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Posts with tag road

In memory of a mom, in search of a cure

Last May, Lori Raimondo set off on a cross-country trek in search of one dollar for every day her mother Lorraine battled breast cancer.

She called her 10,344-mile excursion Road to a Cure. Her goal was to raise
$9,490. She ended up with nearly $14,000. She succeeded. She exceeded. And she donated every cent to the Breast Cancer Research Foundation.

Raimondo's driving journey is long over. But our collective breast cancer journey is not. And so Raimondo, in honor of her mother on this Mother's Day, asks friends and family and strangers alike to continue contributing to the breast cancer cause so that the road to a cure may one day come to an end.

Raimondo is accepting donations on her website. She will continue to pass on everything she gathers to help fund breast cancer research.

MTV's Diem Brown lands in Brazil, bald and bold

I've written twice before about a young woman named Diem Brown. I first wrote in August about her appearance as a contestant on MTV's Real World/Road Rules Challenge reality show. I wrote about how despite a recent diagnosis of ovarian cancer, she took herself to Australia to compete in physical and mental challenges with other spunky 20-something competitors. Brown, 25, fought for a cash prize of $250,000 -- while fighting cancer at the same time.

Brown did not win the grand prize, but she did win the admiration and respect of her castmates who on an MTV reunion show applauded her tireless and heroic efforts. In my second post, in September, I wrote about Brown's presence on the reunion show, about her strength, about the great mindset she acquired prior to returning home from Australia for treatment. I wrote about her foundation -- Live for the Challenge -- a wedding-type registry that allows patients to register for prescriptions, wigs, anything that helps them manage their illnesses. I did not write about the wig Brown wore on the show -- but it was apparent she had lost her long, blond hair and was masking the most visible side effect of chemotherapy.

Brown reluctantly yet powerfully unveiled her head on national television just a few nights ago during the beginning of another MTV Real World/Road Rules Challenge. During this installment -- The Duel -- Brown competes again, this time with the shortest of brown hair covering her scalp and with a fierceness that rivals anything she's offered on past shows.

Brown is back. She's in Brazil. And she is beating cancer.

MTV reality show ends, contestant receives cancer treatment

The most recent season of MTV's Real World/Road Rules Challenge reality show has just ended. Customary after each season finale is a reunion show -- where a sampling of contestants recap their experiences, answer questions, confirm or dispel show rumors, and update viewers on the status of their post-television lives. The winners -- a twosome who took home $250,000 -- sit front and center at the reunion and get to bask in the glory of the physical and mental prowess that allowed them to win the big bucks. Two contestants clearly won -- they have the money to prove it. But another contestant -- who didn't take home a dime -- is the true winner in my book.

Diem Brown, 25, was cast on the MTV challenge show before she knew she had ovarian cancer. But prior to the start of the show, Brown did know of her diagnosis -- and she still decided after just a few treatments to head for Australia where she competed in physical stunts and tough competitions. The producers never knew of Brown's illness and she confided in only two castmates while she battled through fatigue and nausea to complete her own personal survival mission. She succeeded -- and she returned home victorious in her own right. And she has no regrets.

On the reunion show, Brown said the show made her more fierce, that she came out of the experience a stronger person, that she tried her hardest, put everything on the line, and didn't feel sorry for herself. And it put her mindset in a great place prior to returning home for continued treatment.

And now Brown is home. She is receiving treatment. And she is managing her foundation -- Live for the Challenge -- a wedding-type registry
where patients can register for wigs, prescriptions, anything critical to the management of their illness.

Ovarian cancer affects one in 50 women, mostly in a silent fashion -- with no overt symptoms until it's often too late. And there is currently no accurate screening for this life-threatening disease that can have tragic outcomes.

Brown seems to be managing just fine with the cancer she calls "the disease that whispers." She is strong, spunky, enthusiastic and positive about life, about her future. She is clearly a winner.

Song says it best: I hope you had the time of your life

I ran on my treadmill today while listening to a song by the band Green Day. I have always liked the song -- Good Riddance (Time Of Your Life) -- but I like it more at this moment in my life than ever before because it speaks about looking back on the past in light of unexpected journeys -- and because my unexpected journey with breast cancer makes me look at everything differently. And when I look back at my life one day, I want to say that I had the time of my life. And that's why I like this song. And that's why I share it here today. Because I hope that in the end, we all can look back with the crystal clear knowledge that we had the time of our lives.

Another turning point, a fork stuck in the road
Time grabs you by the wrist, directs you where to go
So make the best of this test, and don't ask why
It's not a question, but a lesson learned in time

It's something unpredictable, but in the end it's right.
I hope you had the time of your life.

So take the photographs, and still frames in your mind
Hang it on a shelf in good health and good time
Tattoos of memories and dead skin on trial
For what it's worth it was worth all the while

It's something unpredictable, but in the end it's right.
I hope you had the time of your life.

It's something unpredictable, but in the end it's right.
I hope you had the time of your life.

It's something unpredictable, but in the end it's right.
I hope you had the time of your life.

