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Thought for the Day: The Five Gifts of Illness, a book

Jill Sklar was diagnosed with Crohn's disease, a debilitating gastrointestinal condition, when she was twenty. Jill set out to investigate how others who have survived the diagnosis and treatment of a chronic life altering illness perceived themselves -- and the effect of that illness on their life.

The Five Gifts of Illness: A Reconsideration is the result of Jill's investigation. She interviewed over one hundred individuals who had suffered a wide variety of illnesses. Sklar discovered that five gifts emerged as common denominators among the survivors. Those five gifts form the heart of this book.

You can purchase the book on amazon.com.

Five first steps of life with cancer

When: Tuesday, August 21, 2007, 7 p.m. Eastern (4 p.m. Pacific)

Where: On the Internet
How will chemotherapy change my body? What are the survival rates for my type of cancer? How often should I get tests done?
A new cancer diagnosis can mean countless new questions.

Bring your worried mind to a informative show on the five steps you can take to deal with a new cancer diagnosis. The Young Survival Coaltion will help you think through decisions about everything from protecting your fertility to getting a second opinion and paying for treatment. You'll learn day-to-day coping techniques, become more aware of the resources available to you and feel more confident as you become a more aware and more empowered patient.

The guest experts will answers questions from the audience.
You can register here.

Merv Griffin dies of prostate cancer at age 82

When my husband told me today that Merv Griffin had died, I was running on my treadmill, doing my part to pound out any chance that cancer will pay me a return visit. On my MP3 player the song Bad Day by Daniel Powter was blaring. Sweating, halfway through my second mile and feeling quite strong, I heard the words -- "Did you hear Merv Griffin died?"

No, I had not yet heard. All I was hearing were these lyrics:

You had a bad day
The camera don't lie
You're coming back down and you really don't mind
You had a bad day
You had a bad day

Continue reading Merv Griffin dies of prostate cancer at age 82

Prostate cancer prognosis not good for Merv Griffin

Merv Griffin, creator and producer of TV game shows Jeopardy! and Wheel of Fortune, announced in July that he'd been diagnosed once again with prostate cancer. Hospitalized after the cancer recurrence was detected during a routine examination, Griffin was reportedly doing fine. New reports indicate Griffin's prognosis is not so fine, although his reps won't confirm of deny this.

It is clear Griffin is still in the hospital. Sources close to him say he is putting all his strength into fighting this battle with cancer.

In lieu of sending him flowers, Griffin asks that well-wishers donate to the Young Musicians Foundation -- an organization he chairs. Also, messages can be sent here.

Be wary of alternative health methods

This article can be found at Quackwatch.com. It is important to me to get out information on what constitutes as alternative medicine and why it can be fraudulent. Consumers need to be aware. You will inevitably come across those that promote cures for cancer and other ailments.

In the article Steven Barrett, MD classifies Alternative medicine in three different ways:

  1. Genuine -- these alternatives have met science based criteria for safety and effectiveness
  2. Experimental -- these alternatives are unproven but have a plausible rationale and are undergoing responsible investigation.
  3. Questionable -- these alternatives are groundless and lack a scientifically plausible rationale.

Another way Dr. Barrett describes the different alternatives methods are:

  1. Those that work
  2. Those that don't work
  3. Those we are not sure about

Most of the alternatives fall into the --Those we are not sure about category.

.

Continue reading Be wary of alternative health methods

Meg Ryan movie brings breast cancer to big screen

Apparently the movie In the Land of Women is playing somewhere in the United States -- it was released on April 20 -- but I can't seem to find it in my area. I want to find it, though, because it stars actress Meg Ryan as Sarah Hardwicke, a woman rediscovering herself as she recovers from breast cancer.

Breast cancer is not the main theme in this movie. It's mostly about a successful writer, played by The O.C.'s Adam Brody, who loses a girl, moves to a new town to care for his grandmother, and finds a new girl. Her mom is Sarah Hardwicke.

I learned about this movie just today while reading an interview with Meg Ryan in the May 2007 issue of Redbook.

Continue reading Meg Ryan movie brings breast cancer to big screen

Oncotype test for breast cancer influences treatment choices

Women with hormone receptor-positive breast cancer who have negative lymph nodes can take advantage of a test known as OncotypeDX. This test is used to estimate the risk of cancer recurrence in women diagnosed with early stage breast cancer. Results presented at the 2007 annual meeting of the American Society of Clinical Oncology said that the test results changed the oncologist's treatment decisions in about 31 percent of cases.

The test is useful in determining which patients are likely to benefit from chemotherapy in addition to hormonal therapy. It can predict the risk of a patient experiencing a recurrence up to ten years following diagnosis. The patient receives a Recurrence Score that ranges from 0 to 100, the higher the score -- the greater risk of recurrence.

