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Posts with tag survivorship

Nicole Norman Wetzel loses her fight with breast cancer

Nicole was a fellow member of an online group called Sisters In Survivorship. It is a Yahoo support group for women under 40 that have been diagnosed with breast cancer. I remember speaking to Nik on the phone a few times a few years ago when she needed some support and encouragement. I knew she wasn't doing that well lately and I found out today that she has passed away.

Her obituary reads as follows:

Nicole Norman Wetzel passed away on Wednesday, June 20, 2007 at her home in Mandeville, LA.

Beloved wife of Jason Steven Wetzel and devoted mother of Dominique Claire Wetzel, she is survived by her parents, Dale David and Elmire Begovich Norman; one brother, Kevin David Norman and many nieces, nephews and cousins. She was preceded in death by her grandparents: Dominick and Josephine Begovich, Dennis and Rose Norman.

Age 35 years, a native of Marrero, LA and a resident of Mandeville, LA for 14 years. Nicole was a 1990 graduate of Immaculata High School, she received a degree in Business from UNO before moving to Mandeville where she worked as a Notary and Paralegal.

LIVESTRONG notebook offers organization, guidance

I used a written journal and then a blog to record the stops along my cancer journey. I kept a file for financial paperwork, and I made lists of questions in anticipation of medical appointments. I saved all prescription instructions to track the abundance of drugs entering my body, and I earmarked a large white cardboard box as my cancer treasure chest. The contents of this box include cards, gifts, newspaper clippings, books, literature, and more. It's practically spilling over with stuff -- the stuff of cancer.

My system -- which may seem a bit unorganized and splintered -- worked well for me as I tried to keep my head above water following my cancer diagnosis. For others, a more central system may work -- a system that incorporates all pertinent information in one convenient location.

The LIVESTRONG™ Survivorship Notebook, offered by the Lance Armstrong Foundation, is one option for those seeking a clean, concise way to manage the details of cancer. It's designed to organize and guide. It's portable. It's available for the cost of shipping and handling only. And it includes the following:

Survivorship Tools -- this section includes a personal health journal, an appointment diary, a list for medications, a summary section for health and financial information, and a medical history and treatment area.

Survivorship Stories
-- this section features stories of cancer survivors that will inspire and empower.

Survivorship Topics -- this section offers readings, answers to questions, and resources about physical, emotional, and practical issues related to cancer.

This yellow notebook -- a symbol of one man's fight and victory against a mighty disease -- could be the perfect accessory for someone facing the unknown. Sometimes all it takes is a bit of organization to calm nerves, minimize anxieties, soothe fears, and instill a sense of control over an otherwise uncontrollable journey.

Cancer survivor's kit helps others keep on living

Survivorship is the new cancer buzz word -- and what an important word it is. Once left to each individual to define, manage, and transcend, survivorship is now recognized as a distinct phase of cancer recovery -- just as important, and maybe even more so, than diagnosis and treatment.

Linda Griggs, a 13-year breast cancer survivor, clearly remembers the day her chemotherapy ended. With her therapy complete, her hair growing back, and her medical team sending her off to have a nice life, she thought she'd be fine. But she wasn't.

Three months after her last dose of chemotherapy, Griggs was depressed, consumed with worry about how her cancer might come back. And she realized that the end of treatment is not really the end. It's just the beginning.

Griggs told her doctor about her anxiety, about how she was just trying to make it to her next three-month-check up. When her doctor told her, "that's not living," something clicked for Griggs who instantly decided to start living -- really living.

Surviving is about self-nurturing, says Griggs, who has created a kit to help others survive cancer. On her website, she writes that there are a couple of other breast cancer survivor kits out there -- containing tissues, herbal teas, meditation tapes, medical appointment books, and breast cancer resource materials.

"This is not that," she says of her kit that focuses on the emotional upheaval cancer creates.

Griggs' kit is full of hands-on creative materials -- like an inner child notebook, complete with magic markers for journaling and expressing emotions. If you're angry, you can write down angry thoughts. If you're sad, write what makes you sad. Save the pages, tear them up, burn them, do what you wish -- but allow your emotions to flow, Griggs says.

