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Posts with tag telephone

Sunday Seven: Seven thoughts on coordinating cancer care

Nearly half of all cancer patients and others in their households have trouble coordinating cancer care, according to a recent public health poll.

Many who participated in a recent telephone poll revealed they were confused about prescriptions, were sent for duplicate tests, and received conflicting information about their treatment plans.

Experts say choreographing care is one of the most important challenges in the world of cancer. Navigating the maze of medical madness can be emotionally draining and can even hurt a patient's chance of recovery.

Now is the time to become advocates for our own health -- before we are left behind. So get ready to take charge -- and consider these seven thoughts on actively coordinating your own cancer care.
  • Today, cancer patients spend more time at home and not in hospitals like they did generations ago. This leaves them to manage much of their care on their own -- often a monumental and overwhelming task. Patients, or a designated friend of family member, should document every tidbit of medical information, including names, phone numbers, medical records, instructions, medications, dosages, appointments, questions, responses, and more. Jot down symptoms and worries and concerns. File away pamphlets and handouts and bills and receipts. Don't count on memory alone to provide all the details. Allow for back-ups. They will serve you well.
  • Most cancer patients need a whole team of doctors -- radiologists, pathologists, medical oncologists, radiation oncologists, surgeons -- but each doctor may handle only one aspect of care while no one runs the show. It's the perfect scenario for disrupted and piecemeal care, says one doctor. Consider searching for comprehensive cancer centers where a variety of professionals are housed under one roof and patients can often meet with all their doctors at one time. Currently, only about 10 percent of cancer patients are seen at this type of large center.
  • Many doctors are stuck in electronic gridlock because doctors in one building may be unable to access the records of doctors in other locations due to incompatible computer systems or paper charts. Patient advocates say all patients should have easily accessible electronic medical records. One cancer center hopes to start a program that would allow for storage of patient records on small, portable USB flash drives. Patients would keep the drives and could plug them in at home or at their doctor's office.
  • Cancer patients often suffer from lack of information. Long-term survivors, for example, often have trouble recalling exactly what was done to them. And over time, doctors may relocate or pass away, leaving survivors with little to reconstruct their journeys.
  • Shortly after diagnosis, patients should request from their doctors a care plan -- an outline of how doctors plan to treat their cancers.
  • Patients should also receive a treatment summary at the end of therapy. This should outline all surgeries, chemotherapy, radiation, medications, and dosages.
  • A plan for ongoing care should be offered to all cancer patients so they know how to monitor their health. This plan should include guidance on screening tests, follow-up visits, and potential long-term side effects.
"A lot of anxiety results from not knowing what comes next", says one patient advocate. "People armed with good information tend to make better decisions."

Quit to Live: ABC News special series in helping smokers quit

ABC World News Tonight partnered with the Centers for Disease Control and Prevention, the National Cancer Institute and the North American Quitline Consortium to present a special series Quit to Live. According to statistics, approximately 440,000 Americans will die from smoking-related illnesses this year. A more encouraging statistic is while there are 46 million smokers, for the first time, there are more ex-smokers than smokers.

The Quit to Live series is a comprehensive resource for the 70 percent of smokers who have indicated they are interested in quitting. At Quit to Live, you can watch the complete special series coverage in video broadcast reports; watch broadcast plus exclusive web-only content; view the videoblogs of Tracy, Jose, Meg and Alyce; how to quit thinking about quitting and compare different methods and find groups that can help.

You can read ABC medical editor Dr. Tim Johnson and experts from the nation's leading cancer centers answers to questions about smoking at Ask Tim. In addition to original reports and reviewed resources, they offer community to connect with others. This week, ABC News revisited the Quit to Live special series on the anniversary of Peter Jennings death to lung cancer. Any smoker interested in quitting will find this special series of great value -- you might want to start by watching the video Expert Interview on How to Quit.

Cancer survivors teleconference on alternative therapies

Cancer Monthly will be hosting its first teleconference for cancer survivors to present information for patients and their family members on alternative therapies and integrative medicine. The free teleconference, which will take place on Thursday June 29, 2006 at 8:00 PM EST, will feature four cancer survivors as they share their experiences of using alternative and integrative therapies as part of cancer treatment and cancer survivorship. Three of the featured guest speakers will be:
  • Paul Kraus -- In 1997, Kraus was diagnosed with advanced peritoneal mesothelioma. He was sent home to die. He created his own alternative path to healing. Nine years later, he is enjoying a good quality of life.
  • Madeleen Herreshoff  -- In 1991, Herreshoff was diagnosed with aggressive poorly differentiated invasive breast cancer. Three years later, she had a local recurrence of her cancer. She blended mainstream and alternative therapies to create her own path to healing.
  • Ann Fonfa -- In 1993, Fonfa was diagnosed with invasive lobular breast cancer. She suffered recurrences from 1995 to 2001 with 25 tumors overall -- 14 of which appeared on the chest wall. She created her own path to healing, choosing a combination of chemical sensitivity/special needs and her own readings of research studies. Fonfa is also the webmistress of The Annie Appleseed Project.
If you are interested in participating in this free teleconference, the organizers of the event suggest you sign-up early as space is limited.

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