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Posts with tag support

ABC's Robin Roberts enlightened by Elizabeth Edwards

Despite her recent breast cancer diagnosis, Good Morning America co-anchor Robin Roberts is already speaking out about the cancer cause. In fact, she just recently spoke to a group of cancer survivors and activists at a fundraiser in Biloxi, Mississippi.

Roberts is also speaking about the relief she feels now that her diagnosis has been made public -- "It was like the weight of the world was lifted," she said.

Talking about cancer invites support. Roberts, 46, got some comforting words of support from Elizabeth Edwards just after her announcement. Edwards, wife of Democratic presidential candidate John Edwards, is also fighting breast cancer.

Continue reading ABC's Robin Roberts enlightened by Elizabeth Edwards

Rise Above It: RAI helps young adults battle cancer

Rise Above It (RAI) is a non-profit organization that helps young adults battling cancer. The strength in spirit of its founder, Colin O'Donoghue, guides RAI in its efforts. As a friend, teacher and coach, Colin deeply enriched the lives of others.

RAI continues this practice with the same enthusiasm and vigor he brought to every aspect of his life. Colin always believed that enjoying life and embracing a positive attitude were essential components of happiness. Using this principle as inspiration, RAI devises fun and positive events that raise money to accomplish its primary objective: to provide meaningful support to young cancer patients.

This is achieved by hosting fund-raising events designed to provide eligible recipients with additional resources. Using the proceeds from these events, RAI board members solicit cases to provide grants and personal consultation to individuals and families with immediate needs in their fight against cancer. Through financial assistance and personal attention, RAI strives to instill a positive attitude within its recipients, thus allowing them to live each day with faith and a fighting spirit.

On broken cancer bracelets

I like to find meaning in ordinary life events. Like my dreams, for example. The other day, I had a dream about a friend from high school. In my dream, this friend was a doctor at my local hospital, where all my cancer poking and prodding takes place. It makes sense this guy was a doctor -- last I heard from him, he was in medical school. Where he practices medicine, I had no idea. But maybe my dream was a clue. Maybe it was sign this old pal is right here in Gainesville, Florida.

Nope. I did a Google search and he's in Ohio -- right where we graduated from high school and he attended medical school. Not so much meaning in that dream. That's OK. I'm on to my next life interpretation now.

Ever since I was diagnosed with breast cancer my brother-in-law has been wearing a pink bracelet -- the one that says: Share Beauty. Spread Hope. For almost three whole years, the same rubbery band has been hanging from his wrist. Everyone in my family started out with one of these trinkets of support. And every one of us has since abandoned our pink fashion statement -- everyone except for Jack. He has stood firm in his support. I'm not sure he ever took that thing off. What a guy.

Continue reading On broken cancer bracelets

Thought for the Day: Who is going to handle communication?

playing telephoneMy husband and I have a friend who was recently diagnosed with a sarcoma. I don't have more specific details about what kind of cancer it is, except that he went to the emergency room with groin pain and the doctors found a mass. Our friend is being treated at the Mayo Clinic, but he and his wife return on weekends, and we have dinners with our large extended family of friends, all together, every Friday night. We have been having these Friday night dinners for years now. We call them Friday Night Literary Society as many of the friends teach in the English department at the local university, or used to, as I did.

The point of these dinners, though, is to have fun. It is not to mention cancer, treatment, or anything else. Our friend doesn't want to talk about it, doesn't need the reminder. I'm sure it's never far from his thoughts. I sat next to his wife tonight, and she talked about how well he was responding to treatments, how he wasn't nauseaus from the chemo. The doctors say he will need surgery in August, and will probably have to have his right leg amputated. It's stark and horrible, and we are all affected by it.

Because we are a tight-knit bunch, we all talked among ourselves because we didn't want to ask the family too many questions, didn't know what they needed from us. We all wanted details, but we didn't know how to get them. The family wanted us to know details, but didn't really want to contact everyone individually. Fortunately, or unfortunately, we are a group who has known tragedy. Another friend died of cancer a few years ago. Yet another was covered yesterday in the Survivor Spotlight. There are more. So, the solution to the communication problem is this: Select a point man. Select one person who is responsible for updating everyone else on what is going on.

