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Posts with tag programs

Thought for the Day: Choosing the best surgeon

What do you think is the best way to choose an experienced and quality surgeon? Some researchers think it's by reputation. That's how I got mine. A friend told me who he'd use if his wife or mother developed breast cancer and then more and more people began recommending the same surgeon. It seemed logical I'd use him too. And I'm glad I did.

A study published in the January 20 Journal of Clinical Oncology reveals that women who actively choose their surgeons by reputation are more likely to be treated by experienced surgeons in hospitals with comprehensive cancer programs. Reputation even beat out accepting referrals from other doctors or health plans.

Thought for the Day: The power of three

Elizabeth Edwards' breast cancer recurrence has the disease once again dominating newspapers, magazines, television programs, and conversations.

Just two days ago, I heard a run-down of facts about breast cancer. They were shared to raise awareness, and while I was already aware of most of them, it's still quite sobering to hear some of the statistics that surround a disease that lands in the laps of more than 200,000 American women every year.

Think about these -- three powerful truths that happen to stick in my mind at this very moment:

The highest risk of breast cancer belongs to those older than 60.

Nearly 85 percent of women diagnosed with breast cancer have no family history of the disease.

And tragically, every three minutes, a woman is diagnosed with breast cancer.

Breast cancer weighs heavily on young emotions

Research indicates that young breast cancer survivors have a harder time recovering emotionally from cancer than women who develop the disease later in life.

In Australia, a quality of life survey including 300 women found most survivors adjusted normally within 18 months after diagnosis. But women under the age of 50 reported more of a struggle with their emotional health.

Perhaps it's the direct threat to her life, or her fertility, or her sexuality, or her body image that brings on the added challenge for a young woman. Regardless, there are no easy solutions or quick remedies for lightening the load that weighs heavily on young minds.

Breast cancer changes everything, and bouncing back from the disease takes time. And this research validates the need for programs targeted at younger women, as well as further research to more clearly identify how to better help breast cancer's youngest victims.

Instant messaging for a cause

Here's an easy way to make a charitable difference -- send an instant message.

Students at 35 colleges and universities are doing it, and it's turned into a great way to create awareness and raise funds for nine nonprofit organizations.

The organizations -- American Red Cross, Boys and Girls Clubs of America, National AIDS Fund, National Multiple Sclerosis Society, ninemillion.org, Sierra Club, Stopglobalwarming.org, Susan G. Komen for the Cure, and U.S. Fund for UNICEF -- receive a portion of advertising revenue every time a student has a conversation using instant messaging (or i'm).

It's all part of a Microsoft-sponsored campus program, and students get to choose their recipient organization each time they send an instant message.

There is no cap on the amount each group can receive, and Microsoft will make a guaranteed donation of at least $100,000 to each organization during the first year of the program.

Visit www.imforacause.com for more information.

Turning a negative to a positive

The beloved member of our family, Spotted Calamity Jane, the oldest of our two Dalmatians had to be put down on February 17. It was the hardest decision I personally ever had to make, knowing when it was time to put her out of too much pain. The tears continue to flow and I know will for a long time. She had survived breast cancer at the age of 4 and continued to live a happy life loving her runs on the beach. 2 1/2 years ago she was diagnosed with renal failure, something that is irreversible but we continued to give her a low protein diet and top notch vet care and monitoring that included some acupuncture. It came to a point where we knew the pain was outweighing the good quality of life and the end was not far away and it was time to end the suffering. For 13 years she brought us joy and laughter and unconditional love. She was the leader and companion to our other 8 year old Dalmatian Kiva, who is deaf and followed Cally everywhere watching everything that she did. Watching the two of them running and playing on the beach in the water and sand are memories I will always carry. So we decided to have Cally cremated so we could spread her ashes out on the beach that she loved so much.

