Listen to the Joystiq Podcast (because your ears can't read)

Note: The contents of this blog are for informational purposes only and should not be construed as medical advice or substitute for professional care. For medical emergencies, dial 911!

Posts with tag remission

No cancer present, in remission

As I worked my way to the check-out cubicle at my oncology office yesterday, I carried with me the small stack of paperwork my doctor had handed me. There was a sheet denoting all my charges -- of course. There were orders for a mammogram and MRI. There was a summary of sorts about my visit. I handed each of these papers to the woman eagerly awaiting receipt of my money -- but before I let them leave my hands, I noticed a check mark on one of the papers. It was located right next to words: No cancer present, in remission. There were other words -- like cancer recurrence -- where my check mark could have landed. But it didn't. I ended up just where I want it be, just where I want it to stay.

A simple check mark brightened my day. It's not that I thought my cancer had returned. It's just that my every-three-month check-ups open the door for this possibility. I go to these appointments for a reason -- to identify cancer's current role in my life -- and so there's always a chance something will be discovered. But not today.

No cancer present, in remission. These are five of the most beautiful words ever written about me.

Press Secretary Tony Snow clears up cancer confusion

White House Press Secretary Tony Snow popped in for an unexpected visit on Bill O'Reilly's Radio Factor on Wednesday with the purpose of clearing up a certain cancer matter.

"Some of this has been misreported," Snow told O'Reilly in reference to his recent cancer recurrence.

"I do not have liver cancer," Snow said. "There are a number of small tumors that are in my abdominal cavity; they have not hit any other organs."

Snow, 51, said there is also no cancer traveling through his bloodstream and that he plans to return to work after recovering from the surgery he had two weeks ago to remove tumors from his abdomen.

Although his cancer is not threatening his life -- he says if the tumors didn't grow from now until the time he died, he would be absolutely fine -- Snow will still receive chemotherapy to "drive this sucker into remission," he said.

Snow began battling cancer in 2005 when he was diagnosed with colon cancer, had his colon removed, and underwent several months of chemotherapy.

Thought for the Day: I'm too young for this

There's this guy. His name is Matthew Zachary. He's a cancer survivor, a motivational speaker, a concert pianist, and the founder of a resource portal for young adults surviving cancer.

Steps for Living, Inc. -- also known as I'm too young for this -- was created by Zachary because he wants us all to know there are awesome cancer support services out there for adolescents and young adults. He means really awesome opportunities -- like spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, financial scholarships, and more.

You may be too young for cancer, but you are not alone, says Zachary whose mantra is Get Busy Living. And this is exactly what he is doing, despite challenges and setbacks in his own cancer recovery.

Think about this, an e-mail written by Zachary for those near and dear to his heart:

I am writing to share that I have suddenly gone deaf in my left ear. The condition is called Sudden Sensory Neural Hearing Loss.

After consulting with the country's best hearing experts as well as my oncologist, it has been determined that this is unequivocally a latent, long-term side effect of my post-operative cancer treatments from eleven years ago. Evidently, the excessive radiation dosages to the left hemisphere of my brain have caused irreparable neurological damage to my cochlea, which has ceased functioning.

There may be options (cochlear implants) but I will not know more for several weeks. As you can imagine, this is a devastating blow to my personal life and music career, especially since I remember fighting so hard to regain dexterity and muscle control in my left hand when it ceased functioning prior to my initial diagnosis in 1995.

That said, it has only reinvigorated me to stay the course and continue to advocate on behalf of the more than 500,000 young adults living with, through and beyond cancer each and every year. Now more than ever, I stress the importance of recognizing that remission is not a cure and that public awareness and adequate funding for adolescent and young adult cancer survivorship programming is tantamount to that of cancer research.

This is what it means to be a cancer survivor.

To read more about Zachary's powerful journey, click here for an unbelievably moving essay -- titled The Cost Of Living: No Cure For Cancer -- written by this unbelievably grounded guy.

What About Brian? He's surviving cancer, that's what

His name is not really Brian -- that's just the character actor Barry Watson plays on the ABC TV show What About Brian that just ended its season on March 26.

I really like this show. The network calls it a contemporary, heartwarming ensemble drama that continues to tell the stories of a group of close-knit friends in various stages of romantic relationships and friendships living in Los Angeles.

This is exactly why I like it. But there's an underlying story not written into the script that has compelled me to watch -- and truly enjoy -- this show.

