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Posts with tag opportunity

Reality show contestant tackles competitions, ovarian cancer

MTV is currently airing another installment of the Real World/Road Rules Challenge reality show. This season -- called Fresh Meat -- pairs former show contestants with individuals who have never before appeared on any MTV reality show. These new contestants -- the fresh meat -- compete with the veterans in tense and strenuous physical and mental challenges for an array of prizes and for a grand award of $250,000. Winning the money could be life-changing for any one of these participants. But for one woman, it could also be life-saving.

Diem Brown, 25, was cast on the MTV challenge show before hearing her diagnosis of ovarian cancer. She didn't want to regret passing on the opportunity so with two chemotherapy treatments completed and armed with medication to manage nausea and other side effects, she packed her bags and headed for Australia where her days consisted of challenging stunts and tough competition. She survived it all -- although fatigue and pain sometimes slowed her down -- and she is busy surviving ovarian cancer too.

Brown has started a foundation called Live for the Challenge -- kind of like a Make-A-Wish Foundation for patients who are stuggling with medical difficulties. And her own personal wish is that ovarian cancer -- "the disease that whispers" -- would get a megaphone to attract more attention and more research. Because one in 50 women will get ovarian cancer and with no accurate screening for this disease, it leads to tragic outcomes for many women.

It is clear that Brown is one tough contender -- both on TV and in her everyday life. And that makes her a winner no matter what.

Volunteers coming up short for cancer clinical trials

Just before my treatment for breast cancer began and during a consultation about what chemotherapy drugs I was about to receive, my oncologist stepped away from my exam room to check on something. When she returned to the room, she told me that she was determining whether or not I qualified for a clinical trial. I had no idea what this meant at the time. All I knew was what she told me -- that my prognosis was too good at that moment to qualify for anything currently under study. I did not fit a profile for anything. I was not a candidate for a clinical trial.

I now know that clinical trials are a critical component of research -- they validate a drug's success or weakness and they provide hope for many who may be at the end of their treatment rope and need something new to consider. A clinical trial is a comparison of standard treatments to newer treatments in an effort to discover better methods for the diagnosis and treatment of cancer. Doctors, scientists, and other health professionals conduct these tests according to strict guidelines set by the Food and Drug Administration -- which establishes mandatory guidelines to ensure the maximum safety of the patient.

Clinical trials rely on volunteers -- and sadly, there is a current shortage of patients willing to participate in trials. Experts say that, for the past few decades, just five to 10 percent of all cancer patients in the United States have joined a clinical trial. There is an urgent need -- because the demand for willing, eligible participants far exceeds the supply. Some experts are even recommending that the small pool of candidates that does exist be rationed to only the most important cancer studies -- leaving other studies with no hope for completion. There is no good solution in sight. But the reasons for the shortage are becoming apparent. It's not that patients are unwilling to join. It's that they are unaware, uninformed, not even sure this opportunity is possible -- because doctors are not suggesting trials to their patients. Treatment on a protocol is more demanding for doctors than routine medical care. And it costs doctors to submit to a trial. And trials burden doctors with regulations and paperwork. And some doctors worry about litigation if something experimental goes wrong. So they often don't approach the topic -- and the result is that a wonder drug may sit in a dark freezer because there are not enough people to test it. This potential wonder drug may never show promise, may never save a life, may never see the light of day.

So I guess my oncologist was ahead of the game in this matter -- she compared my diagnosis and prognosis with the needs of all available clinical trials and found that there was not match. Had she not done this, I would have never thought to ask about the possibility -- which is exactly what patients should do instead of waiting for a doctor to make the suggestion. Because it may never happen.

For more information on clinical trials, please visit the Coalition of Cancer Cooperative Groups.

Sheryl Crow adopts Eskimo diet to fight breast cancer

In the second part of the two-part exclusive interview with ABC's Good Morning America Diane Sawyer, Sheryl Crow shares she is cancer-free and feeling great as a breast cancer survivor. The diagnosis of breast cancer came as a surprise as she is not a smoker and has no family history of the disease. She received enormous support from her family and friends during treatment, whom she refers to as "this incredible tribe of women." Before Dana Reeve died of lung cancer, she gave Crow advice on dealing with the emotional aspects of being a newly-diagnosed cancer patient and dealing with the recent separation from Lance Armstrong by telling her that the only way to go through grief was to grieve.

Crow talked about meditating and changing her diet. "I kind of went into a full-on Eskimo diet, where I ate a lot of salmon. In fact, I'm salmoned out of my brains ... and really green vegetables, just eating really clean, organic food. Listen, I haven't had a doughnut in I can't remember when."

Breast cancer forced Crow into an introspective place of self-realization in facing and overcoming fears -- and the wisdom that comes with that when she said she tried to at least address her fears and not be overcome by them. "The fear of things not always working out. You come to a point in your life where you realize it's not my job to prove to my parents or to my record label or to the world or to my lover that I matter. The fact is that you matter."

"It's not a good place to be concerned with always being right with everybody, always pleasing people, because ultimately you wind up betraying yourself a lot."

Crow shared that she sees her breast cancer diagnosis and being a cancer survivor as part of life's deepening experiences where obstacles are removed and opportunities come in.

Last Friday night, Crow joined the Dave Matthews Band in a concert at Fenway Park. But before she went onstage -- in part of giving back as a cancer survivor --  she made an unannounced surprise visit to Boston's Dana-Farber Cancer Institute to visit children with cancer at the Jimmy Fund Clinic.

Millions in Florida have not received mammograms

There has been a great increase during the past 10 years in the number of women receiving mammograms in Florida. But shockingly, almost one million Florida women over the age of 40 have still not ever received mammograms. So the American Cancer Society has teamed with the Medical Quality Assurance Inc. -- and they have co-published a guide to help these women locate a mammography center that meets their needs. This guide is sorted by city and is available on the American Cancer Society website for quick and easy access.

I can only imagine how the numbers stack up in consideration of all states -- and not just Florida. I can only imagine why these one million women in my state alone have not reported for this critical test --perhaps reasons stem from lack of awareness, lack of access, lack of financial resources, lack of concern. I can only imagine that not everyone -- due to life circumstances -- can be a recipient of this potentially life-saving test. Like I was -- at the age of 34 with a small but aggressive cancerous tumor living in my left breast. My referral for a mammogram saved my life. And I can only imagine how many more women might be saved from the horror of breast cancer because a mammogram assisted in early detection. I can only imagine that the day will somehow arrive when all women -- of all ages -- are afforded the opportunity for this test. And that those who have the opportunity -- and the means -- decide to delay no further.

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