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Thought for the Day: We just don't get it

Last Tuesday night, I watched Greta Van Susteren of Fox News' On The Record as she interviewed Brittany Lietz, Miss Maryland 2006. Greta asked Brittany what her Miss Maryland job entails. Brittany told Greta her full-time job is to represent her platform -- skin cancer.

Brittany didn't choose just any topic for her platform. She chose one that is entirely personal.

Skin cancer has left more than 20 scars on Brittany's body. One, on her back, marks the site where a stage two melanoma was removed when she was just 19 years old. It presented as a mole, a little smaller than a nickel, she says. In all likelihood, the cancer was caused by two years of tanning bed use. Brittany says she probably tanned every day for two years. Her pursuit of bronzed skin began when she was 17 and wanted a tan for her prom. It ended after doctors told her she had cancer.

Continue reading Thought for the Day: We just don't get it

Cancer on my mind

Cancer on my mind is an article written by Dr. Albert Lim Kok Hooi, a consultant oncologist. He opens his article by saying:

As a doctor, I am interested in how the human mind works. As an oncologist, I am interested in the lure of alternative medicine. And so I have tried to understand why, in spite of all the scientific evidence at hand, there are many amongst us who do not want to undergo conventional cancer treatment – surgery, radiotherapy, chemotherapy and targeted therapy – but instead risk being treated by unproven and potentially dangerous alternative therapies.

He goes on to say that this happens because sometimes science is not very well understood. He talks about confirmed bias, a phenomenon in cognitive science, the science of how the mind works. He describes it as a person that -- notices the hits and ignores the misses in support of his own beliefs. So, basically someone might have a strong bias against chemotherapy, for no other reason than what they have seen on television, without really knowing the true facts.

Continue reading Cancer on my mind

Sunday Seven: Seven bits of borrowed wisdom

I'm sharing seven bits of wisdom this Sunday that are not my own. I am borrowing them from Pat McRee who has collected all sorts of survivor stories, affirmations, quotations, poetry, lyrics, and resources, has wrapped them with a bunch of hope and humor, and has packaged them in a box she calls Support to Go, The Unbook for the Journey through Breast Cancer.

McRee's colorful, lively box contains 80 cards. And on each card is some type of tip, idea, recipe, myth, truth, and essay that makes the breast cancer road easier to travel.

Live it. Learn it. Pass it on. That's what McRee says -- and exactly what she did when she stacked her deck of cards with such meaningful and magical material.

There is no way I could easily choose seven cards from my own box of support -- there's just too much good stuff, and it all deserves equal attention. So I drew seven random cards from the pile that sits before me, and this is what I got.

Queasy Made Easy
This card lists menu items targeted for the chemo tummy. A registered oncology nurse for 20 years, Betty Dozier shares what she has learned about what to eat -- clear, cool drinks, fruit juice, plain baked potatoes, Cold canned or fresh fruit, saltines, rice, toast, clear broths, sherbet, Popsicles -- and what not to eat -- gravy, sauces, potato chips, sour cream, heavy creamed soups.

Safety in Numbers
McRee doesn't put much stock in statistics and numbers generated by calculators that have nothing to do with real people. But she does believe in numbers when it comes to survival. On this card, she lists the names of genuine survivors with real numbers. She lists Shirley Weinman, a 20-year-survivor, Janice Johnston, an eight-year survivor, Linda Beebe, a 15-year survivor -- and so on.

No Smile Left Behind
McRee offers a prescription for play, an invitation to smile and laugh and rejoice in the face of cancer. "Cut eye holes in a paper bag and wear it to treatment," she says. "Tell 'em you just couldn't face another day." Another idea -- "Pass the word that everyone who enters the waiting room will get a Standing Ovation. They all deserve 'em just for showing up."

Fuzzy Logic
Check out this oh-so-true poem:

Too gray, too wavy, too doggone thick,
Smack in the front ... a big 'ol cowlick!
Split-ends and frizzies whenever it rained,
Now it's hard to believe I ever complained;
So, Lord, let's grow something! I'll nevermore whine ...
Gray, thick and wavy will suit me just fine.

Postcards
McRee provides a few postcards intended for mailing to surviving friends. One says, I hear you're patched, retreaded and approved for the road. Another says, U are not alone.

Hair Tomorrow
McRee offers a souvenir keeper for a lock of pre-chemo hair. Why not save it, says McRee, who shares that what grows back might be as different as your new life will be.

Buttoned-Up
Make your own buttons -- and wear them proudly. This card gives button wording ideas -- like Symmetry is so yesterday, Cancer: Been There, Beat That, and Stamp Out False Hopelessness.

Seven down -- 73 to go. I can't wait to read more.

Keep on Swimming

Ashley was diagnosed with Hodgkin's Lymphoma in 2003. Earlier that year Ashley felt a lump and went to her doctor immediately. She was reassured that it was most likely nothing to worry about. In July she found another lump and her diagnoses was confirmed after returning to the doctor.

The cancer had spread from her neck to her chest, left lung and spleen. Ashley underwent six months of chemotherapy. In March of 2004 Ashley was in remission.

She then dedicated her life to putting together a cancer fundraiser to raise money for lymphoma research. Ashley wanted to give something back.

One week before her Keep on Swimming Gala Ashley was told her cancer had returned. This time the cancer had spread to her neck, chest, lungs, spleen and liver. This development led to Ashley receiving high dose chemotherapy and a stem cell transplant.