Barry Watson, best known for his role as Matt Camden on the long-running WB series 7th Heaven, is surviving cancer. Diagnosed with Hodgkin's Lymphoma in May 2002, he received treatment and reported in April 2003 that he was in remission. And he's been working hard ever since.

Watson is not only an actor. He is a husband -- his wife is Tracy Hutson of ABC's Extreme Makeover: Home Edition -- and he is a father. But most important in my book, Watson is a cancer survivor. And more than anything, this is what inspires me every time I watch What About Brian.

Mexican boy smuggled into United States dies of cancer

Eight-year-old Luis Carranza, whose mother slipped him from Mexico into the United States for live-saving cancer treatment, has died of leukemia after the same treatment that once offered him remission attacked his central nervous system, and caused seizures and terminal, irreversible brain damage.

Luis' story, first featured in a September 18 post, is a powerful one, riddled with struggle and hardship and love and commitment.

The story began less than two years ago when Guadalupe Carranza smuggled her young, sick son into the United States for treatment. Luis was welcomed into a Texas hospital and was showered with an abundance of love from staff and volunteers. Guadalupe did not receive the same warm welcome, however, and was deported back to Mexico. And while she battled to return to her son's bedside, Guadalupe was met with continued defeat -- until her son fell into a coma and border and consulate officials allowed the mother to cross back into the United States where she stayed until her son passed away on Thursday at his grandparent's house in El Paso.

Guadalupe had been with her son since May 8, 2006. And an attorney involved in Luis' case says he believes the boy, despite his serious condition, could sense his mother's presence. And everyone involved believes the boy, who was clearly suffering, is now in a much better place.

Surviving cancer three months at a time

My blood looked good. My weight is normal. My temperature was 98.2. My blood pressure was perfect. And the physical exam conducted by my oncologist revealed that for another three-month stretch, I have survived cancer.

There are other exams ahead in the next few months -- a breast MRI, a mammogram, an ultrasound, a follow-up with my radiation oncologist -- but mostly, my life revolves around the every-three-month visit with my medical oncologist. He's the one who plotted the course of my treatment, responds to my physical and emotional ups and downs, and checks my every piece and part. He is the one who will declare my remission in five years, if warranted. He is the one who told me today I am doing very well.

And for the next three months, I will assume I am just that -- very well. And my hope is that on May 21, when I depart his office once again, I am able to report that not one thing has changed.

Can patients in remission from CML stop taking Gleevec?

In the January issue of Blood, a study shows that in rare cases of chronic myelogenous leukemia (CML), treatment with Gleevec can be discontinued.

The researchers think that some patients treated with Gleevec (imatinib mesylate) that go into extended remissions can stop the drug. They add that patients continue strict monitoring for relapse.

Twelve patients were put into remission with Gleevec for over two years. Six of these patients experienced a relapse within five months after being taken off the drug. When Gleevec was restarted, residual disease again declined.

The other six patients remain in remission after nine to twenty four months follow up.

Despite these results the researchers say 'we do not widely recommend imatinib discontinuation at the present time".

I do have a few questions myself that the article did not address:

Does Gleevec have severe side effects that warrants stopping it at all?

Do they think that Gleevec can potentially cure the patient and some might be able to stop treatment all together?

One step closer to uncertain survival

It's an unsettling journey -- the pursuit of the five-year cancer survival mark. Some say each year of cancer survival makes the future more of a sure thing. And so surviving five years -- the traditional landmark of real remission -- is a big accomplishment. But then there's the perspective of numbers that for me say I have a 93 percent chance of surviving breast cancer for five years. After that, though, there's no telling what will happen. So I am eagerly awaiting the moment when I cross the five-year finish line as I anxiously realize this very same moment may also signal a more dismal outlook.

The paradox hit me straight in the face yesterday as I was waiting for my radiation oncologist to give me another six-month all clear announcement. I was reading the January/February 2007 issue of Coping magazine while I waited. And as I flipped through the pages, I landed right at these words:

Studies show that half of all breast cancer recurrences occur after completion of five years of standard tamoxifen therapy. Additionally, a third of women with estrogen receptor-positive early breast cancer experience a recurrence, and more of half of these recurrences occur more than five years after surgery.

Now this doesn't apply directly to me. My breast cancer was estrogen receptor-negative which makes me a non-candidate for tamoxifen. And this is what scares me. My tumor was aggressive and while my treatment was also aggressive, I don't get the extra five-year protection from hormone therapy. If women taking this drug can have recurrences after completing the therapy, I wonder what's in store for me having not had it.