Then we were faced with another heart break. Seventeen days later we were told that her ashes had been lost and it floored us. It sent me curled up in a bed crying for a whole day. Family members and friends were outraged as our hearts once again tried to overcome the loss. We were told to get an attorney and sue for compensation. In quietness I walked through the trails in the woods near our house and thought what good could come from all of this. The vet of course refunded our money and offered to buy a memorial stone or something for us. I told him we would think about things. Then I decided that her life and the joy that she brought us should go to something positive and that I did not want to go through the stress and negativity of a law suit and staring at a meaningless stone memorial would not make it any better. That wouldn't change anything. So I suggested to the vet and the cremation services company, to donate money to my favorite charity, Indie Music For Life, that works with independent singer songwriters and comedians to raise money for cancer research and educational awareness programs on the benefits of music and laughter as therapy to cancer patients. This turned the tragedy into a positive. We have the great memories of her life with us and the knowledge that even in her death she has brought more good to the world. Cally is the beautiful dark colored Dalmatian on the left in this picture. Her spots continued to grow and grow which made her look like a black Dalmatian with white spots. We called her "our little negative" for those of you in the photography field that understand reverse imaging. She was a rare jewel and always a positive in our lives.

The cost of fighting cancer: there is help available

The cost of drugs to treat cancer can be very expensive. If you do not have good medical insurance it could prove disastrous for you and your family.

I read an article in Cure Magazine last night called Help for Patients. In this article it provided information on assistance programs. It also mentioned that many patient assistance programs will require proof of income, social security income, interest and retirement to prove financial burden and to meet income requirements of the programs.

Patients interested in enrolling in an assistance program can start by doing some research on the organizations listed below:

Grant to study impact of palliative care programs

The National Palliative Care Research Center, Mount Sinai School of Medicine, has been awarded a five million dollar grant from the National Cancer Institute (NCI). The study will evaluate palliative care on the quality of care of the patients and also look at what programs are effective.

Palliative care consultation teams have been shown in small preliminary studies to improve the identification and treatment of pain and symptoms and to improve family satisfaction with care. These studies however did not explain the structure and processes of care linked to the achievement of these outcomes.

The study will assess the structure, processes and clinical outcomes of care among hospitalized persons with advanced cancer that receive palliative care as compared to similar patients receiving usual hospital care.

The National Palliative Care Research Center (NPCRC) promotes evidence based palliative care research in order to improve the care of patients with serious illness, and their families.

Give me an almanac and I will use it. November is ...

Although these are important issues year-round, November is the month dedicated to raising awareness about lung cancer, family caregivers, hospice care and the very important marrow donor program.

Lung Cancer Awareness Month is a national campaign to raise awareness about lung cancer. In addition to facts and resources, the Lung Cancer Alliance (LCA), a patient support and advocacy organization, hosts the Faces of Lung Cancer Campaign on their website featuring photos of those lives that have been touched by lung cancer.

According to facts presented by LCA, lung cancer will kill more people this year than breast cancer, prostate cancer, colon cancer, liver cancer, kidney cancer and melanoma combined. Lung cancer will kill three times as many men as prostate cancer this year. Lung cancer will kill nearly twice as many women as breast cancer this year. Although smokers are diagnosed with lung cancer, not all lung cancer patients smoked before being diagnosed. Visit LCA for ways to get involved in the month-long campaign to bring attention to lung cancer.

To read our posts about lung cancer, visit Lung Cancer.

National Family Caregivers Month is a way to say thank you, show our personal support and create community support, and help educate the public about the issues and realities caregivers face each day they lovingly care for a family member or friend in need of care.

To caregivers, Suzanne Mintz says, "If we believe in ourselves, protect our health, reach out for help, and speak up for our rights we can each improve our day-to-day lives, but also together we can change our healthcare system and our society to make it more responsive to the needs of families dealing with chronic illnesses and disabilities." The National Family Caregivers Association (NFCA) is an organization that supports, empowers, educates, and speaks up for the more than 50 million Americans who are caregivers.

To read our posts about caregivers, visit Cancer Caregivers.

National Hospice Month is a campaign to raise awareness of hospice care in honoring the terminally ill and their family members during a difficult time and creating the most comfortable home or home-like environment possible. The first hospice began in 1974 with the Connecticut Hospice providing palliative care using the combined knowledge and skill of a team of physicians, nurses, medical social workers, therapists, counselors, home care aides and volunteers. To learn more about hospice care, visit the National Association for Home Care and Hospice.