The kit also includes a wooden box with instructions on how to create a healing shrine, a copy of Griggs' non-fiction account of the first five years of her cancer journey, and so much more.

Griggs, who also teaches healing workshops, guides others to understand cancer as a hero's quest. She says when something happens to us -- death, divorce, disease -- we are receiving a call to adventure. All bet's are off. We must start fresh, gather our spirit guides, collect ourselves, dive into the underworld, overcome, and then emerge full of wisdom of growth.

Griggs has emerged -- full of her own wisdom and growth. She is a hero -- on a quest to help others survive a disease that threw her way off track for way too long.

Ozzy Osbourne terrified by wife Sharon's cancer diagnosis

Rock legend Black Sabbath Ozzy Osbourne spoke about his wife Sharon's colon cancer diagnosis during a recent interview with Hello! magazine, in which he is quoted as saying, "When I found out it was like someone had got a slab of concrete and hit me with a big dose of reality. I thought cancer plus patient equals death. The thought of losing her was more than I could bear."

In 2002, the entire Osbourne family appeared in a MTV reality show The Osbournes. During the taping, Sharon was diagnosed with colon cancer. Rather than cancel the show, she agreed to share the experience of chemotherapy and cancer survivorship with the viewers to help raise awareness for cancer.

Osbourne said that while he is always happy for the professional success his wife enjoys with such shows as the U.K. talent show X Factor and The Sharon Osbourne Show, he misses the time away from her.

Ozzy has designed a limited-edition signature series t-shirt for the Hard Rock Cafe, with profits from the sale of the t-shirts to benefit the Sharon Osbourne Colon Cancer Program. The cancer charity offers colonoscopies and screenings to people without medical insurance, as well as those with minimal coverage, transportation to chemotherapy for patients and nursing consultation to those in need of assistance with their aftercare.

Now a four-year colon cancer survivor, Sharon's life philosophy is simple: "live everyday to the fullest, and don't save for tomorrow what you can do today." Ozzy and Sharon Osbourne are featured on the cover of the February 2007 issue of Hello! magazine.

Stress: free self hypnosis CD for cancer patients, caregivers

In Letting it all out might increase chances of cancer survivorship, we shared that finding techniques to minimize stress is an effective way to better health. Our focus in that post was journaling and talk therapy as a means to expressing thoughts and feelings, rather than stuffing your emotions and keeping it all inside. According to the experts featured in that post, "It's about the link between the mind and the body and how your mind state can affect the disease state in the body."

In addition to journaling and talk therapy, cancer centers are offering cancer patients and caregivers self hypnosis techniques to help reduce stress as a part of an overall cancer treatment program. M.D. Anderson Cancer Center's social work supervisor Aida Molano, who has taught hypnosis and self-hypnosis classes at the center for the last 16 years, is offering a 30-minute self-hypnosis CD online as a free download.

According to Molano, hypnosis can help patients and caregivers offset sleeping difficulties, fear of medical procedures, problems concentrating, pain and fatigue using hypnosis techniques. If interested, by clicking on this link, you can download the free 30-minute self-hypnosis CD.

Coping with cancer during the holidays

I was diagnosed with cancer on my thirty-first birthday, December 18th, 2001, five years ago today. Those diagnosed with cancer might be receiving a diagnosis at this time, undergoing treatment or they even might be finished treatment and are on there way to starting their new normal life.

Whatever the case may be, dealing with cancer during the holidays can be rough. Emotionally speaking, it can be very hard to get in the mood and be joyous over the holiday season. Activities like shopping, social events, family gatherings and traveling can lead to high levels of physical effort and stress.

Sometimes it might seem so much easier to avoid social gatherings all together. Remember though, that family and friends are there to encourage and be supportive. It can be hard when you keep hearing how great you look, when you feel like it is not the truth. I believe that those that make that comment really do mean it. When your diagnosed with cancer I think people expect you to look a wreak! Usually that is not the case.

