Note: The contents of this blog are for informational purposes only and should not be construed as medical advice or substitute for professional care. For medical emergencies, dial 911!
Posts with tag pediatric
Posted Jun 26th 2007 7:00PM by Kristina Collins
Filed under: Childhood Cancers, Clinical Trials, Research, Cancer Survivors, Surgery
When researching children's hospitals and oncology programs, you should have a list of questions that are relevant to the child's cancer. The same questions should be asked at each hospital so you can compare answers and make an informed decision about where to seek treatment.
Some questions include:
- What clinical trials are available?
- What type of research is going on for this type of cancer?
- What are the success rates?
- How many of these type of cancer cases do you see each year?
- Have you treated a child with this type of cancer?
- What cancers do you specialize in?
- Do you offer support groups?
- Do you allow family-centered care which allows families to be part of the treatment plan?
Pediatric cancer care is much different than cancer treatments in adults, many parents decide to go to a children's hospital like St. Jude's for care. Whatever the choice, make sure that you are getting the best possible care for the child as you can. Since you are their voice and their advocate, you have to do what you can to make sure that you are giving them the best opportunity to fight and beat childhood cancer.
Posted Feb 24th 2007 9:00AM by Jacki Donaldson
Filed under: Brain Cancer, Leukemia, Research, Vitamins and nutrients, Daily news

Besides preventing birth defects in the brain and spine and other congenital abnormalities, the folic acid found in prenatal multivitamins has now been shown to prevent cancer in children whose mothers take the vitamins during pregnancy.
A new Canadian study, appearing online in the journal
Clinical Pharmacology & Therapeutics, estimates prenatal multivitamin supplements can save hundreds of children each year in Canada -- where only 40 to 50 percent of women take prenatal vitamins -- from developing leukemia, brain tumors, or neuroblastoma. And the vitamins may prevent 900 cases of pediatric leukemia and more than 300 brain tumor cases annually in the United States.
It's not clear which vitamins or minerals, and in what amounts, could be protecting babies from cancer, but it's possible folic acid -- critical for cellular function -- may be acting alone.
One thing is certain, says lead investigator Dr. Gideon Koren -- this is one inexpensive way to prevent cancer.
Posted Jan 10th 2007 1:00PM by Kristina Collins
Filed under: Childhood Cancers, Leukemia, Research, Fundraisers
The primary recipient of the 2006 grants for Curing Kid's Cancer is the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins. Curing Kid's Cancer is a charity that raises money for leading edge pediatric cancer research. The organization was inspired by nine year old Killian Owen's battle with leukemia. The $100,000 grant was given to Johns Hopkins for research into new targeted therapies for acute lymphoblastic leukemia.
Curing Kid's Cancer has two national grassroots programs -- Coaches Curing Kid's Cancer and Teachers Curing Kid's Cancer.
The programs fund the development of cutting edge therapies which will revolutionize childhood cancer treatment by replacing traditional chemotherapy.
Curing Kid's Cancer aims to raise both awareness and money to find cures for all types of childhood cancers. Their objective is to turn this killer disease into a curable one in our lifetime.
Posted Aug 30th 2006 12:00PM by Kristina Collins
Filed under: Childhood Cancers, Drug, Chemotherapy, Hodgkin's Lymphoma, Clinical Trials, Stem Cell, Research
Interferon is an agent that stimulates the immune cells to help fight cancer. In an article published in Bone Marrow Transplantation it said that the addition of interferon following an autologous stem cell transplant improves survival for children with recurrent Hodgkin's lymphoma.
Patients that have their Hodgkin's lymphoma return after initial treatment may undergo an autologous stem cell transplant. In an autologous stem cell transplant a patients own cells are collected prior to high-dose chemotherapy and then re-infused.
The researchers wanted to evaluate whether the addition of interferon to the stem cell transplant could improve outcomes. The trial included 13 children with recurrent Hodgkin's lymphoma who were treated with an autologous stem cell transplant. Ten of these patients then went on to receive the interferon.
Follow up at five years shows that nine of the ten patients treated with interferon are alive and cancer free. The researchers concluded that interferon provided significant anticancer activity following the transplant.
Posted Jul 27th 2006 12:30PM by Kristina Collins
Filed under: Childhood Cancers, Cancer events, All Cancers, Bone Cancer, Sarcoma, Fundraisers, Young Adult Cancers
Brendan Borek High Tides Memorial Fund provides assistance to residents of Cape May County, New Jersey who have a child or young adult with cancer. Brendan was diagnosed with Ewing's Sarcoma and lost his battle in December of 1991. Brendan was a surfer and his friends wished him high tides during his cancer battle since the high tides at the Jersey shore would bring the best surfing conditions.
The memorial fund brings high tides conditions to those who need it in the Cape May area. Services provided include professional counseling and advocacy programs to financial and material assistance.
On August 15, 2006 the Avalon Yacht club is hosting The Local Artist and Friends Art Show. All ticket proceeds and fifty percent of all artwork sold benefits Brendan's fund.
Thanks to Chris Twonley for the tip and for donating some of her amazing paintings to the show!
Posted Jun 23rd 2006 4:30PM by Jacki Donaldson
Filed under: Childhood Cancers, Celebrity spokesperson, Research