Think about this:

Continue reading Thought for the Day: Who is going to handle communication?

Let's talk about sex: Reclaiming intimacy after breast cancer

This networking event called Let's Talk About Sex: Reclaiming Intimacy After Breast Cancer will focus on sexuality and intimacy after a breast cancer diagnosis.

Join Living Beyond Breast Cancer (LBBC) on Wednesday, May 30, 2007, from 6:00 p.m. to 8:30 p.m. at the Philadelphia Marriott West in West Conschohocken, PA.

Featured speaker Kara Nakisbendi, MD will provide a candid and caring discussion about intimacy after a breast cancer diagnosis and how to reclaim sexuality to improve quality of life.

Continue reading Let's talk about sex: Reclaiming intimacy after breast cancer

The burden of cancer: Support groups

A study published in Cancer, a peer reviewed journal of the American Cancer Society, found that cancer survivors are more likely to seek out support groups than individuals with other chronic conditions. They stated that one in four survivors participate in a support group after diagnosis.

According to the study, treating physicians seemed to recognize that support groups are helpful but only one in ten cancer patients studied had received a recommendation to seek out a support group. Support groups are widely available but seem to be poorly handled by the physicians.

Dr. Jason Owen, co-investigator in the study, says "This study sheds light on which individuals with cancer use (support) services. It will help clinicians recognize the importance of support groups for cancer patients. Assistance in identifying and accessing support groups should be a standard of care for all patients receiving curative, follow-up, or palliative care for cancer".

Continue reading The burden of cancer: Support groups

Young Survival Coalition: Some stats on young women with breast cancer

I usually check the Young Survival Coalition message boards everyday. Even though I am five years out from my cancer diagnosis, this is a place I love to go to for support and also to help other young women who are newly diagnosed.

I hope that I can be helpful in some way, maybe by answering questions or just telling the girls that I did have a positive lymph node and I'm still here with no recurrence at this time. I know that when I was first diagnosed, one of the important things to me was finding someone with the same diagnosis that was years out from chemotherapy and doing fine.

There was a poll that was done by one of the board members. I found it to be interesting. The question put out to the women on the YSC message board was -- How old were you when diagnosed with breast cancer?

Continue reading Young Survival Coalition: Some stats on young women with breast cancer

Doll helps kids understand breast cancer

Kim Goebel was diagnosed with breast cancer in 1999, at the age of 43. Her sister Kris noticed a lot of moms saying "How am I going to tell my kids?"

Partners for a Cure Foundation was founded by the sisters and they began planning a doll and a book to familiarize children with the physical and emotional effects of cancer treatment. The dolls are soft and lovable but depict the hard truth in a special way so that the kids will be less scared of what is happening with their mom's treatment process.

Continue reading Doll helps kids understand breast cancer

Constant support

The one constant thing that gives people fighting cancer hope is the continued support of friends and family. Phone calls, emails, a surprise or planned visit at the door that has a big hug on the other side, a held hand over coffee or tea, or sitting patiently by their side as they go in for treatments. When that support falls by the wayside, it makes the determination to fight this disease or any other less worth the effort. In my humble opinion as someone fighting cancer, we sometimes fight harder to overcome disease for others more than ourselves. Because it is in their caring and the will in their eyes that gives us a much brighter hope than we find in ourselves. It is the lack of support or caring that sets off an internal depression that makes it ten times harder to find the will to fight. People seem to find it easier to hug a tree than a human. Try to imagine if you will sitting in a house alone and thinking about a disease that can run rampant through your body. It is hard to imagine and something that we do not want to think about. Yet many many people face that struggle every day of their lives.

So if you haven't reached out to someone you know, a neighbor, a friend, someone in your church or where you work, or even a family member that is struggling with cancer or any other disease, then find it in your heart to do so. It will make a difference. And if you have reached out to someone once or even twice, know that once is not enough and twice is not enough. No matter how much you think you are being a nuisance, that constant reminder of love and support is 95 percent of your friend's battle. The old saying "You never know who your true friends are until you go through a crisis and see who stands by our side" is very very true. So go stand by someone's side today, tomorrow, and for many days to come to offer support and encourage strength until their fight is successful. Even a phone call goes a long long way.

For those of you who stay in touch with me by phone and emails and that come knocking on my door in this time of need, I thank you very much for giving me the strength and will to survive.