The holiday season could cause some thoughts to creep into your mind--Is this my last year to celebrate with my family? At this time of year it is common for those diagnosed with cancer to think about the future. Its OK to have those what if? questions. Its not negative thinking. Its normal. There is not one best way to deal with these thoughts or anxiety attacks you might be experiencing. Relaxation techniques can help and sometimes anti-anxiety medications can do the trick.

If you are feeling fatigued, let your family know this so they can help. Don't push yourself to do what you have always done in past years, be comfortable with yourself doing less. Set some clear priorities, things you think are most important that you want to accomplish. Always tell your oncologist or another physician how you are feeling. Tell the truth. Don't try and be brave. There are certain medications that can be administered if you are experiencing fatigue that developed from anemia, a common side effect from chemotherapy.

For me this holiday season is a special one. I'm so thrilled to be celebrating the five year milestone of survivorship along with my birthday. I'm so happy to be alive!

Happy Holidays!!

Cancer survivor receives extreme makeover -- tonight

Tonight at 8:00 PM on ABC's Extreme Makeover: Home Edition, television viewers get to witness the week-long renovation of a 135-year-old farmhouse belonging to 26-year-old Shawna Farina and her three children.

It's not just the powerful makeover of this drafty Indiana house that makes for a touching story. It's the fact that Farina has been surviving breast cancer for the past 18 months, raising three children, working, raising money, and organizing her local American Cancer Society Relay For Life walks -- while living in an old, drafty farmhouse -- that makes this story truly inspirational.

Inspired by her mother, who was diagnosed with breast cancer when she was a child, Farina became involved with Relay For Life -- a yearly, overnight event held in more than 4,700 communities to celebrate cancer survivorship. And now, in tandem with Farina's extreme makeover, volunteers from 18 different Relay for Life events across southern Indiana have been honoring Farina through Extreme Relay For Life events consisting of five back-to-back 24-hour relays. More than 5,000 people and the cast of crew of the Extreme Makeover: Home Edition participated while construction took place on Farina's house.

It all unfolds this evening -- the story of one courageous young woman raising awareness about breast cancer in the midst of her own battle. And the story of one dedicated bunch of supporters who are building her spirit -- and rebuilding her home.

5 ways to create hope during breast cancer struggle to survive

Almost five years later, the memory is still as vivid as if it were happening now as I tell you that while showering, I discovered a lump in my breast. My hand stopped, my breath caught, and my stomach clenched in terror. Instinctively, I knew I was in trouble. After mammogram, ultrasound, biopsy and the first of three surgeries, the diagnosis of breast cancer was not the most optimistic one. My lobular breast cancer had spread beyond the breast into lymph nodes -- and perhaps elsewhere not yet clearly detected.

I would spend the next four years peering over my shoulder, wondering if the shadow of death would visit me with another cancer diagnosis, and if so, where would it settle in this time. If I ate pizza topped with jalapenos for that extra kick of flavor and got a stomach ache, I wondered -- had cancer spread to my liver? If I spent a day met with seemingly endless frustrations and annoyances and got a headache -- had the cancer spread to my brain?

While there is nothing rational about these leaps to a cancer conclusion based on evidence suggesting I suffered from logically explainable modern life maladies that antacid or aspirin might easily cure, for the newly-diagnosed surviving breast cancer, it is not uncommon for the mind to immediately race to an impending cancer-based doom for every day aches and pains. I am here to tell you that for the first few years it will be quite normal to have totally unreasonable fears.

Not willing to subject myself to this screeching fingernails on the blackboard fear without finding something to muffle the sound, I began creating personal rituals that suggested hope and affirmed life. With each one I was stating the value of my life and staking my claim to my future. For each woman, the personal rituals will be different. Here are a few I created that might give you some ideas for your own:

Continue reading 5 ways to create hope during breast cancer struggle to survive

Survivor Spotlight: Jennifer Matherly inspires with grace

Jennifer Matherly is a 27-year-old wife, mother, daughter, sister, insurance broker, student, and friend. She is also a breast cancer survivor. Jennifer, who lives in Columbus, Ohio, enjoys golfing, watching football, and spending time with friends and family. She doesn't have much free time lately -- but when she finds moments all to herself, she tends to her hobbies which include cross-stitching and working on her blog.

