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Posts with tag personal

We meet again: More about Jacki Donaldson

It's been one year since I began writing for The Cancer Blog. According to statistics generated by this site, I've written 27,381 words and 793 posts. If you've been reading for this entire time, you surely know a lot about me. Not only do my posts reflect current news and issues, but they feature all sorts of personal stuff too. When considered together, my work here reflects just about every piece of my cancer journey, my inner most thoughts, my morals and values, my take on the world. But for those of you who haven't been reading for long, for those who have forgotten how I fit into the cancer puzzle, for those who want a recap, here's a rundown on me: Jacki Donaldson.

I was born and raised in Ohio but have also lived in Nevada, Virginia, and Florida -- my current home. My life always went pretty much according to plan -- I lived happily with my parents and one sister, faithfully attended school, went to college, got married, had two baby boys and a series of good jobs, and had just begun commenting to my family members about how lucky our family was not to have been affected by cancer. It seems just as I spoke this aloud, cancer arrived.

Continue reading We meet again: More about Jacki Donaldson

Sunday Seven: Status check on seven breast cancer survivors

These seven breast cancer survivors have been featured on The Cancer Blog before, all because of their own personal blogs and their own personal battles with cancer. Today, I offer you an update on these remarkable individuals whose stories have undoubtedly touched many lives.

Adriene

On April 26, 2006, Adriene wrote a final entry on her Survivor Blog. "This will be my last entry on the Survivor Blog," she writes. "I am finished. And I am complete, at least I feel I am. Now it's time to be in health and in love and in gratitude. To be at another level. It's time to move. Move. The wind beneath."

Breast cancer -- and writing about it -- is behind her. But Adriene is still inspiring readers on her blog. Check out her site's photo.a.day feature. It's nothing but moving.
Jen

Jen, a young wife and mom who blogs My Journey through Motherhood, once wrote about breast cancer every few days. Now she can't seem to find time to keep up with her entries. What good news for this survivor who is busy with life and not cancer.

Sandee

Sandee, author of I Will Survive, is quite a breast cancer warrior. She has been fighting the disease and it's cruel spread for many years and finds herself living with constant treatment. Her most recent blog entry, posted on April 14, reads:
Feeling down, I just can't shake this tired feeling, cancer treatments may keep you alive but they totally change everything about you. I know I should be grateful but I miss the way I used to be. I miss my hair ... I miss my eyebrows ... I miss my eyelashes ... I miss my toenails ... I miss my slender body ... I miss my energy ... I miss shopping for hours ... I miss not being afraid ... I miss not taking medication ... I miss volunteering ... I miss working out ... I miss being pain-free ... I miss feeling pretty ... I miss wearing high heels ... I miss driving 5-speed ... I miss not being able to plan ahead ... I miss going to family functions ... I miss feeling immortal ... I miss my health ... I miss my old breasts ... I miss having flawless skin ... I miss a lot!

Despite her uphill battle, Sandee ends each blog entry with a random thought and something for which she is thankful. Her random thought on April 14: Regardless, I'm still happy to be alive! And then: Today I am thankful for my kids.

Valerie


Valerie blogs The Beck Family and fills her space with happy photos and positive words. Busy recuperating from a hysterectomy, growing out her post-chemotherapy hair, and training to participate in the Avon Walk for Breast Cancer, Valerie is doing well -- and keeping busy going to baseball games and Las Vegas with girlfriends. She has a new puppy and a great outlook on life after cancer.

"Our life is back to normal and normal things are happening," she writes. "Our transmission went out on our Yukon last week, and it was under warranty, so it is in the shop. Our washing machine stopped working due to me overloading it too many times, so we went out and got a new front loading one. Its pretty cool!!! and that's it. Everyone else is doing great. We still love our new puppy.

