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Posts with tag podcast

Thought for the Day: Share your story, loud and clear

The way I see it, there are two threads common to the journeys of many cancer patients and survivors -- the desire to hear stories of others walking in similar shoes and the desire to be heard.

These threads have definitely woven themselves throughout my own cancer experience. When first diagnosed, I searched long and hard for personal stories of women struggling with and conquering breast cancer. Once I was well on my road to recovery, I wanted others to hear my story, in hopes it would resonate with those looking for the same comfort I once craved.

Won't you consider sharing your story too? It might just help you. It will surely help others.

Think about this:

On the Discovery Health website, an offer awaits you.

"We would love to hear your story," reads a portion of the site. "So would the many others who share your relationship to Cancer."

If you are at least 18 years of age and have a few minutes to spare, simply call 888-890-6339 and follow the instructions to record your voice. When all stories are ready to be published in podcast format, an online notice will be posted.

Listed on the website is this important note:

Considering the nature of this application, it is impossible for us to review or confirm the validity of information submitted. We do not vouch for or warrant the , and are not responsible for the contents of any message. The entries express the views of the individual calling, not necessarily the views of our website or any entity associated with this initiative. Any user who feels that a posted podcast is objectionable is encouraged to contact us immediately by email. We have the ability to remove objectionable recordings and we will make every effort to do so, within a reasonable time frame, if we determine that removal is necessary. This is a manual process, however, so please realize that we may not be able to remove or edit particular entries immediately.

You agree, through your use of this recording service, that you are at least 18 years of age and will not use this recording to post any material or links to material which is knowingly false and/or defamatory, inaccurate, abusive, vulgar, hateful, harassing, obscene, profane, sexually oriented, threatening, invasive of a person's privacy, or otherwise violative of any law. You agree not to submit by telephone any copyrighted material unless the copyright is owned by you.

Although this website does not and cannot review the messages recorded and is not responsible for the content of any of these entries, we at this website reserve the right to delete any recording for any or no reason whatsoever. You remain solely responsible for the content of your recording, and you agree to indemnify and hold harmless this website, and their agents with respect to any claim based upon transmission of your recording(s).

We at this website also reserve the right to reveal your identity (or whatever information we know about you) in the event of a complaint or legal action arising from any message recorded by you.

Please note that advertisements, chain letters, pyramid schemes, and solicitations are inappropriate on this initiative.

Cancer always lurking in shadows for Leroy Sievers

Leroy Sievers has many titles. He's a journalist and a commentator and even a blogger. He's a cancer patient too. And while he accepts cancer patient as one of his working titles, he never would have said this title dominates all others in his life. He is, after all, more than cancer.

On his December 4 NPR podcast and My Cancer blog entry, Sievers reports about a host on a radio call-in show who recently asked him if cancer overshadows everything else in his life.

"No," he answered, recalling the first time he had cancer. He was treated with surgery and moved on. Cancer didn't overshadow anything. But that cancer was different than the cancer now invading his lungs, spine, and brain. And after a bit of thought, Sievers thinks he may have been too quick with his radio response.

This cancer is not a drive-by-disease, he says. It's grabbed him -- and is holding on. It has changed his entire life. He can no longer do everything he once did. And not a day goes by without a reminder of cancer. The treatment, the nausea, the tingling in his hands. Cancer is with him all the time, lurking in the shadows.

Whether he gets the pleasure of remission or the disappointment of a set-back, Sievers realizes he will always be a cancer patient. He realizes that cancer does in fact overshadow everything else in his life.

Previous posts about the cancer journey of Leroy Sievers are as follows:

Journalist Leroy Sievers adjusts to newfound hope
War journalist now witnessing his own cancer death
NPR Leroy Sievers blogs My Cancer

Journalist Leroy Sievers adjusts to newfound hope

Journalist, commentator, and cancer patient Leroy Sievers -- the guy we've written about before, the guy who has covered many wars and witnessed countless deaths, the guy who is now observing his own death as cancer in his lungs and spine chip away at his life -- has realized that getting good news takes some getting used to.

Sievers got some good news recently. He learned that the new combination of chemotherapy drugs he's been receiving has shrunk the tumors in his lungs. And scans show the tumor on his spine is healing. It's taken him days to truly understand this concept -- this concept of hope that has miraculously delivered him more time. He didn't expect it.

Sievers fully expected that he would soon be dead. That's why he's been savoring the cold, crisp fall days -- because he was not certain he would ever see such a season. He was sure he would never host another Halloween party either -- a party he canceled this year due to his health. But now, as he takes in this new sensation of hope, he considers the possibility he may be around for another party. And he thinks he'll dress up as a tumor. Halloween is one time when good taste is never important, he says.

Sievers, who offers a weekly personal health update for NPR, available in print or in podcast format on his blog, plans to keep living in the moment. He doesn't want to overdo this hope thing. So right now, he is simply enjoying the colorful leaves -- and the season he calls one of his favorites.

Progress in field of lung cancer is mostly modest

Dr. Chandra Belani, Professor of Medicine and Oncology at the University of Pittsburg Cancer Institute, is a leader in the study of lung cancer. During a podcast interview, Belani shares some thoughts on the state of lung cancer -- currently the most common cause of cancer death in the United States.

Belani reveals that progress in the areas of lung cancer prevention, screening, diagnosis, and treatment can best be described as modest. There has been some progress -- and there are many on-going studies in these areas -- but there are no major breakthrough stories. Belani says there has been modest progress in diagnosis with the use of CT scans and PET scans -- and a combination of the two. There has been modest progress in chemotherapy treatment options. There has been no significant advance in detection -- and prevention is mostly in the hands of each individual since 90 percent of lung cancer cases are related to smoking.