I just received in the mail my
Certificate of Completion for St. Jude's Campaign for a Cure. I have never really known much about
St. Jude Children's Research Hospital -- except that I can be brought to tears by the television specials that showcase sick children whose lives depend on the research and treatment that this hospital offers. But I came to know more about St. Jude this year after a friend asked me to make a donation for the
Up 'til Dawn program he sponsors on the college campus where he works -- a program that involves more than 150 college campuses nationwide and partners faculty, staff, students, and communities in an extravaganza of activity, education, and fundraising to benefit the children at St. Jude. So I made a donation and then was contacted by St. Jude with an invitation to help them further -- and I did. I sent out 10 pre-written letters to friends and family asking for their support. I was given an attainable fundraising goal. And I met it. So this is why I received my certificate -- and some cheery address labels too.
Continue reading Partnership with St. Jude's saves children sick with cancer
Posted May 1st 2006 2:11PM by Dalene Entenmann
Filed under: Childhood Cancers, Alternative Therapies, Prevention

In January of this year, Toby Keith founded the Toby
Keith Foundation to benefit a number of charitable organizations within the state of Oklahoma, including
Ally's
House. Allison Faith Webb, affectionately called Ally by family and friends, was the daughter of Toby's friend and
former band mate Scott Webb. Ally was diagnosed with Wilm’s Tumor, a form of kidney cancer before she was two
years old, and lost her young life to cancer a year later. Her family, in memory of Ally, founded Ally's House, with a
mission and purpose of helping other families get through the difficult journey when a child is diagnosed with cancer.
For the last three years, Keith has supported Ally's House with the
Toby Keith & Friends Golf Classic, an
annual golf and music fundraiser. This year's celebrity golf tournament, silent auction, gala dinner and concert will
take place on May 21-22, in Norman, Oklahoma.
Posted May 1st 2006 1:38PM by Dalene Entenmann
Filed under: Childhood Cancers, Drug, Chemotherapy, Lung Cancer, Kidney Cancer, Prevention