Cancer husbands setting a strong example

Listed here are three organizations that set a strong example to help the cause of cancer research:

Men With Heart --Their mission as seen on their website:

We are husbands who are doing something constructive rather than resigning ourselves to helplessness. We are sons who have seen our mothers courageously fight an insidious disease. We are brothers who want to stand beside our sisters in this battle. We are relatives, friends, lovers, colleagues, neighbors, and admirers of the women who are struggling with, often beating, and, regrettably, sometimes losing the fight with breast cancer.

We do our best to raise awareness, funds, and smiles. We participate in a variety of breast cancer events, wearing our trademark yellow shirts, including the Avon 2-Day Walks, the Komen 3-Day Walks, and the American Cancer Society Making Strides Walk. We walk with the goals of spreading good cheer, encouraging a spirit of camaraderie, and helping our fellow walkers. We also host a gala party every year and a racing event in the fall. We support and get involved with a variety of other breast cancer causes, organizations, and events.

Since our inception in 2001, Men With Heart has raised over $600,000 for breast cancer prevention, treatment, and awareness.

Men Against Breast Cancer -- The MABC mission is to provide targeted support services to educate and empower men to be effective caregivers when breast cancer strikes the family of a loved one: as well as target and mobilize men to be active participants in a fight to eradicate breast cancer as a life threatening disease.

MABC recognizes breast cancer is a family issue that devastates the entire family. Our philosophy is to leverage the support of the whole family to help the patient, with special emphasis on the important role of the husband/partner in caring for the woman he loves. At the same time, MABC recognizes and supports that the ultimate decisions regarding treatment and care are those of the patient.

Together in Breast Cancer Survival: A Men's Caregiver Support Group --Their mission to be a presence that will give you the support and tools you will need to be a proactive and informed caregiver to your loved one. Our goal is to be here for you as you journey with your loved one through the cancer diagnosis, surgery, prognosis, recovery and beyond.

Resource for helping those close to you diagnosed with cancer

While reading the spring issue of Cure Magazine I came across an article on a book called Help Me Live: 20 Things People with Cancer Want You to Know.

I have not read the book but I think it would be a great resource for those who have a family or friend with cancer. There is a need for a guide --I think this book can fill that gap.

Why would a guide be needed? I have found throughout my cancer journey that fellow survivors have many stories of unthoughtful, tasteless, ridiculous and sometimes funny comments from those around them. We can laugh at a lot of the comments because we know the person means well -- but sometimes it does go too far and can hurt.

What this book does is give the friend or family member some insight on what would be most helpful to the cancer patient. Based on the author's own experience with the disease and other survivors, each chapter tells intimate stories about one of the 20 most important messages people with cancer want to convey.

Help Me Live will help you find the word or gestures to show how much you care. There is never a 'right thing' to say or do but learning how to communicate effectively is very important.

This book can also be helpful to the cancer survivors themselves says Kathy Latour who wrote the article in Cure Magazine. She says "This book is not just for its intended audience of friends and caregivers, but for cancer patients too. In part, it affirms the cutting edge comments we made when Uncle Jack said something tasteless and painful. But in addition to reminding me of the many challenging people in my journey, the stories also revealed ways I could have handled them a little better"

Write for hope and help find the cure

Tom Keilty of San Dimas, California lost his wife Ruth to breast cancer in 2005, 12 years after she was first diagnosed with the disease. From the very first day cancer entered their lives until the very last day of Ruth's life, the Keilty family received hundreds of hand-written notes for Ruth, filled with encouragement and support.

The notes are still arriving, this time for Keilty and his three children. The notes help strengthen this family's faith and help them grieve. The Keiltys are grateful for the trail of mail that has come their way -- and they ask others to consider writing their own their own notes of hope.

It's simple.

Just drop by a local retailer and pick up a special edition PaperMate Pink Ribbon Pen and Pink Pearl City of Hope Eraser. For each item sold through December 31, 2008, PaperMate will make a donation -- up to $200,000 -- to City of Hope for breast cancer research, education, and treatment.

Then sit down and Write for Hope in honor of someone battling breast cancer. Not only will you warm someone's heart, you will also earn the chance to win a $500 donation made in your honor to City of Hope Cancer Center.