Patty

Patty's husband blogs Patty's Journey. "Patty hasn't been feeling great the last few days," he writes on April 25. "She's had a light headed feeling and can't seem to get a deep breath. She's not sure if she's just become acutely aware of her breathing or what. I've read that the Herceptin can cause dizziness in 13% of patients so I'm not sure if this is what this could be or not. Hopefully, it is nothing. She's sees the doctor tomorrow so we'll see what he says. Pray that these issues resolve for her."

Patty, a mom to four young daughters, is finishing up radiation while receiving Herceptin treatment.

Marjorie

Marjorie and her husband Gordon take turns updating Beating Breast Cancer. But the last entry on this site was posted on November 28 and other than what Marjorie writes on this date, I am not sure how she is doing.

"On the day of the poisoning by taxotere I feel OK," writes Marjorie on this November day. "Next day my body feels strange and tired. The answer should be wee nap in the afternoon, but NO. My mind is so wired and agitated I found myself planning next year's Christmas dinner -- not this year's. This goes on for two or three days then WHAM, I'm the most depressing person to be around."

I hope Marjorie's absence from writing is an indication she is thriving and is too distracted by the joys of life to take a seat at the keyboard.

Kristina


Kristina blogs for The Cancer Blog -- and also for herself, her friends, and her family on her personal site.

Kristi, who calls herself a young Breast Cancer Survivor, Freethinker, New Marine Aquarist, Reach for Recovery Volunteer, reluctant accountant, freelance writer, voracious reader and cancer blogger, most recently is mourning this loss of her beloved cat Cleo, making a difference with the Young Survival Coalition, and laughing it up with friends traveling similar breast cancer paths.

Thought for the Day: Share your story, loud and clear

The way I see it, there are two threads common to the journeys of many cancer patients and survivors -- the desire to hear stories of others walking in similar shoes and the desire to be heard.

These threads have definitely woven themselves throughout my own cancer experience. When first diagnosed, I searched long and hard for personal stories of women struggling with and conquering breast cancer. Once I was well on my road to recovery, I wanted others to hear my story, in hopes it would resonate with those looking for the same comfort I once craved.

Won't you consider sharing your story too? It might just help you. It will surely help others.

Think about this:

On the Discovery Health website, an offer awaits you.

"We would love to hear your story," reads a portion of the site. "So would the many others who share your relationship to Cancer."

If you are at least 18 years of age and have a few minutes to spare, simply call 888-890-6339 and follow the instructions to record your voice. When all stories are ready to be published in podcast format, an online notice will be posted.

Listed on the website is this important note:

Considering the nature of this application, it is impossible for us to review or confirm the validity of information submitted. We do not vouch for or warrant the , and are not responsible for the contents of any message. The entries express the views of the individual calling, not necessarily the views of our website or any entity associated with this initiative. Any user who feels that a posted podcast is objectionable is encouraged to contact us immediately by email. We have the ability to remove objectionable recordings and we will make every effort to do so, within a reasonable time frame, if we determine that removal is necessary. This is a manual process, however, so please realize that we may not be able to remove or edit particular entries immediately.

You agree, through your use of this recording service, that you are at least 18 years of age and will not use this recording to post any material or links to material which is knowingly false and/or defamatory, inaccurate, abusive, vulgar, hateful, harassing, obscene, profane, sexually oriented, threatening, invasive of a person's privacy, or otherwise violative of any law. You agree not to submit by telephone any copyrighted material unless the copyright is owned by you.

Although this website does not and cannot review the messages recorded and is not responsible for the content of any of these entries, we at this website reserve the right to delete any recording for any or no reason whatsoever. You remain solely responsible for the content of your recording, and you agree to indemnify and hold harmless this website, and their agents with respect to any claim based upon transmission of your recording(s).

We at this website also reserve the right to reveal your identity (or whatever information we know about you) in the event of a complaint or legal action arising from any message recorded by you.

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Readers: Here's how to learn more about post topics

Today, I've been asked twice to offer more specifics about the information contained in posts. I thought I'd communicate my thoughts on this matter publicly so you all may benefit.