Just before her 2nd birthday Allison Faith Webb, called Ally, was diagnosed with Wilm’s Tumor, a form of kidney
cancer. At the time of diagnosis, the cancer had already spread to her lungs. Ally underwent 3 major surgeries,
radiation and 3 different kinds of chemotherapy. She received care at Children’s Hospital in Oklahoma City and at
St. Jude Children’s Research Hospital in Memphis. While her mother cradled her little daughter in her arms, Ally
lost her battle with cancer.
Ally's House, founded in memory of Ally, assists
Oklahoma families who have a child with cancer. Ally's House helps families with medical expenses, travel expenses,
clothing, groceries, short-term housing, overdue bills, prescriptions, hospice care, and if needed, funeral expenses.
As important, Ally's House hosts events for children living with cancer, like ice cream parties, arts and
crafts parties, concerts and music events, amusement park trips and picnics. The foundation relies on donations in
providing many of these services. If you can help, visit Ally's House for more information. If you know of a family who
needs help, tell them about Ally's House. Allison's family says that the name, Ally's House, was chosen because each
time Ally came home from the hospital she would exclaim, “We’re at Ally’s house!” Ally's House
symbolizes a safe place of comfort and love. This is the mission of the foundation for families they serve -- to create
a comfort zone of love -- in memory of their beloved daughter Ally.
Posted Apr 28th 2006 6:33PM by Dalene Entenmann
Filed under: Childhood Cancers, Alternative Therapies

Once -- I asked an oncologist -- who was a school teacher before physician, why he did not treat children with
cancer. Because I cannot, was his reply. From the anguish in his eyes I could see that the emotional costs were too
high for him. We are all only human, with strengths and weaknesses that give each of us the capacity to absorb some
kinds of pain and not others. So it is I hold a special awe for the extraordinary nature of oncologists who treat
children with cancer. The heart of a pediatric oncologist must be as compassionately infinite as the universe is
infinite, able to contain both the enormous joy of winning life for a child as it is in the pain of having another
child's life slip away between all the training and knowledge meant to keep them from passing through the door of
death. Who must have intimate knowledge into the mystery of miracles, as they work in a world where miracles can be
very real. Of all the places on earth, a pediatric oncology ward is where mere mortals and angels work most closely
side by side.
Meet Dr. Samuel Blackman, pediatric oncologist who blogs pediatric oncology at
BlogMD. He is both philosophical and plainly real, in the best way one can be in
honest vulnerabilities. It is easy to discern that he has the heart of a pediatric oncologist. He worries about patients
and their families lost to followup; he runs for pediatric cancer research; he reflects on the personal aspects of life
as a self-proclaimed nerd. That's his choice of description -- not mine. At times I find him delightfully humorous, and
at all times insightful, intelligent and kind. I feel fortunate he made his presence known here in the blogosphere. I
hope you enjoy his blog as much as I do.
Posted Apr 14th 2006 4:11PM by Dalene Entenmann
Filed under: Childhood Cancers, Prevention

Our sister blogs,
Autoblog and
Blogging Baby have posted stories that
illustrate the benefits of internet connection in lives touched by cancer. In a
you-can-run-but-you-can't-hide
karmic twist of justice, Matt Frame
found his stolen 1967 Camaro
SS online at an eBay auction. Frame and his father had rebuilt the car before his father died of cancer. Of course,
the seller denied that it was the same car, but Frame was able to identify the car as the one stolen from him.
On the cosmic scales of fairness, balance was achieved when Anthony McCoy found the 1969 Chevrolet Camaro that he had
spent twenty years helping his father restore before the death of his father to cancer. Although it was not stolen from
him by a thief, it was lost due to financial circumstances when his mother was forced to sell the car after the loss of
his father. Found at eBay, McCoy made the successful bid. To McCoy, it is priceless.
As today's final
example of the power of the internet to break down any barriers of time and space that can separate us from justice,
the scales of fairness, or the ability to nurture relationships beyond the immediate, Jason Levine is a pediatric
oncologist who stays in touch by email with his young cancer patients and their families by visiting their personal
websites. Blogging Baby found a sweet and humorous story told of how a
young patient role plays his email contact
with her.
Posted Apr 11th 2006 12:12PM by Dalene Entenmann
Filed under: Childhood Cancers, Prostate Cancer, Prevention

