H.E.A.R.D. stands for Hemangioedothelioma, Epithelioid Hemangioendothelioma (EHE), And Related vascular Disorders.

It is a support group established in 2004 to help these rare diseases. Hemangioendothelioma (HE) is the name for a composite group of vascular cancers, which can involve soft tissue, bone, skin, liver, lymph nodes and/or the lungs.

Due to the rarity of Hemangioendothelioma, it is preferable for patients to seek a sarcoma specialist for treatment.

There are only about twenty cases diagnosed each year of HE. The H.E.A.R.D support group has been able to locate about 120 people around the world who have this disease.

The members of this unique group tell us on the website:

Together, our voices will be HEARD!

We're not even 11 days into Skin Cancer Awareness Month, and already my awareness about the disease has been raised several times.

Today, I learned that measuring the amount of melanin in a strand of hair can predict a person's risk for melanoma. It's all detailed in the May 15 issue of the American Journal of Epidemiology. And the study leading to this new conclusion -- that the amount of melanin in hair indicates an individual's skin type -- is quite interesting.

Think about this:

Researchers involved in a large skin cancer trial measured 2,3,5-pyrroletricarboxylic acid (PTCA) levels of 98 subjects with melanoma and 98 subjects without melanoma. They found the subjects with a PTCA concentration below 85ng/mg had more than four times the risk of developing melanoma.

Kidney transplants can save lives. They can also increase the risk of developing a variety of cancers, according to Australian researchers who report a risk 300 percent higher than in the general population.

Most cancers developed in kidney transplant patients have a known or suspected viral origin, suggesting the weakened immune systems in these patients limit protection against cancer.

"The immunosuppressive drugs transplant patients take lower their ability to fight off infections that can trigger malignancy", the lead researcher said. "We believe the increased incidence of infection leads to the infection that results in cancer." She also notes there is probably an even greater risk of cancer among heart and lung transplant patients because these patients receive more powerful immunosuppressive drugs.

Researchers gathered their findings by comparing the incidence of cancer in 29,000 patients with end-stage kidney disease who received kidney transplants. Data was collected beginning five years prior to transplantation, during dialysis, and after transplantation. Researchers then consulted an Australian registry to identify cancers occurring between the years of 1982-2003. They compared the statistics with the number of cancers seen among transplant patients.

These cancers included melanoma, Kaposi's sarcoma, non-Hodgkin's lymphoma, Hodgkin's disease, leukemia and cancers of the lip, tongue, mouth, salivary gland, esophagus, stomach, colon, anus, liver, gallbladder, lung, connective and other soft tissue, vulva, cervix, penis, eye and thyroid. There was also an increase in nasal cavity and vaginal cancers.

This study has important implications for future immosuppression. Patients should give considerable thought to quality-of-life transplants -- such as face transplants and hand transplants -- and should carefully weigh the risks of weakened immunity. On a brighter note, this study might help prompt research on medication that can selectively target the part of the body responsible for rejecting a transplant. Because right now, medications affect the entire immune system -- and this is what makes patients more prone to developing cancer.

Don't rule out coloring your hair for fear it may cause cancer -- because there's not much evidence at this point that hair dye causes the disease.

Even though 22 potentially cancer-causing hair dyes were banned in Europe recently, it does not appear that any of them are actually used in products in Europe and the United States, according to a news update in the January 2007 issue of Good Housekeeping.

And only one of these banned chemicals -- 2,3-Naphthalenediol -- is even listed in the U.S. Food and Drug Administration's voluntary cosmetics registry.

So if you must make a New Year's resolution come January 1, consider making changes that clearly help lower the risk of cancer. Eat healthy, exercise, lose excess weight, limit or cease alcohol consumption, and quit smoking for starters. Coloring your hair? Not so bad -- yet.

Cell phones don't cause cancer, according to a major study from Denmark that tracked 420,000 Danish cell phone users -- many of them users for more than 10 years and some for more than 20 years.

In the largest ever study to yield good news about the safety of cell phones, scientists matched phone records to the Danish Cancer Registry -- a listing that records every citizen who gets the disease -- and on Tuesday, the study results were revealed.

Cell-phone users are no more likely than anyone else to develop cancer.

But the lead researcher of this massive investigation says doubts will surely linger. There is really no biological basis for concern about radio waves, he says. But people still worry.

Cell phones beam radiofrequency energy that can penetrate the outer edge of the brain, causing suspicion about the origin of various cancers. Most research has found no link between cell phones and cancer, but the phones have never been given a definite clean bill of health either.

