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Posts with tag organization

Rise Above It: RAI helps young adults battle cancer

Rise Above It (RAI) is a non-profit organization that helps young adults battling cancer. The strength in spirit of its founder, Colin O'Donoghue, guides RAI in its efforts. As a friend, teacher and coach, Colin deeply enriched the lives of others.

RAI continues this practice with the same enthusiasm and vigor he brought to every aspect of his life. Colin always believed that enjoying life and embracing a positive attitude were essential components of happiness. Using this principle as inspiration, RAI devises fun and positive events that raise money to accomplish its primary objective: to provide meaningful support to young cancer patients.

This is achieved by hosting fund-raising events designed to provide eligible recipients with additional resources. Using the proceeds from these events, RAI board members solicit cases to provide grants and personal consultation to individuals and families with immediate needs in their fight against cancer. Through financial assistance and personal attention, RAI strives to instill a positive attitude within its recipients, thus allowing them to live each day with faith and a fighting spirit.

Cancer cases predicted to double by 2030

Cancer cases are expected to more than double between the years 2000 and 2030, says the director of the World Health Organization's International Agency for Research on Cancer.

This upward climb will occur primarily in poor countries due to an increase in population growth, longer life expectancy, more smoking, and a lack of health care in low and medium-resource countries.

"What's going to happen between now and 2030 is that the population is going to increase from about 6.5 billion to 8 billion in 2030," Dr. Peter Boyle reports. "So even if the risks remain constant at each five-year age group, because we've got more people around, we're going to have more cases of cancer.

It's the unfortunate successes for developed countries over the past 40 years, such as the export of cigarette smoking and alcohol consumption, that have doomed poorer countries, says Boyle.

Consider this definition of doom: By the year 2030, there will be 27 million cases of cancer, 17 million deaths caused by the disease, and 75 million people living with cancer.

Drescher's Cancer Schmancer non-profit launches in June

Cancer Schmancer is what actress and cancer survivor Fran Drescher titled her 2003 novel. Now, thanks to this spunky gal, there's a whole Cancer Schmancer movement taking place, a movement that will culminate this June with the launch of a non-profit organization with the name of -- you guessed it -- Cancer Schmancer.

Drescher says Cancer Schmancer is all about the politics of cancer education and funding, screening tests, early detection, the removal of carcinogens from women's products, and the often-dismissed truth that young women do get cancer.

Drescher, who for two years fought with doctors who persisted she was too young for uterine cancer -- she wasn't -- says her organization will raise awareness and change health policy to better promote diagnosis, treatment, and prevention of womens' cancers.

Thought for the Day: Advocacy knows no borders

Advocacy runs far and wide. Thank goodness for that.

Think about this:

A new breast cancer non-profit organization has been launched especially for South Africans affected by the disease.

Founded by Samantha Galliet, the 31-year-old breast cancer survivor who made headlines with her "David and Goliath" battle to get life-saving Herceptin treatment, created PinkLink to give patients affected by breast cancer a voice.

PinkLink, focusing on the need for self-examination and awareness to encourage prevention and early detection of this silent epidemic, is intended to be a one-stop-shop with valuable South African based information on doctors, treatments, financial considerations, and health issues.

Instant messaging for a cause

Here's an easy way to make a charitable difference -- send an instant message.

Students at 35 colleges and universities are doing it, and it's turned into a great way to create awareness and raise funds for nine nonprofit organizations.

The organizations -- American Red Cross, Boys and Girls Clubs of America, National AIDS Fund, National Multiple Sclerosis Society, ninemillion.org, Sierra Club, Stopglobalwarming.org, Susan G. Komen for the Cure, and U.S. Fund for UNICEF -- receive a portion of advertising revenue every time a student has a conversation using instant messaging (or i'm).

It's all part of a Microsoft-sponsored campus program, and students get to choose their recipient organization each time they send an instant message.

There is no cap on the amount each group can receive, and Microsoft will make a guaranteed donation of at least $100,000 to each organization during the first year of the program.

Visit www.imforacause.com for more information.