This a great way for oncologists to be able to give individualized treatment -- instead of one size fits all. It's important to get chemotherapy if needed but physicians don't want to over-treat and have the unnecessary risk of side effects from chemotherapy treatment if it's not warranted.

Thought for the Day: What kind of world do you want?

John Ondrasik, the man and musician behind the band Five for Fighting, has released a new album and a new website that just happens to benefit the Breast Cancer 3-Day, a 3-day, 60-mile walk sponsored by Susan G. Komen For the Cure.

Think about this:

Ondrasik's new album, "Two Lights," features a song called "World" which is in heavy rotation on pop radio stations across the country. This single is the inspiration for Ondrasik's new website, What Kind of World Do You Want -- the first video community that gives back by allowing visitors a chance to make a difference.

This is how it works: reveal what kind of world you want and help raise money for charity by watching videos or creating and uploading a video of yourself, your friends, or your family. In your video, answer the question What Kind of World Do You Want? and then choose which charity you wish to help fund.

In addition to the
Breast Cancer 3-Day, selected charities include the Fisher House, Save the Children, Autism Speaks, VH1 Save the Music Foundation, and NY Police and Fire Widows & Children. Video clips describing each charity, a message from Ondrasik, and a video of the song "World," are all featured on the site.

Obese prostate cancer patients have poorer survival

An article recently published in the journal Cancer says that middle-aged men who are obese at the time of diagnoses of prostate cancer have a significantly worse overall survival than those who are not overweight.

Researchers from the University of Washington and the Fred Hutchinson Cancer Center recently conducted a clinical study to further evaluate potential associations between obesity and outcomes among patients diagnosed with prostate cancer. This study included 752 middle-aged men diagnosed with the disease.

They concluded that the men with the highest body fat had an approximate 2.5 fold increase in risk of death from prostate cancer. Also, the obese men had a 3.5 fold increased risk of metastasis.

Thought for the Day: When options run out

Today I offer you not so much a Thought for the Day but a Question for the Day. Before I ask my pressing question, though, I want you to consider this story.

Diagnosed with a rare malignant melanoma on her retina in 2001, Ann Guthrie, a South Carolina wife and mother of two grown sons, endured radiation and chemotherapy. The treatments shrunk Guthrie's tumor, but another mass appeared two years later, forcing the removal of her right eye.

At about the same time Guthrie lost her eye, cancer was discovered in her lungs. It was inoperable. Then cancer landed in her brain. And now, without any approved treatment avenues, Guthrie is out of options.

Like many people with terminal illnesses, this woman is willing to try just about anything -- a clinical trial, experimental drugs, risky treatments -- to extend her life. If she's going to die anyway, why not? She just might live longer. And if she doesn't, she could at least help advance science by offering herself up as a sort of guinea pig.

While the Food and Drug Administration (FDA) has proposed changes that would make it easier for patients to access options like these, it's just not that simple right now.

There are ethical issues -- like weighing the needs of people who think anything is better than death against the need of society to prove drugs and treatments work safely. The only way to ensure a sort of balance is through clinical trials -- and letting anyone participate in clinical trials, for example, would make the results harder to interpret.

And there are medical and legal risks. What if terminally ill patients end up in worse shape after a treatment with an experimental drug, for example? What if the FDA or a physician is considered responsible for adverse drug reactions?

Denying terminal patients their last bits of hope is difficult. "It's a hard discussion to have with a patient and his family," says one doctor. "There's a lot of tears. We all would love to be able to get them access to some form of therapy."

And now for my question:

What do you think about terminally ill cancer patients and their access to anything that might extend -- or save -- their lives?

Red meat may increase risk of pre-menopausal breast cancer

Its not like we haven't heard bad things about red meat before -- I came across this study that says the intake of red meat was associated with a significant increase in the risk of pre-menopausal estrogen positive breast cancer but not estrogen negative breast cancer.

Having been diagnosed with pre-menopausal breast cancer myself, I know that there are many factors that could have caused my disease. I do not spend any significant time on these thoughts. I look ahead and do what I can now to keep myself healthy.

I do think the study is good information for women to read who have an increased risk of breast cancer. Maybe watching their diet more closely can help them prevent breast cancer, but there is no sure way we know to prevent it. I still eat meat and enjoy it very much but I love fish and chicken also.

I really liked Jacki's take on red meat -- Uncertain about red meat

End of life pain management with opioids

There is a general belief that opioid use to control pain around the time of death causes the patients to die sooner. "Hospice providers, families, and patients should not be afraid of opioid drugs because of the belief that their use to control pain shortens life" says, Dr. Russell K. Portenoy, of the Beth Israel Medical Center, New York.