Ashley was an amazing girl. I kept up with her blog called Ashley's Journal. I was so sad to hear that she passed away on April 22, 2006. She left a great legacy behind and did so much for such a young girl.

I can't really put into words how brave and admiring she was so I'm going to quote one of her postings on her blog dated February of this year.

"The words palliative and terminal have come up this week. BUT ...they always come with and IF or a WHEN!! These two words are my HOPE. I am still fighting this disease and I haven't give up or surrendered. Yes, these are very scary times but I am also witnessing my bodies amazing ability to heal"

Wrestling with cancer decisions turns up uncertainty

I can't decide what to do about my port now that my breast cancer treatment is over. It's been an on-going internal battle. I don't know whether I should leave it in place -- tunneled underneath the skin on my collarbone where it is available and accessible should I ever need further infusions of cancer-fighting drugs -- or whether I should have it removed since there is no real purpose for it right now. There is the issue of superstition and safety -- leaving it right where it is allows for easy use if cancer returns and prevents another surgery to implant a new one. But there is also the issue of moving on -- and removing it because I don't need it, because I may never need it. One doctor told me recently that it should come out because if it remains in my body, I risk infection. And anything foreign in my body for an extended period of time is not completely safe. But a cancer survivor told me that she had hers removed immediately after treatment and had to get a new one because her cancer recurred three months later.

I am accustomed to wrestling matches like this one -- like my stand-off between treatment with Taxol or without Taxol, between anti-depressant or no anti-depressant, between vegan diets and traditional diets. Sometimes I can make a good call. Sometimes I just can't decide. Like right now.

Deodorant recommended by oncologists, dermatologists

Strange things have happened to my skin ever since I encountered surgery, chemotherapy, and radiation for breast cancer. I developed an allergic reaction to the Tegaderm tape and latex used during and after my lumpectomy. My entire chest and one underarm were covered in red, itchy, burning, blistery bumps that oozed and then dried up. It took weeks of misery and a bunch of creams, lotions, and drugs to calm my skin and my anxiety too. Then I became allergic to an antibiotic while I was hospitalized for chemo-induced fever and low blood counts. The same horrible skin reaction again covered my chest and this time, my back also. It happened again a few months ago after a trip to the beach and I can only imagine that it was some combination of salt water, sunscreen, and chlorine that prompted this attack. I am still not sure of the cause. But it struck once again recently after a trip to my neighborhood pool. Sunscreen and chlorine were again my possible enemies. So I am staying away from all possible culprits now -- the tape, latex, certain antibiotics, sunscreen, salt water, and chlorine. And of course, the sun too. Perhaps treatment has made my skin even more sensitive than it already was. Perhaps something else is at fault. Regardless, I am now ultra careful about anything I put on my skin. I avoid most everything -- except for Dove soap and sometimes some fruity smelling lotion for my legs -- and I look for anything that is targeted for delicate skin.

So an advertisement in a magazine caught my eye today -- an ad for a hypo-allergenic deodorant that is highly recommended by dermatologists and oncologists. Naturally Fresh Deodorant Crystal Spray Mist and Roll On are both extremely gentle and also very effective. They are 100 percent natural and are fragrance free. They last for up to 24 hours, do not stain, and are good for one year. Like some deodorants that merely mask odor, these actually kill the bacteria that causes odor. Naturally Fresh Deodorant seems like a great find to me -- and it can be found CVS, Target, GNC, Hannaford Bros., A&P, Harmon Stores, Drug Fair, and Kerr Drug in the United States and Shoppers Drug Mart, Jean Coutu, and GNC in Canada.

George Clooney puts hands on breasts for cancer research

Get Hands On has joined with the Entertainment Industry Foundation and the Revlon/UCLA Women's Cancer Research Program, to offer a special thank you limited-edition celebrity handprint t-shirt for those who donate $45 dollars or more to the foundation for breast and ovarian cancer awareness and research programs. Available while supplies last. Contribute to making a difference for breast and ovarian cancers -- and get a conversational t-shirt in the process.

The Women's Cancer Research Fund, a program of the Entertainment Industry Foundation, was established to support research, education, and outreach programs for more effective approaches to the early diagnosis, treatment and prevention of all women's cancers. Honorary chairs include Kate Capshaw and Rita Wilson.

Fast food notion from the fast food nation icon

For a health-informed public that is beginning to demand more nutrition and less fat in the food they are served -- fast food is falling out of its once favored position of popularity as a quick meal for kids. Who doesn't think that McDonald's and the golden arches are the unofficial defining symbol for fast food?

In response to the perception that fast food is not linked to good health, along with the negative image resulting from the book and movie Fast Food Nation -- and now the publication of a children's book Chew On This, which is co-written by Fast Food Nation author Eric Schlosser -- McDonald's has announced the creation of a Global Moms Panel. Nine women from six countries will advise the company on balanced and active lifestyle initiatives, restaurant communications and children's well-being.

Translation? McDonald's wants to find out how to market to moms who are interested in their children living long healthy lives free from obesity and the nutrition-deficient food that can increase the risks for major disease later in life, like cancer. Which has the potential for being a good thing if McDonalds does offer healthier food as a result of the recommendations from moms. If it's just a public relations campaign to improve a business image then I believe the public will see through it and the effort will backfire. According to Mary Dillon, McDonald's global chief marketing officer, "We want to become the best ally we can for moms and a true partner in the well-being of families everywhere." Time will tell.

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