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Posts with tag teen

Losing a child to cancer: Its like a scab

We have written here at the cancer blog about Courtney Nicole a few times. You can find posts here and here. Courtney passed way about eight months ago. Her mom still keeps a journal of what is going on in her life and how she is coping with the loss of her nineteen year old daughter.

I find myself going to her site often to see how she is doing. It is heartbreaking to read her words at times and encouraging at other times. She is trying to go on -- but how, without her daughter?

Recently, Court's mom posted Its Like a Scab! on her website. Here's what she said:

Continue reading Losing a child to cancer: Its like a scab

Obesity and young patients diagnosed with leukemia

Young patients that are diagnosed with a form of leukemia called acute lymphoblastic leukemia (ALL) are at an increased risk of relapse if they have a high body mass index at the time of diagnosis.

Dr. Anna M. Butturini, lead investigator of a study that reported the findings, said "Obesity is associated with lower probability of cure in pre-adolescents and teenagers with ALL. A current analysis suggests that the same is true for adults with the same disease".

Dr. Butturini thinks that there is a need for better understanding of why obese patients have an increased risk of relapse. If this is found out, then better therapies for these young patients could be potentially designed.

Ozzy's son Jack Osbourne blames father and cancer for drug problems

Jack Osbourne, son of rock legend Ozzy and colon cancer survivor Sharon Osbourne, recently stated that he blames his alcohol and drug addiction on his father. During his mother Sharon's diagnosis and treatment for colon cancer, the young Jack used alcohol and the powerfully addictive prescription painkiller OxyContin as a way to cope.

Jack is quoted as saying, "My problems peaked when mom was sick and dad was dealing with his problems the same way as I was, by drinking, so I had no one to turn to. I was just hanging out with my crowd drinking and doing drugs." Jack ended up in an addiction rehab clinic to get clean and sober.

This is no way excuses the badly-decided choices that Jack made when he turned to alcohol and drugs as a way to cope with his feelings, but there is a sharp focus and more than a bit of snarkiness to the news reports concerning Jack's blaming comment that misses a great opportunity in regard to discussing the impact a parent's cancer diagnosis has on children.

As the American Cancer Society (ACS) states, "Families face many complex issues when one of their members has cancer. There will probably be a time during a family's experience with cancer when psychosocial support services will be helpful in meeting the emotional needs of the family. There are teams of experts, each with a different focus, who offer support and are trained in how cancer affects a family." ACS offers a terrific resource for the family with the online publication of Helping Children When A Family Member Has Cancer.

The Family Doctor states, "Every person has a different way of handling news that a loved one has cancer. Many people react with shock, disbelief and even anger when they're first given the news." The Family Doctor's Cancer: Helping Your Family Help You offers advice on different questions a parent might have, such as:
  • How will my family react to the news that I have cancer?
  • Should I tell my children that I have cancer?
  • How do I tell my children that I have cancer?
  • How can I help my children cope with their feelings?
In 2002, when I drove home after being told I had cancer, I wondered and worried about how I was going to tell my children, how I could avoid the unavoidable shattering of innocence in their world, how to protect them from their own fear and pain? I sat outside in the car, trying to stare through the walls of our home, knowing that in the next five minutes I would be changing our lives forever with the news of my cancer diagnosis. I wanted to freeze time, to save the innocence, to keep the awful news from being true.

In the ACS online resource for families, it states, "Parents can have a powerful effect on how their children react to a crisis in the family. In the beginning this responsibility can feel like a huge weight, but it is possible for family members to learn how to deal with and even grow through the experience of having cancer in the family."

Support services can include individual counseling, family counseling, and support groups. If you do not know where to start, ask your physician or call the local hospital or local ACS office. Someone will be able to help you help your children, and all family members, navigate through the crisis of cancer, so that everyone becomes a survivor of cancer in the best way possible.

Adam Sandler, student, and a PS3 help brother and sister with cancer

It is the truest spirit of giving in a story told the day after the most celebrated day of giving in a season of giving, where lives intersect in unexpected ways that remind us of the best in who we are as human beings.

A brother and sister, 15-year-old Stephanie and 18-year-old Kevin Hudon, are both facing cancer. Stephanie's bone cancer has spread to her lungs and her brother is currently undergoing chemotherapy for Hodgkin's lymphoma.

A teacher at the high school both Stephanie and Kevin attend, Christine Monahan, had been spearheading a fundraiser to financially help the family through this overwhelming time. Last month, Nathan Burditt, a student who attends the same high school, spent 34 hours in line to buy the coveted and hard-to-come-by PlayStation 3. Monahan said she was kidding when she suggested to Burditt that he donate the newly-acquired gaming system to a raffle to help the Hudon family.

