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Posts with tag sad

Hijacked by breast cancer

The profile on her blog reads: Living in London. Working in ads. Currently undergoing treatment for Breast Cancer. And that about sums it up for this woman whose life has become hijacked by cancer. That's the way it goes. Cancer strikes and life revolves around it for so much longer than we'd like.

The 30-something Anne-Marie Weeden writes in a recent blog post:

I was genuinely confident at the beginning of this process that the whole chemo thing should not affect life too much. And in the first three treatments it didn't really. But the last three have just escalated in terms of the challenges they have thrown my way. They said it would be cumulative but I didn't realise it would accumulate on such a scale. I'd say the last two treatment cycles have been at least ten times as hard as the first one.

Continue reading Hijacked by breast cancer

Life without cancer never a guarantee

A friend of a friend was diagnosed this week with a cancerous brain tumor -- a glioma to be exact -- and the surgery to remove the mass is scheduled for Monday.

I don't know much about this woman or her cancer, but I do know doctors told her yesterday she will likely survive for only a few years. I can't help but think that if doctors had given me this same prediction at the time of my cancer diagnosis, my time would just about be up.

I can't fully grasp the magnitude of this sad and sobering news. But I can comprehend that any one of us could be on the receiving end of such an announcement at any given moment. We are all vulnerable. And so I am confronted once again with the powerful and painful reminder that each day really could be my last.

Glimpses of cancer on highway of life

I was driving down the highway today when I looked to my right and saw out of the corner of my eye a blue pick-up truck. The driver -- a man -- wore a cowboy hat and his passenger -- a woman -- wore a turban and a mask that covered her nose and mouth. It was similar to the yellow paper-like mask I wore during chemotherapy when low blood counts and fevers knocked my body all out of whack. So when I briefly glanced at this woman, I diagnosed her -- with cancer.

I guess my medical radar could be off, my diagnosis could be wrong -- but I suspect not. It was an all-too-familiar sight -- the bald head obviously disguised, the mask warding off germs and infection, the eyes the only visible marking of a face. Yet it was still a startling sight, a sad sight, a sight that never loses its power over me as I travel the highway of life.

I am thankful to still be on the highway -- to not have been tragically run off the road -- and the woman whose path I crossed today may be just fine after her journey with cancer runs its course. But it's such a dismal sight -- the ravages of cancer visibly displayed on the undeserving victims of a harsh disease.

Maybe my approach is all wrong. Perhaps it would be better if my vision today prompted thoughts of a spirited warrior bravely battling a fierce opponent with victory the likely outcome. But instead I saw sickness and sadness. Because this is how I felt -- sick and sad -- when my appearance was marked by a hat and a mask.

But now I am healthy and happy. And I am confident I will one day see my co-survivors in a more hopeful light. There is hope, after all, for each of us diagnosed with this life-threatening disease.

Perhaps after I've been on the road to recovery for a while longer, dismal will turn to dazzle. Perhaps then I will see as much shine in those wearing cancer on their sleeves as I saw today in the blue paint of the truck that passed me on the highway.

Cancer survivor's kit helps others keep on living

Survivorship is the new cancer buzz word -- and what an important word it is. Once left to each individual to define, manage, and transcend, survivorship is now recognized as a distinct phase of cancer recovery -- just as important, and maybe even more so, than diagnosis and treatment.

Linda Griggs, a 13-year breast cancer survivor, clearly remembers the day her chemotherapy ended. With her therapy complete, her hair growing back, and her medical team sending her off to have a nice life, she thought she'd be fine. But she wasn't.

Three months after her last dose of chemotherapy, Griggs was depressed, consumed with worry about how her cancer might come back. And she realized that the end of treatment is not really the end. It's just the beginning.

Griggs told her doctor about her anxiety, about how she was just trying to make it to her next three-month-check up. When her doctor told her, "that's not living," something clicked for Griggs who instantly decided to start living -- really living.

Surviving is about self-nurturing, says Griggs, who has created a kit to help others survive cancer. On her website, she writes that there are a couple of other breast cancer survivor kits out there -- containing tissues, herbal teas, meditation tapes, medical appointment books, and breast cancer resource materials.

"This is not that," she says of her kit that focuses on the emotional upheaval cancer creates.

Griggs' kit is full of hands-on creative materials -- like an inner child notebook, complete with magic markers for journaling and expressing emotions. If you're angry, you can write down angry thoughts. If you're sad, write what makes you sad. Save the pages, tear them up, burn them, do what you wish -- but allow your emotions to flow, Griggs says.

The kit also includes a wooden box with instructions on how to create a healing shrine, a copy of Griggs' non-fiction account of the first five years of her cancer journey, and so much more.