First, let me share that blogging is like talking to a friend -- Hey, did you hear about that new study about the breast cancer vaccine?, I might say to my neighbor before I explain the overall gist of the news I happened upon. The purpose of blogging is to communicate a few details and to spark interest, not to capture every speck of information on the topic. Digging up the nitty gritty is for you, the reader.

Your quest for more knowledge takes just one click. Once you read a post, look to the bottom left and you will see a blue link titled Read. Click here and you'll land at the news source related to the post. If you don't find what you're looking for here, just type some key words into Google and search for more. If bloggers happen to find news but there is no internet link -- this happens with magazines and other print publications -- the source will be noted at the end of the post.

If a post contains personal perspective, like this one, you won't find a Read link -- that's because the source is in the blogger's head. You are welcome to leave a comment requesting more information about these posts.

Now this whole lesson on the Read link does not mean you cannot ask questions of bloggers -- please do -- but if you desire the quickest route to post details, this link is your best bet.

I hope this is clear. And I hope you find exactly what you seek in this world where cancer is one hot topic.

Breast MRI now officially recommended

I get mammograms every six months. I get ultrasounds every six months. I get a breast MRI every year. That's my typical screening routine, intended to keep breast cancer from invading my life for a second time.

This combination of testing -- primarily the MRI part -- has not been typical for all at-risk women. It's just the plan my doctors have determined is the best insurance policy for me. But as of yesterday, the American Cancer Society began recommending regular use of MRI scans, rather than conventional mammograms, for women facing a breast cancer risk of 15 percent or more.

Family history places one to two percent of women at a 20 percent higher risk of developing the disease than women without such a history. Women carrying a BRCA1 or BRCA 2 gene mutation face a lifetime risk of up to 65 percent. And women with a personal history of the disease are at risk of a repeat diagnosis. These are the women MRI screening can help.

Recent studies show MRI to be much more sensitive than mammograms. And in an investigation of 969 women diagnosed with breast cancer in one breast, MRI found 30 additional tumors in the opposite breast previously missed by mammograms and physical exams.

Not typically used for routine screenings due to cost and a few false alarms -- sometimes the scans detect suspicious areas that once surgically tested turn out to be benign -- MRI is still the best tool for detecting more cancerous tumors earlier.

There is no proof yet that the cancers detected by MRI will translate into longer lives for patients. Life-extending benefits will become clear only after women are followed for a longer period of time.

Internet changing the way people manage their health

Cisco Network Systems, a company that creates intelligent integrated networks to adapt to current and future business needs, reported on a study that says one in three Americans claim that the Internet changed the way they manage their health.

The main findings of this survey of over 4,000 people include:

  • 62% reported using online health tools.
  • 56% reported improvement in their health management due to personal technology.
  • 2% of patients with chronic diseases thought that online health tools had improved their management.
  • One third of patients thought that online tools enabled them to be an "equal partner with my care providers in making health decisions."
  • 62% reported that they would go to their personal physician for information and advice; 44% said they sought information and advice on medical Web sites; 32% said that found healthcare information and advice through an online search.
  • The Internet ranked as number 3 among the top 5 sources for medical information.
  • 62% said that their physician did not utilize the Internet to manage their health.
  • Among ways respondents said that their physicians do utilize the Internet include: direct e-mail communication with patients; scheduling of appointments; offering a way to check on practice and credentials on a Web site.
  • 27% thought their physician fully embraced the Internet.
  • Only 11% of physicians communicate by e-mail even though 45% of Americans would like this method of contact.
  • 34% of patients wanted to access lab results by a secure Web site while only 7% stated that they had this option.
  • 33% would like to schedule appointments online but only 7% said that this was currently available to them.
  • 40% of patients had privacy concerns with the use of the Internet. A quarter of patients were concerned that private medical information could be used inappropriately.