But Burditt took her seriously and donated the popular PlayStation 3. The PlayStation 3, one of the it gaming systems this year, attracted $21,000 dollars in raffle ticket sales. Before the PlayStation 3, Monahan had expected to raise $500 dollars during the raffle. Ticket buyers to the raffle, knowing of Burditt's unselfish act of compassionate charity, wrote his name, not their own, on the raffle tickets they bought. Because of this, Burditt won back the PlayStation 3 he had donated.

The simple acts of kindness for a brother and sister struggling to survive cancer made national news. Enter comedic actor Adam Sandler. Upon hearing about Stephanie and Kevin, Sandler sent a PlayStation 3 loaded with games, signed DVDs, jerseys and an autographed Longest Yard poster to them to help make their Christmas a little more joyful.

Meanwhile, Burditt, who has won the PlayStation 3 in the raffle he donated it to, wanted to turn around and sell it to make even more money for the Hudon family. Everyone is telling the young man he has done so much more than anyone ever expected from any one person that he should keep it now. The raffle ticket buyers wanted him to own it after he so willingly gave it up to help someone he did not even know. It is reported that Monahan is keeping the gaming system boxed at her house until Burditt makes a decision on whether he will accept it for himself, or to what purpose he intends on using it to help again.

When someone is diagnosed with cancer, I believe each of us holds the secret wish that we could make the cancer go away. But we know we cannot, and yet we want to do everything we can do for them. Easing the journey, with a donation of time or money is one way, as is filling the life of a cancer patient with as much joy and laughter as possible, and if it distracts them from the current reality, all the better. Burditt, Monahan and Sandler did just that for Stephanie and Kevin Hudon of Manchester.

Kylie Minogue: voted most inspirational for young women

By popular vote, Australia's beloved pop diva and breast cancer survivor has been chosen as the most inspirational celebrity of 2006. Sugar magazine teen readers indicated that Minogue represents their first choice as an inspirational role model for young women.

From the beginning of her breast cancer diagnosis, Minogue has shared her very personal battle with breast cancer in a very public way, raising awareness for the disease among a younger generation of women whose attention to breast health might not have been as focused otherwise.

Earlier this month, Minogue was named the Gold Choice Celebrity of the Year in the Sydney Confidential People's Choice Awards by Australia's Daily Telegraph readers.


For a retrospective of Kylie Minogue's breast cancer journey:

I'm Too Young For This! teens and young adults with cancer

I'm Too Young For This! (i2y) is a recently launched portal for adolescent and young adult (AYA) cancer survivors. Featured i2y resources and support services include survivor spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, and financial scholarships.

"The i2y website is primed to become a premiere online resource for AYAs with cancer by eliminating the stress and hassle of navigating through thousands of search engine results," said Matthew Zachary, founder and executive director of Steps For Living and an 11-year young adult survivor of pediatric brain cancer. "Our goal to make I'm Too Young For This! the first place adolescents and young adults with cancer think of to go when in search of credible, targeted support programs, tools and services."

"This website is just what the doctor ordered. Now, with the click of a mouse, they can instantly connect with a universe of others just like them." Doug Ulman, Chief Mission Officer for the Lance Armstrong Foundation and a 10-year young adult survivor says, "We are pleased that Steps For Living is dedicated to making a difference in cancer advocacy for this community."

To raise awareness for the i2y organization, the AYA Steps For Living musician/cancer survivors have released a 21-track benefit CD featuring their original songs and music. You can listen to the playlist here. Included in the album is an i2y online resource guide.

The tagline of i2y reads: Got Cancer? Under 40? Sucks, huh? Get Busy Living. Indeed, if you are between the ages of 15-39, i2y is a destination meant just for you. If you are a caregiver or friend of a teen or young adult who is facing the challenges of cancer survivorship, let them know about i2y. This is a phenomenal group of artists, musicians, writers and photographers who, as young adult cancer survivors, got busy living. Visit I'm Too Young For This! to learn more.

Obesity: stomach stapling for children

Stapling the stomach of an obese child is a last resort, but the National Institute for Health and Clinical Excellence (NICE) has issued a stamp of approval for bariatric surgery as part of a national guideline aimed at reducing obesity in children and minimizing the long-term adverse health effects that being overweight has on health.

This is the NICE organization's effort to find solutions to England's rising obesity epidemic where the number of overweight and obese people in the last quarter century has tripled.

Stomach stapling is not the only solution, but it is now an approved option. Other recommendations include the following: local authorities working with local partners, such as industry and voluntary organizations, to create safe spaces for physical activity; providing cycling and walking routes, cycle parking, area maps and safe play areas; creating pedestrian-friendly streets; designing building and spaces to encourage more physical activity; requiring schools to provide an environment that promotes healthy eating and physical exercise; healthcare professionals taking the time to educate and give advice on how to maintain a healthy weight; raising public awareness and encouraging daily physical activities such as walking, cycling, swimming, aerobics or gardening.