National Marrow Awareness Month brings public attention for the more than 50,000 Americans each year who are diagnosed with leukemia and other blood diseases and are in need of a bone marrow or blood stem cell transplant in order to survive. To learn more about this program, and how you might be able to help, visit the National Marrow Donor Program.

Cancer help delivered to mailbox, for free

Living Beyond Breast Cancer (LBBC) -- a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life -- recently began offering a new resource for breast cancer survivors, for both the newly diagnosed and those with metastatic disease.

"The first few weeks after diagnosis can be extremely difficult emotionally, and women with advanced disease often do not get the support and resources they need," said Jean Sachs, LBBC executive director. "We want to give them an understanding of their choices to help them make informed decisions regarding their physical and emotional health."

This understanding comes in the form of a 28-page brochure -- What to expect . . . today, tomorrow and beyond: Steps for coping with the medical, emotional and practical concerns of breast cancer -- available free on the Internet or by request. This guide, a road map, addresses topics such as coping with the news of a new diagnosis, telling family and friends, understanding pathology reports, choosing a medical team, asking for help, and finding support.

LBBC offers multiple addidtional resources -- including specialized navigation tools on its website that lead to a wealth of information. Visitors can Learn More about LBBC. They can Stay Informed through news, message boards, and other resources. They can Participate in events and programs. And they can Support LBBC through volunteer efforts and financial donations.

LBBC was founded in 1991 by a radiation oncologist who focused exclusively on meeting the needs of women post-treatment. She ran the organization out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer at the time, and so she tried to fill the void. In 1986, an executive director came on board, increased the LBBC budget from $100,000 to $1.8 million per year, expanded all programs and services, and worked to secure LBBC as a solid, dependable resource for all women, of all stages of breast cancer and in all phases of treatment and recovery. And now, in 2006, that is exactly what it is.

Opiate blocker naltrexone shows success in treating women smokers

In a recent study, researchers found that the opiate blocking drug naltrexone, used to treat alcoholics and heroin addicts, was effective in helping some women kick the smoking habit. In addition, the researchers reported that naltrexone prevented the weight gain that often follows when women quit smoking.

Participants in the study were divided into two groups. One group was given a combination of drug therapy, behavioral counseling sessions, and nicotine patches. The other group was given a placebo, behavioral counseling sessions, and nicotine patches. For women receiving naltrexone, 58 percent were still not smoking eight weeks later. Six months later, some had taken up the smoking habit again, but some had remained free of the habit.

Naltrexone did not appear to provide a benefit for men trying to quit smoking.

"Women have historically had less success than men in giving up cigarettes," said study author Andrea King, PhD, associate professor of psychiatry at the University of Chicago. "In this small study, naltrexone seems to have closed that gap."

The study, Efficacy of Naltrexone in Women's Smoking Cessation, is currently ongoing and recruiting new patients.

Sunday Seven: Seven super breast cancer websites

When a question or concern or worry related to breast cancer pops into my head, I typically find myself parked in front of my computer in search of instant answers, instant comfort, instant wisdom. There are several different websites I consult -- each one different from the others, each one complementing the others. They are my reference tools, my handbooks, my encyclopedias. They offer me a clear picture of a confusing, cloudy disease. And here they are -- seven super websites that have been become staples in my life.

Continue reading Sunday Seven: Seven super breast cancer websites

Advocacy for more breast cancer research and detection for the uninsured

Over three thousand cancer patients, survivors, friends and relatives went to Capital Hill to lobby Congress. The group want lawmakers to reauthorize a program that provides breast and cervical cancer screening for the uninsured. They lobbied for more money for cancer research and detection methods.

The National Cancer Institute's budget will be cut by forty million dollars by President Bush's proposed budget for 2007. This can really hurt research programs and early detection methods to help the uninsured. Treatment programs now only reach one in every five women that are eligible for it.

The two day event was sponsored by the American Cancer Society and its sister advocacy group, the Cancer Action Network. The event attracted over ten thousand people. They also had large exhibits available to visit that showed the work of state and local cancer activists.