Griggs, who also teaches healing workshops, guides others to understand cancer as a hero's quest. She says when something happens to us -- death, divorce, disease -- we are receiving a call to adventure. All bet's are off. We must start fresh, gather our spirit guides, collect ourselves, dive into the underworld, overcome, and then emerge full of wisdom of growth.

Griggs has emerged -- full of her own wisdom and growth. She is a hero -- on a quest to help others survive a disease that threw her way off track for way too long.

20/20 journalist Lynn Sherr grieves lost husband

Journalist Lynn Sherr is grieving the husband she lost to lymphoma in 1992. It's taken her many years to fully appreciate how his death affects her and while she once felt pressure from well-intentioned, clueless friends who urged her to move on, Sherr is now completely peaceful about her on-going, long-term grieving process. In fact, she fully plans on grieving -- for the man whose ashes still sit in her lingerie drawer -- for the rest of her life.

Sherr writes in her new memoir, Outside the Box, that it was during an interview with a pioneering psychiatrist about the agony of loss when she made her stunning revelation about grief. It's when she realized she would never fully recover from grief, that it is just fine to never fully recover.

Grieving individuals do not always follow the standard stages of denial, anger, and acceptance. Yet they often feel forced into these boxes by medical professionals, family, and friends who try to move them along and consider them abnormal if they don't get on with life in a set amount of time. But each person's pattern of grief is as unique as each person's pattern of love -- and stages and boxes just don't work. Sherr's breakthrough moment came at the exact moment she learned this.

"Bingo! I didn't have to follow anyone's pattern," she writes. "I didn't have to stop being sad. Not only was sadness okay, it was necessary. Nobody can tell you how to mourn. And it's not self-indulgent; it's not wallowing; it's hanging on to something important. We should not avoid bereavement. We should embrace it, welcoming our moments of sorrow as a time to reconnect with the person we've lost."

Sherr reconnects with her husband every chance she gets. He was her best friend, her deepest love, her soul mate, her pal. And she doesn't plan to move on -- ever -- from the sadness that keeps them connected.

Perspective on death changes, compliments of cancer

I remember thinking when my grandma was a spunky 80-year-old -- still going to aerobics classes in her purple tights -- that it must be sad to be such an age when so many friends and acquaintances are falling ill and passing away. My grandma was always one to care for others, call on others, pray for others -- and often she seemed to be the only one in her circle who was thriving. Somehow, she took it all in stride and continued baking and gardening and sewing and living strong until her own death at the age of 86 -- when she left her remaining friends and acquaintances wondering if their own time on Earth was approaching a quick end. At the time, I thought this loss of friends was merely a side effect of aging. It didn't seem to concern me at my own young age of 30. I didn't really know any 30-year-olds who were dying. And I didn't predict anyone my age would be dying until I was closer to the age of 80. How wrong I was.

I am now 36 years old. And I know many women my age who have died -- most of them because of breast cancer, the same disease I have been fighting for nearly two years. So it's not only sad to me that people my age are dying, it's also quite personal and frightening -- for it could easily me in the same predicament. So I feel vulnerable -- so many years earlier than I imagined.

I think I know how my grandma must have felt when her loved ones were leaving her. And I think I will take her same approach to coping with this unfortunate fact of life. Although I couldn't possibly bake and garden and sew like she did, I can keep busy with my own hobbies and interests. And I can continue living strong until my own death -- which hopefully won't occur until after I've made my appearance in purple tights. About 50 years from now.

Sunday Seven: Seven survivor spotlight similarities

It's day 15 in this Breast Cancer Awareness Month and the survivors spotlighted on this site are stacking up. Yet we've only just scratched the surface of breast cancer survivor stories. And by the end of October, we will have only featured a very small sample of survivors everywhere. There are countless others with their own powerful stories. It's sad there are so many stories shaped by breast cancer. It's empowering too -- because breast cancer survivors are a passionate bunch. They are passionate in their fights, passionate in their beliefs, passionate in their willingness to help others.

A passionate bunch of survivors can be found here on The Cancer Blog. They are all women, of various ages, with various backgrounds, defined by different experiences. They are also quite the same -- for they have all been touched by breast cancer. And their words of wisdom are strikingly similar, despite the contrast in characteristics that define these women and their very individual battles with breast cancer.

Here are seven survivor similarities worth spotlighting.

Continue reading Sunday Seven: Seven survivor spotlight similarities

Battle with breast cancer offers crash course in awareness

Today marks the beginning of National Breast Cancer Awareness Month. And today, I realize how aware I am of breast cancer -- how much more aware I am than ever before, compliments of a personal encounter with a disease that snuck up on me with no warning and thrust me into a two-year battle that physically, has just ended. Emotionally, the trek continues. But it's not horrible and it's not disabling -- anymore. On most days, it's enlightening, empowering, strengthening.