Obesity cannot go unchecked and it is a threat to the health and welfare of children and adults alike, as obesity is linked to greater increased risks for a number of life-threatening diseases like heart disease, diabetes and cancer. But, it is uncomfortable to think that one of the solutions to childhood obesity is a scalpel. The NICE press release New NICE guideline calls for urgent action to stem the rising tide of obesity in England and Wales is available as a pdf document here.

Teen given massive overdoses of radiation treatment has died

In January of this year, 15 year-old Lisa Norris, from Girvan in Ayrshire, received massive overdoses of radiation while being treated for a brain tumor at the Beatson Oncology Centre in Glasgow. Determined to be caused by human error, the 17 overdoses caused severe pain with burns and blisters on the back of her head, neck and ears.

Lisa was initially diagnosed with a brain tumor in October last year. At the same time the staff told her of the overdosing error, they also told her that her tumor was gone. Extensive oxygen treatment was given to attempt to offset the damage done by the overdosing of radiation.

According to the BBC News report, Lisa has died. At this time, the cause is not known.

Our heartfelt condolences go out to the Harris family for their loss and for the terrible experiences Lisa suffered during treatment for cancer. Her parents are quoted as saying, ""She was determined not to give up her fight and she stayed fighting until the end. She was our inspiration. She kept us going in many ways. Lisa will remain in our family's hearts forever, she was a very special girl."

In a video interview recorded in February, Lisa spoke about her ordeal and her fears.

Teen diagnosed with indigestion dies of stomach cancer

In a tragic event of unfortunate misdiagnosis, The Daily Mail is reporting that teen Stacey Stephenson died of stomach cancer after repeatedly being diagnosed with acid indigestion. At the beginning of summer, Stephenson began having digestive problems related to eating. When she visited the doctor, she was told she suffered from acid indigestion and given a prescription to combat acid indigestion.

However, several weeks later, when the young woman of 19 noticed her symptoms had not improved, she returned to see the doctor again. Again, she was told she suffered from acid indigestion. Shortly after, she went with friends to Greece on holiday. During holiday in Greece, the stomach pain became severe and she sought medical attention. An X-ray revealed a stomach tumor and this is when her stomach cancer diagnosis was made. Her family came to Greece to bring her home to England.

Once home, Stephenson was admitted to hospital and scheduled to undergo chemotherapy, but she became so weak from chemotherapy-induced kidney failure that she passed away in the hospital. Obviously, the doctors who initially saw this young woman dropped the ball when it came to following up on the potential causes of her stomach ailments. She was responsible about her health and sought medical attention for her stomach problems.

But so many of us dismiss acid indigestion and digestive problems as an after-effect of our modern diet and the stressors of every day living. We do not always take these symptoms seriously -- and we should. For more information on indigestion, visit the Medline Plus indigestion webpage.

Our sympathies go out to the Stephenson family for the shocking and sudden loss of their daughter.

Court rules in favor of teen Hodgkin's patient

Starchild Abraham Cherrix, a 16-year-old cancer patient who is battling Hodgkin's disease ended his legal fight with a victory Wednesday when his family's attorneys and social services officials reached an agreement that would allow him to forgo chemotherapy.

Cherrix who has struggled with the disease once before and having it reoccur, decided he wanted to take an alternative healing method to treat the disease the second time around. Social service officials fought that decision.

Under the court ruling, Cherrix will be treated by an oncologist of his choice who is board-certified in radiation therapy and interested in alternative treatments. The family must provide the court updates on Abraham's treatment and condition every three months until he's cured or turns 18. Cherrix is still on the Hoxsey method, an herbal treatment that is illegal in the United States but can be obtained through clinics in Mexico, but the family hasn't ruled out other possible treatments, such as immunotherapy or radiation treatment in small doses.

Guns N' Roses Axl Rose visits teen cancer charity

After completing the Guns n' Roses European tour singer Axl Rose made a surprise visit to the Teenage Cancer Trust Ward at the University College Hospital in London. It is reported that he thrilled the teen cancer patients with his visit.

Teenage Cancer Trust Ward CEO Simon Davies is quoted as saying, "Axl spent time speaking with each of the patients individually asking about their diagnosis and treatment, and what they enjoyed doing when they were not in hospital. Speaking with patients after Axl's visit, I got a real sense of just how excited they were to have met him and how much it lifted their spirits."

The Teenage Cancer Trust provides services, education and support for the special age-related needs of teens diagnosed with cancer. The teen cancer charity hosts Teenage Cancer Trust Challenges such as the Roof of the World Trek - Tibet to Everest Base Camp and Trekking the Deserts and Dunes of Southern Morocco adventures as an escape and way to raise funds for the charity; The Teenage Cancer Trust Find Your Sense of Tumour weekend conferences; and the annual Teenage Cancer Trust week of rock shows at the Royal Albert Hall featuring great acts like The Who, Bloc Party and Razorlight.