"As the body of evidence accumulates, people can become reassured that these devices are safe," says one cell phone researcher.

I've written twice before about a young woman named Diem Brown. I first wrote in August about her appearance as a contestant on MTV's Real World/Road Rules Challenge reality show. I wrote about how despite a recent diagnosis of ovarian cancer, she took herself to Australia to compete in physical and mental challenges with other spunky 20-something competitors. Brown, 25, fought for a cash prize of $250,000 -- while fighting cancer at the same time.

Brown did not win the grand prize, but she did win the admiration and respect of her castmates who on an MTV reunion show applauded her tireless and heroic efforts. In my second post, in September, I wrote about Brown's presence on the reunion show, about her strength, about the great mindset she acquired prior to returning home from Australia for treatment. I wrote about her foundation -- Live for the Challenge -- a wedding-type registry that allows patients to register for prescriptions, wigs, anything that helps them manage their illnesses. I did not write about the wig Brown wore on the show -- but it was apparent she had lost her long, blond hair and was masking the most visible side effect of chemotherapy.

Brown reluctantly yet powerfully unveiled her head on national television just a few nights ago during the beginning of another MTV Real World/Road Rules Challenge. During this installment -- The Duel -- Brown competes again, this time with the shortest of brown hair covering her scalp and with a fierceness that rivals anything she's offered on past shows.

Brown is back. She's in Brazil. And she is beating cancer.

The most recent season of MTV's Real World/Road Rules Challenge reality show has just ended. Customary after each season finale is a reunion show -- where a sampling of contestants recap their experiences, answer questions, confirm or dispel show rumors, and update viewers on the status of their post-television lives. The winners -- a twosome who took home $250,000 -- sit front and center at the reunion and get to bask in the glory of the physical and mental prowess that allowed them to win the big bucks. Two contestants clearly won -- they have the money to prove it. But another contestant -- who didn't take home a dime -- is the true winner in my book.

Diem Brown, 25, was cast on the MTV challenge show before she knew she had ovarian cancer. But prior to the start of the show, Brown did know of her diagnosis -- and she still decided after just a few treatments to head for Australia where she competed in physical stunts and tough competitions. The producers never knew of Brown's illness and she confided in only two castmates while she battled through fatigue and nausea to complete her own personal survival mission. She succeeded -- and she returned home victorious in her own right. And she has no regrets.

On the reunion show, Brown said the show made her more fierce, that she came out of the experience a stronger person, that she tried her hardest, put everything on the line, and didn't feel sorry for herself. And it put her mindset in a great place prior to returning home for continued treatment.

And now Brown is home. She is receiving treatment. And she is managing her foundation -- Live for the Challenge -- a wedding-type registry
where patients can register for wigs, prescriptions, anything critical to the management of their illness.

Ovarian cancer affects one in 50 women, mostly in a silent fashion -- with no overt symptoms until it's often too late. And there is currently no accurate screening for this life-threatening disease that can have tragic outcomes.

Brown seems to be managing just fine with the cancer she calls "the disease that whispers." She is strong, spunky, enthusiastic and positive about life, about her future. She is clearly a winner.

Dr. Sandra Steingraber, cancer survivor, ecologist and author, will present Contaminated without Consent: How Chemical Pollutants in Air, Food, and Water Violate Human Rights at the University of Illinois at Springfield on Wednesday, April 19, in observance of Earth Day. Earth Day, in its 38th year, is recognized on April 22 as a day to raise awareness for environmental issues affecting our health and the health of our planet, and as a way for people to celebrate the planet and encourage responsibility for it.

Dr. Steingraber is an internationally recognized author of the book Living Downstream: An Ecologist Looks at Cancer and the Environment focused on environmental links to cancer and reproductive health. According to background information about her book, it was the first work to bring data on toxic release together with data from U.S. cancer registries. She has a new book called Having Faith: An Ecologist's Journey to Motherhood. In addition, Dr. Steingraber was named Ms. Magazine's Woman of the Year in 1997. In 1998 she received the Jennifer Altman Foundation's first annual Altman Award for inspiring and poetic use of science to elucidate the causes of cancer as well as the Will Solimene Award from the American Medical Writers Association for excellence in medical communication. The Sierra Club calls her the Rachel Carson for our times.

This presentation is free and open to the public. You can also see a live webcast of the presentation at LIVE WEBCASTS FROM UIS, on April 19, 2006 at 7:30 p.m.