Jennifer's blog began as a story about her journey to motherhood. It turned into a story about her journey with breast cancer. It's an inspiring read, full of trials and triumphs. It's a testament to her strength and courage and sheer determination. It's a story of survivorship -- a little something like what follows.

Continue reading Survivor Spotlight: Jennifer Matherly inspires with grace

Survivor Spotlight: Amy Wilson's breast cancer battle ends

In July 2005, Amy Wilson was diagnosed with breast cancer. In the months that followed, Amy endured a lumpectomy, a mastectomy, reconstruction, and chemotherapy. In January 2006, Amy's treatment ended. And she set off on a journey of survivorship.

In August 2006, Amy found out her cancer had spread to her brain and lungs. Her doctors gave her two to 12 months to live. On Thursday, October 5, 2006, Amy died. She was 35 years old.

Amy became my friend shortly after her original diagnosis and eight months after my own breast cancer diagnosis. A mutual friend brought us together and for a little more than one year, we shared a rich connection, cemented in shared struggles and victories. Through phone conversations and e-mail exchanges and cards and gifts sent through the mail, Amy and I shared a special friendship. But I never looked Amy in the eye, never offered her a hug, never met her husband and children. I knew her only from a distance. Still, our partnership was powerful. It was comforting. And sadly, it is over.

Our same mutual friend called me Friday morning to tell me Amy had passed away -- a mere 15 months after her battle began, three months shy of the end-of-treatment anniversary she happily anticipated, five years from the age of 40 -- the age she had determined would mark her first true survivor milestone.

I miss Amy. I miss the pieces of hope that vanished with her death. I miss that I never met her, never hugged her, never said goodbye.

Amy, whose journey was chronicled in her local Ohio newspaper, is survived by her husband, her two children -- Luke, age five and Ella, age two -- and among others, her mother, who is currently fighting her own breast cancer battle.

Survivor Spotlight: Every moment matters for Kim Taylor

Kim Taylor is a 45-year-old single mother who lives in Suwannee County, Florida and is proud to have successfully raised one daughter -- a graduate of the University of Florida. Kim enjoys outdoor activities like camping as well as sewing, crafting, and carpentry projects. She is most at peace spending time with her family, working as a youth volunteer -- and raising awareness for breast cancer. It's a interest she acquired just two years ago, compliments of a personal encounter with the disease that has taught her to let the little things go, to appreciate every sunrise, to make every moment matter.

Continue reading Survivor Spotlight: Every moment matters for Kim Taylor

Survivor Spotlight: Adriene Hughes survives with style

Adriene Hughes was diagnosed with breast cancer shortly after her 44th year of living. She found her lump after participating in a 5K walk, which for some reason, caused her breast to swell. The swelling led her to the lump -- and that's how she discovered her cancer. Adriene lives in Southern California, works as a media specialist, and spends her time taking photographs, knitting, and baking cookies and breads.

I have never met Adriene, have never spoken with Adriene. But we have communicated through our on-line journals and through e-mail ever since November 2004 -- when we each received a breast cancer diagnosis that changed the course of our lives forever.

Adriene is a gem, a treasure, a true inspiration. And here are her words.

Continue reading Survivor Spotlight: Adriene Hughes survives with style

Celebrity ducks tips for mom Project Pink sweepstakes

Munchkin, a company offering infant and toddler products that excite, delight and make life easier for mothers and fathers, has launched the Project Pink campaign to support mothers in their fight against breast cancer.

"One out of every eight women faces the risk of breast cancer in her lifetime, and I know from personal experience that the disease can strike even young mothers with no family history of breast cancer, as it did my wife last year," said Doug Gillespie, Vice President of Marketing at Munchkin, Inc. "Munchkin is determined to do what we can to offer a helpful resource to the amazing moms who continue to nurture their families while they battle this disease."