Sunday Seven: Seven happy, healthy habits

The experts at Canyon Ranch resort and spa know what they're talking about when it comes to health and happiness. They make a living off their expertise, in fact. But they're not stingy when it comes to sharing their know-how, and on the Canyon Ranch website, they offer us all a chance to better our lives.

I promised in an earlier post to share more of what the Canyon Ranchers have to say -- so here are seven more healthy habits you just might want to embrace.

To Carb or Not to Carb

Canyon Ranch has watched "fad" diets come and go, never falling for their quick, easy-fix mentality and consistently advocating for balance, moderation and basic good nutrition. In recent years, some diets have forsaken whole grains for foods rich in protein and essentially free of carbohydrates. Whole grains, which are carbs, have always been a vital part of good nutrition. And while removing high-carbohydrate foods from your diet may initially help you lose weight faster, over time their absence can negatively influence your health.

Making Time for Time

People take classes to learn time management, they rely on the latest technologies to make the most of it and budget time as carefully as their money. Still, when it comes to health care, you may find yourself in a time crunch. Fortunately, Carl Pratt, managing director of the Canyon Ranch in Lenox, offers a timely solution: The 90-Minute Program. "It really only takes 90 minutes a week to stay focused on maintaining a healthy lifestyle. If you aren't willing to dedicate 90 minutes, you aren't willing to take care of yourself, and you need to accept that fact," says Carl. Carl breaks down the 90 minutes per week as follows:
  • 15 minutes of planning for "mindful eating"
  • 45 minutes of exercise (15 minutes, three days a week)
  • 30 minutes of relaxation (five minutes, six days a week)
Commuting Bliss

When you change your mindset and treat commutes as a transition time for relaxation or education by listening to music or books on tape, your daily drive becomes a worthwhile experience. "We all see commutes as inconvenient, and we need to think of them as something valuable. Remember, the ultimate removal of commute time is not what people want. Otherwise, we would go directly from birth to death and skip everything in between. If you can't enjoy the commute -- and indeed, some are more difficult than others -- you are simply losing part of your life," says Robert Rhode, Ph.D., clinical psychologist at Canyon Ranch in Tucson.

Family Bonds Tied to Well-Being


Even painful family connections can be a significant part of personal growth. Learn to feel reverence toward yourself even as you feel pain. This connects you with your humanity and your ability to give and receive love. How to get comfortable with painful memories? Relax your body and allow yourself to feel emotions -- anger, pain, sadness -- while maintaining a positive attitude toward you.

An Attitude of Gratitude


Being thankful each day for the good things in your life and the ability to appreciate what you have rather than what you do not have is an important aspect of emotional health and well-being.

Think Big

One key to spiritual well-being is to get outside yourself with activities such as volunteering or contributing to worthy causes."Get involved with others and become committed to something greater than yourself. You start worrying about the greater good and you feel better about yourself," says Evan Kligman, M.D., at Canyon Ranch in Tucson.

Not a Morning Person? It's OK


Giving yourself a workout boost first thing is great for some, but an early morning workout may not be for everyone. Phil Eichling, M.D., sleep expert at Canyon Ranch in Tucson, encourages people with sleep problems to put off their workout for later. He says to enhance sleep, the best time to exercise is usually late afternoon. And people who have cardiovascular issues or certain other health concerns may also want to ease into the day before they strap on their running shoes or cross trainers.

Reach for BEYOND -- tomorrow

Tomorrow, the second issue of Beyond: Live & Thrive After Breast Cancer hits newsstands. And I, for one, can't wait to pick up a copy of the Spring/Summer edition of this positively powerful publication.

If you read the first issue -- the Fall/Winter magazine released in October -- you know what this glossy book has to offer. There are personal stories and interviews, shared wisdom and sound advice. There are exercise tips and health tips and survival tips. There are stories about chemo brain and fertility and relationships. There is information about breast cancer research and resources and products that are tried and true.

I want to tell you so much more -- but really, I want you find out for yourself just how moving and soothing this magazine can be.