As part of a cancer fundraising
campaign of the Yankees Universe fund for pediatric cancer research, education and patient care at Memorial
Sloan-Kettering, the New York Yankees are offering a
limited-edition
Yankees Universe t-shirt. Yankees owner George M. Steinbrenner III feels this is an exciting program will help many
kids and their families lead a better life.
Monday, Brian Cashman, manager Joe Torre and Hall of Famer Yogi
Berra delivered the announcement of the new Yankee Universe campaign at a press conference. Torre mentioned his
diagnosis of prostate cancer in 1999. He called Memorial Sloan-Kettering and the Yankees the two most important teams
in his life during the last 11 years. Torre said that cancer is a word that scares you, but when you find out the kind
of work people are doing to discover a cure, it's very reassuring. "This is the Yankee universe," O'Reilly
said. "And as far as I'm concerned, there's no better place to be."
Photo credit: Ben
CouchPosted Apr 10th 2006 7:07PM by Dalene Entenmann
Filed under: Childhood Cancers, Alternative Therapies, Prevention
The Paint Box Project, artWORKS for Cancer Cures features a selection of
holiday cards and gifts for spring created by Roswell Park's pediatric patient-artists to benefit cancer research and
patient care. They offer Easter, Mother's Day, Father's Day and other occasion cards, as well as chocolates from
Choco-Logo. To celebrate spring, you can say Thank You, Thinking of You, Congratulations and Happy Birthday with
delightfully original artwork from the creativity of kids of the The Paint Box Project.
You can purchase
chocolates like the Bunny’s Nest, the Chocolate Tower, Buffalo Bark chocolate covered pretzels or the Salty Bar.
Gifts offered for sale include the
Light of Hope soy wax candles, bright and cheerful wrapping paper, colorful
spiral journals and an exclusive line of Buffalo-themed cards created by local artist Leslie Zemsky. While you are
shopping, be sure to read the patient artists profiles of the children behind this spring's collection of cards. Oh! I
love
artwork by kids. Hurry, it's almost time for Mother's Day.
Posted Apr 7th 2006 10:44AM by Dalene Entenmann
Filed under: Childhood Cancers, Drug, Chemotherapy, Prevention

During the 18th annual Beyond the Rainbow luncheon and fashion show, the runway models will be young patients
undergoing cancer treatments.
A Generation of Hope ... A Generation of
Survivors is this year's theme in a day of inspiration, fun, glamour and celebration of bravery and miracles
for the children of Children's Medical Center of Dallas. Celebrities Dallas Cowboy quarterbacks Troy Aikman and Roger
Staubach will escort the children down the runway as each child enjoys the limelight of celebrity and attention all
famous models who walk the fashion runway experience. The organizers mission of this event is to create a day for the
children of Children's Medical Center of Dallas living with cancer to forget the daily battle they wage against a
disease threatening to steal their young life away.
The Children’s Cancer Fun Calendar, a calendar
illustrated with the art of children living with cancer, will also be featured at the event. All proceeds of the event
go to Children's Medical Center and UT Southwestern Medical Center pediatric oncology research and treatment to benefit
children worldwide.
Posted Mar 29th 2006 10:08AM by Dalene Entenmann
Filed under: Childhood Cancers, Prevention

In 2000, Alexandra Scott, 4, known as
Alex, came up with the idea of starting a lemonade stand to raise money to help her cancer doctors find a cure for kids
with cancer. With the help of her older brother, Patrick, they set up Alex's first lemonade stand for pediatric cancer
on the front lawn. For the next four years, Alex held an annual lemonade stand fundraiser for childhood cancer
research. Since then, Alex's idea has caught on, and thousands of lemonade stands have been held across the country by
children, schools, businesses, and organizations, all to benefit
Alex's
Lemonade Stand Foundation for pediatric cancer. As of December 2005, her national campaign has raised over $5
million for pediatric cancer research.
On August 1, 2004, Alex died peacefully at the age of 8 after
battling cancer for 7 ½ years. In this world, bad happens to the good and innocent all the time. You can choose
to be bitter, cynical and dark, or you can choose to meet the bad with the goodness of hope and light. A little girl
had the spirit and wisdom to know, that when life gives you lemons -- you make lemonade.