On the special Project Pink area of the company website, you can read tips and stories from mothers facing breast cancer; order a limited edition pink duck; send a pink ducky eCard; enter the Project Pink sweepstakes to win a family vacation and view the celebrity decorated ducks for auction.

Beginning October 2nd, charity auction bidding begins on the fabulous pink ducks glamourously decorated by eBay President and CEO Meg Whitman, Former First Lady Barbara Bush; ABC's Dancing with the Stars Stacy Keibler; West Wing Emmy Award winner Allison Janney; Martin Sheen; Access Hollywood Nancy O'Dell; singer Patti LaBelle; actress Reese Witherspoon; Curb Your Enthusiasm Cheryl Hines and everyone's favorite actor who has gone where no man has gone before William Shatner.

Munchkin has invited women to share tips and stories to help mothers in facing the struggles of breast cancer. The advice is practical and real. A sampling of suggestions include:
  • Kathy of Pittsburgh, PA advises, "Get meals brought in by anyone who offers even if you don't think they can cook!"
  • Christina N. of Boston, MA advises, "Don't be afraid to have the kids see you bald or sick. You're better off talking it through than having the kids be horrified and not telling you."
  • Jen G of Des Moines, IA shares, "We had a pajama party for my mother to lift her and our spirits. We even danced to the Time Warp, wore funny hats, ordered pizza, and drank wine."
While visiting Munchkin's Project Pink, enter to win a free family vacation to Los Angeles. No purchase necessary to enter to win.

AOL Think Pink! celebrates breast cancer survivors

As women facing the challenges of a breast cancer diagnosis and the triumphs of living beyond breast cancer, we share our stories and ourselves in the hope that it will help other women facing the same challenges in the fight to survive breast cancer and the special issues of breast cancer survivorship.

Beginning today, and lasting through October, AOL People Connection's Think Pink! will be featuring breast cancer prevention, diagnosis, treatment and survivorship resources within a dynamic interactive online community for women to learn about breast cancer, share their breast cancer story and make connections with other breast cancer survivors.

When you visit Think Pink! you will discover a blog featuring personal stories of breast cancer survivors told in their own words; a gallery of inspirational photos submitted by women going through breast cancer treatment and women who are living beyond breast cancer; articles and educational information about breast cancer; special profiles of breast cancer survivors; shop for a cause pink products; how to join a letter writing campaign to increase federal funding for breast cancer research and enhance the involvement and influence of trained breast cancer consumer advocates in all aspects of breast cancer policy and research; sign up for a breast check monthly reminder; learn about ongoing breast cancer events; and more.

While there, you are invited to share your story, submit a photo, start your own blog or create an AIM page.

Prostate Cancer: interactive web tool for men

The Prostate Cancer Research Foundation of Canada has launched an interactive web resource to assist men in facing prostate cancer and in finding answers regarding prostate cancer diagnosis, treatment and survivorship.

Called Prostate Cancer Assessment Tools (PCATs), each of the 12 PCATs provides individualized information that will help each man better understand prostate cancer.

A sampling of the PCATs are as follows:
  • Based on age, PSA, percentage of free PSA, and DRE findings what is the likelihood that I have cancer, if a biopsy is performed?
  • Based on the characteristics of my cancer, what is the likelihood that the Gleason sum found on biopsy is higher than the Gleason sum on final pathology, when the prostate is removed?
  • Based on the characteristics of my cancer, what is the likelihood that the cancer has spread beyond the capsule of the prostate?
  • Based on my PSA, cancer stage at DRE, biopsy Gleason sum, the cumulative length (mm) of cancer on all biopsy cores and on the percentage of positive cores, what is the likelihood that my cancer is clinically significant (i.e., one that may kill)?
  • Based on my cancer characteristics what is the likelihood that my cancer represents a (TZ) transition zone cancer?
  • Based on the characteristics of my cancer, what is the likelihood that my PSA will increase and indicate a relapse of my prostate cancer after radical prostatectomy?
To learn more, and to make use of this interactive tool, visit the Prostate Owners Manual.

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