So plan to get your copy -- tomorrow -- and tell all your friends to do the same. If you need a gift for a loved one newly diagnosed or someone who has long survived this disease, try this on for size. Buy a few copies and donate them to your favorite doctors' offices -- a fresh magazine can do wonders for any waiting room. Share one with a neighbor, a relative, a new acquaintance.

Do what you can, will you -- to both reap the benefits of this solid source of inspiration and help sustain the life of this magazine? Because magazines are only as strong as the readers who embrace them. And trust me, this is one catch we cannot afford to lose.

More risk factors added to breast cancer list

Simply being female puts all women at risk for breast cancer. That and age, race, family history, personal history, genetic make-up, when they had children, when they reach menopause, and a whole host of other possible factors.

Now U.S. doctors are officially calling body mass index, breast density, and alcohol consumption predictors of the disease, says Therese Bevers, medical director of the Cancer Prevention Center, at the University of Texas M.D. Anderson Cancer Center in Houston.

Bevers helped write updated guidelines for the prevention of breast cancer and presented them at the 12th annual National Comprehensive Cancer Network in Hollywood, Florida on Friday.

The guidelines, featuring the revised list of risk factors, also offer treatment options for women -- including bilateral mastectomy for women who have tested positive for the genes BRCA1 and BRCA2 as well as possible medical treatments with drugs such as tamoxifen and raloxifene.

Cancer topics keep stacking up

Someone asked me the other day how I continue to come up with topics for my posts. I wish I could say it was a chore to find material on cancer, but it isn't. There is always something to write about -- so much to write about, in fact, that if I had the time and energy, I could write volumes each day.

I find my topics in newspapers, in magazines, and in books. I spot them on television, on the radio, on the internet. I draw from personal experience and from others' experiences. I write and write and write because cancer just keeps on appearing in my life. I wish it didn't.

Cancer is everywhere. And it offers me an endless reserve of material that just keeps stacking up. So how do I come up with topics for my posts? I don't. The topics come to me.

A familiar observation

I went out to lunch with my husband and kids yesterday. Sitting right behind us in the restaurant was a woman wearing a white hat, worn to mask an obvious bald head. My two little boys kept watching this woman, my littlest turning in his seat to get the best possible view. These boys, ages five and three, were not looking at this woman because a bald head is an odd sight in a public venue. They were looking because, to them, a bald head is familiar. And I think they were sizing up this woman, recalling what I once cleverly hid -- my own bald head.

We all noticed the woman in her white hat. But we handled our observations differently. My husband chose to focus on the task at hand -- eating. My boys chose to stare. I chose to contemplate.

I contemplated talking to this woman. I always have this urge -- to talk with others I suspect are fighting cancer -- and I always wonder if it's appropriate to approach strangers to discuss such a personal topic. Do I have a free pass to enter another's cancer world because I myself have membership in the same world? Perhaps. Perhaps not. So when faced with a possible cancer survivor -- marked mostly by a bald head -- I usually hesitate, contemplate, and then do nothing other than quietly consider what life might be like for the person who faces me.

Maybe I lack courage and should find a way to connect with these strangers. It may do us all a bit of good. Maybe courage has nothing to do with it. Maybe I refrain from conversation out of respect for each person's privacy. I am not convinced either way.

For now, I think I'll stick with what works, what feels safe -- observation and contemplation. And maybe next time I'm in a restaurant and notice someone strikingly familiar, I'll take a stab at my husband's approach -- just simply eating.

Cancer camaraderie -- up close and personal

She said she hopes we get to visit again sometime soon -- without feeling the need to talk solely about breast cancer. I have the same hope. Yet I am deeply satisfied with the conversation we shared about our similar cancer journeys -- mine two years old; hers brand new.

We had never before met -- or even spoken -- and knew each other only from an exchange of e-mails. It was this Cancer Blog that drew us together. She left a comment on one of my posts, I sent her a personal e-mail, and swiftly, our friendship blossomed.