Radio broadcast features message about breast cancer

Beginning today, these words will be broadcast on various local Gainesville radio stations. These words are about breast cancer, about raising money for this serious disease, about Making Strides Against Breast Cancer, about the American Cancer Society. These words are about me. These are my words.

I'm Jacki. I'm someone you know. I'm a mother of two young sons, a wife, a sister, an aunt, a daughter, a friend. I am a freelance writer and a preschool teacher. I like to exercise and scrapbook and watch my little boys enjoy life's simple pleasures. I like pedicures, massages and candles. I'm 36 years old. I'm someone you know -- but I'm not alone.

I was diagnosed with breast cancer almost two years ago. And the American Cancer Society was instrumental in my recovery. I was comforted by their cancer programs and events, soothed by volunteers who called me at home to lend an ear, and educated by American Cancer Society literature and resources.

Join me for our Making Strides Against Breast Cancer walk on Saturday, October 14th, at the North East Park in Gainesville at 7:30 a.m. to help fund breast cancer research. Visit www.cancer.org or call 1-800-ACS-2345 to learn how you can become involved. Because someone you know has breast cancer. I'm someone you know -- I'm a breast cancer survivor -- and with the American Cancer Society, I'm not alone.

Hurricane Voices raises consciousness, incites public action

I love the terminology used by those behind the scenes at Hurricane Voices. This is where I first read the words breast cancer dancer and where individuals have gathered to advance the rebellion against breast cancer. The content on this site is powerful, edgy, and truly inspiring -- it incites public action. And it makes me want to jump up and do something -- now. To break down the barriers to progress in pursuit of the causes and cures for breast cancer -- which is the whole purpose of Hurricane Voices.

Hurricane Voices began because of one woman -- Lois Egasti, a wife and mother living with metastatic breast cancer. Lois, who passed away on April 15, 2003, knew she was not alone and felt the need to take a stand against the disease. So she put her urge into action and formed this not-for-profit organization. And in just four years, a great community of voices emerged -- voices that have helped raise support and participation in far-reaching programs and events.

Hurricane Voices offers on its website a family reading list, a regular newsletter, an empowering overview of breast cancer and its statistics, and a sampling of various myths surrounding breast cancer. Hurricane Voices provides direction for involvement in unique conferences -- such as When a Parent Has Cancer: Strengthening the School's Response which helps school systems support families affected by parental cancer and Breast Cancer: Truth & Consequences, a conference that challenges the status quo concerning breast cancer. Hurricane Voices initiates thought-provoking public awareness campaigns and strives to inform the public that the disease we call breast cancer is a very serious illness.

Every day, more people are being diagnosed. Every day, more people are dying. Yet we are not beating this disease -- in fact in the time it takes to brush our teeth or drink a cup of coffee, another person has died of breast cancer. And this is what Hurricane Voices wants us to know. This and the fact that well-meaning, misconstrued survival rates in the 90 percentiles only extend for five years. And five years is just not enough.

Powerful -- that's what Hurricane Voices is -- powerful. And each of us can contribute our own power to this organization by becoming a Hurricane Voice. So speak up -- by simply clicking here.

Carmen Electra: celebrity experiences for brain cancer patients

The Head to Hollywood charity, founded by US Weekly magazine editor Ken Baker, a pituitary brain tumor survivor, and actress/model Carmen Electra, whose mother died of a malignant brain tumor, provides brain tumor patients with opportunities to spend a day being pampered as a star and experiencing life as a celebrity. This might include attendance at Hollywood events and parties, VIP access to television and movie sets, personal meetings with stars, as well as celebrity spa and beauty treatments.

Recently, Ritz Camera Centers announced they have chosen Carmen Electra as spokesperson for several new products they will be introducing, and as part of the new promotion, the company is launching a fundraising campaign for Head to Hollywood. In the next few weeks, Ritz Camera Centers will be offering a limited edition poster for the Head to Hollywood charity and posting photos taken by Carmen Electra, who is reported to be a photographer in her own right, at their website.

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