for free

Living Beyond Breast Cancer (LBBC) -- a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life -- recently began offering a new resource for breast cancer survivors, for both the newly diagnosed and those with metastatic disease.

"The first few weeks after diagnosis can be extremely difficult emotionally, and women with advanced disease often do not get the support and resources they need," said Jean Sachs, LBBC executive director. "We want to give them an understanding of their choices to help them make informed decisions regarding their physical and emotional health."

This understanding comes in the form of a 28-page brochure -- What to expect . . . today, tomorrow and beyond: Steps for coping with the medical, emotional and practical concerns of breast cancer -- available free on the Internet or by request. This guide, a road map, addresses topics such as coping with the news of a new diagnosis, telling family and friends, understanding pathology reports, choosing a medical team, asking for help, and finding support.

LBBC offers multiple addidtional resources -- including specialized navigation tools on its website that lead to a wealth of information. Visitors can Learn More about LBBC. They can Stay Informed through news, message boards, and other resources. They can Participate in events and programs. And they can Support LBBC through volunteer efforts and financial donations.

LBBC was founded in 1991 by a radiation oncologist who focused exclusively on meeting the needs of women post-treatment. She ran the organization out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer at the time, and so she tried to fill the void. In 1986, an executive director came on board, increased the LBBC budget from $100,000 to $1.8 million per year, expanded all programs and services, and worked to secure LBBC as a solid, dependable resource for all women, of all stages of breast cancer and in all phases of treatment and recovery. And now, in 2006, that is exactly what it is.

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