Sunday Seven: Seven truths about colorectal cancer

A little bit of education goes a long way, especially in the war against cancer. Armed with facts and figures and know-how, we can help advance prevention and early detection of this deadly disease.

So in the spirit of National Colorectal Cancer Awareness Month, here are seven truths that serve to broaden your horizons about the third most common cancer found in men and women in this country.

As you read these truths, be aware that the death rate from colorectal cancer has been on a downward climb for the past 15 years due to better screening, fewer diagnosed cases, early detection, and more advanced treatment. Keep in mind that you can help keep this trend going by raising your own awareness and by taking action on behalf of yourself and your loved ones.
  • Colorectal cancer refers to cancer that starts in the colon or rectum. These cancers begin in the digestive system where food is processed to create energy and rid the body of solid waste matter.
  • Colorectal cancers develop slowly over a period of years and mostly begin in the form of polyps -- growths of tissue that start in the lining and grow into the center of the colon or rectum. Removing polyps early may prevent them from becoming cancerous. More than 95 percent of colon and rectal cancers are called adenocarcinomas.
  • For people of average risk, screening is recommended beginning at age 50. Those whose risk is higher than average should talk with a physician about appropriate screening.
  • Screening is used to detect disease in people who do not have any symptoms. In many cases, screening tests find colorectal cancers at an early stage and greatly improve the chances of successful treatment. Screening tests can prevent some cancers by allowing doctors to find and remove polyps that might become cancer. There are several tests used to look for colorectal cancer. Ask your doctor what test is best for you.
  • Treatment for colorectal cancer includes surgery, radiation therapy, chemotherapy, and newer targeted therapies.
  • The American Cancer Society predicts there will be 112,340 new cases of colon cancer and 41,420 new cases of rectal cancer in 2007 in the United States. Combined, the diseases will cause about 52,180 deaths.
  • The Colorectal Cancer Coalition -- or C3 -- is a national organization whose mission is to eliminate suffering and death due to colon and rectal cancer through advocacy. Visit here for more information.
The material shared in this post was gathered from the websites of the American Cancer Society and the Colorectal Cancer Coalition.

Dana Reeve honored on one-year anniversary of death

It's been one year since Dana Reeve, wife of the late Christopher Reeve, died of lung cancer at the age of 44. And the grace of this woman, who came to represent the non-smoking population of lung cancer victims, is being honored by the Lung Cancer Alliance.

"Lung Cancer Alliance extends its most heartfelt thoughts to the family
and friends of Dana Reeve," says Laurie Fenton, president of the alliance.

"Dana's beauty, grace and valiant struggle against lung cancer will remain indelibly etched in our hearts and minds. In her memory -- and in the memory of loved ones lost to this disease, smoker or not -- let us come together to replace decades of stigma and neglect with hope, greater compassion and support for those living with or at risk for this disease. It is the right thing to do."

The Lung Cancer Alliance
is the only national non-profit organization dedicated to patient support and advocacy for those living with lung cancer, the number one cancer killer.

Lung cancer takes more lives -- about 160,000 Americans this year -- than breast, prostate, colon, liver, kidney cancers and melanoma combined.

Lesbian and bisexual cancer survivors: Creating Safe Spaces

Unique Issues of Lesbian and Bisexual Cancer Survivors is a panel discussion hosted by the Young Survival Coalition and The Mautner Project. It is a free national teleconference to discuss the unique and various ways a cancer diagnosis affects young lesbian and bisexual women.

Feel free to join health care professionals and survivor advocates as they address various issues faced by young lesbian and bisexual women throughout their cancer experience.

Topics will include:

  • Finding the support and resources you need
  • Coming out to health care providers
  • Tips on finding a culturally competent provider
  • How chemotherapy may affect fertility
  • Understanding fertility options for cancer survivors
  • Coping with physical changes after cancer treatment

Date: Tuesday, March 20, 2007

Time: 8:00 pm - 9:30pm ET

RSVP: diversity@youngsurvival.org or 649-257-3006

Upon registration you will receive a teleconference call-in number.