Reality show contestant tackles competitions, ovarian cancer

MTV is currently airing another installment of the Real World/Road Rules Challenge reality show. This season -- called Fresh Meat -- pairs former show contestants with individuals who have never before appeared on any MTV reality show. These new contestants -- the fresh meat -- compete with the veterans in tense and strenuous physical and mental challenges for an array of prizes and for a grand award of $250,000. Winning the money could be life-changing for any one of these participants. But for one woman, it could also be life-saving.

Diem Brown, 25, was cast on the MTV challenge show before hearing her diagnosis of ovarian cancer. She didn't want to regret passing on the opportunity so with two chemotherapy treatments completed and armed with medication to manage nausea and other side effects, she packed her bags and headed for Australia where her days consisted of challenging stunts and tough competition. She survived it all -- although fatigue and pain sometimes slowed her down -- and she is busy surviving ovarian cancer too.

Brown has started a foundation called Live for the Challenge -- kind of like a Make-A-Wish Foundation for patients who are stuggling with medical difficulties. And her own personal wish is that ovarian cancer -- "the disease that whispers" -- would get a megaphone to attract more attention and more research. Because one in 50 women will get ovarian cancer and with no accurate screening for this disease, it leads to tragic outcomes for many women.

It is clear that Brown is one tough contender -- both on TV and in her everyday life. And that makes her a winner no matter what.

One woman with gallbladder cancer blogs new journey

Lynne began her blog on August 6 -- one week ago and two months after she endured surgery to clear a clogged bile duct and received the grim and frightening diagnosis of gallbladder cancer. Her cancer is stage IV -- not an uncommon staging for a hard-to-detect disease that many will only survive for two to six months. So Lynne is scared but still strong and hopeful and full of faith. Her goal is to live -- not die -- with cancer, even though her days may be numbered. So Lynne blogs her thoughts and fears and all the bits and pieces of information she gathers about a disease that is rare and resources that are scare. It helps her. And it will surely help others. And here is a glimpse into what she shared in her first post.

If you had only six months or a year to live, would you want to know? What would you do with the information? Would it make a difference in how you lived your life? These are questions I have been asking for the past two months. In asking them, I have also noticed how little guidance there is for this process. Who have I known personally who was able to anticipate their death? I can think of only two individuals, and I never asked them whether or not they were living differently in their awareness of their mortality.

So, those are the themes in this blog. I look forward to a dialog with those I know, and those I don't about this strange, life changing journey.

To Lynne -- and to all others who are faced with the disease -- may you find peace and comfort and strength in every step you take, every direction you follow, every path that becomes your road to recovery.

Goal exceeded as cross country journey comes to an end

Lori Raimondo set off on a cross country journey in May with the goal of raising $9,490 -- one dollar for every day that her mother battled breast cancer. And just yesterday, she reported that her trek is over, that she is back home in New York City after her amazing adventure in search of hope. I think she found the hope she was looking for because she not only met her goal -- she exceeded it. She raised a grand total of $12,610.90 while traveling 10,334 miles -- and every cent was donated to the Breast Cancer Research Foundation where hope for a cure just got a bit sweeter.

Lori coined her trip the Road for a Cure and what a road it was. She crossed many state borders, met charming and kind and outrageous locals, visited with friends along the way, ate at tucked-away restaurants and slept in quaint places, toured roadside stops, and while accompishing her fundraising chronicled it all through words and photographs that appear on her own personal blog. It's inspiring -- that Lori would give of her time and effort and spirit to help others. All in honor of her mother, who lost her battle with breast cancer, and in support of those currently fighting their own battles. I am truly thankful -- as a breast cancer survivor -- that the research that might one day save my life may be a result of Lori's courage and bravery and hard work and generosity.

Welcome home, Lori. And congratulations on a road well traveled.

Cancer survivor strives to survive fear of recurrence

I received a comment today on my Sunday Seven post about how inspiring sentiments help me survive. The comment was from a women who is surviving lung cancer and she asked a question to all readers really -- when will the fear of recurrence ever go away? How do you out there deal with it? So I replied to her private e-mail address and shared my thoughts about fear and recurrence and how I deal with these issues as a cancer survivor. She replied and wrote, your e-mail was so uplifting. I think I just found you on a really bad day and I am thankful that I did. And so I realized that maybe I should not limit my thoughts to just one person when others are surely in her same boat -- my same boat. So here is what I wrote to this one reader who -- like so many others on my journey -- has helped me by allowing me the chance to help her.