Hooters: $1 million in honor of calendar girl Kelly Jo Dowd

To honor and support former 1995 Hooters Calendar Cover Girl, Kelly Jo Dowd, who is battling a recurrence of breast cancer that has spread to her organs and bones -- during the 10th Annual Hooters International Swimsuit Pageant in Las Vegas, Hooters gave her a check for $135,000 and announced a $1 million dollar breast cancer research grant in her name through the V Foundation for Cancer Research.

Dowd, who is 40, successfully went into remission the first time she was diagnosed with breast cancer, only to have the cancer return, is the only woman to climb Hooters restaurant chain's corporate ladder from waitress, to manager, and to general manager. She is also the proud mother of golfing teen phenom Dakoda Dowd.

The V Foundation was launched during the last year of NC State basketball coach and ESPN broadcaster Jim Valvano's life, when he was diagnosed with metastatic adenocarcinoma, and told he had a year to live. He spent the last year as an advocate in raising cancer awareness by sharing his personal experience as someone facing life and death with cancer. Valvano's message in the fight against cancer was "Don't Give Up ... Don't Ever Give Up!"

Dowd is fighting for her life, and Hooters has stepped in to help her, and other women facing breast cancer and fighting for their lives, in never giving up in the battle.

Sexual predator uses chat room cancer story to lure young girl

When you are in a chat room, belong to an email discussion list, or for that matter, read a blog, you cannot be certain all of the time the other person is who they are representing themselves to be, and on some occasions, they are frauds with evil intent.

When it comes to blogs in the cancer community, given time in reading the blog, I have found most people are who they say they are -- but when it comes to chat rooms, there is a higher probability that the identity of the participant could be different than the person is in real life.

In Leeds Today, a news story has been published exposing a pervert who pretended to be a boy named Ricky with cancer, for the purposes of luring a teenage girl into a sexual encounter. Ricky was really a 45-year-old married man named Glen Marwood. But the 17-year-old girl believed his chat room story and began to offer emotional support and encouragement as Ricky went through cancer treatment. She became attached to Ricky and felt the relationship was developing romantically. Which is what Marwood was hoping and had planned.

Continue reading Sexual predator uses chat room cancer story to lure young girl

Teen chooses happiness when faced with a life threatening illness

Once in a while you come across a person that you feel has something extra special. Madeline T. Paguyo was one of those people. She was only a young teen when she was diagnosed with a brain tumor, diffuse pontine glioma. Maddie was diagnosed April 28th, 2003 and she passed away May 6, 2004

I came across her webpage one day and was so inspired by how mature and wise Maddie was for her young age. Maddie's mom still blogs about her amazing family and how they are coping with losing a precious daughter and loving sister.

Maddie's mom tells us in her blog "Frequently I find myself browsing (Maddie's) library researching how to successfully navigate through life. Maddie did it so well. She exuded true joy and generously shared it with everyone she could. When confronted, at such a young age, with the biggest challenge anyone can imagine, she stared it right in the eyes, told the tumor to take a hike, and chose happiness. Simple as that. She chose to live, and every one of us who were privileged by her presence in our lives lived right along with her, learning from her example."

Maddie wrote an essay for her eighth grade class that takes you through her experience.

Continue reading Teen chooses happiness when faced with a life threatening illness

Ralph Ginzburg: sex art erotica publisher dies of cancer

Ralph Ginzburg, American author, editor, publisher, photojournalist and outspoken advocate of free speech, has died after battling multiple myeloma. According to the Washington Post, among his supporters were playwright Arthur Miller, journalist I.F. Stone and attorney Melvin Belli.

While Ginzburg earned a degree in accounting, it was journalism that he pursued as a career, working for Esquire magazine, NBC, Reader's Digest, Collier's, LOOK -- and was known for his unorthodox methods of using disguises including that of a clergyman to gain entrance to news events. Ginzburg's first publication was An Unhurried View of Erotica, which explored the undercurrent of pornography in English literature. He went on to publish Eros, a periodical containing articles and photo-essays on love and sex, and later still The Housewife's Handbook on Selective Promiscuity. Ginzburg, self-described as a brandied fruitcake of a publisher, was convicted in 1963 for violating federal obscenity laws for promotional activities in publishing books and magazines on erotica and art.

In 1962, Ginzburg was granted an exclusive interview with 17-year-old Bobby Fischer, Portrait of a Genius As a Young Chess Master published by Harpers. According to all accounts, the interview of the reclusive chess genius is still a popular read today. Ginzburg was 76.

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