Maybe I'm making comparisons that don't amount to any real conclusions. Perhaps my type of disease allows for a more secure future. Or perhaps it places me on shaky ground. I don't know for sure. And I don't think I'll dive any deeper into research than I already have. Instead, I will live for today -- while enjoying the announcement my oncologist shared with me yesterday. All clear!

Cancer always lurking in shadows for Leroy Sievers

Leroy Sievers has many titles. He's a journalist and a commentator and even a blogger. He's a cancer patient too. And while he accepts cancer patient as one of his working titles, he never would have said this title dominates all others in his life. He is, after all, more than cancer.

On his December 4 NPR podcast and My Cancer blog entry, Sievers reports about a host on a radio call-in show who recently asked him if cancer overshadows everything else in his life.

"No," he answered, recalling the first time he had cancer. He was treated with surgery and moved on. Cancer didn't overshadow anything. But that cancer was different than the cancer now invading his lungs, spine, and brain. And after a bit of thought, Sievers thinks he may have been too quick with his radio response.

This cancer is not a drive-by-disease, he says. It's grabbed him -- and is holding on. It has changed his entire life. He can no longer do everything he once did. And not a day goes by without a reminder of cancer. The treatment, the nausea, the tingling in his hands. Cancer is with him all the time, lurking in the shadows.

Whether he gets the pleasure of remission or the disappointment of a set-back, Sievers realizes he will always be a cancer patient. He realizes that cancer does in fact overshadow everything else in his life.

Previous posts about the cancer journey of Leroy Sievers are as follows:

Journalist Leroy Sievers adjusts to newfound hope
War journalist now witnessing his own cancer death
NPR Leroy Sievers blogs My Cancer

John Forsythe: winning cancer battle

Mid-October, we shared that actor John Forsythe, whose portrayal of Dynasty's Blake Carrington garnered him two Golden Globe Awards and several Emmy nominations, and who was the persuasive voice of Charlie on the television and film versions of Charlie's Angels, had entered Cedars Sinai Hospital in Los Angeles for colon cancer treatment.

More often than not, when we write a post concerning a celebrity, public figure or well-known blogger in the cancer community and cancer, it is in memorium, each one as painful to compose as the last.

Happily, this time, I am sharing more hopeful news. In mid-November, Forsythe, who is 88 years young, was released from the hospital and entered a rehab facility in Northern California. His family expects him home for Christmas.

According to reports, the Forsythe family has expressed gratitude for the outpouring of love and concern from the community. Charlie's Angel Cheryl Ladd, who replaced Farrah Fawcett in the television series -- is said to have sent her well wishes to Forsythe by saying, "He is my dear friend. I can't wait until he comes home so we can all gather around the dinner table. We have been praying for him."

About.com Colon Cancer Guide Donna Myers provides an address for anyone who wishes to send well wishes to John Forsythe and his family. You can write to:

John Forsythe
P.O. Box 1739
Santa Ynez, CA 93460

We send our best wishes to the family as well -- and a most Merry Christmas.

It's official -- Gleevec is a wonder drug

At one time, patients with blood cancers were treated with harsh drugs, like interferon or hydroxyurea, yet only two to three percent would ever achieve any sort of remission. Many would suffer such extreme side effects from these drugs they would stop taking the medication early, decreasing even further their potential odds for survival.

The fate of these patients is changing. And the proof is in print -- in today's issue of the New England Journal of Medicine.

It all began with the study of a highly targeted molecular therapy called STI571 -- designed to block the genetic aberration that gives rise to chronic myeloid leukemia (CML), a disease that affects about 6,000 Americans every year. A clinical trial followed, and a compound marketed by the drug company Novartis emerged. Today, this compound is know as Gleevec.

In the clinical trial of Gleevec, 1,106 CML patients were randomly chosen to receive either Gleevec or Interferon. Early results were so encouraging that all but three percent of the participants using Interferon switched to Gleevec. Five-year survival rates were 89 percent. And 93 percent of patients saw no progression to the acute phase of the disease. Many patients witnessed their blood counts return to normal, and a large number experienced a reverse in the gene mutation that causes CML. Virtually no one reported side effects while using the drug.

Despite a rare reaction that can cause heart failure, Gleevec has now been approved by the FDA for the treatment of six other rare, life-threatening disorders. And other drugs similar in nature to Gleevec are hitting the scene. Some believe long-term suppression of CML will come from a cocktail of these types of drugs.

For now, Gleevec -- on its own -- is a success story.