Just want to say that I think you are already dealing with the fear-of-recurrence thing because you have been surviving for as long as you have been traveling this bumpy road. So while you survive, you just need to live each day like it's your last and fight for your life at the same time. Someone once told me to think of cancer as a chronic condition -- something we will live with for the rest of your lives. And we just keep treating it, wherever it pops up. And the longer we survive, the more resources there are to help us survive even longer. As for getting through each day, I recommend counseling (I go once per month but at one time I went each week). I also take an anti-depressant (Zoloft) which I do not push on anyone, but for me, it has helped. I went to my oncologist one day and asked him how to live peacefully without worrying constantly that cancer is coming back to haunt me -- he said many cancer patients take anti-depressants to take the edge off so I began the drug and began counseling too. Neither completely take away the fear -- but they help me manage and that's all I can ask for. I also have two little boys who keep me busy and distracted from feeling sorry for myself. And I try to keep busy in other ways too. Helping others with cancer -- or others who just need help -- is healthy too!

Helping others with cancer does help me. It reminds me that I am not alone and that others have fears like me and that collectively, we can all survive better if we lean on one another and borrow from one another and inspire one another.

Cancer survivors: creating your own road map to the future

It's a shocking statistic. In another four years, one out of every 250,000 people will be a survivor of childhood cancer. As any cancer survivor will tell you, even after you have gone through treatment and cancer is in remission, cancer is never far away from your mind. It's not that cancer consumes the day, but the reality of cancer is something you cannot escape. For childhood cancer survivors, most of the attention to cancer has been on saving lives, and not so much on long-term survivor issues. Cancer is not merely a physical disease. Cancer affects cancer survivors of all ages emotionally and psychologically. Childhood cancer survivors face special issues specific to age, such as growth and development problems and damage to the heart, lungs, liver and kidneys from the aggressive cancer treatments often prescribed for children diagnosed with cancer.

According to the experts, cancer survivors should ask the following questions after completing their treatment in creating a roadmap for long-term cancer survival:
  • What treatments and drugs have I been given?
  • Do I need to seek follow-up care?
  • Will I get cancer again?
  • What should I do to maintain my health and well-being?
  • Will I feel different physically?
  • Will I have trouble getting health insurance or keeping a job?
  • Are there support groups I can turn to?
  • Who on the cancer care team will monitor my care?
As more awareness is brought to the unique issues facing childhood cancer survivors as they enter adult life, the support and resources will become more readily available -- but until then, they travel mostly alone.

Wild Thing Ian Copeland music agent dies of skin cancer

Ian Copeland, music booking agent who represented acts like Joan Jett, R.E.M., Squeeze, The Police, B-52s, Ramones, and the Cure; who wrote Wild Thing, and was brother to Police drummer Stewart Copeland, has lost his life to skin cancer.

Copeland wrote his autobiographical memoir, Wild Thing: The Backstage, on the Road, in the Studio, Off the Charts Memoirs of Ian Copeland, chronicling his early life as the son of a father who was both jazz musician and CIA intelligence officer and a mother who was both spy and archeologist -- to his wild adventures as a rock music agent. He spent most of his adult life working in the music industry.

"Everybody has always said my brother Ian would have been a more charismatic rock star than anybody he has ever represented," Stewart Copeland told People magazine in 1995. "But instead of shouting to a sea of faces, he'd much rather sit at the dinner table and regale everybody personally." Copeland was 57.

Photo: Ian Copeland (left) with brothers Stewart (centre) and Miles (right)

Nevada lawmakers link to illegal low cost prescription drugs

Nevada is home to the loneliest road in America, legalized brothels and Las Vegas. Now -- according to a spokesman for Gov. Kenny Guinn -- the state government will help Nevadans with the ability to purchase low-cost prescription drugs from Canada via the internet by providing direct web links to pharmacies in Canada. Nevada is not listening to the staunch objections from the U.S. Food and Drug Administration to the fact that it is illegal. The legislators state that the import option is needed because many people pay twice as much for similar prescriptions in this country and often cannot afford the drugs they need to live. Lawmakers contend that the federal policies regarding the ability to obtain low-cost prescription drugs are simply a disgrace.

Nevada lawmakers passed the measure allowing Nevadans access to less expensive prescription drugs from Canada, and Nevada regulators have given approval to move ahead with implementing links to pharmacies in Canada. There will be a warning on the state website saying that the federal government views getting prescriptions filled in Canada with non-FDA-approved drugs an illegal act. The state website and links to Canadian pharmacies is scheduled to go live today.

Real Divas Ride: bikers blogging breast cancer cure

Real Divas Ride is dedicated to promoting camaraderie of women riders for women riders who enjoy motorcycle riding, are looking for other women riding partners or groups, or want information on riding events. On the Real Divas Ride blog, is a recent post announcing Real Divas Ride Divas for a Cure -- a fundraising program to benefit breast cancer research. 

Jan Emanuel, breast cancer survivor, is the founder of Divas for a Cure. This summer, Divas for a Cure will embark on a coast-to-coast road trip, traveling from the San Francisco Bay Area to Florida, to New York and back, raising breast cancer awareness and money to find a breast cancer cure. For more information on this event, to check out the route, register to ride with the divas, or make a donation, go to Divas for a Cure. And it's not just for women, they have Dudes Supporting Divas too.

According to Divas for a Cure, "Riding has become more than just a pastime. It has become a vehicle to help us spread the word, and enlighten other people, especially women about this disease."

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