I think it's the brush with mortality that woke me up to the privileged life I live. Cancer allows me to wake in the morning feeling alive. It allows me to fall asleep at night feeling thankful. And every day, I am totally, completely, acutely aware of how absolutely lucky I am to be living.

There was a time when October was nothing more than another month to me -- a month that stood out only for the onset of autumn and falling leaves and halloween and trick-or-treat. Now I know October for Breast Cancer Awareness Month -- the month belonging to millions of women living with breast cancer and the millions who need to prepare for a possible breast cancer strike. It's a powerful month, jam-packed with events and activities and promotions and media attention. It's a sad month, marking the loss of life for so many who could not conquer an evil disease. It's a happy month, symbolic of life that goes on despite this same evil disease. It's a month that allows me a lifetime membership. A month that will always be on my radar. A month I can call my own -- a month I am proud to call my own.

Minor surgery takes last remnant of cancer treatment

Numbness is wearing off, and I am beginning to feel twinges of pain surrounding the area where my port was once located. I can't see what was done to me today -- because the area is carefully bandaged -- but I know from what I feel that my skin has been cut and sewn back together. I feel the skin tightening, stretching, pulsing and while it's not terribly comfortable, it's pretty minor compared to the pain of so many other cancer procedures -- like my lumpectomy, my chemotherapy, my nausea, my neutropenia, my allergic reactions to various medications.

So I am fine, following my port removal that was predicted to last a few hours but somehow took most of the day. The actual procedure took just one hour, and the twilight drug that kept me in a peaceful funk allowed me to relax while the port that was tunneled into the tissue underneath my skin was precisely taken from my body. It was an uneventful experience -- except for a few tears that dripped from my eyes during the final moments before my surgery. I think it may have been the power of the moment -- the moment signaling the end of my active cancer journey. Or it may have been the power of support offered by my sister and my three-year-old son who accompanied me today. Or it may have been the power of the response I gave a nurse who had just seen my little guy and asked me if I planned to have more children. My response -- probably not, because of cancer -- seemed a little too final, a little too sad.

It may have been the combination of everything, all adding up over the past two years, that brought tears to my eyes today. But for now, the tears are gone. And the port is gone. For now, my cancer is gone.

News of cancer recurrence shatters happiness, hope

I don't even know where to start with the news I've just heard -- news that just popped up in front of me in the form of an e-mail while I was sitting at my computer, in the midst of a pretty happy day. The title of the e-mail that entered my in-box read I miss you. It was from my friend Amy in Ohio. Amy and I have never met, have only e-mailed and spoken on the phone, and are fortunate to have found each other as a result of a mutual friend -- Ericha -- who connected us because of our similar breast cancer journeys. Amy and I are both in our 30s, both have a husband and two young children, and both were diagnosed with cancer that had not spread to our lymph nodes. We felt lucky. But the news that Amy shared with me today is not so lucky.

Jacki,
I'm sorry it's been so long. I don't know if Ericha filled you in on me -- my cancer is back. I have brain and lung mets. I found out about 2 weeks ago. I am receiving brain radiation and a new chemo. The doc says depending how I do I have 2-12 months. I 'll write more later.
Love, Amy

And so that is all I know. And it's really all I need to know. It's enough to know that cancer is unpredictable -- despite the statistics that indicated we both had pretty high odds of surviving. It's enough to shatter my hopeful spirit. It's enough to make me wonder if this will happen to me. It's enough to make me truly sad.

Yet in the midst of this news, I will hang on to one thought -- Miracles happen every day.

Sunday Seven: Seven survivors represent so many more

I never thought the time would come when I could fill a page with names of people I know who have cancer or have died from cancer. When my mom's very best friend died years and years ago of pancreatic cancer, it seemed a remote chance that something like that would happen to someone I know. And then slowly, either because cancer cases increased or because my awareness increased -- or both -- my list of people with cancer grew and grew and grew. And now it's quite long. And it's quite disturbing. And it's empowering too -- because most people on my growing list are surviving. And here are seven survivors who are somehow connected to me -- seven survivors who make up just the tip of the cancer iceberg in my life that stretches far and wide.

Continue reading Sunday Seven: Seven survivors represent so many more

Camp Fantastic offers children with cancer a night of fun

Kids with cancer. It's a sad combination of words and a phrase I can't even imagine facing my own family. And yet if it ever does, I think my goal would be to keep my child's life as childlike as possible -- as hard as it may be while confronting serious life-and-death issues.