LIVESTRONG notebook offers organization, guidance

I used a written journal and then a blog to record the stops along my cancer journey. I kept a file for financial paperwork, and I made lists of questions in anticipation of medical appointments. I saved all prescription instructions to track the abundance of drugs entering my body, and I earmarked a large white cardboard box as my cancer treasure chest. The contents of this box include cards, gifts, newspaper clippings, books, literature, and more. It's practically spilling over with stuff -- the stuff of cancer.

My system -- which may seem a bit unorganized and splintered -- worked well for me as I tried to keep my head above water following my cancer diagnosis. For others, a more central system may work -- a system that incorporates all pertinent information in one convenient location.

The LIVESTRONG™ Survivorship Notebook, offered by the Lance Armstrong Foundation, is one option for those seeking a clean, concise way to manage the details of cancer. It's designed to organize and guide. It's portable. It's available for the cost of shipping and handling only. And it includes the following:

Survivorship Tools -- this section includes a personal health journal, an appointment diary, a list for medications, a summary section for health and financial information, and a medical history and treatment area.

Survivorship Stories
-- this section features stories of cancer survivors that will inspire and empower.

Survivorship Topics -- this section offers readings, answers to questions, and resources about physical, emotional, and practical issues related to cancer.

This yellow notebook -- a symbol of one man's fight and victory against a mighty disease -- could be the perfect accessory for someone facing the unknown. Sometimes all it takes is a bit of organization to calm nerves, minimize anxieties, soothe fears, and instill a sense of control over an otherwise uncontrollable journey.

Mammograms on the go

Mammograms are offered at the M.D. Anderson Cancer Center in the Texas Medical Center. They are also offered on M.D. Anderson's self-contained 38-foot van containing a LoRad MIV mammography unit. The van travels to various workplace sites where employees and clients can jump on board the van for a mobile mammogram.

Hartford Hospital's Take the Time mammogram van travels to clinics, churches, senior centers, and other Connecticut locations where women can easily access life-saving screenings. The University Breast Health Center in Augusta, Georgia is home to a mobile mammography program that reaches underserved women unable to report for on-site visits. Lexington Medical Center in South Carolina offers mobile mammograms. Y-ME National Breast Cancer Organization affiliates offer their own traveling screening services. And a mobile mammogram service was offered on Kent State University's campus during this October's Breast Cancer Awareness Month.

Mammograms on the go are no different than mammograms at fixed locations. They are high quality, safe, confidential -- and typically speedier than the traditional screening procedure. Often, a woman knows before she departs that her image is technically accurate. She can ask questions and receive information, and she can expect a prompt call from the radiologist or her physician who will discuss results. Sometimes, mobile mammograms take as little as 20 minutes to complete.

Mammograms are recommended for women age 40 and older and for women with a personal or family history of breast cancer. As with all medical services, there are barriers -- such as awareness, cost, transportation, convenience -- that prevent access for some people. Mobile mammograms help drive away barriers. They allow more women more access to the best tool for identifying breast cancer in its earliest form.

Roll on, mammogram vans!

Check out my breasts

Checkoutmybreasts.com is a webpage that shows how to do a self breast exam. It shows a woman examining her breasts so other women can learn what to look for when performing a breast exam on herself. I was shocked a bit when I saw this website, as I have not seen anything like it before. The website also tells about an organization called Rethink Breast Cancer.

Rethink Breast Cancer is an organization that was established to help young people who are concerned about and effected by breast cancer through innovative breast cancer education, research and support programs. They do this by educating young women about the importance of breast health awareness, providing a community for young people to make a difference in the fight for the cause, raising funds to advance breast cancer research and raising awareness about the unique needs of young women who are battling breast cancer.

Rethink Breast Cancer fills a unique niche in the world of breast cancer organizations in Canada by hosting dynamic fashion, music and fitness events to attract the attention of people under 40, spreading the important messages of breast cancer to a new audience.

(Thanks to Deb Kirkland for the tip)

Fit2cure rhabdomyosarcoma

In July I had written a post titled Raising awareness about alveolar rhabdomyosarcoma, about a young adult named Karin who was diagnosed with the disease in December of 2001. Karin created a blog to raise awareness for alveolar rhabdomyosarcoma. She continues to raise awareness and now she is setting her goal even higher, to raise money to research the disease.