Miss Rodeo takes American crown after taking on cancer

Miss Rodeo North Dakota Ashley Andrews is proud to have won the 52nd annual Miss Rodeo America Pagent in Las Vegas on Saturday. Her victory is even sweeter because she is also winning her battle against cancer.

Andrews, 21, has beaten competitors from 28 states in categories such as horsemanship, personality, and appearance.

And she has beaten cancer after months of chemotherapy. Remission began on August 9 when she received a clean bill of health.

Feeling stronger than ever -- both mentally and physically -- Andrews believes everything in life happens for a reason. "Something good always comes from every bad situation," she said. And something good has happened.

As winner of the pageant, Andrews will receive a $10,000 scholarship, western apparel, and other prizes. She also becomes the new ambassador of the Professional Rodeo Cowboys Association and will attend more than 100 rodeos during this year. A junior majoring in public relations and communications at the University of Mary in Bismarck, she will put college on hold during her reign as Miss Rodeo America.

A diagnosis he didn't expect to hear

He an unlikely breast cancer survivor -- because he is a man. But still he developed the disease that roughly 1,700 men will contract this year. And while that statistics pertaining to women and men with breast cancer differ -- women are 100 times more likely to get the disease -- the biology of the disease is exactly the same. Under the microscope, breast cancer is breast cancer. It does not behave any differently in female and male bodies. And detection, treatment, and survival rates are nearly identical for both sexes.

Bob Riter, 49, was diagnosed with breast cancer in 1996. Now in remission, he works as the associate director of the Ithaca Breast Cancer Alliance in New York where he speaks out and educates the public about this widespread disease. He believes his personal story, with its different twist, prompts people to really listen.

Riter's audiences learn that breast cancer in men usually presents itself as a lump in the chest, dimpling of the skin, or changes in the nipple. Doctors can perform breast exams, mammography, and biopsy to investigate the possibility of the cancer that typically strikes men between the ages of 60 and 70. Treatment includes mastectomy to remove the tumor and surrounding lymph nodes, chemotherapy, radiation, and hormone therapy.

It was the presence of blood coming from his nipple that sent Riter to his doctor -- and then to a surgeon who declared a diagnosis of breast cancer. Riter is somewhat of an exception because he reported to his doctor immediately. Most men do not. Many do not even realize they are at risk of breast cancer so they ignore symptoms. They also may go underground with their suspicions of breast cancer because of embarrassment. Both can lead to diagnoses of more advanced diseases.

Riter is doing his part to enlighten both men and women that men are not immune to breast cancer, that they should be active in monitoring their breast health. "I really like to go to national breast cancer meetings," he says, "because a lot of people know that men get breast cancer in theory, but until you have a face to associate with it, it's fairly abstract. And so I'm sort of that face."

Sick children at St. Jude create hopeful holiday gifts

The kids at St. Jude Children's Research Hospital keep busy getting better. They keep busy making holiday gifts too -- like ornaments and ceramic plates and holiday cards and gift wrap. All of their hand-crafted creations fill the 2006 St. Jude Holiday Hope Gift Book, available now and jam-packed with powerful gifts of hope.

Proceeds from gift purchases -- 84 percent of each sale -- benefit sick children in every community in every country who come to St. Jude for life-saving treatment. Like Caleb, a seven-year-old boy diagnosed in 2004 with leukemia.

Caleb was referred to St. Jude -- where no family is ever turned away because of an inability to pay -- and received treatment for three years. Caleb is now in remission and expresses his feelings through his artwork.

Anna Grace, a five-year-old who was abandoned on a roadside in China when she was one day old, was adopted by an American couple and soon after was diagnosed with a cancerous tumor on her brain stem. After surgery to remove the tumor, Anna Grace was referred to St. Jude for chemotherapy and radiation. Today, Anna Grace is healthy and only returns for check-ups every six months.

St. Jude stories of hope are plentiful. And so are the kid-created holiday gifts offered this season.

Kylie Minogue: the Kylie effect leads to misunderstanding about breast cancer

When Australian pop star Kylie Minogue was diagnosed with breast cancer in 2005, there was a sudden surge in the number of young women requesting breast cancer screening. Minogue's breast cancer diagnosis at the age of 37 raised concern among a younger population of women that breast cancer is a diagnosis that could potentially happen to them. Knowledge is power and education saves lives. The increase in breast cancer awareness became known as the Kylie Effect.