I met my newest cancer friend this weekend -- face-to-face, up close and personal. It was lovely. We talked about chemotherapy -- she just completed her second treatment -- and wigs and radiation and about how our husbands and children cope with cancer. We talked for more than an hour, and then went our separate ways.

And now we are back to e-mail correspondence and our shared hope -- that we will one day meet again, to talk about more than just breast cancer.

Mammograms on the go

Mammograms are offered at the M.D. Anderson Cancer Center in the Texas Medical Center. They are also offered on M.D. Anderson's self-contained 38-foot van containing a LoRad MIV mammography unit. The van travels to various workplace sites where employees and clients can jump on board the van for a mobile mammogram.

Hartford Hospital's Take the Time mammogram van travels to clinics, churches, senior centers, and other Connecticut locations where women can easily access life-saving screenings. The University Breast Health Center in Augusta, Georgia is home to a mobile mammography program that reaches underserved women unable to report for on-site visits. Lexington Medical Center in South Carolina offers mobile mammograms. Y-ME National Breast Cancer Organization affiliates offer their own traveling screening services. And a mobile mammogram service was offered on Kent State University's campus during this October's Breast Cancer Awareness Month.

Mammograms on the go are no different than mammograms at fixed locations. They are high quality, safe, confidential -- and typically speedier than the traditional screening procedure. Often, a woman knows before she departs that her image is technically accurate. She can ask questions and receive information, and she can expect a prompt call from the radiologist or her physician who will discuss results. Sometimes, mobile mammograms take as little as 20 minutes to complete.

Mammograms are recommended for women age 40 and older and for women with a personal or family history of breast cancer. As with all medical services, there are barriers -- such as awareness, cost, transportation, convenience -- that prevent access for some people. Mobile mammograms help drive away barriers. They allow more women more access to the best tool for identifying breast cancer in its earliest form.

Roll on, mammogram vans!

Bearing Witness: A photographic trip down memory lane

Photographer Sharon Seligman's images are inspired by her personal journeys. She photographs people and birds and residential communities. She also captures the journeys of women enduring breast cancer. Her work speaks of the human experience. It speaks of her own experience. It speaks volumes.

Bearing Witness: Beyond the Surface of Breast Cancer is one of Seligman's portfolios. It's a photographic trip down memory lane, depicting self-portraits of courageous breast cancer survivors. Seligman tells her own story in words that border the left side of each portrait. Captions to the right of each black and white photograph offer a glimpse into the life of each woman whose being is displayed in raw form, for all to see, for all to contemplate, for all to appreciate.

And then in another portfolio, Seligman offers more photographs, more visions of the breast cancer experience.

Seligman aims to share the physical changes that come from breast cancer, to project the inner truths. Clearly, she is right on target.

Journalist Leroy Sievers adjusts to newfound hope

Journalist, commentator, and cancer patient Leroy Sievers -- the guy we've written about before, the guy who has covered many wars and witnessed countless deaths, the guy who is now observing his own death as cancer in his lungs and spine chip away at his life -- has realized that getting good news takes some getting used to.

Sievers got some good news recently. He learned that the new combination of chemotherapy drugs he's been receiving has shrunk the tumors in his lungs. And scans show the tumor on his spine is healing. It's taken him days to truly understand this concept -- this concept of hope that has miraculously delivered him more time. He didn't expect it.

Sievers fully expected that he would soon be dead. That's why he's been savoring the cold, crisp fall days -- because he was not certain he would ever see such a season. He was sure he would never host another Halloween party either -- a party he canceled this year due to his health. But now, as he takes in this new sensation of hope, he considers the possibility he may be around for another party. And he thinks he'll dress up as a tumor. Halloween is one time when good taste is never important, he says.

Sievers, who offers a weekly personal health update for NPR, available in print or in podcast format on his blog, plans to keep living in the moment. He doesn't want to overdo this hope thing. So right now, he is simply enjoying the colorful leaves -- and the season he calls one of his favorites.

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