In October of this year Karin Isabelle Dubois founded Fit2cure. It is a non-profit organization selling stylish products and apparel. The Fit2cure team is currently in its product development phase for their online store. Karin is realizing how hard it can be to get all this going, however with the help of her family and friends the Fit2cure products will hopefully be available soon.

Save the link in your favorites and check back later to order some of Karin's merchandise to support rhabdomyosarcoma research!

Cancer help delivered to mailbox, for free

Living Beyond Breast Cancer (LBBC) -- a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life -- recently began offering a new resource for breast cancer survivors, for both the newly diagnosed and those with metastatic disease.

"The first few weeks after diagnosis can be extremely difficult emotionally, and women with advanced disease often do not get the support and resources they need," said Jean Sachs, LBBC executive director. "We want to give them an understanding of their choices to help them make informed decisions regarding their physical and emotional health."

This understanding comes in the form of a 28-page brochure -- What to expect . . . today, tomorrow and beyond: Steps for coping with the medical, emotional and practical concerns of breast cancer -- available free on the Internet or by request. This guide, a road map, addresses topics such as coping with the news of a new diagnosis, telling family and friends, understanding pathology reports, choosing a medical team, asking for help, and finding support.

LBBC offers multiple addidtional resources -- including specialized navigation tools on its website that lead to a wealth of information. Visitors can Learn More about LBBC. They can Stay Informed through news, message boards, and other resources. They can Participate in events and programs. And they can Support LBBC through volunteer efforts and financial donations.

LBBC was founded in 1991 by a radiation oncologist who focused exclusively on meeting the needs of women post-treatment. She ran the organization out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer at the time, and so she tried to fill the void. In 1986, an executive director came on board, increased the LBBC budget from $100,000 to $1.8 million per year, expanded all programs and services, and worked to secure LBBC as a solid, dependable resource for all women, of all stages of breast cancer and in all phases of treatment and recovery. And now, in 2006, that is exactly what it is.

Y-ME Breast Cancer Organization: Support today for those who can't wait for tomorrow's cure

The Y-ME Breast Cancer Organization is based in Chicago. Their mission is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone.

Y-ME does not raise money for breast cancer research. The organization is here today for those who can't wait for tomorrow's cure. The Y-ME national breast cancer hotline is the only 24/7 call center operated by trained peer counselors who are breast cancer survivors. The hotline takes more than 40,000 calls per year. Y-ME counselors do not give medical advice but give emotional support and information about breast cancer, procedures and treatment options.

The organization was founded in 1978 by the late Ann Marcou and Mimi Kaplan. They were two breast cancer survivors who sought to provide support for fellow breast cancer patients and loved ones. Nearly 30 years later, Y-ME is a premier resource for breast cancer information and services, all provided completely free of charge.

Y-ME Hotline: 1-800-221-2141 or 1-800-986-9505 (Spanish).

To find out more about Y-ME's local affiliates, support programs and services click here.

Men Against Breast Cancer: Caring about the women we love

The Men Against Breast Cancer organization wants to help men get involved in helping the women they love battle breast cancer. Their symbol, a pink and blue ribbon signifies the war against breast cancer is one that men and women must face together.

Marc Heyison and Steve Peck are the founders of Men Against Breast Cancer (MABC). Marc's mother was diagnosed with breast cancer in 1992. He understands how a breast cancer diagnoses impacts not only the patient but the entire family.

The website states that this is the first non-profit organization to provide targeted support services to educate and empower men to be effective caregivers when breast cancer strikes a female loved one; as well as, target and mobilize men to be active participants in the fight against breast cancer.

You can find many resources on the website such as the Partners in Survival workshop that brings practical advice and tips to help the whole family. Special emphasis is placed on men understanding the physical and emotional needs of their female partners.

The website will also have available in January of 2007 a book called For the Women We Love: A Breast Cancer Battle Plan and Caregivers Action Guide for Men.

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