However, the awareness that younger women can develop breast cancer has led some women to age-related conclusions about breast cancer that are not true, and this is also being referred to as the Kylie Effect. According to a recent survey of 2,289 women conducted by Cancer Research UK, 77 percent of the survey participants said that breast cancer risk was higher for women under the age of 70, and 33 percent said that women under the age of 50 were most at risk. The fact is cancer risk increases with age, and four out of five women diagnosed with breast cancer are over the age of 50.

"Celebrities with breast cancer like Kylie Minogue and Caron Keating have attracted a lot of publicity -- especially in magazines aimed at younger women. This is very beneficial in that it raises awareness of breast cancer. But the down side is that it may also set up a chain of panic among young women, while misleading older women to think that ageing is not a relevant factor in breast cancer," stated Dr Lesley Walker of Cancer Research UK.

For a retrospective of Kylie Minogue's breast cancer journey:
What should younger women do to be breast cancer smart? Do a monthly self exam and if they notice any abnormalities or lumps, insist that tests be done to rule out breast cancer. Realize that while any woman at any age can get breast cancer, the chances increase with age and 80 percent of breast cancer diagnosis happen for women 50 years and older.

Next Page >

Cancer Fundraisers
 (0)
Cancer events (141)
Pink products (63)
Celebrities
Celebrity cancer diagnosis (73)
Celebrity fundraisers (83)
Celebrity in memoriam (75)
Celebrity news (173)
Celebrity spokesperson (46)
Features
Form and Function (7)
Today, I Am Grateful (10)
Worthy Wisdom (21)
RetroReview (6)
Saturday Six (4)
Sunday Seven (64)
Survivor Spotlight (40)
Cancer by the Numbers (17)
Recipe Healthy Living (52)
Healing Attitude Almanac (6)
Thought for the Day (148)
Media
Blogs (144)
Books (109)
Magazines (51)
Movies (21)
Products (154)
Services (116)
Sports (20)
Television (101)
Video games (4)
Meet the Bloggers
Bloggers (13)
Jacki Donaldson (2)
Kristina Collins (1)
Diane Rixon (1)
Nine DeJanvier (1)
Chris Sparling (1)
Allie Beatty (1)
Dalene Entenmann (1)
News
Daily news (684)
Events (85)
Fundraisers (169)
Opinion (170)
Politics (145)
Research (799)
Prevention
Cancer prevention foods (170)
Diets (213)
Environment (115)
Exercise (94)
Non-toxic alternatives (35)
Nutrition (131)
Obesity (52)
Smoking (101)
Stress Reduction (91)
Vitamins and nutrients (90)
Treatment
Alternative Therapies (411)
Cancer Caregivers (71)
Cancer Pre-vivors (21)
Cancer Survivors (469)
Chemotherapy (495)
Clinical Trials (160)
Drug (497)
Hospice (18)
Prevention (1327)
Radiation (77)
Stem Cell (25)
Surgery (40)
Types of Cancer
 (0)
All Cancers (820)
Anal cancer (2)
Animal (18)
Bladder Cancer (39)
Blood Cancer (18)
Bone Cancer (15)
Brain Cancer (106)
Breast Cancer (1324)
Cervical Cancer (72)
Childhood Cancers (204)
Colon and Rectal Cancer (235)
Endometrial Cancer (25)
Esophageal Cancer (35)
Eye Cancer (6)
Gallbladder Cancer (2)
Gastric cancer (5)
Germ Cell Tumors (1)
Head and Neck cancer (13)
Hodgkin's Lymphoma (55)
Kidney Cancer (56)
Leukemia (145)
Liver Cancer (50)
Lung Cancer (273)
Melanoma (105)
Mouth Cancer (42)
Multiple Myeloma (13)
Neuroblastoma (1)
Non-Hodgkins Lymphoma (56)
Oral Cancer (16)
Ovarian Cancer (154)
Pancreatic Cancer (78)
Pet Cancers (11)
Pregnancy and cancer (6)
Prostate Cancer (233)
Rectal Cancer (3)
Sarcoma (8)
Skin Cancer (153)
Stomach Cancer (28)
Teen Cancers (26)
Testicular Cancer (17)
Throat Cancer (20)
Thymic Cancer (0)
Thyroid Cancer (49)
Tissue Cancers (1)
Tongue Cancer (3)
Unknown Primary (2)
Uterine Cancer (9)
Womb Cancer (1)
Young Adult Cancers (104)

RESOURCES

RSS NEWSFEEDS

Powered by Blogsmith

Other Weblogs Inc. Network blogs you might be interested in: