As soon as I was diagnosed with breast cancer, I started reading, researching, and investigating. I hunted down every bit of information I could find about the disease that had somehow tunneled through my breast tissue. What I found kept me in the know. I felt informed and in control -- and a bit skittish too.

My doctor once told me to stop reading. It was causing me too much worry, too much unnecessary stress. And while I didn't stop reading altogether, I did cut down on my Internet research. Since anyone can post anything on the Internet, it can be an iffy source of information. So iffy that some doctors -- like mine -- have expressed concern.

Doctors may be able to breathe a sigh of relief, though. According to a study published in the April issue of the International Journal of Medical Informatics, using the internet generally convinces patients that their doctors are right on track with their medical opinions.

Source: MAMM magazine, May/June 2007

Luanne Austin says chemotherapy is not all it's cracked up to be. She doesn't mean it's cracked up to be something really great but is far from such a thing. She means it's cracked up to be something pretty horrible but is really not all that bad.

Austin says the day her doctor announced she would receive chemotherapy was almost as bad as the day she learned she had breast cancer. That's because she had heard nothing but bad things about the treatment. She expected to be laying in bed with her life in the balance -- nauseated, vomiting, sick -- as the "cure" killed her.

All expectations aside, Austin decided to tackle chemotherapy with a positive attitude. This may seem a daunting task -- turning a dreaded chemotherapy protocol into a not-so-bad experience -- but Austin mastered the task. And here are seven of her positive thoughts about a treatment that is not all it's cracked up to be.

• Austin talked to people who had traveled journeys similar to hers. What she learned is that many women continued working through treatment. Some suffered very few side effects. One woman even told Austin her experience was super. Austin was inspired by the positive women she tracked down. And now she inspires others.
  

• Austin did some reading. She learned that chemotherapy drugs target quickly-dividing cells, like cancer cells, red and white blood cells, blood platelets, and digestive tract cells. Learning about the process helped her realize chemotherapy was intended to make her well, not make her suffer.

• Austin learned how to support her body through treatment. She came to understand that the best chance of surviving breast cancer comes from conventional medicine -- surgery, chemotherapy, radiation -- but that alternative treatments can complement the traditional approach. She recommends the book Breast Cancer: Beyond Convention and considers her pursuit of a healthy diet, exercise, supplements, and a good night's sleep some of her most helpful chemotherapy add-ons.

• When Austin felt weak, tired, and just plain zoned out, she retreated to her bed with a good book and a cup of tea. Instead of considering it a setback, she called this downtime a good excuse to spend hours reading.

• Austin found relief from her nurses. They were terrific, she recalls, and professional and friendly and respectful too. Getting to know her medical crew -- and receiving hugs from them at the end of her treatment -- confirmed chemotherapy has some good points.

• For Austin, God -- who carried her through her whole journey -- was instrumental in her positive outlook. She felt lifted up and carried, she says.

• And then there's love -- pure and simple love from her husband and family members -- that allows her to conclude that chemotherapy is not so bad. "I'd have to say chemotherapy hasn't been all that bad," she says. "Not bad at all."
  

I really like the book I've recently been writing about -- The Journey Through Cancer: Healing and Transforming the Whole Person. And I plan to read more. And I plan to write more. But I'm at a standstill.

I haven't been reading lately. And I haven't been writing lately. Because life is getting in the way. And in my book, that's a good thing.

There was a time when it would have caused me great stress to have committed myself to something -- like reading a book and writing about it -- and to have somehow fallen short on completing the task. Stress would have caused me to make time for my commitment, to push other important tasks aside, to fulfill my self-imposed deadlines.

But ever since cancer arrived in my life and jolted me into the realization that I only have the pleasure of one day at a time, I am better at capitalizing on what's most important in my world -- my family.

I have been busy playing beauty shop with my son. The boy who once shaved my head prior to my chemotherapy fallout is now twisting my dark brown curls into one-of-a-kind styles. I have been hanging Christmas lights with my sister who really has done all the work for me. I have been watching my two boys play in the yard and skateboard down the driveway and create concoctions of dirt, water, and weeds on the front porch. I have been shopping for holiday gifts and finding all sorts of great buys for myself too. I have been playing with my niece and dining out with my husband and writing posts and sitting by a fire at night. I have not been reading.

I am perfectly content with my hiatus from reading and writing. Because enjoying my moments, on my preferred terms, is surely part of recovering from a illness that threatened to take all my moments away.

I'm not sure when I'll get back to Dr. Jeremy Geffen's book, when I will continue reading about his Seven Levels of Healing. Because at the moment, I am too busy healing myself.

To read previous posts on the same topic, visit:
The Journey Through Cancer: State-Of-The-Art-Medical Care
The Journey Through Cancer: Beverly Is Every One of Us
The Journey Through Cancer: What Is The Purpose Of Medicine
The Journey Through Cancer: Introduction
Sunday Seven: Seven Levels of Healing on Cancer Journey

Stay tuned for an eventual post about:
The Journey Through Cancer: Level One -- Education and Information

I love it when seven of something lands before me, offering me potential material for the Sunday Seven series. In fact, it just happened. And I can't wait to start writing about the Seven Levels of Healing common to cancer patients and those who love them.

I have a new book. It's called The Journey Through Cancer: Healing and Transforming the Whole Person by Jeremy Geffen, MD.

Dr. Geffen knows cancer. He lost his father just three months after a stomach cancer diagnosis. He became an oncologist. He founded a cancer research center. He travels and speaks and writes about health and wellness. And inside the pages of his newly revised and updated paperback, he details the Seven Levels of Healing -- a blend of conventional and complementary principles-- and the true stories of cancer patients who have directly experienced them.

It occurred to me while first flipping through this book that I might read it in its entirety and then write a review of the material. Then I determined it would take much too long for this approach. With two small children, a few jobs, an exercise routine I must revisit, and all the other bits and pieces of life that keep me occupied, this would be quite an undertaking -- the actual reading, the remembering, the writing. Somehow, this would be too much to manage. But small steps. I think I can handle small steps. So this is how it's going to work.

I will present to you in this post the Seven Levels of Healing. I don't know much about them yet -- although by title alone, I am sure I have lived most of them in my own cancer journey. So I will simply lay the groundwork. And then I will start reading. And as I read, I will write. This will be my own one-woman book club -- with an open invitation for new members. Read my posts and reflect on them. Agree. Disagree. Leave comments. Buy your own book. Read with me. Apply what you learn to your own life. Share what you learn with others. The possibilities are endless as I journey my way through this new book in search of peace, clarity, and comfort -- all of which flow from these seven levels.

Level One: Education & Information
Level Two: Connection with Others
Level Three: The Body as Garden
Level Four: Emotional Healing
Level Five: The Nature of Mind
Level Six: Life Assessment
Level Seven: The Nature of Spirit

And so that's what I have to offer for now. I'm sorry to keep you hanging. But rest assured, I am hanging right along with you, eager to find a moment to dive into this book. To sink my teeth into the words, sentences, paragraphs, chapters. To relay it all to you. I can't wait -- to really understand the Seven Levels of Healing.

Stay tuned for:
The Journey Through Cancer: Introduction

I love the terminology used by those behind the scenes at Hurricane Voices. This is where I first read the words breast cancer dancer and where individuals have gathered to advance the rebellion against breast cancer. The content on this site is powerful, edgy, and truly inspiring -- it incites public action. And it makes me want to jump up and do something -- now. To break down the barriers to progress in pursuit of the causes and cures for breast cancer -- which is the whole purpose of Hurricane Voices.

Hurricane Voices began because of one woman -- Lois Egasti, a wife and mother living with metastatic breast cancer. Lois, who passed away on April 15, 2003, knew she was not alone and felt the need to take a stand against the disease. So she put her urge into action and formed this not-for-profit organization. And in just four years, a great community of voices emerged -- voices that have helped raise support and participation in far-reaching programs and events.

Hurricane Voices offers on its website a family reading list, a regular newsletter, an empowering overview of breast cancer and its statistics, and a sampling of various myths surrounding breast cancer. Hurricane Voices provides direction for involvement in unique conferences -- such as When a Parent Has Cancer: Strengthening the School's Response which helps school systems support families affected by parental cancer and Breast Cancer: Truth & Consequences, a conference that challenges the status quo concerning breast cancer. Hurricane Voices initiates thought-provoking public awareness campaigns and strives to inform the public that the disease we call breast cancer is a very serious illness.

Every day, more people are being diagnosed. Every day, more people are dying. Yet we are not beating this disease -- in fact in the time it takes to brush our teeth or drink a cup of coffee, another person has died of breast cancer. And this is what Hurricane Voices wants us to know. This and the fact that well-meaning, misconstrued survival rates in the 90 percentiles only extend for five years. And five years is just not enough.

Powerful -- that's what Hurricane Voices is -- powerful. And each of us can contribute our own power to this organization by becoming a Hurricane Voice. So speak up -- by simply clicking here.

I like to read. I just don't find much time to do it -- with two kids, two jobs, an unpredictable exercise schedule, endless medical appointments, and all the other craziness that accompanies life. I would like to find more time for books -- books a bit more complex than the one I found time to read at bedtime tonight about a frog and a toad who spend their days flying kites and enjoying picnics together. I would like to read books that capture relationships and life experiences and a bit of mystery too.

The last book I read -- The Shop on Blossom Street -- is the kind of book I like. It is easy to read and captivating and inspiring and comforting. It is the kind of book I want to keep reading -- long after I have to put it down to tend to distractions. Perhaps it's the thread of cancer woven into the storyline of this book that kept me wanting more.

The Shop on Blossom Street -- by Debbie Macomber -- follows four women who are all seeking change in their lives. The lead character opens a yarn shop, years after a cancer diagnosis and with the intention of moving forward despite an uncertain future. She hosts knitting classes and forms relationships with three other women in search of brighter days.

Character Lydia Hoffman -- the cancer survivor -- overcomes obstacles and challenges and even another cancer scare. She finds friendship and love and all sorts of unexpected discoveries. She even graces the pages of a second book -- A Good Yarn -- that follows her continued life journeys.

I have the book A Good Yarn. It's on my bookshelf. And I can't wait to read it. I just can't find the time.

Caregivers are quiet heroes, helping and caring without asking for anything in return. Caregivers step in when there is a need and they bring with them a sense of hope and comfort during the challenges facing a loved one diagnosed with cancer. In the selflessness of love, they sometimes forget to take time to care for themselves. To avoid caregiver depression, frustration, resentment, illness and burnout, here are six ways a cancer caregiver can care for themselves while caring for someone else:

Take a daily walk. Exercise is a great stress reducer. Taking the time to stroll through the neighborhood or local park is like a deep calming breath for the body and emotions. If you are a jogger, go jogging. The point is to get away for a moment, get the body moving, and enjoy a change of scenery as you go.

Keep a journal. Daily journaling is a way to outwardly express your thoughts and emotions and can act as a relief value for emotions that are building up inside. It can also give you a better perspective. Sometimes we need to see what we are thinking and feeling to sort it all out.

Pursue personal interests. If you have a hobby or activity -- like writing poetry, photography, crafts, painting, knitting, reading, gardening, or listening to music, that has always been fun and brought you a sense of joy and contentment -- make time each day for your personal pleasurable pursuits.

Maintain friendships. We need our connection to others for the enjoyment of company and for comfort and support. Make regular weekly dates with friends and meet for coffee. Join a book club or start a book club. If there is a caregiver support group in your area, or a support group for families affected by cancer, consider joining.

Learn ways to relax. Try breathing exercises and muscle relaxation exercises. Schedule a massage. Take a weekly yoga or tai chi class. Cannot get away? Pop in a yoga or tai chi video and follow along.

Make your health a priority. Eat well-balanced meals, get plenty of rest, drink plenty of fluids. Find inspirational quotes that lift your spirits and display them where you can read them each day. Remember to laugh each day. Hug and be hugged.

To offer the very best care for your loved one, you must take care of yourself too. It's not selfish, it's wise.

If you are a caregiver that has found unique fun ways to take a moment to take care of yourself while taking care of someone you love, please share your ideas with other caregivers in the comment area following this post. If you are a reader with fun tips or ideas on ways a caregiver can take care of themselves while caring for someone else, please share in the comment area. We are all in this together, and we will get through the challenges and struggles of cancer much better with each other's support and encouragement.

I remember reading that Barbara Delinsky, novelist and breast cancer survivor, never shared her diagnosis of cancer until well after her fight was over. She feared the news would somehow halt her career in the publishing world. She wanted to remain untainted by disease in the eyes of her readers and bosses so she saved her secret. The secret is out now -- and is also part of a book she wrote called Uplift: Secrets from the Sisterhood of Breast Cancer Survivorship. She is in the clear now -- but she once feared the consequences of managing both cancer and her career.

The experts who offer a website resource at cancerandcareers.org believe that it is possible to combine cancer and career without fear or worry or secrecy. The advice provided on this site offers wisdom for working women and for employers and for co-workers. There is also a forum for shared stories -- where all of these individuals weigh in on their experiences. There are reading recommendations and a listing of available programs and services and a complete story about how this all came about.

Five years ago, the Board of Directors at Cosmetic Executive Women -- the preeminent nonprofit organization representing women in the U.S. and European beauty industries -- realized that five out of their 40 members had been diagnosed with cancer. Some told their colleagues at work and some did not. But all continued to work and experienced similar challenges. The fact is that work does not stop for all women who have been diagnosed with cancer. So the mission of this group is to help women, their employers, coworkers, and caregivers deal with this problem in the same way that they have learned to deal with problems at work -- strategically, knowledgeably, and effectively. With the right tools, stress and difficulty can be minimized. And this site is one great tool.

There is something about reading stories about other cancer survivors that helps me in moments of despair. Sometimes I look to the blogs that I read regularly -- blogs that capture the essence of realities that are not my own -- and I feel somehow comforted. I gain perspective and can remove myself a bit from my own turmoil. I gather strength and hope from others who struggle like me. I absorb the words written in these journals and see the photos of real people with real struggles and the big picture becomes clear to me -- breast cancer is widespread and far-reaching. And because of this, I have a lot of company of my path of uncertainty. This is what soothes me.

Books help me too -- the kind of books with little snippets of advice and wisdom from other survivors. Like Hope Lives! The After Breast Cancer Treatment Survival Handbook. My favorite chapter is about recurrence. There are passages from women who have had breast cancer two and three times and these strong women remind me that I if necessary, I can fight again and again and again. This book is humbling, sobering, and powerful. The voices that inhabit the pages put a bounce in my step and peace in my head. Hope does in fact live.