Belani shares that true achievement would come with the discovery of a biomarker to detect lung cancer early and to lower overall mortality rates. He would also like to determine why he is seeing an increase in lung cancer cases among non-smokers.

The bar is being raised, says Belani. But it's slow going.

War journalist now witnessing his own cancer death

Leroy Sievers is a journalist who has spent a long career covering dozens of wars. He is accustomed to seeing other people die. But now, he is witnessing his own death. And on a recent NPR podcast, Sievers talks about how his doctors are trying to kill him by pumping poisonous chemotherapy drugs into his body. They haven't succeeded in killing him yet -- but they haven't cured him of cancer yet either.

Blogger Dalene Entenmann wrote about Sievers on July 3, 2006, pointing readers in the direction of his NPR blog My Cancer. Since her posting, Sievers has continued to reflect on his battle and on October 3, he shared an essay about chemotherapy -- the same essay he reads on the NPR poscast. He tells readers and listeners that nowadays he reports for chemotherapy every three weeks and sits for five or six hours while drugs sail through his veins. The drugs just keep coming -- and a vacation from this drug treatment is nowhere in sight. It's become a way of life for a man who is simply buying time. It is a changed life -- one he would happily live without.

Sievers, who thought he won the war against colon cancer and is now fighting brain and lung cancer, wakes each morning and feels pretty good -- as long as he stays in bed. When he gets up, the nausea begins and the tingling in his hands and feet begins. It takes him hours to get going, and eating is the last thing on his mind. But he takes pills that require food so giving up food is not an option. Sievers fights through debilitating fatigue each day, and no longer schedules anything in the morning. Mid-day -- when he feels pretty good -- is when he packs in appointments and meetings. But it all wipes him out and by the end of the day, the nausea and fatigue is back. One-quarter of one day, and Sievers is totally spent. And then each evening is a repeat of each morning.

Sievers is trying a new drug and hopes it will shrink his tumor. He doesn't want to get his hopes up though, and he fears disappointment. Mostly, though, he wants his old life back. Even if just for a few days.

Breast density important tool in breast cancer risk assessment

Breast density has something to do with breast cancer. This is not really news. It's clear there is some kind of link, some kind of relationship, some kind of risk related to breast density for both pre- and post-menopausal women. It's just not clear how exactly breast density -- how much fat tissue fills the breast compared to other tissue -- contributes to breast cancer risk. But once it is clear, medical professionals will have a whole new arsenal of power in the fight against this deadly disease.

Cancer News in Context, a regular series of podcast commentaries produced by the Harvard Center for Cancer Prevention, highlights two recent studies that add weight to the fact that breast density is an important tool in breast cancer prediction and identifies two areas that with futher study might help determine why breasts that are very dense are associated with higher risks for breast cancer -- and why density may be as important a factor as age in determining risk.

Currently, mammograms are the chosen method for measuring breast density. But measurement is not required, and there are no national standards for how to measure. Once federal groups issue requirements and direction on how to classify density, women will receive more accurate assessments of their personal risk.

There is also speculation that altering breast density through hormonal therapy may lower risk. Perhaps genetics are the strongest indicator of risk, making short-term solutions ineffective, but perhaps certain interventions can override genetics, helping women protect themselves from breast cancer.

There are many issues that must be ironed out before we really understand how breast density affects breast cancer. There is no doubt that density, when added to other risk factors, will surely help improve the accuracy of prediction. It's one tool, among many, that is poised to open all sorts of doors.

Lung cancer breathing techniques can help us all relax

The Lung Cancer Alliance -- the only national non-profit organization dedicated entirely to lung cancer patient support and advocacy -- asked pulmonary clinical nurse specialist Donna Wilson to help educate the lung cancer community about healthy breathing. Wilson agreed and her breathing tips, available on podcast, are intended to relieve shortness of breath related to pain or activity. Her three breathing techniques -- detailed here -- are simple, easy-to-understand, and truly relaxing.

Before beginning this series of breathing exercises, stop whatever you are doing and sit down or lean against a wall.
  • Place chin to your chest to relax your neck muscles. Breathe 10 short bursts of air in and out of your lips. As you expel air, neck and chest muscles should relax.
  • Place chin to your chest. Breathe three times in through your nose and out through your mouth.
  • Place chin to your chest. Close your mouth, and breathe four times in and out only through your nose.
After completing these exercises, lift your head, breathe normally, and let your shoulders relax. In a few minutes, your entire body should start to relax -- and shortness of breath will resolve.

I don't have lung cancer -- but I do have moments of anxiety and panic. So I plan to save these tips. And I plan to use them. And I plan to share them. Because we all can benefit from a dose of relaxation.

NPR Leroy Sievers journalist blogs My Cancer

"Death and I are hardly strangers. In my career as a journalist, I've covered 14 wars, genocides, natural disasters. I've seen tens of thousands of people die in front of me. Most of those deaths were sudden, brutal, painful, often without dignity." -- Leroy Sievers

Leroy Sievers, after a routine colonoscopy four years ago, was diagnosed with colon cancer. After undergoing surgery, he was diagnosed cancer-free. At the time, he referred to himself as a poster child for early detection and treatment. Earlier this year, he began slurring his words and one side of his face began to droop. Tests revealed a brain tumor. Further tests revealed lung tumors. Sievers asked the doctor for the worst-case scenario -- the doctor gave him six months to live.

Continue reading NPR Leroy Sievers journalist blogs My Cancer

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