Click here to enter.

Newsweek: How I live with cancer

This week, CBS News, the Washington Post, NY Times and USA Today shed a glaring light on people living with cancer. And Newsweek put the Livestrong wristband on its cover.

Pick up the April 9, 2007 issue of Newsweek to read the story How I live with Cancer.

Jonathan took the call on his cell phone at the Starbucks in New York's Penn Station...It was from a doctor I barely knew telling me that a CT scan-ordered after three weeks of worsening stomach pain-showed a large mass in my abdomen, with what she said was "considerable lymph node involvement." I rubbed my eyes and sensed the truth instantly: cancer, and not one that had been detected early. I was 46 years old and had not spent a night in the hospital since I was born. Nonsmoker. No junk food beyond the occasional barbecue potato chips. Jogged a couple of times a week. I was not remotely ready for this.

Later on in the article Johnathan tells his readers:

I have cancer, it's going to be bad, but I'll live until I'm 90. Probably not, but I turn 50 this year and, full of hope, recall that great line from "The Shawshank Redemption": "You can get busy living, or get busy dying." For me, it's no contest.

Think skin cancer's nothing serious? You're dead wrong

This comment just arrived in response to yesterday's post Headed for melanoma, and it's just too raw and powerful to leave buried in the comment section of the site.

So here it is, word for word -- a chilling and empowering message from a 37-year-old mom of two living with a disease that is downright deadly.

I have melanoma. I was diagnosed last August and have had 6 surgeries in 6 months.

I have lost 4 members in my melanoma support group. I go to Jaime's funeral tomorrow afternoon. She was 29 years old. Heather was 37 when she died on March 2, 2007. The midwife noticed a suspicious mole on her leg during the birth of her 4th child. She died 23 months later. Jan was a mother of 5 ages 9 to 19, she passed away on February 8, 2007. Ceri was only 20 years old when melanoma claimed her life on January 14, 2007.

I always thought skin cancer had to be HUGE, ugly, and hard to ignore. I didn't know it could be small, have no symptoms, and KILL you.

Melanoma incidence is increasing faster than any other cancer. According to statistics found on the American Cancer Society's website (www.cancer.org), the prognosis for someone diagnosed with melanoma is worse, stage for stage, than someone with breast cancer.

Getting more than 3 blistering sunburns during childhood doubles your risk. Sunbed use increases ones risk. Having fair skin and light eyes also puts you at a higher than average risk, but having dark skin does not make you immune. Bob Marley died from Melanoma in 1981.

Everyone at higher risk should get screened by a dermatologist every year. And all of us should be checking our own skin each month.

Melanoma is a virulent and aggressive cancer. It begins in the melanocytes, or the pigment in the skin. It presents itself as a change in an existing mole or skin pigment, or in the formation of a new one. It is easily treated in its most early stages. Once it spreads, though, it is often fatal.

Unfortunately, there is no cure for melanoma. Melanoma is one of the cancers that won't respond to conventional chemotherapy. There have been no significant advances in the medical treatment or survival rate in the last 30 years.

More awareness is needed. Most think "it's only skin cancer" and consider it nothing serious. But I can tell you with absolute certainty, they are DEAD wrong.

Dana Reeve honored on one-year anniversary of death

It's been one year since Dana Reeve, wife of the late Christopher Reeve, died of lung cancer at the age of 44. And the grace of this woman, who came to represent the non-smoking population of lung cancer victims, is being honored by the Lung Cancer Alliance.

"Lung Cancer Alliance extends its most heartfelt thoughts to the family
and friends of Dana Reeve," says Laurie Fenton, president of the alliance.

"Dana's beauty, grace and valiant struggle against lung cancer will remain indelibly etched in our hearts and minds. In her memory -- and in the memory of loved ones lost to this disease, smoker or not -- let us come together to replace decades of stigma and neglect with hope, greater compassion and support for those living with or at risk for this disease. It is the right thing to do."

The Lung Cancer Alliance
is the only national non-profit organization dedicated to patient support and advocacy for those living with lung cancer, the number one cancer killer.

Lung cancer takes more lives -- about 160,000 Americans this year -- than breast, prostate, colon, liver, kidney cancers and melanoma combined.

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