Camp Fantastic -- set high in the Blue Ridge Mountains of Virginia -- is one place where kids can be kids. At least for one night. Each year for longer than anyone can remember, volunteers sponsor an evening fiesta with dancing, swimming, games, rides, gifts, and fun for 100 children with cancer. This event, known as Rappahannock Night, because of the camp's location in Rappahannock county, is sponsored by organizations that join efforts to allow children to step back from their diseases and soak up the pleasure of friendship with others who share their experiences.

Camp Fantasic offers kids moments of pure joy -- away from the rigors of cancer and treatment. So they can be kids. Just kids.

Happiness may be just a hop, skip, and jump away

It may be possible to learn happiness -- like we might learn to cook or learn to dance -- by merely taking a class. Some refute this idea and believe you can't actually pursue happiness. You either have it or you don't. But some psychologists are embracing a whole new approach to psychology -- they call it positive psychology -- and they say it focuses on training the mind to focus on the past as very positive. It's completely different from traditional psychology where time is spent trying to determine why someone is so horribly sad. This movement, invented by University of Pennsylvania psychologist Martin Seligman in 1998 when he was president of the American Psychological Association, provides a scientific validated set of exercises -- known as interventions -- that lead happiness seekers to their ultimate destination.

Continue reading Happiness may be just a hop, skip, and jump away

Gallbladder cancer is rare and rarely covered too

A reader left a comment the other day on the Cancer Blog post death by cancer dims outlook of promise, hope, survival. It was positive and supportive and inspiring -- and sad too. The reader shared that her mother passed away in February after a year-long battle with gallbladder cancer. She wrote that her mother handled her diagnosis, chemotherapy, transfusions, medications -- and her final days -- with true grace. And this is a big deal. Because there is not much information floating around on the topic of this cancer. So this woman didn't have much to cling to. Like I do. As a breast cancer survivor, I have mounds of resources at my disposal. I have books and magazines and websites and blogs that devote generous coverage to breast cancer. There are walks and runs and yard sales and fashion shows and other fundraisers that make breast cancer survivors the lucky recipients of extensive research and study. I see pink ribbons all over town and license plates on the roads and clothing and hats and even tennis shoes that promote breast cancer awareness. I could go on -- and on and on.

Gallbladder cancer is rare. So perhaps that's why there is not an abundance of information on the disease that has no known cause or test to detect its presence in the body. The American Cancer Society estimates that about 8,750 new cases of gallbladder cancer and bile duct cancer (excluding bile ducts within the liver) will be diagnosed in 2006 in the United States. And about 3,260 people will die of these cancers in 2006. Of these new cases and deaths, about half are due to gallbladder cancer, which affects predominantly women and those who are older than 65. Diagnosis of this cancer is difficult because symptoms do not often surface until the late stages when aggressive treatment becomes necessary. Surgery, chemotherapy, and radiation therapy are typical treatment tools, along with palliative therapy to help control or reduce symptoms. There are also drugs currently under study in the areas of both targeted therapy and immunotherapy.

It's good to know that gallbladder cancer is rare -- and that it takes far fewer lives than breast cancer and other diseases -- but for the unfortunate ones who are diagnosed with this life-threatening illness, the lack of information and resources is a truly an unfortunate side effect.

Death by cancer dims outlook of promise, hope, survival

Every time I hear about someone who has died from cancer, it knocks me down a notch. It makes me sad for the person, for the family, for the friends, for me -- because I know I am not guaranteed survival from cancer and while I mostly live each day as if I am immune to this tragic outcome, the knowledge that people do really die from this disease that I am trying to beat is overwhelmingly sobering. And what shakes me most is the fact that these people who die from cancer must have had the same outlook as me at some point in their journey -- the outlook of promise and hope and continued survival. And then something happens that jolts this hope from their grasp. It could happen to me -- and my family and my friends. And that scares me.

Sometime last year, my husband told me about a woman in one of his graduate classes whose husband was fighting melanoma that had spread to his brain. He was in year number eight of constant treatment -- both traditional and alternative -- and with each day, his hope for survival was fading. His wife and my husband talked at times about his journey -- and they talked about my journey with breast cancer. And after the class ended, both spouses periodically checked on each other. Today, my husband asked this woman in an e-mail about her husband. She replied and shared that he died last October. She wrote that he could not fight any longer -- that the last chemotherapy he tried to endure was too hard on him. He died with dignity. And she is proud of him. And I can't stop crying.

My tears will dry. And sadness will drift from my every thought. And I will return to my usual enthusiastic approach to surviving my own dreaded disease. But in the back of my mind, where I have saved every sad story about cancer and death, my sorrow will linger. And I suppose it should. So I can keep my sights on the possibility that surrounds me -- death -- and so I can continue living with every fiber of my being. Because living is not a guarantee. Ever.

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