Dr. Portenoy and his colleagues examined the relationship between opioid use and survival using data from the National Hospice Outcomes Project (NHOP).

After analysis of all the factors, opioid use accounted for very little in differences of times of death. He believes that opioid therapy by itself contributes very little to the time before death occurs in hospice programs.

"Opioid drugs," Portenoy concludes "can be used aggressively at the end of life to relieve pain and suffering, and this use should not be constrained by inappropriate fear of serious consequences like earlier death".

NASCAR champion Benny Parsons dies of cancer

Former NASCAR champion Benny Parsons, hospitalized on December 26 due to complications from lung cancer, died today in Charlotte, North Carolina after a short battle with the disease. He was 65.

Parsons, who had not smoked since 1978, was diagnosed with cancer in his left lung in July 2006. He underwent aggressive chemotherapy and radiation and announced in October that he was in remission. But the intensive treatment rendered his left lung useless and then a blood clot appeared in his right lung, prompting his admission to the hospital where he spent his remaining days in an induced coma.

Parsons was confident he could survive with one lung and compared his condition to that of John Wayne.

"John Wayne lived and had a great career with one lung," he said. "There is no reason why I can't do the same. It will take a little while for the right lung to pull the weight for the left lung so until then I will still need to use oxygen when I walk. I won't need it sitting or commentating races and to me that is the main thing. If given a choice between cancer or losing a lung I would say that I got the right end of the deal."

Parson's intense spirit was his trademark. It motivated him to rise from a poor childhood, leave behind a taxi driving job, and head straight to the top of NASCAR. His success is marked by his 1994 induction into the International Motorsports Hall of Fame and his 1995 induction into the National Motorsports Press Association's Stock Car Racing Hall of Fame.

One of NASCAR's 50 greatest drivers and the 1973 champion, Parsons retired from racing in 1988 and headed straight into a broadcasting career. He spent the past six years as a commentator for NBC and TNT and even continued to call races from the booth during his treatment. He hosted a weekly radio program and kept fans updated on his condition on his very own blog.

Judging by the comments left for Parsons on a January 8th post about his hospitalization, there was an abundance of love for this man, nicknamed BP by the NASCAR community.

"He was a great driver and a terrific broadcaster, but above anything else he was a kind and generous human being," said Dick Ebersol, chairman of NBC Sports. "His character and spirit will define how he is remembered by all of us. Benny will be sorely missed."

Parson's death comes eight days after the death of NASCAR driver and Truck Series Champion Bobby Hamilton.

Jazz saxophonist Michael Brecker dies of cancer

Michael Brecker, Grammy Award-winning jazz saxophonist who performed with the likes of Joni Mitchell and Herbie Hancock, died Saturday of cancer. He was 57.

Brecker, considered one of the most influential saxophonists of the past 25 years, died at a hospital in New York City as a result of
myelodysplastic syndrome -- a form of cancer in which the bone marrow stops making healthy blood cells.

The Philadelphia native, who began his solo career in 1987 with a self-titled debut recording that turned into Jazz Album of the Year, was forced by his illness to stop playing music at times. So he channeled his creative efforts into raising awareness of a very important cause -- bone marrow donation.

Brecker is survived by his wife, Susan; his children, Jessica and Sam; a brother and a sister.

Young author of Nordies at Noon dies of breast cancer

Co-author of Nordie's at Noon, Jana Larsen Peters, passed away on December 9th at the age of 35. She battled breast cancer for eight years.

Jana was a registered nurse who learned about the importance of performing monthly breast self-exams (BSE) during college, where she attended the University of Kansas and was active in the Delta Delta Delta sorority. She later transferred to Washburn University, from which she graduated with a Bachelor of Science degree in nursing.

Jana's breast cancer diagnosis came shortly after she became engaged to be married. At 27 yours old, while in the midst of planning her wedding, she underwent a mastectomy and chemotherapy. Her cancer spread to her bones 18 months later. In October of 1999 Jana founded the Ribbons of Pink Foundation, a nonprofit organization with the mission of promoting breast health and supporting young breast cancer survivors.

Nordie's at Noon shares the personal stories of four young professional women diagnosed with breast cancer at the age of 30 or younger. Once a month, Patti, Jana, Jennifer, and Kim met at Nordstrom's Cafe for lunch. It was their special place to laugh, cry, support, and educate each other -- and celebrate the journey of life after a cancer diagnosis.

Nordie's at Noon encourages women to be proactive with their health, and to realize that no one is too young for breast cancer.

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